This week, we spoke to Katie Callaghan, works with Rare Youth Revolution and runs an organization called Cards for Bravery. Tune in as we speak about Katie's experience with her own rare diseases and how she works to advocate for the rare disea

Update + Rare Disease Day

Mar 5th, 2021 9m 6s

Happy new year! A big thank you to all of our listeners who have stuck with us so far. In this episode, we speak about the events of the past two months and what we hope to do in the next year.

Victoria Jackson’s Story with Endosalpingiosis and Endometriosis: A Lesson in Self-Advocacy

Dec 23rd, 2020 6m 59s

Victoria’s story battling endometriosis and endosalpingiosis is one of true strength and bravery. Facing the intense pain and debilitating health issues that accompany endosalpingosis, she has struggled to get the help that she needs and deserv

Sofie’s Journey with Spina Bifida

Nov 29th, 2020 5m 58s

Sofie Cox is a champion athlete and renowned dancer - she’s travelled around the world, competed numerous times, and has several awards to her name. But what you wouldn't expect is that Sofie also lives with spina bifida; a rare congenital diso

Ali’s Journey with Pediatric Wild-Type GIST

Oct 23rd, 2020 8m 19s

Ali lives like many other 22 year olds - she’s a student, blogger, activist. But Ali also lives with GIST cancer. Listen through this episode to learn about Ali’s diagnosis and how she lives with this cancer. Ali’s story is extremely empowering

Sickle Cell Awareness

Oct 2nd, 2020 4m 40s

Join cohost Liesha Yenduri as she discuss the various aspects and implications of Sickle Cell Disease in honor of National Sickle Cell Awareness Month. Please be sure to check out our website (https://shapingfoundations.wixsite.com/shapingfound

Ishana Sukhbir’s Experience with SCA2 and International Ataxia Awareness Day!

Sep 25th, 2020 7m 9s

In honor of international ataxia awareness day, we were able to talk to Ishana Sukhbir about her diagnosis. Being diagnosed at a young age, she had a unique experience with her disease and the people around her.

Tabitha L. Frank’s Journey with Endosalpingiosis

Sep 19th, 2020 9m 39s

This week, we talk about our rare star of the week - Tabitha L. Frank - and her journey with endosalpingiosis. Tune in to find out more about her struggle with her diagnosis and how she made her way to meeting with politicians to advocate for w

Meet the Directors!

Sep 5th, 2020 36m 9s

In this episode, the four directors of this organization answers questions about the organization and questions from our social media. Find our more about the origins of this organization and about the directors themselves! --- Support this

Interview with Rare Disease Advocate: Dr. Shyamala Peesapati

Aug 30th, 2020 20m 53s

Hello everyone and welcome back to our podcast! This week, we have a recorded interview with Dr. Shyamala Peesapati, a dentist currently residing in Bangalore, India, who has become a powerful and inspirational voice in the rare community. She

Mackenzie Lea's Battle with Trigeminal Neuralgia

Aug 22nd, 2020 20m 41s

This week’s podcast features Mackenzie Lea’s battle with trigeminal neuralgia, a rare disorder causing debilitating pain from a facial nerve. Join our co-founder Pooja Shah as she discusses Mackenzie's answers to questions about her journey to

Gary M. Johnson's Journey with SCA2

Aug 14th, 2020 12m 37s

Listen now to our new episode featuring our first ever Rare Star of the Week: Gary M. Johnson! Join Cayla Xue, Shaping Foundation's co-founder and secretary, as she dives into Gary's journey with SCA2. Learn about Gary's personal struggles and

Rare Disease Research

Aug 7th, 2020 11m 34s

Tune into this episode to learn more about research of rare diseases! Join Liesha Yenduri, Shaping Foundation's co-founder and co-president, as she discusses how research on rare diseases works, organizations supporting research, and the challe

Introduction to Rare Diseases

Jul 31st, 2020 7m 37s

Our first official episode will introduce rare diseases and explore the importance of learning and spreading awarness for these diseases. Shaping Foundation's co-president, Pooja Shah, will be hosting this episode and begin our weekly discussio

Trailer

Welcome to Once Upon a Blue Moon

Jul 21st, 2020 1m 44s

Thanks for listening to our introductory podcast! Support those with rare diseases and our cause by staying tuned to this podcast, following us @shapingfoundations on twitter, instagram, and facebook, or finding us at www.shapingfoundations.wix

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