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Two Disabled Dudes - Living with UrgencyEpisode from the podcastTwo Disabled Dudes - Living with Urgency
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146 - DD pt4: Why Sean Baumstark Is Banned From Clinical Trials

146 - DD pt4: Why Sean Baumstark Is Banned From Clinical Trials

Released Sunday, 2nd May 2021
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146 - DD pt4: Why Sean Baumstark Is Banned From Clinical Trials

146 - DD pt4: Why Sean Baumstark Is Banned From Clinical Trials

146 - DD pt4: Why Sean Baumstark Is Banned From Clinical Trials

146 - DD pt4: Why Sean Baumstark Is Banned From Clinical Trials

Sunday, 2nd May 2021
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As a clinical coordinator at Children's Hospital of Philadelphia (CHOP), Jen Farmer gained years of experience designing and operating clinical trials. Now as the CEO at the Friedreich's Ataxia Research Alliance (FARA) she uses that experience to design effective trials for the Friedreich's ataxia (FA) community - and she nicely puts Sean in his place when she states "the rules are there for your safety".

Jen shares the principles that guide clinical trials and a few tips for those who choose to participate.

FARA - curefa.org

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Two Disabled Dudes - Living with Urgency

1
The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast.Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM). Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch.Join us, subscribe, and tell a friend!

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