Episode Transcript
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0:04
Welcome to the Attention Deficit
0:06
Disorder Expert Podcast Series by
0:08
Attitude Magazine. Hi,
0:14
everyone. My name is Annie Rogers,
0:16
and on behalf of the Attitude
0:18
team, I'd like to welcome you
0:20
to today's ADHD expert presentation
0:23
titled, The Emotional Lives of
0:25
Girls with ADHD. Starting
0:28
today's presentation is Dr. Lada
0:30
Borg Skogland. Dr. Skogland
0:33
is an author, keynote speaker, and
0:35
entrepreneur from Sweden. Her
0:37
specialty is in psychiatry, addiction,
0:39
and family medicine with a
0:42
specific focus on ADHD. She
0:45
currently holds a position as
0:47
associate professor at Uppsala University
0:50
in the Department of Women's
0:52
and Children's Health. She
0:55
also leads the pioneering research
0:57
group, Goddess ADHD, and
0:59
is author of a wonderful
1:02
new book called ADHD, Girls to
1:04
Women. In
1:06
today's webinar, we're going to
1:08
discuss emotional dysregulation. Big
1:11
emotions can manifest as tantrums,
1:13
meltdowns, even as self-harm in
1:16
young girls with ADHD, or
1:19
it can be hidden. Young
1:21
girls may mask their symptoms and
1:24
their feelings of anxiety and depression.
1:27
They may also struggle socially, saying they
1:29
just don't fit in. Young
1:31
girls need caregivers who understand the
1:34
special challenges they face, and that
1:36
is why we are here. So
1:39
to begin, we'd like to do a little bit
1:41
of a level set by asking you a
1:43
few short poll questions. We'd like
1:46
to know, for those in our live audience, has
1:49
your child been evaluated for ADHD?
1:53
Please let us know the status
1:55
of that. And then to
1:57
follow up, if they have... have
2:00
that they were not diagnosed with
2:02
ADHD. Do you think
2:05
that including emotional dysregulation
2:08
in the diagnostic criteria would
2:10
have changed your child's diagnosis? This is
2:12
your opinion, whether you think it would.
2:15
If your child was diagnosed with
2:17
ADHD, we're curious whether
2:20
they were screened for any
2:22
comorbidities. So specifically, we mean
2:25
co-occurring conditions like
2:28
eating disorders, depression,
2:31
anxiety, anything along those lines. So
2:34
while you do that, I will
2:36
point out that you can find
2:38
answers to common webinar questions about
2:40
slides, transcripts, and certificates
2:43
of attendance by clicking on the
2:45
FAQ tab of your webinar screen.
2:48
And if you support the work we're
2:50
doing here at Attitude to strengthen the
2:52
ADHD community, we encourage you to visit
2:54
attitudemag.com, slash subscribe, and sign
2:57
up for our magazine for yourself
2:59
or to share with someone who
3:02
could benefit from greater ADHD understanding.
3:05
You can click on the magazine tab of your
3:07
screen to learn more. And
3:10
I would be remiss not
3:12
to mention that Attitude has
3:14
an ebook titled Women with
3:16
ADHD that offers some additional
3:18
supplemental guidance on hormonal changes,
3:21
ADHD subtypes, finding a doctor
3:23
who will take your symptoms seriously. You'll
3:26
learn why science has paid very
3:28
little attention to female ADHD and
3:30
how you can benefit from a
3:32
diagnosis at any age. Okay.
3:35
Without any further ado, please
3:37
welcome me in welcoming
3:40
Dr. Lata Borg-Soglin. Thank you
3:42
so much, Dr.
3:45
Soglin, for joining us and leading
3:47
this really important discussion today. Thank
3:51
you so much for the opportunity to talk
3:53
about the emotional lives of girls and
3:55
young women with ADHD. I'm a huge
3:58
Attitude fan. So it's
4:00
a real honor for me to
4:02
be presenting here today. And
4:05
when I started writing this book, I
4:08
looked forward to dive into the
4:10
pool of knowledge about female ADHD.
4:13
But I soon realized that you're not
4:15
supposed to dive in such shallow waters.
4:18
And that was really frustrating for me.
4:21
So at the end of the pool
4:23
dealing with pre-pubertal boys with
4:25
ADHD is so huge and
4:27
deep, right? So this is
4:29
what we're going to talk about today. But
4:32
I would like you to first meet
4:35
Annie. Annie
4:37
is 19 years old, and she
4:39
and her parents have some critical
4:41
questions to us about the
4:44
emotional lives of girls and young women. And
4:46
I think we will have some answers for
4:48
her after this webinar. First
4:51
of all, Annie wonders if her
4:53
ADHD brain is wired differently. And
4:57
her parents wonder
4:59
how emotional dysregulation,
5:01
PMS, PMDD, RSD,
5:03
hormones, and mood disorders
5:05
are associated with ADHD. They
5:08
also want to know what girls and
5:11
women like Annie risk if we keep
5:13
missing their specific challenges. And
5:16
what Annie and her parents can do themselves
5:19
to improve her physical, mental, and
5:21
sexual health and quality of life.
5:24
So really good questions. Hopefully we
5:26
will be able to answer at least some
5:29
of them. Let
5:33
me see. But
5:36
let's start by reviewing what
5:39
problems we may face then if
5:41
we continue to view ADHD from
5:43
the male norm. The
5:46
thing is that when presented with a
5:48
case of a boy with ADHD, I
5:51
can call him Andy, we have
5:54
parents, teachers, health care professionals are
5:56
quite fast to identify
5:58
his problems of cosplay. ADHD and
6:00
suggest evidence-based treatment for him. If
6:04
we change nothing about this
6:06
vignette, but the name Andy
6:08
for Annie, however, we tend to
6:10
think quite differently. So
6:12
then we will focus much
6:14
more on Annie's relationships of
6:16
why she is so desperately
6:19
seeking attention. And have you
6:21
seen the quite provocative content
6:23
on her TikTok account? Maybe
6:25
she's been traumatized somehow, maybe
6:27
she's been sexually abused. Well,
6:29
instead of thinking about ADHD, we start
6:31
looking for psychosocial causes
6:33
to Annie's problem. And
6:35
Annie will probably be offered to talk
6:38
to someone about her problems, maybe a
6:40
consultant in school or a family treatment
6:42
by the social services. And
6:44
if, or rather when, in Annie's case, she
6:46
doesn't yet help by
6:49
that, she will probably be offered
6:51
antidepressants, and perhaps something
6:53
for anxiety, perhaps something for sleep
6:56
disorders, or even mood stabilizer
6:58
for her emotional instability before we even
7:01
consider ADHD in her case. So
7:03
I'm exaggerating to make a point, of
7:05
course, but looking at our research data,
7:07
this is not as far from the
7:10
truth as you would wish. In
7:17
fact, in our most recent
7:19
study, we found that boys
7:21
got a head start of about four
7:23
years, in respect to diagnosis
7:26
and treatments, with,
7:29
instead, females were
7:31
typically missed during the formative years
7:34
of childhood and adolescence. So
7:36
we looked at them five
7:38
years before, and five years
7:41
after they got their ADHD
7:43
diagnosis, and females consistently had
7:45
a higher risk for physical
7:47
and psychiatric comorbidity and self-harm.
7:50
They were more often
7:52
prescribed sedatives, anxiolytics, antipsychotic
7:54
drugs, or even opioids.
7:57
And they showed up absolutely
7:59
everywhere. in the healthcare system and
8:02
in our social services, often due
8:04
to mood disorders or
8:07
consequences of emotional dysregulation.
8:14
Unfortunately, we are just still
8:16
so used to look at ADHD
8:25
from the perspective of the disruptive
8:27
boys. But Annie, just as Andy
8:29
has ADHD, and
8:31
this is how Annie would
8:33
describe her ADHD life because she
8:35
feel that she is different and
8:37
there's always been something different about her.
8:39
Something that is just slightly off, but
8:42
not enough for others to see and
8:44
validate that. Rather, others
8:47
try to normalize. Everyone feels
8:49
like this. Everyone thinks this is
8:52
difficult. Everyone struggles with this sometimes.
8:54
And Annie just feels that there's
8:56
something different, but she can't really
8:58
find the words for it. And
9:01
she also feels that her brain fails
9:04
her, that she's stupid. And
9:06
when she needs to concentrate, her thoughts
9:08
just slips away or stop. And
9:11
when she should relax, her mind start
9:13
working like crazy to solve world peace
9:15
or what happens after you die and
9:18
think about those kinds of stuff. And
9:21
she feels really hopeless because she can't
9:23
control her emotions or her energy levels.
9:25
And she's realized that if she is
9:28
going to pass a school or manage
9:31
life, she will have to be so
9:33
disciplined and so controlled. She'll have
9:35
to control what she eats, when she exercise,
9:37
when to study, how she is with friends.
9:40
And age 19, there's just not
9:42
that much spontaneity left in her
9:44
life. Her perfectionistic
9:46
tendencies are turning into a
9:49
OCD or a direct prison for
9:51
her. And
9:57
from the perspective of me as a clinician,
10:00
and a researcher, I
10:02
know that just by fulfilling the
10:04
criteria for these four letters, ADHD,
10:06
you will live about 10 years
10:08
shorter than a person of the
10:10
same age, sex, and socioeconomic status.
10:14
And many of these years are lost due to
10:16
the comorbidity and undetected
10:18
and untreated ADHD. The
10:21
good thing, though, the light in the
10:23
tunnel is that almost all of these
10:26
years can be saved if we find
10:28
and identify and properly treat women
10:31
with ADHD in time. So
10:43
girls with ADHD, they
10:45
do exist.
10:49
And given how serious and or
10:51
misdiagnosed ADHD can be, the
10:54
fact that girls with ADHD
10:56
fly under our radar is
10:59
a serious problem. And research
11:01
shows that girls with ADHD
11:03
show fewer externalizing symptoms and
11:05
more often get the ADD
11:07
diagnosis. However, these girls exist,
11:09
and they do struggle without
11:12
being recognized. And they experience
11:14
social and academic challenges. And
11:16
they keep it together outside of home.
11:19
Because girls, on a group level, at
11:21
an earlier age, some boys realize what's
11:23
expected of them in social settings. So
11:26
they mask and they compensate, but that drains
11:28
them of energy. And the meltdowns
11:30
and the tantrums that they get in
11:33
the safe environment of home
11:35
or in safe relationships actually
11:37
hurt their relationships and their
11:39
self-esteem very much. So
11:42
ADHD most often doesn't
11:45
grow out of
11:52
your ADHD. These girls that fly
11:54
under our radar will grow up and
11:56
enter puberty, a Period that is
11:59
very, very, very difficult. In ten.
12:02
Am. And biologically
12:04
so silly and existentially emote.
12:06
Both that with the and
12:08
changes going through the body
12:10
and and the socialists as
12:13
situations and now we see
12:15
these women and young women
12:17
everywhere because they struggle with
12:19
their emotions. They show up
12:21
in health. Care for depression,
12:24
anxiety, eating disorders, injuries,
12:26
Or in social services because of trauma
12:28
or victim. I say since and the
12:30
paradox? the car that we miss them
12:33
again. Sell. Because
12:36
of as in the case of
12:38
Andy and any we get the
12:40
cliff somewhat it's just words and
12:42
we blame and his struggles on
12:45
trauma or bullying or p rejection
12:47
or depression instead of considering that
12:49
it may be might be her
12:51
very A D H D that
12:54
puts her at risk for depressed
12:56
and foremost social failure. So this
12:58
is really important when we talked
13:00
about out what's comes first and
13:03
so we need a very differentiated.
13:05
View when we looked at the problems
13:07
of young women with a D H
13:09
D. And
13:12
before and he came at me and
13:14
before I met her she was diagnosed
13:16
and treated for at least ten. Difference.
13:19
At conditions this is us
13:21
really messy picture put for
13:23
any and for me right
13:25
and and them eating Wonder
13:27
is every one before me
13:29
just had missed the core
13:31
of an is problem Her
13:33
A the it's D or
13:35
that we may have seen
13:37
the same struggles or her
13:39
struggles or her problems the
13:41
same way but frames it
13:43
differently and laying the puzzle
13:45
of an his diagnosis A
13:47
D H D Borderline anxiety.
13:49
Bi polar eating disorder, autism
13:51
among other diagnosis that she
13:53
she's hiding her young life
13:56
will find bad in the
13:58
overlap and the intersection. These,
14:00
ah the diagnosis Nice
14:02
emotional this regulation. So.
14:08
Clearly. The. Emotional lives of
14:11
girls with a D H D
14:13
is a big deal and emotional
14:15
this regulation is more the rule
14:17
than the exception in a D
14:19
H D and our emotions are
14:21
important for us as humans. We
14:24
use them to communicate or need
14:26
to others and struggling in by
14:28
with the recognizing and regulating your
14:30
emotions is a huge handicapped and
14:32
life. And it's
14:34
important to tie A Even though
14:36
that the picture the Anna and
14:39
his picture of her com or
14:41
bit of the is really messy,
14:43
it is important to try to
14:45
disentangle emotional this regulation in a
14:47
D H D it's from other
14:50
it's distinct home or with conditions
14:52
such as depression, anxiety, bipolar Disorder,
14:54
a borderline personality disorder since they
14:56
are more common ah in individuals
14:58
with a D H D and
15:01
also they may need specific treatment.
15:03
Outside of the a two treatment.
15:06
At and then we also have
15:09
the downstream consequences of living with
15:11
a D H D such as
15:14
the increase fifth for periods at
15:16
since the same and stigma associated
15:18
with having a behavioral diagnosis that
15:21
increase. The risk of course to develop
15:23
depression. Social. Anxiety and projects
15:25
insensitivity did. For. Hours The
15:27
The obviously there are quite.
15:29
Ah Difference and complex mechanisms
15:32
underlying this overlap between A
15:34
D H D. Mood disorders
15:37
and Emotion. And
15:42
eight. Am.
15:46
way of looking at the science behind
15:48
this overlap have a d h d
15:50
and emotional distress relations and that resonates
15:53
very well with the testimonies that i
15:55
hear in my clinical practice is developed
15:57
by my friend and research colleagues said
16:01
He and his colleague,
16:03
Xavier Isas-Cattelano, describe emotional
16:05
dysregulation in ADHD and
16:07
borderline personality disorder as
16:10
difficulties in two similar,
16:12
but not entirely overlapping,
16:14
top-down brain regulating mechanisms.
16:17
So in this model, ADHD
16:19
is viewed as difficulties
16:21
in regulating more cool
16:23
or executive attention, while
16:26
borderline and the difficulties
16:29
associated with borderline represent difficulties
16:31
in controlling more hot or emotional
16:33
circuits in the brain. So
16:36
in this way of looking at
16:38
it, ADHD and borderline becomes like
16:40
sister conditions of similar, but not
16:42
identical processes. And Petrovich
16:44
and Catelanos, they argue that we
16:47
may talk about an emotional
16:50
subtype of ADHD located just
16:52
in between ADHD and
16:54
borderline personality disorder. And
16:57
that might help us actually
16:59
also target and tailor interventions
17:01
and treatments directly to a
17:03
specific individual. But
17:10
we have to make the
17:12
picture even messier, unfortunately, for
17:14
us as girls and women,
17:16
because we have to also factor
17:19
in the fluctuating hormones across the
17:21
entire reproductive female lifespan. So
17:23
estrogen and progesterone will be produced in
17:26
the ovaries, among other places in the
17:28
body, and they easily pass
17:31
through the blood, the brain barrier
17:33
and access our brains. And there
17:36
are hormonal receptors in literally
17:38
all brain regions that are
17:40
involved in emotional regulation indicating
17:42
that hormones are very much
17:44
involved in how we feel
17:46
and how we function. So
17:51
this is really
17:53
important and again, not
17:56
sufficiently taken into consideration.
18:00
And the risk, again, that we
18:03
miss when we use research
18:05
in clinical experience based on
18:07
pre-pubertal boys that do not,
18:10
have not entered puberty yet.
18:12
And once they
18:15
enter puberty will not exhibit
18:18
these monthly fluctuations
18:22
of quite dramatic changes of
18:25
estrogen and progesterone levels. So
18:28
firstly, we know that these predictable
18:30
periods of changing hormonal levels
18:32
create vulnerable periods across the
18:34
entire female life or the
18:37
entire female reproductive life anyway.
18:39
So in our research group, we
18:42
have actually targeted these
18:44
vulnerable periods in the women and
18:47
girls' lives and done studies specifically
18:50
in youth centers, in maternal health
18:53
care and in women's clinics. And
18:55
these studies, they
18:57
show that, for example, teenage pregnancies
18:59
and teenage births are six times
19:02
more common in girls and women
19:04
with ADHD. And
19:07
we know that giving birth to a child
19:09
in a very early
19:11
stage in your life will affect both
19:13
you, your, and your
19:15
young child's psychosocial development across
19:17
your entire life. So
19:20
this is something that we wish
19:22
that girls and women, young women
19:24
with ADHD also are allowed to
19:26
plan when they are, when
19:29
they are founding their families. And
19:33
ADHD girls and women are actually five times
19:35
more likely to experience depression
19:37
following the traditional prescribed
19:40
oral contraceptives. And
19:43
we also have shown that 20%
19:45
of pregnant women with ADHD will
19:47
develop postpartum depression and anxiety following
19:49
birth and that women
19:52
with ADHD more often suffer from
19:54
pain and stress related conditions during
19:56
their period menopausal year. So across
19:58
the entire female lifespan. There
20:00
are vulnerable periods associated
20:03
with fluctuations in
20:05
estrogen and progesterone levels. And
20:08
again, I guess I
20:10
will have to stress this
20:12
a lot of times during
20:14
this lecture, but 99% of
20:17
the research is done on
20:19
male or even prepubital boys,
20:22
where this is absolutely not taken
20:25
into consideration. So
20:31
from puberty to many parts, naturally
20:33
cycling females will experience quite dramatic fluctuations of
20:35
circulating sex hormones affecting both how we feel
20:37
and how we function. Let's
20:42
say we have like a cycle of 28 days,
20:46
a normal and regular
20:48
length of a menstrual cycle. Then
20:53
day 1 to 14 or the
20:55
follicular phase will be about the
20:57
body preparing to release or perhaps
20:59
also receive a fertilized egg. This
21:02
is why estrogen levels will rise
21:04
to a maximum peak at day
21:06
14, triggering this ovulation. And
21:09
research actually shows that risk-taking
21:12
behaviors may increase, not
21:15
necessarily due to negative feelings,
21:17
but due to positive emotions. During
21:21
this time of the menstrual cycle. However,
21:23
as often
21:26
is the case in young females with ADHD,
21:29
if the result of even
21:31
though positive impulsive behavior is
21:33
drinking alcohol, taking drugs, having
21:36
risky sex, driving a responsibly
21:39
or shopping impulsively, the consequences
21:41
might be just as serious.
21:45
Also, since estrogen and dopamine may potentiate
21:47
each other, side effects
21:49
of ADHD medication that affect dopamine
21:52
levels may further increase the risk-taking
21:54
behavior. So if you have an
21:56
ADHD profile that is defined mostly
21:58
by impulsivity and hyperg, this
22:01
part of the menstrual cycle may actually
22:03
be the most difficult part of the
22:05
month for you. And
22:08
then, following day 14, estrogen
22:10
levels fall quite steeply, stabilizing
22:12
on a lower level
22:14
during day 15 to 28, the luteal phase.
22:19
Then instead, progesterone levels will
22:21
start rising, creating an entirely
22:24
different hormonal environment where women
22:26
generally report more symptoms of
22:28
depression, anxiety, rejection, sensitivity, dysphoria,
22:31
sleeping problems, cognitive difficulties with
22:33
memories, etc. So
22:35
if your ADHD profile is defined
22:37
mostly by low energy levels and
22:40
anxiety, then the period around a
22:42
higher estrogen level might offer a
22:44
welcome energy and mood boost, but
22:46
you may instead suffer tremendously with
22:49
PMDD, PMS in the later
22:51
part of your luteal phase. And
22:54
this just sheds light on
22:56
how important it is to
22:59
not just use the one-size-fits-all
23:01
regime that we do when we use the
23:03
male as the norm for ADHD. And
23:10
in fact, females
23:15
have shown to have an increased risk
23:17
with everything from stress, depression,
23:20
anxiety, to relapsing into binge
23:22
eating, addiction, suicidal ideation, and
23:24
psychosis in the luteal phase.
23:29
And there is also, even though a
23:31
very limited research at this point
23:34
indicating that women with ADHD are
23:36
at increased risk for just
23:39
experiencing PMDD, postpartum depression, and
23:41
worse climatic symptoms. But
23:43
again, we talk about this and we
23:45
hear this a lot in our clinical
23:47
practice and in our everyday life talking
23:49
to each other. So
23:52
we might think that there is a lot
23:54
of research on these topics out there, but
23:56
it's not. And
24:01
The problem is that the research
24:03
that is there showing
24:05
that there are vulnerable faces
24:07
in a woman's life for
24:09
both ADHD and non-ADHD women,
24:11
still almost no one, me
24:15
included, in the clinic,
24:18
asks us about hormones when we
24:20
seek counseling for mental health issues.
24:23
And this is, again, a
24:25
huge lack and problem that
24:27
we are facing as women,
24:29
where we actually risk not
24:33
getting the correct medical
24:36
advice and support. So,
24:43
in essence, female ADHD,
24:45
emotions and hormones can create
24:48
the perfect storm for girls and
24:51
young women with ADHD. And
24:55
unfortunately, there's almost
24:57
no research validating girls
25:00
and women's experiences here. So,
25:02
at this point, I'm afraid
25:04
to say that it's really up to
25:06
us as girls, women, parents, clinicians to
25:08
try to figure out how this is
25:11
all tied together for every single
25:13
unique girl and woman. And it
25:15
might sound like that is a
25:17
huge job for me
25:19
as a clinician, but it's not, because it's
25:22
really interesting and it's really rewarding. So, I
25:24
really urge all of you, either
25:26
if you are a clinician or if you are a girl
25:30
or woman yourself or a parent
25:32
to a girl, to really lean
25:35
in to this knowledge
25:37
about how hormones affect our
25:39
ADHD symptoms and our mental health. And
25:44
this is also why our research
25:46
group always use patient and public
25:48
involvement and co-create both our
25:50
research questions and the self-care tools that
25:53
we develop, such as Letter Life that
25:55
I'm going to show you soon. And
26:01
to this end, we have developed a model that we
26:03
call ADHD 24-7. And
26:06
this is to capture like the wider
26:09
perspective of the ADHD life for both
26:11
children and adults. Because
26:14
ADHD doesn't go to bed, it doesn't
26:16
take lunch breaks or vacation, it goes
26:18
on 24-7 and it affects every aspect
26:20
of your life. And
26:22
to get the correct support, you
26:25
need to speak the same language and
26:27
to be able to communicate both
26:29
your difficulties, your problems, your
26:31
strengths, and also your
26:33
needs to your doctors or to
26:35
your nurses or to the teachers
26:37
in your child's school. So
26:40
I will just quickly walk you
26:42
through the two, four, and seven
26:45
of our model and try
26:48
to explain why we think
26:50
this is a good way
26:52
to start when we build
26:54
the common language
26:56
and the common knowledge about girls
26:59
and women with ADHD. So
27:02
we start out with a holistic view
27:04
of us humans and we
27:06
argue that we all, regardless
27:08
of if we have ADHD or
27:11
not actually, have some basic needs
27:14
if we are supposed to live a
27:16
good and healthy life. So first of all,
27:19
we need
27:22
a social community where we safely can
27:24
communicate what we think, what we feel,
27:26
and what we need without being judged.
27:29
Many girls with ADHD that I
27:31
talk to does not feel that school
27:34
provides a protective or inclusive
27:36
tribe for them, quite the
27:39
opposite, in fact,
27:41
unfortunately. And
27:44
also, except having
27:46
this social community, we also need
27:49
a calling where we feel that
27:51
what we do contributes to something
27:53
that is meaningful for someone more
27:56
than just me. And
28:00
we okay to feel com the tends to
28:02
handle the challenges that we saved. In
28:05
life and again, so many of
28:07
the girls that I mean difference.
28:09
Ah, and I feel that there
28:11
is very much meanings with anything
28:13
in their lives at the moment.
28:16
school skiing unfortunately again in no
28:18
exception. And it's really
28:20
hard to motivate yourself and to
28:22
motivate yourself when you have a
28:25
D. H D was a motivational
28:27
disorder. Ah am at Lawrence to
28:29
motivate yourself then to go to
28:32
school and to participate in that
28:34
when you don't see the purpose
28:36
of it all and I and
28:39
we think and we have disgusted
28:41
at length of lamb with our
28:43
patient panels and and an hour
28:46
and lead patients users am that
28:48
if we ignore. These two
28:50
and like and basic areas
28:52
of life. our support the
28:54
now interventions risk being ah.
28:57
At vests useful and at worst
28:59
actually harmful for people. For.
29:02
This is a very important basis
29:04
for what we do and then.
29:07
And we have the For in
29:09
our at Twenty Four Seven model
29:11
and and enough important aspects and
29:13
of building the emotional intelligence in
29:15
a D H D is to
29:17
understand how you A D H
29:19
D brain is wired and how
29:21
it deals with information from the
29:23
outside world and from your body.
29:25
So my aunt talking about about
29:27
for all brains are difference ah
29:29
I'm a have strengths and challenges
29:31
and and by using metaphors for
29:33
different complex brain processes such as
29:35
central for he ran. Top
29:37
down regulation me that cognition and
29:40
cognitive flexibility, for example, we allow
29:42
even younger kids to understand why
29:44
some things like for example,
29:47
emotional self regulation may be so
29:49
much more difficult for me
29:51
than for my peers. So
29:54
am the for most
29:56
important. Areas of
29:58
concern here then. and
30:00
that stands out in our research
30:03
are your brain's control tower.
30:07
So this is your ability to overview what
30:10
you need to plan, prioritize,
30:12
organize, execute in your everyday
30:14
life. Imagine
30:17
that your brain is like a huge
30:19
airport with planes coming in from the
30:22
entire world every
30:24
minute, taking off every
30:26
minute and everything needs to be coordinated
30:28
to the very second to avoid like
30:31
crazy or disastrous
30:33
accidents. And then imagine
30:36
that you don't have anyone working in
30:38
the control tower of your airport. You
30:40
have to manage everything manually and
30:43
just an ordinary day in school
30:46
will require enormous amounts of energy.
30:49
So this is the first important area that
30:51
we have to discuss with our girls. The
30:56
next area will
30:59
be to the
31:01
brain's volume button. So
31:05
your ability to regulate and moderate
31:08
not only your activity levels,
31:10
but everything from your energy
31:12
levels, appetite to your emotions.
31:15
So imagine that your volume button
31:17
gets stuck at zero. It's impossible
31:19
to get anything done and everyone
31:22
around you just say, but
31:24
do it. You'll feel so much better afterwards.
31:26
And then imagine how this volume
31:28
button stuck at zero without you
31:30
knowing how or why just ramps
31:33
up to 100. And it's impossible
31:35
to stop eating. It's impossible to quit
31:37
gaming or to wind down and go
31:39
to sleep. So
31:41
that was the other, the second area
31:44
that we need to discuss with our
31:46
ADHD girls. And
31:48
then we need to actually have
31:51
had a common language for. The
31:53
third area here would be our brain's virus
31:55
filter or your ability to filter out irrelevant
31:57
information from the outside world. and
32:00
from your own body. So then
32:03
imagine that every microscopic stimuli
32:05
comes through into your brain
32:07
and requires processed speed in your
32:09
brain, in your brain's
32:12
hard drive. It's everything from how
32:14
the clouds feel on your body,
32:16
your bowel moment, smells
32:18
from outside, everything competes
32:21
for your attention. And
32:24
that is something also that
32:26
girls and women can describe
32:28
quite vividly, how extremely tired they
32:31
get in social situations.
32:34
Not because they don't appreciate social
32:36
situations, because they cannot handle the
32:38
influx of competing
32:41
stimuli. And then the
32:43
fourth area would be your
32:45
brain's gearbox, or your
32:47
ability to shift out of negative
32:49
ruminating thoughts, or to
32:51
try something new when the things that you
32:54
do actually don't work anymore. So
32:56
then imagine that you keep getting stuck
32:58
in loops of negative
33:00
toxic thoughts. And even
33:03
though you know that it
33:05
would be really good to try to view
33:08
things in a lighter perspective, and
33:10
that these clouds really, or
33:13
thoughts really cloud your mind
33:15
and poison your relationships, you
33:17
just can't think past them
33:19
or stop their toxic influence
33:21
on your mental state. And
33:24
that is also something that is common
33:28
for female with ADHD
33:30
to describe, and that we have
33:33
to have a common language for. And
33:35
then moving to the next last
33:38
part of the ADHD 24-7 model then, is
33:44
our seven lifestyle factors that cost
33:47
so much of the risk for
33:49
both mental and psychiatric
33:51
comorbidity in ADHD, but
33:53
also that carries great possibility
33:55
of improving our emotional intelligence
33:57
and build emotional resilience. we
34:00
can find healthy routines and
34:03
we can do them with moderation. But
34:05
it's no secret. And research clearly
34:07
shows that the ADHD brain finds
34:09
it so much harder than neurotypical
34:11
brains to set up and keep
34:13
healthy routines for diet, exercise, sleep
34:16
and work load in school or
34:18
at work. Also,
34:20
it's so much more difficult to
34:22
regulate your emotions and get much
34:25
more easily, much more easy to
34:28
get addicted to nicotine, alcohol, drugs
34:30
and gambling or have
34:32
problems with gaming, shopping or social
34:34
media. And as we grow up and
34:37
as our children get more and
34:39
more independent, we also are expected
34:41
to manage and structure our lives
34:43
independently to pay our bills, to
34:45
remember to take our medication or
34:48
to meet appointments and deadlines
34:50
without our parents or partners having to
34:52
remind us of the time. And these
34:55
areas, these seven life areas are
35:00
standout in our research and
35:02
also in other research as
35:05
carrier of so much of the
35:08
comorbidity load and the decreased quality
35:10
of life load for
35:12
both males and females. And
35:18
the problem here, unfortunately, having ADHD,
35:20
you will live in
35:23
a world designed for the 95% of
35:25
the neurotypical people and you risk getting
35:28
a lot of well meaning but
35:31
quite useless or even
35:33
actually harmful advice for
35:36
how you should manage life and why
35:39
life keeps being so difficult for you.
35:41
So my favorite advice then would be,
35:44
since I have a background in addiction
35:46
medicine, would probably be, oh, you seem
35:49
so tense and stressed out, you know,
35:51
live a little, have a drink and
35:53
relax. Or why not on
35:55
the topic of the emotional lives of
35:57
girls with ADHD. If you... you
36:01
need to stand up for yourself
36:03
and say that. That's really, really
36:05
bad advice when so much of
36:07
the emotional life of girls revolves
36:10
around social struggles and rejection
36:13
sensitivity. So this we
36:15
need to focus on
36:17
better advice to
36:19
try to build our emotional
36:22
intelligence. As
36:25
a outcome, we help then girls and young
36:27
women with ADHD to develop their emotional intelligence.
36:30
Well, in our research, based
36:32
on this patient and public involvement
36:35
and our co-creative development of
36:37
the digital support tool for
36:40
women, Leterlife, we have identified
36:42
some key areas for female
36:44
ADHD. So, first
36:47
of all, many ADHD girls and their parents
36:49
feel abandoned by health care and
36:52
they feel left with a, at best,
36:54
an incomplete toolbox. Many
36:56
women also specifically
36:58
say that their ADHD problems
37:01
stem from difficulties in regulating
37:03
emotions and energy levels. And
37:06
many feel that they somehow
37:08
have to choose between strategies
37:10
based on medication and health
37:12
care or self-care, self-help or
37:14
skills training. Or that medication,
37:16
for some reason, doesn't work properly or that
37:19
both side effects and effects are
37:22
inconsistent and hard to understand, perhaps
37:24
due to hormonal situations. And
37:27
to build the emotional intelligence
37:29
and resilience, we focus on some
37:31
key ingredients that are adapted from
37:34
CBT, GBT, motivational interviewing
37:37
and mindfulness. Because
37:40
if you have masked or mimicked in
37:42
order to feel normal your entire life,
37:45
your self-awareness is probably
37:47
quite underdeveloped. And you
37:49
may feel very overwhelmed
37:51
by questions like,
37:54
what do you feel or what do you want me
37:56
to do or what do you need? So,
37:58
when monitoring, instead
38:01
of focusing on how you feel, focusing
38:03
on how you are doing. You
38:05
might start by monitoring how you do on
38:08
the different lifestyle factors that we talked about
38:10
in our 24 seven model, for example. That
38:12
might be a good start for understanding your
38:14
emotions and what triggers them. It
38:17
can be everything from hormones to rebound
38:19
effects of medication or a bad night
38:22
sleep. And
38:24
then when you keep track of what
38:26
works and what you have
38:28
to struggle with, you can also send messages to
38:30
your future self before upcoming
38:32
PMS days, instead of having
38:35
others like parents pointing out
38:37
to you when you
38:39
are misbehaving or when you're probably
38:41
having a bad day. This
38:45
might be especially than empowering for
38:47
teenagers. And collecting
38:49
also your own real life information
38:51
about yourself will also armor you
38:54
with objective and personal data, allowing
38:56
your healthcare professionals a better basis
38:58
for their medical decision-making. And
39:01
as we said, there are almost all no
39:03
research on this topic. So we have to
39:05
provide the information for the healthcare professionals. We
39:08
have to provide the
39:10
information on how hormones, for example,
39:12
influence how we feel and how
39:14
we are doing. And
39:17
our emotional intelligence is built in
39:19
interaction with others that
39:23
we feel safe with and
39:25
respected by. So that is
39:27
why techniques from motivational interviewing,
39:29
for example, like active and
39:31
non-judging listening and
39:34
reflecting is really crucial. So instead
39:36
of coming up with suggestions and
39:38
delusions, try to just reflect
39:40
back what your child is telling you. So
39:44
to be heard and to be listened
39:47
to is really empowering
39:49
and it builds emotional
39:51
self-efficacy. So
39:53
finally, we
39:55
have identified some key concepts where
39:58
the common language of the... the
40:01
ADHD 24-7 model may help us
40:03
to come through to other important
40:05
adults in our children's life. So
40:08
you wanna make sure that your daughter's
40:11
school, for example, has sufficient understanding of
40:13
her unique challenges. And by
40:15
explaining her difficulties using the metaphors that we
40:17
use in the 24-7 model, may
40:20
help the teachers and school staff to
40:22
see beyond this compliant and silent little
40:24
girl that keeps it together in the
40:26
class just to explode when she comes
40:28
home. She does
40:31
really well in school, but it's so drained
40:33
of energy that she just has to go
40:35
straight home after school and
40:38
miss out on all the important
40:40
social life that the other
40:42
girls share. So
40:44
use our metaphors here or invent
40:46
your own, but the important thing
40:48
is to start to quite
40:51
early in life, talk to your child
40:53
about how emotions and lifestyle factors are
40:55
tied together. So
40:57
don't forget to talk about how in
40:59
period of hormonal changes, for example, or
41:02
other stressors, we have to be extra
41:04
careful with our body balance and make
41:06
sure to eat healthy, to have a
41:09
good sleep routine, and
41:11
to exercise regularly to build our
41:13
emotional resilience. And also that
41:15
it's not cheating, but really, really
41:17
smart to start building a
41:19
really diverse toolbox to handle your emotion
41:22
in different parts of your life. And
41:29
reaction sensitivity dysphoria or RSD
41:32
is characterized by extremely painful emotional
41:34
responses to real or imagined criticism
41:36
or rejection from others. And it's
41:38
really common in ADHD
41:41
and it can become a self-fulfilling
41:43
prophecy. So I
41:45
would just like to tell you
41:47
a little story, our little results
41:50
from a research study actually, who
41:52
shows the power
41:54
of teaching girls with
41:57
emotional dysregulation to give... time
42:00
to not react on instinct,
42:02
but to try to reappraise what they
42:04
are seeing and what they are experiencing
42:07
in different situations. Because if someone shows
42:09
you a picture of a woman crying
42:11
and asks you to
42:14
guess what she's feeling, you'll probably say that
42:16
she looks sad, right? But if
42:18
you don't hear that she just met her son
42:20
who's been traveling in Asia for a year, you
42:22
might perceive her reaction quite differently, right? So
42:25
this reinterpretation influences our
42:29
emotional brain processes, something
42:31
that we actually make use of when
42:34
we develop our emotional intelligence. And
42:37
a key to
42:39
that emotional intelligence is to recognize
42:42
when your brain is more easily
42:44
triggered, perhaps using or during PMS,
42:47
and to work actively to reappraise
42:49
your perception and emotion and refrain
42:52
from acting until you feel emotionally
42:54
anchored. And
42:57
finally, how do we build emotional resilience
42:59
in our children? Well, first of all,
43:01
we want to make sure to optimize
43:04
the things that we can actually
43:06
influence. Some research
43:08
suggests that stimulus
43:10
medication may improve emotional
43:13
discrimination, but others show
43:15
less promising effect. Some
43:18
things that we don't know, and we have
43:20
anecdotal evidence pointing to differences in
43:22
medication effects across the menstrual cycle. And
43:24
since dopamine and estrogen may moderate each
43:27
other's effect, this is a valid
43:29
hypothesis. And that could
43:31
lead to both over and understimulating a
43:34
stimulation of the medication, depending on the
43:36
hormonal status that we talked about earlier.
43:40
And also, if your child suffers from
43:42
distinct comorbidity, she may need treatment for
43:44
that also, because it's not certain that
43:46
ADHD treatment will take care of symptoms
43:48
of anxiety, depression, or bipolar disorder. Second
43:52
of all, we have mindfulness.
43:54
So part of building emotional resilience
43:57
is finding ways to stop the
43:59
emotional impositivity. and buy yourself time
44:01
to reflect and choose a way to react
44:04
that you can live with, even
44:07
though the emotion will pass. So
44:09
even though there is not much
44:11
evidence for the effectiveness of mindfulness-based
44:13
practices in ADHD in younger children,
44:15
it's often used in DBT, treatment
44:17
for older adolescents with emotional dysregulation.
44:20
And again, it's almost never either or. You
44:23
don't have to choose medication or to
44:25
meditate your way out of ADHD, but
44:27
rather try to introduce this aspect of
44:29
reflecting on your body balance and
44:31
recognizing your emotions and talk to
44:34
your child about that. And
44:36
then finally, moderation. So if
44:40
you and your daughter are anything like the
44:42
many girls with ADHD in women that I
44:44
know, moderation is probably not your middle name.
44:48
But then my experience,
44:50
however, is that even very young children can
44:52
visualize the volume button in the ADHD 24-7
44:54
model. And
44:57
working towards moderation in
44:59
all aspects will build,
45:01
actually, emotional resilience. So try to
45:03
be creative. Maybe you can
45:05
do a check-in race of how long
45:08
you can go without
45:10
entering the volume button's danger zone,
45:12
how long you can stand doing
45:15
things in the
45:17
activity level between 40 and 60, or
45:21
how you can take yourself out of the
45:23
danger zones. And
45:30
really, really important also when
45:32
we talk about the emotional life of girls
45:35
and women is to understand
45:37
that they have probably, if
45:40
they are un- or misdiagnosed,
45:42
build up a life
45:44
with perfectionism, stigma,
45:47
and shame around themselves and their
45:50
behavior. So
45:52
to identify the downstream psychological consequences
45:54
of living with undiagnosed or untreated
45:57
ADHD is really important. girls
46:00
and women, young women, they have developed a harsh
46:02
and negative choir of voices
46:04
playing on auto repeats day and night.
46:07
Voices of self-doubt, not doing things good
46:09
enough, letting yourself or others down, or
46:11
being a failure and impostor. So
46:14
this is why we have to
46:17
work empowering and compassionate
46:20
and try to exchange the vicious
46:22
choir by a
46:25
compassionate choir and self-awareness. And
46:28
knowledge that emotions are made
46:30
from perceptions, interceptions and previous experiences is
46:33
key here. And
46:35
knowing that as long as you
46:37
don't act on your emotions they
46:39
can't hurt you. Again
46:41
self-discipline might sound counterintuitive
46:46
when it comes to fighting perfectionism,
46:48
but the truth is that setting
46:50
empathic boundaries for yourself and
46:54
for others, for example
46:56
asking for a timeout in a
46:58
heated discussion before it turns into
47:00
a conflict, you buy yourself time
47:02
and you show yourself and
47:05
others that you can stay in
47:07
control. And you take responsibility for
47:09
the situation and you stay accountable
47:11
by circling back then afterwards when
47:13
the temperature is cooled off. And
47:15
then self-compassion is a necessary component
47:17
to heal and to move away
47:19
from degrading self-image and to build
47:22
healthier relationships to yourself
47:25
and to others. Maybe enjoy
47:29
a gratitude practice every evening or
47:31
when you drive your kid
47:33
to work. So
47:36
before we round up, do
47:38
we have the information now
47:41
to answer Annie and her parents questions? Do
47:43
you remember the questions? First
47:47
of all, Annie asked
47:49
us if her brain was wired differently.
47:51
And I think we could say yes,
47:53
but also that all brains are different.
47:55
So we will ask her to be
47:57
curious about her own ADHD profile. Then
48:01
they asked us, her parents, how it
48:03
all would tie together. And we could
48:05
say that, yes, emotional dysregulation is the
48:07
core feature of ADHD, especially in females.
48:09
And hormones affect brain processes. That
48:13
is crucial to regulate behaviors. They
48:16
also asked us what we risk. When
48:19
clinicians don't understand, that goes differently. And
48:21
we can say that this is
48:24
a great question because early detection
48:26
and adequate support is crucial to
48:28
prevent multimability, polypharmacy, and extensive health
48:30
care utilization associated with female ADHD.
48:33
And finally, they wanted to have tips
48:35
and tools to navigate. And we say
48:37
that, yes, there are a lot of
48:40
tools out there, but it's really important that you
48:42
are aware of
48:44
your own ADHD profile and that communicate
48:47
your own needs to others.
48:50
And that you arm yourself with your
48:52
own objective real life data for
48:55
safe, shared decision making with your health
48:57
care professionals, for example. And
49:00
then I would just like to say, again,
49:03
thank you so much for
49:05
the opportunity to talk to
49:08
you today. And
49:10
looking back at the time that has
49:12
passed since I first became interested in
49:14
the emotional lives of girls and women,
49:16
I feel very fortunate that
49:19
the literature and the interest is growing
49:21
and that me and my research group
49:23
is standing on the shoulders
49:25
of some true heroes in our eyes.
49:28
So we hope to be part of the movement
49:32
forward and to be able to be
49:34
part also of the increased knowledge and
49:37
support for females with ADHD.
49:46
And if you
49:50
want to read more about girls and women, there is
49:53
a discount offer from my
49:55
publisher, Jessica Hingsley Publishing. about
50:00
Letter Life, our co-created digital tools
50:02
for females. You're very welcome to
50:04
visit, and we will allow you
50:06
direct access to the app
50:09
for free. And
50:11
please follow me and others advocating and
50:13
raising awareness for female ADHD on social
50:15
media. I'm on Instagram, Facebook, and
50:18
LinkedIn, and almost on TikTok now. Not
50:20
according to my kids, but I
50:23
feel very confident that I will be
50:26
on TikTok in just a
50:28
while. And I
50:30
want to give this quote to round up from the
50:32
French philosopher and author Albert Camus. I
50:34
think it sums up so very much of what girls
50:36
and women with ADHD tell us about their lives. So
50:38
thank you so much for listening, and
50:41
hopefully I will be able
50:43
to take some questions now. Yes.
50:45
Oh, Dr. Skoglin, that was an
50:47
incredible masterclass in ADHD in women.
50:51
And I want to congratulate everyone who's
50:53
listening, because I think at this point,
50:56
our audience probably knows more
50:58
about ADHD in women than
51:00
many of the medical professionals
51:03
who they see. I
51:06
can say that a little bit flippily,
51:08
but it's actually true. Oh,
51:11
unfortunately, that is true. I
51:14
wish that it was not the case. But
51:18
again, we have to educate
51:20
ourselves, and we have to lead the way, I think.
51:23
Yes. So thank you for
51:25
helping us do that. I'm going to do
51:28
a quick recap on the poll question that
51:30
we asked at the outset of
51:32
the presentation today. We asked about the
51:35
percentage that had been evaluated, and that
51:37
was 74% had been evaluated and
51:42
diagnosed their children, and 21% had
51:44
not. Now
51:48
among those children who
51:50
had been diagnosed with ADHD, I'll point
51:52
out that only 42% were screened
51:57
for co-morbid disorders
51:59
like... anxiety and
52:01
depression. I probably
52:04
don't even need to ask this question, but
52:06
Dr. Skogland, should that number not be 100%?
52:08
Oh, definitely. It needs
52:11
to be 100%. Otherwise, you
52:13
haven't really done your work properly.
52:16
I guess I
52:18
will get a lot of angry
52:20
colleagues when I say this, but
52:23
the comorbidity is the rule rather
52:25
than the exception. Sometimes you get
52:27
the misperception that ADHD in females
52:29
is a light version of ADHD
52:32
in males and nothing could be
52:34
further from the truth, actually. Our
52:37
data and other research
52:39
groups focusing actually on females show that.
52:42
We have to be prepared that when
52:44
you have a girl or
52:46
a woman with ADHD, you should be
52:49
prepared for anxiety, depression,
52:51
eating disorders, self-harm,
52:55
even more
52:57
serious than actually for the boys.
53:00
Great. Someone wrote in just now
53:03
to say, is it standard for children to
53:05
get tested for all of
53:07
those in an ADHD diagnosis? I
53:10
think it's really imperative
53:13
for caregivers to insist.
53:17
Yeah, I think it is. It looks
53:20
very differently in different countries and
53:23
even in a small country like Sweden, it
53:25
looks very differently in different settings.
53:27
So we have to advocate for
53:30
this as parents and as
53:32
patients to make sure that we get
53:34
the full picture because we
53:36
need the full picture. That's why the ADHD 24-7 model, we need
53:38
this full picture to move
53:42
forward. Otherwise, we risk actually driving
53:46
off course and doing things,
53:48
wasting time and
53:50
resources. That
53:53
is very serious both for us and for
53:55
the healthcare system, actually. Absolutely.
53:57
You mentioned this. several
54:01
times in your presentation, but I
54:03
think it's worth repeating that girls
54:06
in particular are prone
54:08
to masking their symptoms.
54:10
And sometimes that may look like
54:12
perfectionism, it may look
54:15
like procrastination, even a
54:17
lack of motivation, but it really
54:19
is critical for the clinician to understand
54:25
that the signs and symptoms will
54:27
look different. In
54:30
girls and of ADHD, but
54:32
also, you know, those comorbid like anxiety
54:34
in particular, I'm thinking. And
54:37
we have to be curious and clever
54:39
when we ask about this because
54:44
having masks and having
54:46
mimics and having done
54:48
this your entire life
54:51
or your entire life from being a girl to
54:54
a young woman, it's not certain that
54:56
you have the words or that you
54:58
have the expression to actually explain what
55:00
you are going through and what you
55:02
are suffering from. So we have to
55:05
be very
55:07
receptive and actually also
55:09
look on the full
55:11
picture of how
55:13
this girl is doing. And
55:17
overwhelmed would be one
55:19
of the core words, like
55:23
the slogan, I would say,
55:26
for overwhelmed and over flooded.
55:29
That will be so many of the girls that
55:31
I see talk about
55:34
that in different words
55:37
and on different themes. And
55:40
I have to say this dovetails with
55:43
something I heard. I
55:45
mentioned that the Attitude Team attended a
55:48
conference for ADHD this last weekend. And
55:50
one of the leaders in the field,
55:53
Dr. Anthony Rothstein Said, you know, he
55:55
questioned, why is it that ADHD is
55:57
diagnosed on the basis of the ADHD?
56:00
Impairments, but other conditions are diagnosed
56:02
on the basis of suffering or
56:04
just stretch nice and sunny. This
56:06
is like such a lightbulb moment.
56:09
that wouldn't we all say that?
56:11
that are? you know? This.
56:13
Emotional distress that were
56:15
describing here. Is
56:18
it? Even
56:20
if is indeed impairing right arm is
56:22
that if the chives a good points
56:25
and I think we should be both.
56:27
I think we need to look
56:29
at both the impairments because it's
56:31
a lifelong from for many ah
56:34
individuals' and then and the suffering
56:36
of course. Sir.
56:38
And and then I am again when
56:40
you when you get the adequate for
56:43
it's as need to be ah and
56:45
impairments. Everly or for I'll
56:47
be blunt else or it so
56:49
that that that It's a really
56:51
interesting. Ah
56:53
diagnosis that we are fortunately
56:56
insisted. I think. Yes,
56:59
And to that point, and humans, And
57:01
you know a lot of the. Risks
57:04
associated with eighty see this as
57:06
a clean girls and and several
57:09
people asking whether and there's research
57:11
suggesting that on medication use for
57:13
a D C does help to
57:16
reduce those risks. So things like
57:18
on the sexual promiscuity or and
57:20
the Dance on a know you
57:22
name it on yeah there is.
57:25
There is a lot of research
57:27
actually showing that medication can be
57:29
helpful as to reduce a lot
57:32
of the adverse outcomes associated with.
57:34
A D H D Again, what
57:36
we have to remember is that
57:38
may be as we have that
57:40
at samples that include and us
57:42
women and but the I'm what
57:44
what's this ah when I'm almost
57:47
one hundred percent said not is
57:49
that we do not know if
57:51
these women are at oh what's
57:53
their part of their menstrual cycle
57:55
they are or if they're also
57:57
am taking oral contraceptives. So we.
58:00
know about their hormone status, for example,
58:03
when we look at the outcomes. So again, the
58:05
research is flawed in that sense, even
58:08
though it's getting better because we also
58:10
have female samples now. So we have
58:12
a sample that has actually perhaps even
58:14
50-50 females. But then
58:17
we forget that, sometimes
58:19
we forget why we actually
58:21
add females into the research
58:23
studies. And that is because we are
58:25
like two different subtypes
58:28
of the same species. And we have
58:30
to consider the hormonal aspects,
58:32
I think, specifically when
58:34
we consider ADHD, because hormones
58:36
have a lot of
58:38
cognitive effects. Absolutely.
58:41
Such an important
58:43
reminder. We received a lot
58:45
of questions today about whether,
58:47
again, there's research on the
58:49
impact of contraception, birth
58:52
control in adolescent girls
58:55
with ADHD. And
58:58
we know that the comorbidity with PMDD
59:01
is so high. Is there
59:03
any research one
59:05
way or the other? Yeah. So we
59:07
did one study where we showed that women
59:11
with ADHD are five times more
59:13
likely to develop depression following hormone
59:16
oral contraceptives. However, what we saw
59:18
that there was no difference between
59:21
progesterone pills only or combined pills.
59:23
So we don't think that it
59:25
is the absolute level of hormone
59:28
that is important, but rather that
59:30
females with ADHD, due to their
59:32
ADHD, might forget to take their
59:34
pills or take them more irregularly.
59:37
So there will be fluctuations again. And
59:39
that is something that we see and
59:41
that we are going to follow up
59:44
in future studies. That we think that
59:46
it's not the hormones per se or
59:48
the actual hormonal levels, but when hormones
59:50
change, that is
59:53
especially bad for
59:56
neurodiverse women and
59:58
girls. So in And that's also what we
1:00:00
see during the lifespan,
1:00:03
right? That in periods where
1:00:05
hormones are fluctuating or changing,
1:00:07
in puberty, after birth,
1:00:11
postpartum, and in
1:00:13
pyraminopods, across almost 10
1:00:15
years across pyraminopods, when hormones
1:00:17
again. I usually
1:00:20
say, once you finally start understanding
1:00:22
your hormones, then they start changing
1:00:24
again. No, so it's a
1:00:26
huge part of life where
1:00:29
our hormones are actually unpredictable
1:00:31
to us. And
1:00:34
I know we're out of time, but I
1:00:36
have to throw in one last question because
1:00:39
it's just so pertinent here. And that is,
1:00:42
we've been hearing a lot
1:00:44
at Attitude about very new
1:00:46
thinking regarding the ADHD
1:00:48
medication use and how it
1:00:50
may be adjusted to accommodate sort
1:00:56
of the hormonal monthly cycle. Is
1:00:59
there any research that you know that's
1:01:01
going on? And do you see this
1:01:03
as something that we will probably see
1:01:06
more of in the coming years, the
1:01:08
recognition that your dosage may need to
1:01:10
change? Definitely.
1:01:13
So there's a very limited research. There's
1:01:15
only, to my knowledge,
1:01:18
one observational study just
1:01:20
published by Sandra Coy and her
1:01:22
research group. However, this is
1:01:24
something that we see in our clinic all the time,
1:01:26
and that is, that I, usually
1:01:29
I work a lot with cyclic
1:01:31
dosing. So that is definitely
1:01:33
something that we will see more, but
1:01:36
also that's something that we need to
1:01:38
research more thoroughly. So we are
1:01:40
doing, our research group are doing a lot of studies
1:01:42
on this. Hopefully, you will
1:01:44
see them published in a year or
1:01:47
so because research takes time. But while
1:01:50
waiting for research, you should ask
1:01:52
your clinician, what do you know
1:01:54
about this? Can we
1:01:56
educate ourselves together? Can we see how
1:01:59
this is? laying out for
1:02:01
me in my hormonal life.
1:02:03
So don't wait for us
1:02:05
researchers, but hope for us
1:02:07
because we will come
1:02:10
with the evidence in a while,
1:02:12
but it takes some time. So
1:02:14
just start educating yourself and make
1:02:16
sure that you know how hormones
1:02:18
affect you. Dr.
1:02:21
Skoglin, I cannot tell you
1:02:23
how much we appreciate this session.
1:02:25
It really was just mind
1:02:29
blowing. I
1:02:31
really, really
1:02:34
appreciate your contributions, not only to
1:02:36
the attitude community, but to this
1:02:38
whole field of understanding
1:02:40
and being able to help better
1:02:43
women with ADHD. So thank
1:02:45
you from the attitude team. Again,
1:02:49
thank you for having me. It's
1:02:51
a huge honor, thank you. And
1:02:54
thank you to everyone who attended here today.
1:02:57
Please know that you will receive
1:02:59
a replay link for
1:03:02
this video as well as a copy
1:03:04
of the slides. And we encourage you
1:03:06
to share both of them with
1:03:09
your treatment team. And
1:03:12
we hope that you will join us as
1:03:14
well for another Attitude Webinar in
1:03:16
the future. Our next one is on
1:03:18
living with ADHD in year 20. So
1:03:22
please join us again. Sign up
1:03:24
at attitudemag.com/newsletter so you don't
1:03:26
miss a thing. And we
1:03:28
will see you again soon. For
1:03:33
more Attitude podcasts and information on
1:03:35
living well with attention deficit, visit
1:03:38
attitudemag.com. That's
1:03:41
a-d-d-i-t-u-d-e-m-a-g.com. Thank
1:03:51
you.
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