My week is not over until I get my 10 minutes in from this podcast. Mike is one of the most determined and hardworking #DadVocates there are. You can't help but get hooked on his energy as he hunts for a cure for #Syngap. He created a lighthouse for his son's rare disease and I hope to see every other #raredisease follow suit and create a podcast! #PodcastForACause
My son has SYNGAP1 and I listen to these weekly podcasts to stay informed on everything related to this diagnosis. This podcast educates and energizes me because of the non-stop work the Syngap Research Fund is doing to find a cure for our kids. Knowing that the host of the podcast has a son just like mine makes me feel connected and less alone.
Wow, what a powerful idea to use a podcast to keep a community of rare disease parents and stakeholders up to date on the mission to develop a cure for #SYNGAP1! I love this.