When Joselin Linder was a teenager, her beloved dad, Dr William Linder, became mysteriously sick in his 40s.  His doctors, as well as medical professionals across the US and around the world, watched his body slowly decline.  But there were no answers.  By age 49, he was dead. 

One of the world’s leading genetics research teams - at the Seidman Lab at Harvard Medical School – discovered that Jos too had inherited the same genetic mutation that had not only killed her father, but five other members of her family.

For perhaps the first time in medical history, this population (known in scientific terms as a FOUNDER POPULATION) has been isolated and through the efforts (and immense sacrifices) of Jos and her family, the gene won’t be passed on to a 5th generation. 

But those living with the gene - including Jos and her sister Hilary - are still fighting to find a cure.

BUT BEFORE YOU GO…

Find out more about Jos here 

Find more about The Family Gene here

Follow Jos on Insta

Follow Jos on Twitter

Jos’ Article in The New York Times

Jos at TedX

Find out more about Tam here

Follow Tam on Insta

Follow BRAVE JOURNEYS on Insta

Join the conversation and chat about the episode here

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CREDITS:

Creator, Host & Executive Producer: Tammi Faraday

With thanks to my special guest: Joselin Linder

Audio Editor: Zoltan Fecso

With very special thanks to George Weinberg.

BRAVE JOURNEYS acknowledges the Traditional Owners of the Land we record this podcast on, the Yaluk-ut Weelam Clan of the Boon Wurrung who are part of the Kulin Nation. We pay our respect to their Elders, both past, present and emerging and extend that respect to all Aboriginal and Torres Strait Islander cultures.