Hillary Johnson is a writer, editor, journalist, and author of the book, "Osler's Web."
Recent episodes featuring Hillary Johnson
In part 2 journalist Hillary Johnson shares more about her work and her life. If you’re not familiar with the story of how a biological disease that occurs in sporadic and epidemic forms was labeled as ‘all in your head’ by the Centre for Disease Control, than you’ll want to hear how it all went down from the one person who uncovered the corruption. Hillary talks about her healthiest 9 months in 35 years of being ill when she was taking Ampligen and why she’s not still taking it. Hillary shares about being banned from the Centre for Disease Control (CDC) for seeking the truth and how that didn’t stop her from writing Osler’s Web. Hillary also tells how the CDC and a United Kingdom psychiatrist obliterated the lives of millions of patients worldwide by perpetuating a psychosomatic label that denied them biomedical care.   SHOW NOTES   Heart attack and cancer   0:06:00 The cardiologist found abnormal EKGs - myocardia eschemia, everything short of a heart attack and refused to approve Hillary for surgery until she found what was wrong with Hillary's heart - but Hillary had to fly for a funeral and had a heart attack on the plane Hillary returned to New York about 5 days later, and went to the cardiologist and the results showed Hillary had had a heart attack and the cardiologist again refused to approve Hillary for thyroid cancer surgery 0:07:00 Simultaneously, Hillary was working with a lawyer for 4 years fighting with disability insurer who said Hillary was making up her illness - the lawyer suggested to ask the cardiologist for a note for the insurance company - but the cardiologist refused - but the next day her staff notified Hillary that she'd been approved for surgery, so Hillary called the cardiologist and she said that it had just dawned on her that Hillary had cancer and needed surgery and "whatever happens, happens" 0:08:30 Several years later Hillary had heart attack symptoms again so made an appointment with the cardiologist - the cardiologist met Hillary in the waiting room and said she'd only agree to examine Hillary for a heart attack if she agreed to seek psychological counselling 0:10:00 About 6 years ago Hillary went to an ER with cardiac pain - they cared for her for 10 hours and recommend she see a cardiologist - this one said Hillary's symptoms were just stress - Hillary's EKGs are always wildly abnormal but she's given up trying to get help for it 0:11:00 Sometime, and usually now, Hillary does not disclose she has ME to a doctor - but even when she does disclose, it changes the relationship with the doctor, they pull back, not as friendly - there is no understanding or knowledge among doctors and we can thank CDC (Centre for Disease Control) and National Institutes of Health (NIH) - derogatory media worsens and they never stand up to contradict 0:13:00 They are glad, it allows them to continue to barely fund research - an anecdote about naming ME (myalgic encephalomyelitis) as CFS (chronic fatigue syndrome) and those CDC letters - one of the doctors made a joke that by calling it other than CFS would set up insurance companies for 'chronic' disbursements - in other words, protect the insurance companies 0:16:00 Simon Wessely in the United Kingdom has done a lot of damage saying ME is psychosomatic - after the CDC published its report and rolled out the name CFS - Wessely sent Holmes a letter, and you could almost see Wessely rubbing his hands together in gleeful anticipation - he congratulated on a wise choice in name and he had always thought ME was psychosomatic not organic and eager to collaborate for a long future 0:20:00 Hillary believes all the psychological proponents should be criminally charged - patients in the Netflix documentary Afflicted are suing the producers for defamation - Hillary hopes they bankrupt Netflix - but the original defamers, Gary Holmes, John Kaplan, Larry Schonberger really controlled this disease: no funding, no resources, no epidemiology     Goose that laid the golden egg   0:21:45 Hillary believe there should be a trial in The Hague about ME - and wonders if it is possible to un-Knight someone in the UK (re Wessely) - Wessely's corollary in the US was Stephen Strauss - Hillary's editor said Strauss reminded him of the quote about the Nazis and 'the banality of evil' 0:24:00 The CDC obliterated ME patients by saying ME wasn't real - they caused problems with medical care and personal relationships with spouses and families - Cheney said so much of his time was taken by attorney's in divorce proceedings and testifying that ME patients were sick, not crazy 0:25:30 Hillary reported the crimes of the CDC and were followed up by 2 federal investigations and her allegations were confirmed - the CDC received money starting in 1988 for ME research, about half a millions first year, and more each year after - after a decade was $150 million, but the investigation only went back 2 years, about $13 million misappropriated 0:27:00 This funding was informally known as 'the goose that laid the golden egg' for all the scientists who were using ME funds for their pet projects, not for ME research - each spring the head of CDC would go Congress for more funding - Hillary has the letters, a list of lies - Hillary's contacts in the CDC were secretly telling her ME research was not being done - just lies for a decade 0:29:00 The investigation by Health and Human Services (HHS) and General Accounting Office (GAO) both confirmed Hillary's work in Osler's Web - she is bewildered why there has not been a lawsuit - Walter Dowd was Acting Deputy Director knew the money was misappropriated and said he would make it right - instead a whistleblower scientist was then stopped from accessing the CDC and shortly after left before he could be fired for spilling the beans 0:31:00 Was CDC ignorant, incompetent, colluding, sociopathic? Hillary found a letter posted in CDC, the infamous "Dear Sirs" letter - devastating satire and making fun of people very ill and laughing at their pain - it had been posted for over a year - and a few years later it was still posted 0:35:00 Larry Schonberger was very resistant to removing the "Dear Sirs" letter from the bulletin board but finally relented - it has come back to haunt them as Hillary included its full content in her book 0:37:00 Hillary saw a neurologist about 5 years ago and he asked about her symptoms - everything about this disease has befelled Hillary - small strokes, brain abnormalities, encephalitis 5 or 6 times - Hillary feels like she's in a dream: the old 'me' that lived for 35 years without ME, and the current 'me' who has lived with it for 35 years - its hard to believe she was that person - and often dreams of her life before - overall waste of time / life     Ampligen gives 9 healthy months   0:40:00 Pneumonia and the flu are like mosquito bites compared to ME - Hillary dreams about all the books she would've written, the number of friends she'd have - she found no way to express how devastating and terribly unwell she was to friends, they did not understand her life had changed, that she was suffering - as years went by it became easier not to try 0:42:00 The lives of her peers at age 35 look unreal compared to Hillary's reality - before illness, her life was full color and full of activity, many friends, she had talent, went places, had a career and identity - now her life is hazy black and white blur 0:44:00 The best 9 months of 35 years with ME was taking Ampligen - the disease impoverished Hillary, and she has remained poor, she does try to write and has a subscription website - she has written about ME, and that is about her life - Hillary has tried to stop thinking about all the bad things US, Canadian, British, etc governments have done to ME patients, but she's always sucked back in 0:46:30 No one has had Hillary's experience of living with this illness while being with these people laying down the policies - those interviews are still fresh in her mind - they are real flesh and blood people who took those actions and have failed Hillary and everyone else who has ME - she has a tremendous amount of anger 0:48:00 "Hillary Johnson, writing with quiet fury" is one her favorite lines from a review of her book - Harvey Wittemore, famous Nevadan and helped found the Wittemore Peterson Institute, said "I had a difficult time reading your book. I would get to the end of the page and be so angry I would want to throw the book at the wall" - that is what Hillary was going for - she still hopes some day the evidence laid out in her book serves as a basis for reparations and lawsuits from those who've had their lives destroyed and live in poverty - unfair, unjust, criminal and still going on 0:51:30 The book is one thing Hillary is pleased about, she only wishes she'd been healthy enough to do more 0:52:30 Hillary first heard about Ampligen when it was first given to a woman named Nancy Kaiser who was dying of ME - Dr Dan Peterson was reading about Ampligen, an immunomodulator and anti-viral - it was invented late 60s / early 70s, it is a drug, interferon, synthetic and it is non-toxic, even FDA admits it is safe - 1,000s of doses given to people with ME, it is probably most potent drug that could possible help people - does not help everyone, but helps most 0:54:10 Hillary managed to get Ampligen when she was ill for 29 years - it involved laying on your back for 4 hours for infusion, twice a week - at the beginning you want to feel like you want to crawl into a cave and sleep - but around 4th or 5th month, things started changing, very gradual - by 9th month a friend who did not know Hillary before she was ill, within 10 minutes said "you're completely different, I feel like I'm meeting you for the first time"     FDA denies Ampligen   0:55:45 Hillary was upright, felt sharp mentally, walking felt like gliding, a strange feeling and she finally realized that it was the first time since she was 35 years old that she was walking without any effort - no pain, or dragging her legs, not out of breath - this is how healthy people, but it had been so long for Hillary it felt unfamiliar - Ampligen is a fantastic drug 0:57:30 AIDS drugs were fast tracked with very little evidence they worked, but activists demanded access to medication because they made life hell for the people at the Food and Drug Administration - Hillary has talked to the CEO of Hemispherx Biopharma that make Ampligen, and he said "people with ME need to go to the parking lot of the FDA office in Maryland with a bunch of mattresses and set them on fire - something that will get people's attention" 0:59:00 He's right, but we never see that being done - people create petitions that get sent to someone who could care less - in about 2012 the hearings for approving Ampligen occurred and many patients arrived to testify how it had helped them - the FDA voted against approval, but said it was safe - Antony Kamaroff voted 'no' - Beth Unger who manages ME at CDC voted 'no' - so she's been useless 1:01:00 For some unknown reason, people with ME, a disease that destroys lives, are not allowed to have Ampligen - its safe, efficacious - is because medicare would have to pay for it? Is there concern from insurers? Why does FDA continue to deny proof of efficacy? - Hillary knows Canadians are trying to access it via a special access program 1:02:15 Hillary had to stop Ampligen because Hemispherx ran out of supply - it is very expensive to produce and they are a tiny company, and after that only people who could pay for it got access - she was receiving it on a compassionate care basis, she cannot afford Ampligen of $40k year plus infusion / nurse costs 1:03:30 After 3 or 4 months without Ampligen, Hillary's symptoms returned and walking became difficult again - this also adds to Hillary's anger 1:05:00 4 million Americans may have ME, 80% women, apparently their expendable - Hillary has lost about $1.5 million in income because of ME - Ampligen is a sad story, there are others who had Ampligen withdrawn - Hemispherx are using Ampligen in oncology trials in the US and Europe, maybe they can increase access to people with ME     Osler's Web   1:07:10 The only thing that ever helped Hillary, was Ampligen - gammaglobulin used to make her feel somewhat better - she hears talk now of low dose naltrexone, but there was talk about in 1987 - it feels like she's seeing a replay of the 1980s - but people much more activist oriented and they modeled their actions after AIDS activists 1:09:00 San Francisco city council held meetings about ME and invited doctors like Paul Cheney to testify, but you don't see that any more - now they tell their congress person their stories of woe, but Hillary says no one cares about those stories, and they do not change policy - healthy people don't want to hear about it - its not the way to go about making change 1:11:00 The only thing that motivates Hillary to write is ME - but does tweet a lot so is doing journalism by tweet but hates it - because it is simplistic it reduces reporting to the number of characters - twitter induces snarkiness - Hillary would like to do another book about having written Osler's Web, there is a big story of how she interacted with the subjects 1:13:00 The original Osler's Web manuscript was 3,200 pages and she had to cut 1,200 pages - while she often says 'don't write about yourself', in some circumstances you have to write about events you are involved - but her health is a challenge - in many ways Hillary is sicker then 10 years ago, more disabled - it must be ME combined with age 1:15:00 Hillary tries not to get angry and frustrated with herself and has to constantly remind herself that its not that she doesn't want to do 'that', its that she can't do 'that' because of this illness - but since she's been ill for so many years, she sometimes forgets that - Hillary says she's talked more about herself in this interview than any time before   Connect with Hillary Johnson   Website: Osler's Web Twitter: Osler's Web Facebook: Osler's Web     _______________________________________________________________________   Scott Simpson:  Counsellor + Podcast Host + Patient Advocate I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard, train hard, rest hard. Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error. I have been living with HIV since 1998, and thanks to research and medications, it is not a problem in my life.  I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life. Need a Counsellor? If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments. **For my health and life balance, I limit my number of counseling clients.**  Email me to find out if I have any counseling appointments open:  RemediesOnlineCounseling@gmail.com   Be a podcast patron Support Medical Error Interviews on Patreon by becoming a Patron for $2 / month.  Or $5 / month to be a Premium Patron and watch the video versions of Medical Error Interviews. Be my Guest If you are a survivor, a victim’s surviving family member, a health care worker, advocate, or policy maker and have a medical error experience you would like to share, send me an email with a brief description of your experience:  RemediesPodcast@gmail.com 
Osler’s Web author and whistleblower Hillary Johnson got up close and personal with the heroes and villains inside the medical industry. Motivated by her investigative journalistic sense of health care corruption, and by her own experience with chronic illness and medical errors, Hillary exposed the $150 million criminal diversion of researching funding that prompted two federal investigations. In part 1 of the interview, Hillary shares about her early life and passion for writing, working for major magazines like Rolling Stone, and how a mysterious illness derailed her sky-rocketing bi-coastal career. Always a Writer 0:05:30 Hillary born in Minneapolis, Minnesota - lots lakes, father had a huge sailboat and race it every summer - in winter Hillary skied and skated - wonderful childhood but marred by parents divorce when she was 12 - Hillary wanted to live at an elite girl's boarding school - an incredible advantage to attend - later attended UC Berkeley for undergrad degree in journalism, the only thing she ever wanted to do - moved to New York to attend Columbia University for a Master's in Journalism 0:09:30 Hillary has been obsessed with writing her whole childhood - had written 3 novels by the time she finished grade school - Hillary's mother was very literary person, read 2 or 3 books a week, and pass along to Hillary - and she become comfortable with language and was encouraged by her mother 0:11:20 First job was a newspaper reporter for Minneapolis Tribune - but a very sexist environment, only 2 women reporters on staff, Hillary was sexually harassed - hired to Congressional Quarterly in Washington DC, but again sexual discrimination in that workplace 0:13:15 Hillary then worked at Women's Wear Daily, a very trendy newspaper - also covered culture, Hillary assignment - could interview writers she admired, business people (Malcolm Forbes), Watergate prosecutor...fascinating people of the time - did for a couple of years then hired by Life Magazine, a news reporter for 4 years 0:15:05 At age 31, Hillary decided to leave Life to do freelance work - was a contributor to Rolling Stone magazine - wrote for all major New York publications - a wonderful life - traveling back and forth between her 2 apartments in New York and Los Angeles 0:16:30 When in LA in March 1986 to work on her first book - on March 8th woke up sick and that was the end of her journalism career as she had known it - but it took about a year for her editors to get the message because they kept calling asking her to work - Hillary didn't want to believe she was permanently sick 0:17:30 Hillary was soon diagnosed with encephalitis - it was hard to explain to people neurological deficits - on morning of March 8th, within 2 steps of walking she crashed into the wall - she was supposed to go with her fiancee to meet his father and they drove to another city but Hillary was too sick to raise her head to look at him 0:20:00 Hillary had very high fever, extremely sore throat - she couldn't understand the conversation at lunch - went to washroom and passed out and had to be carried out - Hillary lost consciousness multiple times that day, could barely walk - she knew she was incredibly ill but couldn't imagine what it could be     Outbreak   0:21:30 Hillary's fiancee was alarmed - they knew each other about year - Hillary just got worse until she was bed ridden, unable to walk - he took her to see a doctor, but had to be carried - by chance, this doctor had been talking with his friend at the CDC (Centre for Disease Control) so was aware of Hillary's symptoms but didn't have a name for it, but had been seeing 20 to 30 patients a month with identical symptoms 0:23:30 Hillary was wheeled into the waiting room - after 2 years of Hillary being severely ill, her fiancee moved on and the relationship ended and she moved back to New York 0:25:15 Hillary has been sick for 35 years and has had many, many experiences of outrageous behavior by doctors - the first doctor she saw said he didn't know what was making her sick, but that she should be fine in 2 years but don't come see me before then - Hillary realized she was really alone with her illness 0:26:50 About 6 months later, Hillary felt like she was dying and called that doctor - he was very angry, told her not to call him because he has seriously ill patients in his waiting room - Hillary was shocked and realized she was alone with her illness 0:27:50 An article in the LA Times about an outbreak in Incline Village, Nevada - Hillary later wrote a book about the Incline Village outbreak: in 1984 the rich enclave had an outbreak of ME (myalgic encephalomyelitis) - large percentage of people fell it, perhaps 300 and more who never went to see the town doctors - 6 doctors in town, but only 2 were highly competent: Paul Cheney and Dan Peterson, both knew a lot about infectious disease 0:30:30 The outbreak got a lot of publicity in mainstream media - Hillary would find out later the CDC had been receiving calls from all over the US and the world about this disease for quite a long time before Incline Village - but CDC simply did not want to believe it was a disease, they called it hysteria and tried dismiss it - a very political move 0:32:30 CDC sent 2 investigators - one very inexperienced - the more experienced stayed 5 days and did not interview any patients - the other one, Gary Holmes, stayed about 10 days and examined a few patient, unwillingly - Dr Cheney said Holmes preferred reviewing charts in the office and didn't want to meet patients - Hillary interviewed those patients, and they felt like they were imposing on Holmes 0:33:45 Hillary later uncovered that the CDC had been receiving reports about this for quite a few years, so was already spreading, especially on the US coasts - San Francisco and Los Angeles were seething - so Incline Village was not ground zero - its importance was that the CDC had a chance to do serious science, but they didn't do that 0:36:30 Because so many patients were women, CDC decided it was hysteria - except there were men sick too - more cynical explanation is the AIDS pandemic already caused a lot of concern, and the government couldn't bear to acknowledge it     Banned from CDC   0:38:30 Prior to the CDC involvement, previous outbreaks had no hint of a psychosomatic explanation, but was a transmissible disease - no other explanation why the disease would explode - the US government probably knew it was infectious based on immunology - one of the first findings in ME in very low natural killer cell (NK) function, published in 1992 - only see low NK in cancer and infection 0:40:30 Many examples of ME research that scream infection - because ME happened concurrently with AIDS is an important clue that should be examined - Hillary says there was concerning at the CDC about long term disability payouts if credence was given to ME - Hillary accessed via FOI (freedom of information request), letters of 5 -10 scientists who worked with Holmes to come up with a name for the disease 0:43:30 They considered 'myalgic encephalomyelitis' and ruled it out because it implied it was a real, organic disease and they didn't want to do that, it was clear in those letters - but the all time favorite name was 'chronic fatigue syndrome' (CFS) and it did not imply it was infectious, so no public panic - the term inspired hatred of the people with this disease 0:45:30 People with ME were renamed as having CFS and experienced ridicule, dislike, disgust, outcast - the name had an incredibly powerful impact - Dr Anthony Kamaroff at Harvard was key in the naming, but has subsequently apologized - he claims at the time he did not foresee how damaging the name would be - but no one else has apologized 0:47:00 Stephen Strauss and Dr Nelson Gantz are both dead - Holmes tried to engage a famous infectious disease specialist, Elliott Keith, and he was part of naming process for a while, but when they decided on CFS he wrote a letter of contempt and withdrew his support and asked if they were trying to create another psychological syndrome 0:49:00 Hillary's book about this is titled: Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic - Hillary was forced to use CFS in the title in 1985 for marketing purposes - the book was written for the general public, but mostly read by ME patients - took 10 years to write while very ill and poor - $700 / month for a decade - its still available on Amazon, but Hillary never made a penny from the book 0:52:00 Back to Hillary's personal experience: she was feeling like she was dying and called her doctor and he dismissed and chastised her - Hillary says what is different in 2019 is social media 0:53:30 Patients don't feel as isolated as in the 80s - a CDC supervisor referred to Hillary as 'live and in captivity', reducing her to an animal - his point was that it was rare, there was no outbreak - he later banned Hillary from the CDC, that didn't stop Hillary and she set up office in the lobby and use the public pay phone       Encephalitis   0:56:30 Hillary asked many CDC scientists for an interview and interviewed quite a few after she was banned 0:58:15 Hillary was very ill for 6 months, couldn't walk, barley lift her head off the pillow, had already been diagnosed with encephalitis - but she was still being asked to work, and didn't want to disclose how seriously ill she was - the editor at Rolling Stone kept asking 1:00:00 Hillary made the connection between cases in Los Angeles and in Incline Village and mentioned to her editor at Rolling Stone that it could be a big story and he wanted her to explore it - as ill as she was, she began to investigate and talked to the person in charge of epidemiology of LA county and she said they were getting lots of calls about this disease, more then AIDS - she said she was very concerned 1:02:00 But everybody was working on AIDS, and there was no staff to work on ME - Hillary dragged herself to Incline Village and spoke to Paul Cheney - Hillary realized her life was about to change - she felt Cheney had almost solved the disease in '86 1:03:30 Cheney had done a lot of investigation and gathered much info - Hillary knew Cheney was an extraordinary figure and a book could be built around him - he was primary figure and inspiration - but the story got bigger than Cheney - she has 100s of hours of interviews with Cheney 1:05:30 Hillary also interviewed Dan Peterson a lot, who was resistant to speak to a journalist but warmed to and trusted Hillary 1:06:30 Hillary's most outrageous experience with health care was with a woman cardiologist - Hillary had thyroid cancer in 2008, it was like a head cold compared to ME, it was 'no biggie' - given what she'd been through in 20 years with ME - cancer was not a surprise - the only thing that frightened her was the anaesthesia which can be difficult for ME patients 1:09:30 Hillary was ready to die, having been so ill - after 35 years its hard to remember what normal is 1:10:30 The cardiologist found abnormal EKGs - myocardial eschemia, everything short of a heart attack and refused to approve Hillary for surgery until she found what was wrong with Hillary's heart - but Hillary had to fly for a funeral and had a heart attack on the plane END OF PART ONE OF INTERVIEW   Connect with Hillary Johnson   Website: Osler's Web Twitter: Osler's Web Facebook: Osler's Web   ______________________________________________________   Like what you read / heard / watched? Support Medical Error Interviews Be a podcast patron Support Medical Error Interviews on Patreon by becoming a Patron for $2 / month.  Or $5 / month to be a Premium Patron and watch the video versions of Medical Error Interviews. Be my Guest If you are a survivor, a victim’s surviving family member, a health care worker, advocate, or policy maker and have a medical error experience you would like to share, send me an email with a brief description of your experience:  RemediesPodcast@gmail.com  Scott Simpson:  Counsellor + Podcast Host + Patient Advocate I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard, train hard, rest hard. Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error. I have been living with HIV since 1998, and thanks to research and medications, it is not a problem in my life.  I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life. Need a Counsellor? If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments. **For my health and life balance, I limit my number of counseling clients.**  Email me to find out if I have any counseling appointments open:  RemediesOnlineCounseling@gmail.com   
Charles Ortleb, the publisher of New York Native and author of The Chronic Fatigue Syndrome Epidemic Cover-up, interviews Hillary Johnson, the first journalist to cover the Chronic Fatigue Syndrome epidemic in Rolling Stone. She is also the author of Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic. Visit her website Oslersweb.com for all her latest reporting. All of Charles Ortleb's books about HHV-6, Chronic Fatigue Syndrome, AIDS and the politics of science can be found at CharlesOrtleb.com. About Charles Ortleb's Amazon Bestseller, The Chronic Fatigue Syndrome Epidemic Cover-up If you want to know the truth about the Chronic Fatigue Syndrome epidemic, you need to discover the reporting of Neenyah Ostrom. For a decade, starting in 1988, Ostrom reported on Chronic Fatigue Syndrome for a newspaper called New York Native. What her reporting uncovered about the true nature of the Chronic Fatigue Syndrome epidemic will shock you. In The Chronic Fatigue Syndrome Epidemic Cover-up, Charles Ortleb recounts his newspaper's struggle to get the medical and political establishment to pay attention to Ostrom's pioneering investigative reporting on Chronic Fatigue Syndrome. By the time you finish Ortleb's stunning memoir, you will understand why the Centers for Disease Control has been unwilling to tell the public the truth about Chronic Fatigue Syndrome. The CDC does not want the public to know that Chronic Fatigue Syndrome is a transmissible illness linked to a virus called HHV-6 that affects every system in the body. They have covered up the illness for so many decades that the neglected virus is totally out of control. Now it is causing a long list of other illnesses and many cancers. Nobody in the world covered the emergence of HHV-6 and its link to Chronic Fatigue Syndrome more than Neenyah Ostrom. Ostrom's decade of reporting on HHV-6 was recently vindicated by this statement from scientists at the University of Wurzburg: "While HHV-6 was long believed to have no negative impact on human health, scientists today increasingly suspect the virus of causing various diseases such as multiple sclerosis or chronic fatigue syndrome. Recent studies even suggest that HHV-6 might play a role in the pathogenesis of several diseases of the central nervous system such as schizophrenia, bipolar disorder, depression or Alzheimer's." The big question about Neenyah Ostrom and New York Native is this: How many lives would have been saved if the scientific establishment and the mainstream media had paid more attention to Neenyah Ostrom's reporting on HHV-6 and Chronic Fatigue Syndrome in New York Native? One day, if there is any justice in the world, the CDC and the medical establishment will apologize for not paying attention to Neenyah Ostrom's groundbreaking work on Chronic Fatigue Syndrome that Charles Ortleb published in New York Native. That would be a fitting end to one of journalism's greatest David and Goliath stories. Read a free excerpt at www.CFSbook.com     
Share Profile
Are you Hillary? Verify and edit this page to your liking.
Recommend This Creator
Recommendation sent

Join Podchaser to...

  • Rate podcasts and episodes
  • Follow podcasts and creators
  • Create podcast and episode lists
  • & much more
Stats
Episode Count
3
Podcast Count
2
Total Airtime
3 hours, 26 minutes