Our stories are real, raw, and rare. How many people do you know who have been shocked by a defibrillator? In their teens? While lip-syncing Celine Dion’s “All By Myself” on their high school stage? How many people do you know who have flown Miami to London to model their scars? Then accompanied that with an Instagram takeover in a HeartCharged cape and heels?

We (Bethany and Hannah) have stories that will make you cry and personalities that will make you laugh.

Hannah doesn’t just think she could have died but knows exactly when she would have without her implanted defibrillator. Bethany has a post entitled Swimsuits and Heart Screenings and a short take-off video on how she became a ‘Bionic Woman’.

We are informative and entertaining, bringing a serious matter to light in a lighthearted way.

We are 2 sisters (of 9 siblings) who were diagnosed in high school with the heart condition that kills thousands of young people in the US yearly without warning. We have hypertrophic cardiomyopathy, HCM, and, as it is asymptomatic, screening for it is about the only chance to survive an attack.

We are now in college. Our condition has treated us differently, but we are united in spreading our messages - of the urgent need for heart screenings for young people and of the support available for other young people facing such medical trials through our Instagram community @heartcharged.

Since being diagnosed, we have chosen to try and focus more on what we can do to make sure others do not die from this condition than being down in the dumps we have this diagnosis.

Invite us on your podcast. Find out what it’s like to have your whole life changed and your dreams cancelled and thank God for it each day. Find out who is banned from athletics and who is a dance major. Find out who has a wardrobe that totally shows off her defibrillator. Find out who is a film major. Find out how we as a community can join the fight to knock sudden cardiac deaths in the young down from 2,000 a year to 0.

We are polished speakers ready to share our inspiring stories. We’ve helped people accept lifesaving surgery, understand needed support, and find similarly-challenged friends. We can help more with your help. Let your audience hear about escaping death through detection, living joyfully with defibrillators, and saving lives in the future. Help bring awareness to a topic, cardiomyopathies in the young, that is most often unnoticed until it is too late. Let’s put something on the news besides death. Let’s talk about lifesaving measures. And have fun doing it.