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Two Disabled Dudes - Living with UrgencyEpisode from the podcastTwo Disabled Dudes - Living with Urgency
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142 – A Dedicated Advocate in India

142 – A Dedicated Advocate in India

Released Sunday, 4th April 2021
Good episode? Give it some love!
142 – A Dedicated Advocate in India

142 – A Dedicated Advocate in India

142 – A Dedicated Advocate in India

142 – A Dedicated Advocate in India

Sunday, 4th April 2021
Good episode? Give it some love!
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How do we build an effective Global Rare Disease community?  It all starts with sharing stories and ideas.  Join the dudes as they hear Manish Gore's story about Alport Syndrome, and discuss the differences between the US and India and the Rare Disease World.

Manish's Resources:

Manish's Blog, Doting Beans: www.hope4kidneys.info

Organization for Rare Diseases India: www.ordindia.in

Mental Health, Zifcare, India: www.zifcare.com

Alport Syndrome Foundation of USA: www.alportsyndrome.org

Kidney Research UK: www.kidneyresearchuk.org

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Two Disabled Dudes - Living with Urgency

1
The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast.Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM). Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch.Join us, subscribe, and tell a friend!

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