In this episode I speak to Brandon Mouw. Brandon was diagnosed with type 1 diabetes at the age of 3 and after living with type 1 diabetes for over 30 years became a brittle diabetic. Brittle diabetes is a rare form of insulin-dependent diabetes and is marked by frequent and severe episodes of hypoglycemia and/or hyperglycemia (DKA). This instability of blood sugar levels often leads to hospitalization and necessitates frequent self-monitoring of blood glucose, the use of an insulin pump and a continuous glucose monitoring device (CGM). In rare cases, a pancreas transplant may be necessary. (Taken from BeyondType1.org). Brandon was told that if he did not have a pancreas only transplant he has less than two years to live. Brandon is based in the USA and this specific transplant operation isn’t covered by insurance so he needed to raise $250,000 in three months for this life-saving operation. At this point he had already undergone multiple surgeries for relating to kidney stones and only has one kidney. Brandon and I talk about: his life with type 1 and brittle diabetes including managing workhis transplantation journeyhow his life is has changed after receiving his pancreas transplant how he managed to raise the $250,000 which involved the kindness of strangers how he’s using his experience to help othersTransplantation is a journey that few go on and this was the first time I’ve sat down and had a conversation with a fellow transplant recipient. Brandon’s journey shows that nothing is impossible. You can find Brandon on Instagram, Twitter and WebsitePodcast Highlights: 2:30 - life living with type 1 diabetes and how he was diagnosed with brittle diabetes17:00 - the transplant referral process and finding out he needed to raise $250,000 to have a transplant, How he raised $250,000 for his transplant in 3 months.30:44 - we talk about transplant experiences and when Brandon received 'the call' and the lead up to the operation and beyond. 40:16 - Brandon’s road to recovery including overcoming organ rejection and post-transplant challenges including mental and emotional aspects.46:38 - Brandon's attitude and perspective towards his own health to get him to where he is today and how he is using his story/journey to inspire othersUseful LinksAffordable Care Act (ACA) - HealthCare.gov GlossaryWhat is Brittle Diabetes?If you would like to ask a question or be a guest on the show then you can email Daniel at talkingtype1podcast@gmail.com. I read all my messages and might include your question in a future episode. You can find Daniel on Instagram: Dan | Type 1 Diabetes Blogger (@t1d_dan) and Twitter: Dan (@t1d_dan)Remember to hit subscribe.
In this week’s episode I speak to Beth McDaniel and Ellen Watson aka The Diabetic Duo. Beth and Ellen are best friends and both live with type 1 diabetes. Beth was diagnosed with type 1 diabetes in 2019 and Ellen when she was six years old. The duo are lifelong friends and the friendship has grown stronger as they both living with the ups and downs that type 1 diabetes brings. In our chat, we speak about how Ellen living with type 1 diabetes for over 10 years helped Beth when she was diagnosed, how the best friends support each other and their advice to others living with type 1 diabetes. The Diabetic Duo have become household names after their video showing the diabetes technology on the social media platform TikTok gained over 600,000 views. You can watch the video here. We also discuss: Beth and Ellen’s diagnosis stories and how Beth’s diagnosis was shortly after her younger sisters type 1 diagnosishow being best friends who both have type 1 has helped their friendshipEllen overcoming her fear of not talking about her type 1 diabetesthe awareness raising their videos on TikTok have created and how this has helped the diabetes communityHaving a friend who understands what you are going through when living with type 1 diabetes is great but when that person is your best friends it makes it that tiny bit better. Useful links:Diabetic Duo TikTok profile: Diabetic duo (@diabeticduo)Diabetic Duo Instagram profile: Diabetic duo (@the_diabetic_duo)Beth on Instagram: Beth McDaniel (@bethymcdaniel) • Instagram photos and videosEllen on Instagram: Ellen Watson (@456ellen)If you would like to ask a question or be a guest on the show then you can email Daniel at talkingtype1podcast@gmail.com. I read all my messages and might include your question in a future episode. You can find me on Instagram: Dan | Type 1 Diabetes Blogger (@t1d_dan) and Twitter: Dan (@t1d_dan)A bit about the show and hostThe Talking Type 1 podcast by Daniel Newman brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 23 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. Remember to hit subscribe.
In this week’s episode I speak to Chris Bright who is a Wales international Futsal player and founder of The Diabetes Football Community. Chris has been living with type 1 diabetes for over 20 years. Throughout the years living with type 1 diabetes, Chris hasn’t always been vocal about his condition and it is something we talk about in our chat. We also spoke about: being diagnosed with type 1 diabetes at the age of 8 and going through the education systemhis football and futsal career and overcoming any impact living with type 1 diabetes has hadhis journey to representing his country in futsal at international levelhis why for creating The Diabetes Football Community and how the community has and continues to help othershow important mindset is when managing type 1 diabetesI learned a lot from this conversation with Chris and I’m sure you will too. Chris can be found on Instagram here and Twitter here. You can find information about The Diabetes Football Community here.If you would like to ask a question or be a guest on the show then you can email Daniel at talkingtype1podcast@gmail.com. I read all my messages and might include your question in a future episode. You can find Daniel on Instagram: Dan | Type 1 Diabetes Blogger (@t1d_dan) and Twitter: Dan (@t1d_dan)A bit about the show and hostThe Talking Type 1 podcast by Daniel Newman (@t1d_dan) brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field. The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 23 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018. Remember to hit subscribe.
In this week’s episode I speak to Brandon. Brandon has been living with type 1 diabetes for 16 years. Brandon was diagnosed with type 1 diabetes shortly before leaving home to start university. At university he was on the American Football team which was also where he found his support network newly into his diagnosis. Brandon being on the football team would prove to be an inspiration to a young person living with type 1 diabetes which we talk about in the podcast. We also spoke about: being diagnosed with type 1 diabetes before starting university how a letter from a young person with type 1 diabetes changed Brandon’s perspective the health system in the USA and how difficult it is to navigate living with type 1 diabetes how important the small wins with diabetes are in the big wins - 1% is better than 0% the impact culture can have when living with type 1 diabetes or a chronic illnessI enjoyed the conversation with Brandon. Brandon can be found on Instagram here and his clothing brand Society 77 profile can be found here and the website hereWe recorded in the middle of the coronavirus and we spoke about the new access to insulin programmes for USA residents. You can learn more about the programme from Lilly and Novo Nordisk from the links below:New $35 Co-Pay Now Available Through Lilly Insulin Value Program in Response to COVID-19 Crisis in USAmid COVID-19 Crisis, Lilly Introduces $35 Co-Pay for InsulinNovo Offers Free 90-Day Insulin Supply to People Recently Uninsured Due to COVID-19Thank you for listening.If you would like to ask a question or be a guest on the show then you can email Daniel at talkingtype1podcast@gmail.com. I read all my messages and might include your question in a future episode. You can find Daniel on Instagram: Dan | Type 1 Diabetes Blogger (@t1d_dan) and Twitter: Dan (@t1d_dan)About the show and hostThe Talking Type 1 podcast by Daniel Newman (@t1d_dan) brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field.The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 23 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018.Remember to hit subscribe.
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Creator Details

Episode Count
9
Podcast Count
1
Total Airtime
6 hours, 32 minutes