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Help 4 HD Live!Episodes
Help4HD
Help 4 HD Live!
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Meredith Patterson is a performing artist, author, and producer whose family was impacted by Huntington's Disease. To learn more about her, please visit her website: https://meredithpatterson.com/She also has a podcast called "Confessions of
Piere Rodriguez-Aliaga, PhD, is a young investigator whose current HD research is funded by the Hereditary Disease Foundation. He is using a new Nobel Prize-winning technology called Optical Tweezers to study one huntingtin molecule at a time,
Jennifer Petrillo Billet PhD is an Executive Director and Program Lead for investigational dalzanemdor, or SAGE-718, at Sage Therapeutics. She is responsible for driving the global development strategy, including delivery of the right evidence
Please visit the Factor-H website for more information.Please also tune in to the Factor-H YouTube Channel on Saturday 3/23/2024 at 12 pm EST for HD Gratitude Day events in Venezuela.
Samantha and I got to participate in a focus group together. Here our thoughts about research and more!!
HDYO Ambassadors Series: Ep 1. with Robyn
Happy 1st anniversary of the #HDUncut Series on #Help4HDLive! This show is exactly why I came up with the series in the first place. John Howard has Huntington's Disease. He's also a very talented poet. On this show, he shares some new poetry w
Happy Valentine's Day! Join Erika Boulavsky from HD Reach and Lauren Holder from Help 4 HD in their conversations with Dave and Susie Hodgson about their Layers of Love. Dave and Susie's unique story talks about caring for both of their spouses
To follow Tanita Allen, please visit her website: https://tanitaallen.com/Here is the link to purchase a copy of Tanita Allen's book: We Exist
Please visit the Hereditary Disease Foundation website to find out more information.
If you'd like to follow Charlotte on social media, please visit her website: https://linktr.ee/thehdhunInstagram handle - @thehdhunTikTok - Click Here
Jamie L. Hamilton, PhD, is the Director of Clinical Outcome Assessments at CHDI. She led the HD Charge study, which focused on the indirect costs associated with being affected by Huntington's Disease.
If you'd like to follow Christy on social media, you can find her here: Facebook - www.facebook.com/ChristyDearienInstagram - @christydearien
If you would like to send your resources and tips and tricks to Anna for our new database, please go to the Help 4 HD website - www.help4hd.org - go to Contact Us and submit. Anna is regularly checking submissions through the website. You can a
For more information about all that Help 4 HD is doing, please visit the website - www.help4hd.org
Coping During the Holidays with Melissa W.
Lauren shares her feelings about the holidays and her recent birthday.
Dr. Katja Obieglo joins Lauren to talk about the research Vico Therapeutics is doing. To learn more, please visit their website here.
Dr. Hett's research uses non-invasive MRI technology to investigate HD-related changes in the circulation of the fluid that bathes the nervous system, known as cerebrospinal fluid (CSF). By measuring the flow of CSF in people, Dr. Hett will att
If you'd like to learn more about HD-CAB, including how to become a member, please visit the website here.You can also contact Jenna Heilman at [email protected].
Rita Gandhy is a movement disorders neurologist and comes with over 4 years of experience at Roche/Genentech. Prior to her current work in USMA, Rita led the Study Review Team for a planned tominersen study in late onset Huntington's Disease, b
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