In this episode, I interview Amber, mom of Maxwell, a child with SLC6A1. Amber Freed's 2 year-old son, Maxwell, has a rare genetic neurological disease called SLC6A1. Amber is on a mission to raise $4,000,000 to advance a clinical trial that will cure every child with this disorder and give Maxwell a chance at life. To date, she has raised close to $3,000,000. SLC6A1 is the 10th cause of autism, 6th cause of epilepsy, and plays a major role in psychiatric conditions. She wants to create an impact on a multitude of children. She has started Milestones for Maxwell to raise money towards this cause. SLC6A1 Connect is a patient organization that was formed out of necessity. Her goal is for her organization not to disappear in 5 years, just because a cure is in place. By that time, they will have moved on to curing the next rare disease. SLC6A1's research mindset was formed with that philosophy in mind; They are now in search of novel IP solutions to advance research quickly for their impatient patient group!

Learn more about Maxwell's battle with SLC6A1, and about this phenomenal organization!

Website: https://slc6a1connect.org/

Instagram: https://www.instagram.com/milestones_for_maxwell/

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