Bonus Alert until April 28: Check out the bonus 14 video replays from past summits that come with the Wholistic Healing Summit All-Access pass. https://lssupportnetwork.org/whsJoin us for this informative panel discussion on lichen sclerosis an

Rebuilding Relationships and Reconnecting with Lichen Sclerosus

7 days ago 23m 4s

Topics:What is the LSSN Wholistic Healing Summit?Importance of addressing relationships affected by Lichen Sclerosus (LS)Summit focus: Partners, Caregivers, and DisclosureSessions for patients, partners, and caregiversWellbeing activities for s

Unraveling The Hormone And Microbiome Puzzle In Lichen Sclerosus

Mar 1st, 2024 38m 1s

Hey friend! I recently had the pleasure of chatting with Dr. Melissa Mauskar, a true rockstar in the world of vulvar health research. She illuminated some fascinating new findings about the hormone and microbiome landscapes in lichen sclerosus.

Unlocking LS Wisdom: Exploring the Comprehensive Content of LSSN

Nov 27th, 2023 59m 49s

Get ready for a heart-pounding year-end review of the Lichen Sclerosis Support Network's incredible work. From informative videos to virtual meetups, they're empowering LS warriors like me. But just when everything seems perfect, a shocking rev

Why You Need to be at the LSSN Mini Summit

Sep 15th, 2023 30m 20s

Have you heard about the LSSN Mini Summit: Vulvovaginal Conditions? It’s our 3-day, 100% virtual event presented by medical experts on rarely discussed conditions, such as lichen sclerosus. You may be saying, I already have LS. Why do I need t

Find Your Power Through Pelvic Health with Wellness.By.Penny

Jun 23rd, 2023 25m 37s

In this episode, you will be able to: Explore the impact of holistic methods on pelvic health and wellness. Harness the strength of your pelvic area to alleviate pain. Foster a nurturing environment for individuals coping with pelvic p

The Challenges of Research with Sophie Rees

Jun 16th, 2023 1h 4m

In this podcast, Sophie Reese, an English researcher, discusses her work on the project Living with Vulva LS, a Mixed Method Study. She mentions the development of a checklist of diagnostic criteria to help health professionals diagnose LS accu

Listen to This If You're Looking For Evidence-based Information and Community

Apr 30th, 2023 12m 39s

When I started the podcast, I never imagined it would grow into something so much more - the Lichen Sclerosus Support Network and their annual (W)holistic Healing Summit. Now, every year, we strive to make a brighter tomorrow for those facing t

How steroids affect lichen sclerosus patients with Dr. Jill Krapf

Apr 24th, 2023 46m 10s

Join me in the second part of this conversation with Dr. Jill Krapf, LS specialist; researcher; author; and educator, about her research review, "Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics

Do you want to Get Your Sexy Back? You need this program.

Mar 31st, 2023 29m 24s

Has lichen sclerosus changed your sex life? Did you lose your self-confidence? Do you feel less at home in your body? Has your sexual identity been destroyed? Is your libido nonexistent? Like you have no desire for sex and intimacy? Here’s the

Demystifying steroid treatment for lichen sclerosus

Mar 17th, 2023 52m 19s

Join me as I talk to Dr. Jill Krapf, LS specialist; researcher; author; and educator, about all things steroids. What does it do to the skin? Why do we need it? And she answers some frequently heard steroid concerns. If you’re on the fence abou

Pain Relief Without Pills: Ashlie Crewe's Guide to Treating Persistent Pelvic Pain

Mar 2nd, 2023 54m 38s

Ashlie Crewe, a Physical Therapist with a Psychology degree, embarks on a journey to help patients manage their chronic pain using neuroscience, only to find her own trial by fire as she discovers a unique way to challenge a patient's overprote

Dr. Rachel Rubin: Unlocking Clitoral Fusing Through Non-surgical Lysis

Feb 15th, 2023 49m 17s

In this podcast episode, Dr. Rachel Rubin sheds light on the startling truth that 23% of all women suffer from Clitoral Adhesions and how her innovative stretching procedure has resulted in a 76% decrease in pain and a 64% increase in orgasm ra

Struggling with Stress and LS? You need to hear this!

Jun 14th, 2022 28m 39s

Hey! Welcome! I'm on a bit of a hiatus with Podcast as I build out Lichen Sclerosus Support Network, but, when my girl Jaclyn from The Lost Labia Chronicles told me about her latest project, I was like, "girl, we need to make a podcast episode

Bonus

Is Somatic Sex Education for YOU?

May 3rd, 2022 26m 38s

Today we talk to Shauna Farabaugh, a somatic sex educator about how it can help us have a sexual rebirth. Shauna is one of our Holistic Healing Summit speakers. We hope you can join us. With over 30 sessions dedicated to approaching LS from a w

Unravelling 9 Years of Managing LS Naturally Through AIP

Feb 5th, 2022 54m 10s

Angie Alt, a social activist and researcher, takes on the challenge of managing her Lichen Sclerosus for 9 years through the Autoimmune Protocol, an ambitious goal that leads to a journey of self-discovery and healing. Here's what Angie Alt an

How to apply your LS steroid treatment correctly with Dr. Jill Krapf

Jan 21st, 2022 44m 18s

Were you given a steroid treatment for your LS but not told when or how to use it? Or were the directions unclear, but you're not sure where to turn to for information? Don't worry because we get answers to those questions in this episode and m

Why are health goals important?

Jan 7th, 2022 24m 19s

It's a new year and a perfect time to set goals. I'm not just talking about life goals, either. I'm talking about health goals! We set at least one life and one LS goal we want to work on inside our private membership. Every week we set mini-go

Top 5 Episodes of 2021

Dec 18th, 2021 31m 41s

Welcome. If you’ve been listening to the podcast for a while, I want to give you a shout-out and thank you for sticking with me this year. This was the year of transition, and because of that, there weren’t very many episodes published, but you

Pediatric Lichen Sclerosus with Dr. Sandy Flann

Dec 10th, 2021 54m 29s

Today I am joined by the amazing dermatologist, Dr. Sandy Flann, who is an expert on pediatric Lichen Sclerosus. Yes, you heard that right, Pediatric Lichen Sclerosus! As we know, Lichen Sclerosus can affect anyone, of any age - children includ

Don't Let Lichen Sclerosus Take Control Of Your Life

Dec 3rd, 2021 17m 37s

Hey, welcome. In this episode, I decided to take a little break from the interviews, and speak from the heart. This is something I felt compelled to speak on. I want to talk about not letting Lichen Sclerosus control your life; not letting it r

What's the best lubricant for Lichen Sclerosus?

Nov 19th, 2021 38m 15s

Hey! Welcome! Have you ever wondered what lube is best for Lichen Sclerosus? Perhaps you felt overwhelmed by the massive selection of lube options online and had no clue what to buy? Have you ever wondered what you should look for and avoid

LS Grooming Best Practices with Dr. Cynthia Wesley

Nov 11th, 2021 1h 2m

Today, I am here with Dr. Cynthia Wesley (aka Dr. Cyn), a board-certified OBGYN with over 16 years of experience and a vulvar skin expert. Dr. Cyn is passionate about vulvar care, hygiene, and grooming. She will share her tips on how to take ca

How Pelvic Floor Physical Therapy Helps Lichen Sclerosus with Ashley Stump

Nov 5th, 2021 51m 26s

Hey welcome! This week I'm so excited to finally publish this episode with Ashley Stump. She's a pelvic floor physical therapist who knows all about Lichen Sclerosus. I learned so much during this episode, we talked about what pelvic floor phys

Covid Update

Nov 4th, 2021 17m 32s

If you're seeing two of these or getting this episode really late, apologies. I realized half of my listeners didn't get the episode because I released it in video format versus audio. 🤦🏽‍♀️ Either way everyone should have at least one versio