Where do veteran advocates point people new to advocacy for skills, resources, and research? What are trusted resources? 15 interviews from Healthe Voices 22.

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Episode NotesPrefer to read, experience impaired hearing or deafness?Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript hereContents with Time-Stamped Headingsto listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)ProemPodcast intro 03:27Sue Rericha 04:00Sharnae Smith 04:33Christine Von RaesfeldHetlena Johnson 05:48Brooke Abbott 06:22Bethany Yeiser 07:41Michele Nadeem-Baker 08:59Jenna Green 10:50Kara Beck 12:15A word from our sponsor, Abridge 12:47Jasmin Pierre 13:30Alexis Newman 14:02Ryan Williams 14:43Andrew Schorr 16:04Howard Chang 17:45Rachel Star Withers 17:48Reflection 18:22Nuggets from the mine 19:55Podcast Outro 20:55

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CreditsIntro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger

Proem and Reflection music, Moe's Blues, played by the Joey van Leeuwen Band

Photo by Shane Rounce on Unsplash

Web and Social Media Coach Kayla Nelson @lifeoflesion

The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee.

Sponsored by AbridgeInspired by and grateful to Estela Mata, Sharnae 'Nae" Smith, Jim Snedden, Christine Von Raesfeld, Hetlena Johnson, Jason Crum, Jason Jepson, Brooke Abbott, Phyllisa DeRoze, Bethany Yaiser, Ken Taylor, Cindy Chmielewski, Jesus Guillen, Christopher Quibar, Stephanie Chuang, Michelle, Nadine Baker, Jenna Greene, Kara Beck, Jasmin Pierre, Sue Rericha, Alexis Newman, Ryan Williams, Sam Seavey, Andrew Shorr, Howard Chang, Rachel Star Withers

LinksRaw, unedited transcript of all responses to question #2

Healthe Voices website

Facebook

Bethany Yeiser CURESZ (Comprehensive Understanding via Research and Education in Schizophrenia). Mind Estranged: My Journey from Schizophrenia and Homelessness to Recovery Paperback – July 10, 2014

Lupus Foundation of America(LFA)

Hetlena Johnson's thelupusliar.com

@thejennagreen Instagram

Kara Beck @karabear_rny InstagramSchizophernia medication TAAR1 agonist

NAMI (National Association for Mental Illness)

Books on Alzheimer's by Ryan Williamspatient's story

Chronic Lymphocytic LeukemiaThe CLL Society

CLL Women Strong Kicking Cancer in Heels

National MS Society

Andrew Schorr Patient PowerNuggets from the MineKnowledge for Caregivers podcastRelated podcastshttps://health-hats.com/pod180/

https://health-hats.com/pod182/About the ShowWelcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this.

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