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Once Upon A Gene

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A weekly Society and Culture podcast featuring Effie Parks
 13 people rated this podcast
As a new parent of a child with a rare genetic syndrome, I was lost. There was no guide. There was no rulebook. This was not what I had imagined. As I navigated my way through this new reality, I realized something that should have been simple, but was not. A truth that had always been there, but that I had lost sight of for a time - I am not alone. And neither are you. These are the stories of my family, and of families like ours. These are the stories of how we have persevered, cried, bonded, and grown. These are the stories of children who have been told that they cannot, and that have proved the world wrong.
Host
215 episodes
Guest
1 episode
Guest
1 episode
I love that Effie's response to needing (and not really finding) a supportive community to deal with the unique challenges of parenting a child with a rare genetic syndrome was to create that supportive community for everyone else. I'm glad tha
Once Upon A GeneThank you so much for your beautiful and heartfelt review ?❤️
She’s amazing!!!!🧠🥺
Are you kidding me? This is THE BEST podcast in the rare disease space, everyone needs to start here.
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