Episode Transcript
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0:01
This is the hardest podcast
0:03
episode that I've had to record to date.
0:06
Since starting this podcast
0:08
back in 2019, many
0:11
of you have asked for an episode on grief. But
0:14
just like my episodes on trauma that took
0:16
years because I dug my heels in because
0:18
the words I was telling myself sounded
0:20
like,
0:21
how can you talk about grief
0:24
when you haven't experienced it? Unfortunately,
0:28
I'm
0:30
now part of this illustrious
0:32
club that no one wants
0:34
to be part of. My
0:37
beautiful mama passed away suddenly. So
0:41
I'm going to talk about grief and how those
0:43
of us with ADHD may handle it differently.
0:52
Thomas Edison, Richard Branson,
0:55
John F. Kennedy, Mozart,
0:58
Michael Jordan, Will Smith.
1:01
That sounds like a list of highly successful
1:04
titans in a variety of vocations.
1:07
Why is it that we rarely hear
1:09
that they have or had ADHD?
1:13
And you know what we hear even less about?
1:16
Serena
1:19
Williams, Emma Watson, Mel
1:22
Robbins,
1:23
Whoopi Goldberg, Agatha Christie,
1:26
Erin Brockovich, Cher. Yeah,
1:30
the successful women navigating ADHD. And
1:33
that's exactly why I started this
1:35
podcast, ADHD for Smartass
1:38
Women. I'm your host, Tracy
1:40
Otsuka. I'm a lawyer, not
1:42
a doctor, a lifelong student,
1:44
now a coach. I'm also
1:47
the creator of Your ADHD
1:49
Brain is A-OK, a
1:51
system that helps people like you figure
1:54
out what they should do with their life. And
1:56
we're here today to talk
1:58
ADHD. your
2:00
symptoms, your work around and how
2:02
you proudly stand out instead
2:05
of trying to fit in. I
2:07
credit my ADHD for some of
2:09
my greatest deaths
2:10
and you know what? I buy
2:13
a happier life for you too. So
2:16
without further ado,
2:18
a shiny new episode is starting
2:21
now.
2:24
I'm Tracy
2:27
Otsuka.
2:28
Welcome to episode number 249 of ADHD for
2:30
smart-ass women.
2:32
I
2:35
hope you'll subscribe to this podcast and
2:37
our newsletter over at tracyotsuka.com.
2:42
My purpose is always to show you who
2:44
you are and then inspire you to be it. And
2:46
in the thousands of ADHD women that
2:49
I've had the privilege of meeting, I've
2:51
never met a one that wasn't truly brilliant
2:53
at something, not one and
2:55
that my friend includes you. This
2:59
is the hardest podcast episode
3:02
that I've had to
3:03
record to date.
3:05
In truth, I've been
3:07
procrast to everything and avoiding
3:09
it like the plague. Which
3:12
means that maybe I didn't have to go
3:14
there, right? But I knew I had
3:17
to do this for my mother. So
3:19
since starting this podcast back in 2019, many
3:23
of you have asked for an episode on grief. But
3:26
just like my episodes on trauma that took
3:28
years because I dug my heels in because
3:31
the words I was telling myself sounded
3:33
like how can you talk about
3:36
grief
3:37
when you haven't experienced it?
3:40
Unfortunately, I'm
3:43
now part of this illustrious
3:46
club that no one wants
3:48
to be part of. So
3:51
I'm gonna talk about grief and how those
3:53
of us with ADHD may handle it differently.
3:56
But first I hope it's okay that
3:58
I share my story. My
4:01
beautiful mama passed away suddenly
4:04
in July. My nephew
4:06
and then my dad contracted
4:09
COVID. They had fairly
4:11
minor symptoms and they recovered quickly,
4:13
but then my mom got it. And
4:16
she had told me that she felt good and that she
4:18
loved me on Wednesday morning. In
4:21
the afternoon when I checked in with her, she
4:23
started to complain of migraines, which
4:26
got progressively worse by evening. The
4:29
thing is my mom often suffered
4:31
from migraines, so it didn't seem that out
4:34
of the ordinary. When I checked
4:36
in with her on Thursday, I didn't hear
4:38
back, but I was running around
4:40
and I didn't even really notice how much time had
4:42
passed. I had a day of meetings,
4:44
a dentist appointment. I had just delivered
4:47
my final copy edited book the
4:49
Tuesday before. So I had so much
4:51
in the work queue to catch up on. And
4:54
my daughter's friend Molly was flying in that evening
4:56
to visit. It was a busy day.
4:59
So
5:00
nighttime arrived and we were all sitting
5:02
around our island eating dinner
5:05
when I got the call. You
5:07
know, the one that you never want to get, the one that
5:10
forever changes your life. And it was
5:12
from my dad. My dad,
5:14
by the way, never calls. My mom
5:16
did all the communications in our family.
5:18
So I panicked because I just knew
5:21
that if he was calling me and
5:23
not my mom, there was something seriously
5:25
wrong. My dad
5:28
said, Tracy, mom had a stroke and
5:30
she's being airlifted to a stroke center at
5:33
Mills Peninsula Hospital to Uprolt. He
5:36
promised to call us back once he heard from the operating
5:38
physician. At that point,
5:40
we would then figure out what to do next. So
5:44
Mills was two hours from our home and my
5:46
parents' home in Sonoma County. It
5:48
also happened to be in the city of Burlingame,
5:50
which is where my parents bought their first home
5:53
and I spent most of my childhood. As
5:56
a child, we had driven by Mills Peninsula
5:58
Hospital several times a day. My
6:01
mom loved Burlingame and
6:03
Hillsborough, which is where we lived from the time I
6:05
was 12. Not so much
6:07
Sonoma County,
6:08
which is where my parents retired to.
6:12
An hour later, my dad called back to say
6:14
that once they had airlifted her to
6:16
Mills Peninsula, they did another
6:18
brain scan and they determined that the risk
6:21
in operating was too great. So
6:24
now all they could do was just wait and see. My
6:26
mom was in a coma and the doctors would meet
6:28
with us in the morning. That
6:31
next morning, we met with her doctor on the floor
6:33
of the ICU. He told us
6:35
that she had a large right side of the brain stroke
6:39
and they weren't able to operate because although
6:41
the brain scans looked good before they airlifted
6:43
her, by the time they got her to the stroke
6:45
hospital, it was too risky to try and remove the
6:47
plot.
6:49
We were told that all we could do was wait
6:51
and see if she might regain consciousness.
6:54
They didn't sound too optimistic.
6:57
So my mom was in the COVID section with all the COVID
6:59
protocols. Her doctor
7:02
asked me if her general doctor knew she had COVID and
7:05
did that doctor prescribe anything if
7:07
she knew? I said the doctor
7:09
knew, but she hadn't prescribed anything. I knew
7:12
this because my sister had had a discussion
7:14
with my mom about this. He
7:16
shook his head and he muttered something to indicate
7:18
that he disapproved of how her
7:20
primary care doctor had handled this.
7:24
That's when he mentioned that strokes are very common
7:27
among those with COVID. I've
7:29
since seen studies that there can be up to a 25 times
7:31
higher likelihood of stroke if
7:34
you have high blood pressure and you get COVID.
7:37
Of course, we didn't know any of this.
7:40
I mean, my mom looked at least 10 years younger
7:43
than a chronological age. She had just visited
7:45
her family in Germany for four weeks a few
7:47
months before and she was getting ready to
7:49
go to Japan with my dad. She
7:52
wasn't sick. She was very active and she
7:54
seemed in great health to us.
7:57
She did, however, have high blood pressure. took
8:00
medication for it. Going
8:03
into her hospital room was awful.
8:06
It was like a bad dream. I felt
8:08
like I was living all those news stories
8:11
where families are surrounding a loved one
8:13
in the COVID unit. Two
8:15
of us could go in at a time and we were outfitted
8:17
head to toe in what they call an isolation
8:21
uniform, which consisted
8:23
of a gown. It was yellow,
8:25
an N95 mask,
8:27
plastic shields, and gloves. Now
8:31
as compared to other COVID patients and
8:33
families, at the start and even
8:35
the middle of the pandemic, we were
8:37
actually really lucky because we could
8:39
be there. Every
8:41
day for the next 10 days I was there with my kids.
8:45
Well it took Marcus a few days to get home from
8:47
New York. But I was there with my kids,
8:49
my husband, and my extended family. The
8:52
prognosis got progressively more depressing
8:55
since my mother never regained consciousness.
8:58
Finally, the medical staff scheduled what
9:00
I'll call the pull the plug meeting with
9:03
all the doctors, which was scheduled after
9:05
a final MRI. All
9:08
the family was present at this meeting and my dad
9:10
made the decision to take her off of life support.
9:14
You know, his father had walked into a plate
9:16
glass wall in his 50s, never regained
9:18
consciousness so that would have been my grandfather right.
9:21
And he was in a coma for six or more years.
9:24
So
9:25
my dad with advice from the
9:27
doctors didn't see that
9:29
there was really any option
9:32
and interest. He was probably right.
9:35
But it was hard.
9:37
The whole process was so overwhelmingly
9:39
frustrating. You know, I think that there was
9:41
something positive only to be shut down once
9:44
it happened. It was almost like the goal peck. The
9:46
goal post kept moving, right? The
9:48
doctors would tell us her left side
9:51
was paralyzed and she needed to start moving it to
9:53
show she was recovering or she was improving.
9:56
And when she started moving it, well, that wasn't enough.
9:58
Then she started, you know, she had to do more. So
10:00
then she started lifting her left leg and her
10:02
left arm and I remember being so happy.
10:05
But then nope, that too, it was just
10:07
not enough. Regardless,
10:10
she was removed from life support with everyone
10:12
around her on Friday afternoon. This was
10:14
nine days later. From
10:17
what the medical staff said, we thought she'd live,
10:19
I don't know, maybe another hour or so. We
10:22
were all playing her favorite songs and singing
10:24
by her bed. But of course, what
10:27
the universe and these doctors didn't know was
10:29
that my mother was about as stubborn as they
10:31
come. My
10:33
daughter, who I dubbed my emotional
10:35
support daughter, I
10:37
could have never done this without her. She
10:39
stayed awake by her bedside all night with me.
10:41
The next morning, my mom
10:43
was still going strong. We
10:46
paid rapt attention to her vitals and
10:48
the horrible term that the nurses called
10:51
the death cell, which is this
10:53
rattling sound that someone who's dying
10:55
makes when they're trying
10:57
to breathe. I had never heard this term before.
10:59
And I'll say it's the most horrible term
11:02
I've ever heard and I beg you, if you are a
11:04
medical professional, to please find
11:06
a different word. I was fine
11:08
with my mom's labored breathing until
11:10
a nurse used the term. And
11:13
you know, our ruminating brains, right? I literally
11:15
felt like I was in this awful William Faulkner
11:18
novel, as I lay dying, right?
11:21
With death buzzards circling around
11:23
the room. Late
11:25
that following afternoon, it was now Saturday,
11:28
we were moved to what they called a comfort
11:30
room, which was anything but. I
11:33
think it was much more stressful than the ICU
11:35
room. You know, they take all the machines
11:37
and staff out that give you vitals.
11:41
So you have no idea. We had no idea
11:43
how my mom was doing. Before
11:46
I had paid rapt attention to every sound she
11:48
made, right? And that this
11:50
was the one. And I could
11:52
pay attention to the equipment. I could
11:54
see what her vitals looked like. But
11:58
after 24 hours of this. I
12:00
knew my mom and I figured she
12:02
was just going to play a trick on us and not leave us
12:05
for who knows, a couple of weeks, maybe
12:07
a month? I didn't know. I
12:10
remember looking at my daughter Ataya who was reading
12:12
on the window seat and my son was on
12:14
his phone. My brothers
12:17
and nieces decided to go grab some food to
12:19
bring back because in all of our minds, this
12:21
was going to take a while. I
12:23
was sitting right next to my mom's bedside and
12:26
for the first time in 10 days, I pulled out
12:28
my phone and I opened up Twitter.
12:31
I was scrolling, I swear to you, for no
12:33
more than two to three minutes and all
12:35
of a sudden my son in a panicked voice says,
12:38
mom, Oma is not breathing.
12:41
Oma is grandmother in German. I
12:44
couldn't believe it. I'm thinking, are
12:46
you kidding me? I missed
12:48
my mom's last breath because of friggin'
12:51
Twitter? I was completely
12:53
besides myself. Actually your mom is
12:55
dying and you can't even focus then.
12:59
I was never going to be able to forgive myself
13:01
for this. The silence,
13:03
that deafening silence lasted
13:05
for
13:07
at least 30 seconds while I sat there
13:09
not breathing myself,
13:10
begging that God, the universe, anyone
13:12
would make sure that I would be right
13:14
here with her when she took her last
13:17
breath.
13:18
And then she took
13:20
the biggest breath I've ever heard.
13:23
Just one. I
13:27
held her hand and she passed
13:29
away.
13:30
It was the best gift
13:33
I could have ever received.
13:37
My mom passed away on Saturday
13:41
at 5.17 p.m.
13:44
Late that evening after we left the hospital, we
13:47
had dinner at a restaurant and sat outside.
13:50
It was the calmest, most peaceful balmy
13:53
evening I've
13:53
ever experienced.
13:56
The sky was the
13:57
brightest blue I'd ever
13:59
seen. and there were stars everywhere. We
14:03
all had a cocktail for my mom. She
14:05
loved cocktails. When
14:08
we toasted her out of the corner of my
14:10
eye,
14:11
a shooting star fell.
14:15
Every Saturday since, I
14:18
get a message on my Apple Watch at 517 p.m.
14:22
that says Mom. It
14:26
was the honor of my lifetime.
14:30
To help her make her transition.
14:34
I was blessed beyond measure to
14:36
have her as
14:37
my mom.
14:41
Right after my mom passed, I asked
14:43
my wonderful assistant, Lydon, to
14:46
pull some podcast reviews for me. I
14:48
was working on a project.
14:51
The last review that she pulled was from
14:53
a young woman named Chelsea Kay.
14:55
These were Apple podcast reviews,
14:57
I believe.
14:59
I wanna read it to you because it made
15:01
all the difference in the world to me.
15:05
It was captioned, she's the ADHD
15:07
role model I've needed in my life. After
15:11
listening to a few other podcasts focused
15:13
around ADHD,
15:15
I stumbled across Tracy's podcast
15:17
to give some background my mom
15:19
passed away four years ago. If
15:22
it isn't hard enough to have ADHD as a young
15:24
woman, it was nearly unlivable
15:26
without the one person in the world who
15:28
understood me and my intentions. Since
15:31
then, so for four years now,
15:34
I've been lost in this fog of feeling like what's
15:36
wrong with me. I thought much of
15:38
it was just the trauma of losing my mom.
15:41
After learning a lot about ADHD, I
15:43
had begun to understand that what
15:46
I was experiencing was my diagnoses
15:48
and not a character flaw. I just no
15:50
longer had the support that I had when my mom
15:52
was alive. All being
15:54
said, I truly didn't know what to do
15:56
with that as I had no one in my life
15:59
to support
15:59
me.
15:59
I am
16:01
without discouraging the parts of me that weren't
16:03
so typical.
16:05
Having Tracy through this podcast has given
16:07
me back the confidence in myself
16:09
by opening me to this powerful community
16:12
of successful
16:12
ADHD women.
16:14
I can't even begin to find the
16:16
words to just how much I needed
16:18
this in my life.
16:20
This content is absolutely
16:23
everything.
16:25
Well Chelsea,
16:26
now it's your turn to be
16:28
absolutely everything. After
16:31
all, this is the only major
16:33
loss that I have ever had in my
16:35
entire life, which is pretty
16:38
damn incredible. I have a daughter
16:40
who just turned 25 and a son who's 21.
16:45
My mom also had me when she was very
16:47
young,
16:48
which it makes me feel selfish for
16:50
wishing for more,
16:52
especially when I read Chelsea's story
16:54
and I have friends who lost a parent as
16:56
a child. Still, I guess
17:00
we just assume our moms
17:02
will live forever,
17:04
don't we?
17:06
I'm grateful for you Chelsea for coming full
17:08
circle and comforting me by reminding
17:10
me of how blessed I am to
17:12
have had my mom as long as I
17:14
did. I
17:16
also have a wonderful supportive husband
17:19
and two kids that were everything I needed.
17:22
I can't imagine how difficult it must
17:24
have been for a young woman like
17:26
you to
17:27
do this by yourself.
17:29
You're amazing and if you're out there and
17:32
you're hearing this,
17:33
write me.
17:35
So this is my story,
17:38
but this podcast is about grief, right?
17:40
And how we might process it differently
17:42
than a neurotypical molt. The
17:45
strange thing is, I don't know if it's my
17:48
reticular activating system. You know, once
17:50
you're looking for something like, I don't
17:52
know, you're going to buy a red Kia and
17:54
all of a sudden you start seeing red Kias
17:56
everywhere, but I
17:59
don't think so. Several women
18:01
that I know lost their moms right
18:03
around the same time that I lost mine. And
18:07
I'm hoping to get them together for a podcast
18:09
in the not too distant future because I
18:12
think we could all learn a lot from them, myself
18:14
included. One of them
18:17
is a very good friend of mine and although I absolutely
18:20
would have gone it alone if the choice was that her
18:22
mother would still be here. But
18:25
if it had to happen to both of us, I feel blessed
18:27
that she was going through this almost
18:31
the exact time when I was. What
18:34
I also realized is like anything you haven't
18:36
experienced, you just don't get
18:38
it until you
18:39
experience it.
18:42
This is why I worry about talking about
18:44
anything that I don't have first-hand knowledge of.
18:46
You know, I've had many people
18:48
tell me that they've lost a parent and of course
18:51
I've said the obligatory, oh,
18:53
I am so sorry. But
18:55
in truth, I realize now I wouldn't
18:57
really get it. And
18:59
so when people say that to me now, I'm
19:02
thinking
19:03
you've never experienced this, you don't
19:05
really get it.
19:06
You know, my own husband lost his dad within
19:08
nine months of us getting married and then
19:11
his mom seven or so years later. I
19:14
don't even remember how I responded. But
19:17
I know now I wish I would have done
19:20
more.
19:21
So
19:22
let's start talking about what these differences
19:25
and how
19:25
we might process grief could be.
19:28
Now, remember, we're all different. So
19:30
our experiences will likely be different.
19:33
But given the brain we share, I suspect
19:35
that you might be able to relate to quite
19:38
a bit of what I'm going to say.
19:40
Okay, here's the first one.
19:43
Those of us with ADHD
19:45
may have a different perception of time.
19:48
We know we have time perception challenges,
19:50
right? But this might affect how
19:52
we experience the grieving process. We
19:55
might feel that time is passing too slowly
19:57
or too quickly or like in my case. we
20:00
may have no perception of time
20:02
at all. You know, I've
20:04
heard others who've lost a loved one say this
20:06
too, but everything
20:09
in my life is now marked by before
20:11
my mom had her stroke and after
20:14
she had her stroke. From the products
20:16
in my makeup bag to the expiration date
20:18
on food in the refrigerator, to clothes
20:20
in my closet, to photos on my phone.
20:23
Everything I look at, I
20:26
now look at through the lens of
20:28
when my mom was here versus
20:30
when she wasn't.
20:32
I have to constantly get rid of messages on my phone
20:35
so that my mom stays at the
20:37
top of my DMs. Yesterday
20:40
I opened an email and I realized that threads
20:42
started when my mom was healthy and here.
20:45
I'm constantly looking at dates and just
20:47
wishing and bargaining about if
20:49
I could just go back to that earlier date.
20:54
If I could have just known, if
20:57
I could have just run over to my
20:59
mom's house and checked on her.
21:02
I'm doing less of that, but it's
21:04
still there. The time
21:06
that has passed, it's almost like it means
21:08
nothing. It's almost like it stood
21:11
still and that any moment
21:13
my mom's going to walk through the door and she's going to tell
21:15
me, oh my gosh, this was all just a big joke.
21:19
I know intellectually what happened,
21:21
but it still doesn't
21:23
feel real.
21:26
I'll have photos of my mom everywhere and
21:28
I bought this beautiful
21:30
knitted
21:31
mommy rabbit and she has a little baby rabbit
21:34
in her pouch in her front pocket
21:37
and I bought one for my daughter also and without
21:39
fail I think of my mom every morning
21:41
when I wake up and every
21:43
night when I go to bed and I go
21:46
hug my mommy rabbit. Look,
21:49
if you have someone who needs a beautiful hand
21:51
knit doll, I
21:53
can't rave enough about the quality and the mission
21:55
of cuddle and kind.
21:57
I don't get anything for telling you this, I'm just so
21:59
impressed. with
22:00
the quality of what it is they do.
22:02
And they also donate 10 meals to a child
22:05
with the purchase of every doll. I
22:07
bought several of these and a few times during
22:09
the year they'll offer 25% off, but I've
22:12
never bought one for myself. And
22:15
it's weirdly comforting. She's
22:18
big. She's like 20 inches tall and she's super
22:20
soft and cuddly.
22:22
And I love her. I know I'm far too
22:24
old for this, but it gives me comfort.
22:29
How else might those of us with ADHD
22:31
handle grace differently? Well,
22:33
we probably won't do things like everyone
22:36
else, right? We may want more
22:39
options. We may be more
22:41
tenacious. We may be
22:43
more optimistic. And
22:45
like me, you may be a ball
22:48
in a china shop. We do
22:50
things differently, right? We challenge the status
22:52
quo. We're optimists. I
22:55
couldn't take what the nurses, doctors, and even
22:57
my family was saying. Everyone
22:59
had given up. I'm sure
23:01
they would say they were being realistic. But
23:04
I just have this belief that where there's
23:06
a will, there's always a way. It's
23:09
just who I am and it means I can't live
23:11
with myself if I don't at least
23:13
try. So
23:16
the first thing I did was research. I
23:18
wanted to know what helps people get out of
23:21
a coma. They had my mom
23:23
basically lying in the dark with crappy
23:25
music like elevator music, but she
23:27
would hate as they walked
23:30
around her speaking in these hushed tones.
23:33
It made no sense to me. So I found
23:35
a Korean study on comatose stroke
23:37
patients and multi-sensory stimulation.
23:41
It was a small study, but most of the studies
23:43
are small, right? And what it found
23:45
was that multi-modal sensory stimulation
23:48
played an essential role in the recovery
23:50
of unconscious stroke patients. And this made
23:52
sense to me. Get their brains to
23:54
hear music they love. Get their
23:57
brains to hear loved ones' voices, right?
24:01
Get them to smell things they know like
24:03
their favorite perfume and taste
24:05
things like lemon juice on cotton balls.
24:08
Finally,
24:09
touch them by rubbing their shoulders
24:11
and their hands as you talk to them.
24:14
And you do all this five times a day because
24:17
what you're doing is you're helping them to engage
24:19
all their senses. This
24:21
study also found that this early sensory
24:24
treatment provided by families, but
24:26
it has to be done, you know, at the beginning of a stroke.
24:29
But these sensory treatments provided
24:32
by families are more successful than
24:34
if the nursing staff does them and that
24:36
makes sense to me too. So
24:39
you can imagine some of the nurses hated
24:41
me.
24:42
My mom loved opera, so we blared
24:45
opera and all her favorite songs,
24:47
mostly from Doris Day and Joni
24:50
James. I put Lavender
24:52
Essential Oils on her pillow. She
24:54
loved Lavender since she was a child
24:57
and several studies also show that
24:59
Lavender helps with anxiety, insomnia,
25:02
stress, and even pain. We
25:05
talked to her and showed her photos while reminding
25:07
her about what happened in those photos.
25:10
When were those photos taken? Who was
25:12
there? I turned the lights on.
25:15
We spoke in a normal tone. Most
25:18
of the nursing staff was incredible. These
25:20
people were saints and so loving
25:22
and kind. But there were two nurses
25:24
who really should have been in a different line of work, like
25:27
maybe prison guards. They
25:29
walked in one day. Actually,
25:32
it was the first day that I met them. They
25:34
didn't acknowledge my mom at all. Didn't
25:37
say hello to us. Just turned
25:39
their backs and started typing into
25:41
this computer and then they pushed
25:43
us away from the bed while they checked
25:46
on my mom. And there was no communication.
25:49
They didn't say anything. They
25:51
just pushed us away so that they
25:53
could get their job done. But
25:56
the worst thing was how rough they
25:58
were with my mom compared to any of the
26:00
other nurses. I said, hello,
26:02
this is Tracy and this is my mom and you're
26:04
causing for pain being so
26:07
rough. And one of them
26:09
looked up and kept working, not acknowledging
26:11
anything that I was saying. And I thought, well, maybe
26:14
she's just having a bad day. But
26:16
I made a note to myself that I was going to
26:18
be in the room whenever she was there. The
26:21
next time my sister was in my mom's room and
26:24
I wasn't there, she pulled my sister
26:26
aside and said, your sister is not handling
26:29
this well and gave her advice
26:31
on what I should be doing.
26:33
Clearly, I should have been quietly crying
26:35
on the side of the bed or maybe I should have just
26:38
not been there so that she could
26:40
get her job done. Laughter and positive
26:42
emotion had no business being in an ICU
26:44
room according to her.
26:47
And opera music, Lavender Essential Oils,
26:49
oversees calls from my mom's brother to
26:51
her really didn't.
26:54
I would ask my uncle to call and talk to her even
26:56
though she was unconscious, hoping his voice
26:59
might trigger something in her brain. When
27:02
I ratted her out to the charge nurse,
27:05
I didn't even have to say this nurse's name.
27:08
Kim was her name, by the way. She
27:10
said the name for me and was kind
27:12
as could be and shared that I
27:14
wasn't the only one who had problems with Kim. Look,
27:17
I'm going to ask for forgiveness, not permission
27:19
kind of person. But because of this
27:22
horrible response from Kim, I
27:24
decided to get my mom's doctors to buy
27:26
off on this multimodal stimulation.
27:29
So I copied the study and gave it to them. They
27:32
agreed and they both asked to keep the study
27:34
so that they could do more research. And
27:37
I guess it wasn't such a ridiculous idea
27:39
after all, right? I also
27:41
brought in dozens of photos and made a giant
27:43
collage that I stuck to the wall so that everyone
27:46
in that room could see who they
27:48
were taking care of.
27:49
The woman that was lying in that bed was not
27:52
my mother and I wanted them to know who
27:54
she was.
27:55
Every single person that came into
27:57
that hospital room, I directed
27:59
to those photos first.
28:01
My mom, she was proud, she was strong,
28:04
she was smart, elegant, and silly,
28:06
bubbly, and beautiful. I
28:09
wanted everyone to see who she really
28:12
was. Several nurses commented
28:14
to me on what a difference that made to them. My
28:17
mom, she was a wife and grandmother
28:19
and daughter and sister and mother-in-law,
28:22
sister-in-law, daughter-in-law, and she
28:24
was my mother, and I wanted them
28:26
to see her in all of those roles. I
28:29
was always so proud to introduce her
28:31
to anyone. So
28:33
why would it be any different now? So
28:37
how else might those of us with ADHD handle
28:39
grief differently? Well, we
28:42
discovered that we're really good in a crisis. We
28:44
take over and we lead. I
28:47
think my family might have also thought I was just
28:49
a little nuts, but again, we're crisis
28:51
warriors, right? I was at
28:53
that hospital every day, and it was a two-hour
28:56
commute each way. I coordinated
28:58
with the hospital staff and my family because
29:01
I was there most of the time, and so everyone
29:03
came to me. I checked on my
29:06
family who was struggling. I communicated
29:08
with my mom's brothers in Europe. I
29:10
planned the church service, ordered the flowers
29:12
for the church, ordered the harp for the church, planned
29:15
the reception at my home, picked up the ashes,
29:17
bought the flowers for the reception at the flower
29:19
mart, and then put them all together. I
29:22
created the menu for the reception. I
29:24
had a good sense not to cater this. I
29:26
ordered the string trio, which I know my
29:29
mom would have loved for our home. I
29:31
was the point person for all the photos for
29:33
a slideshow of my mom's life. I bought
29:35
clothing and shoes for family members. I
29:37
picked my mom's brother up from the airport.
29:40
I hosted him for 10 days, which was
29:42
a gift. And I left
29:45
for New York with a day of the day after we
29:47
dropped off my uncle, and
29:49
I kept a major book deadline during
29:51
this period. My point in telling
29:53
you all of this is just that I feel like
29:55
I went into extreme ADHD hyperfocus,
29:59
which might also be an effect. the reason that
30:01
we handle grief differently. I also
30:05
wanted to control everything because
30:07
I knew that I
30:09
would do all of this as well as anyone.
30:12
And I also knew that
30:14
it was the last thing that I would ever be able
30:16
to do for my mom. I
30:18
knew how much she appreciated when things were
30:20
beautiful and there was a real attention
30:23
paid to detail. No one else
30:25
in my family really gets that or
30:27
cares about it. It was our thing.
30:30
That was my hyper focus. And if I had
30:32
to do it all by myself and
30:34
be the warden to make sure this happened,
30:37
so be it. As her
30:39
daughter, I was going to fight for this.
30:42
Business is probably also my own
30:45
way of coping, right? I need to stay
30:47
very, very busy. But I
30:49
also suspect that maybe this
30:52
is avoidant behavior. Although
30:54
I do feel like I'm processing
30:56
this in a healthy way. I've
30:58
been in action in the past positive
31:01
network, the TPN, not in the default
31:03
mode network, the DMN, where brooding
31:05
and rumination happens. Remember,
31:08
we have these two networks in our brain, right? And
31:10
when we're in action, our TPN
31:12
is firing and we feel good
31:15
when we're not in action
31:17
or ruminating and brooding and upset
31:19
and possibly hyper focusing on bad
31:22
stuff because our DMN
31:24
is firing. And so the deal is if you can
31:26
get out of all that negative emotion
31:28
by getting into action, by doing something,
31:30
by working out gardening, calling a friend,
31:33
planning a service, picking up ashes, hosting
31:35
a relative, changing flowers, maybe
31:38
you can stay out of the DMN.
31:42
I also, like many of you, frankly, I
31:44
just thrive in chaos. Another
31:47
area where we may experience grief differently
31:50
is social challenges. Social
31:52
interactions may be more of a struggle for
31:55
those of us with ADHD. People
31:57
with ADHD, we might
31:59
struggle with... the expectations and norms
32:01
associated with these kinds of situations.
32:05
For example, those nurses had an expectation
32:07
of how I should act and that included no
32:09
opera and no laughing, right? My
32:12
family probably wasn't a huge fan of
32:14
my optimism and unwillingness to just
32:16
listen to the doctors, Tracy, right?
32:20
I mean, and they had their own
32:22
right to handle their grief the
32:25
way that worked for them. And they were actually
32:27
fantastic. I
32:29
also didn't wear black to my mom's service. Instead,
32:32
I wore a coral pink, which was one of my mom's favorite
32:34
colors. And so now
32:36
I'm going to tell you something that I originally cut
32:38
from this podcast because it's going to be long.
32:42
And this is weird. But last minute,
32:44
I decided, if I can't tell you all,
32:46
who can I tell? So
32:48
I'm going to include it. I think
32:51
this is what my family really does think is
32:53
weird. And I'm talking about my extended family,
32:55
not so much my immediate family. So
32:57
my mom was cremated. And so I asked
32:59
my dad for ashes because I had read that
33:01
you can make a diamond out of loved ones ashes.
33:04
And I wanted something that I could
33:06
wear that would always be with me like a
33:08
ring or a pendant. What
33:10
are the chances, by the way, that the person who invented
33:13
that technology had ADHD?
33:16
Probably pretty high, right? The
33:18
problem is it takes a year to make a diamond.
33:20
And I wanted my mom with me now. So
33:23
I figured until then, I'll have
33:26
these two tiny little empty
33:28
Nordstrom containers. Yeah, you guessed it. You
33:31
know, the kind of big giveaway with samples of creams
33:33
and moisturizer. And
33:35
I'll have some of my
33:37
mom's ashes in each one of them.
33:40
And I cart them around with me everywhere.
33:42
In the last two months, my mom has
33:44
spent five weeks in New York City. She's
33:46
been to Austin, she's been to Bend, Oregon.
33:49
When I left New York City, I left one of the two
33:51
little Nordstrom containers. I mean, they're really,
33:53
really tiny with my daughter. So
33:56
my mom is now going to law school every day,
33:58
which frankly, I just, I don't know, I don't know, I don't know. just
34:00
get a chuckle out of it. And I asked my
34:02
daughter, you're taking that
34:04
into law school? Are you putting it on,
34:06
you know, the big desk? And she
34:08
said, no, Mom, I've got them in the little pencil
34:10
case, but that sits on my desk. And
34:13
I asked her, have you told anyone? And
34:15
she's like, no, this is too
34:17
weird. So
34:19
when we got to New York City, I
34:22
think I had mentioned, I've mentioned in other podcasts
34:24
that, you know, we were so late and we had to find my daughter
34:27
a place to live in the Upper West Side
34:29
because she was starting law school. And
34:32
we got to New York City, and my
34:34
daughter and I ordered a cocktail and we ordered
34:36
one for my mom too. I think
34:38
it was the day we arrived. And
34:40
we placed a little Nordstrom container
34:42
in the middle of the table so she could, you know, have
34:45
dinner with us. And as we
34:47
finished our meal, the server came to clean the
34:49
table. He picked up the
34:51
ashes and I both went, and
34:54
then he looked at the ashes and then he did his
34:56
own, and then he apologized profusely,
34:59
dropped it quickly back on the table. And as
35:01
he walked away, my daughter looks at
35:03
me a tear, right? And she says, Mom,
35:06
I think he thought it was cocaine. It looks
35:10
pretty white.
35:11
So if this isn't a socially
35:14
unacceptable ADHD story,
35:16
you tell me what is. Okay, how
35:17
else might
35:20
we experience
35:20
grief differently with ADHD?
35:23
We may struggle more when
35:25
grief disrupts our daily routine and structure.
35:27
Now, my fear was more about
35:30
everything going back to normal, right?
35:32
And oh my gosh, there's nothing to do. There's
35:34
nothing to occupy me. I'm not running around like
35:36
a chicken without a head.
35:38
But for many of us, grief often
35:40
disrupts
35:41
daily routines and individuals
35:43
with ADHD may find this really
35:45
hard to cope with, right? These disruptions
35:48
that'll lead to increased stress.
35:50
For me though, I wanted nothing to do with routine
35:53
instructor because I knew that that
35:55
would give me
35:55
more time to think. And
35:57
so I'd be more in my DMN than in the next
35:59
video. my TPN, right? Again,
36:02
I think a therapist might call this avoidant behavior.
36:04
I'm not quite sure yet. We
36:06
also know that we don't have more
36:08
emotion than a neurotypical does.
36:11
We just feel more emotion.
36:14
And this means that our emotions can be more intense
36:16
and fluctuating, which can lead to heightened
36:19
emotional
36:19
reactions during the grieving process.
36:23
We can hyperfocus, right, and ruminate on
36:25
these very negative emotions.
36:27
Those within a 10 of ADHD who are more
36:29
in their head might be more likely to
36:32
experience this versus very hyperactive
36:34
women like me may struggle more
36:37
with this next one because we're
36:39
just moving and, you know, we're just not in it
36:41
at all, right? And that one is
36:44
difficulty in expressing emotion. So
36:46
what does that mean? That means talking about what's
36:48
going on. That means actually showing
36:51
emotion. That means seeking support
36:53
from others. So my friend Lori,
36:56
she's been on this podcast twice. She
36:59
has a program that I will link to that I cannot
37:02
remember the name, eDiagnostic
37:04
Learning in Texas. And
37:06
she basically tests kids and
37:09
women for ADHD and other
37:12
learning challenges. I shouldn't
37:14
say and other learning challenges. I should say
37:16
and learning challenges because ADHD
37:18
is not considered a learning challenge.
37:21
Anyway, she lost her mom shortly
37:23
after I did. And what she said
37:25
to me as I am go, go, go,
37:27
it is how I've always been. I
37:30
also thrive in chaos. Everyone
37:33
keeps saying it's going to sink in and I'm going to have a good
37:35
cry when it's all over. But honestly,
37:37
I'm not sure I will. It's like my brain
37:40
can't stay on the idea long enough to get
37:42
really, really sad. Some
37:44
of us may find it challenging to maintain
37:47
focus on the grieving processes,
37:49
which would explain our scattered thoughts,
37:52
our inability to focus and the go, go,
37:54
go. I can so relate to Lori's
37:56
comment. And I think for me, again,
37:58
it's less that.
38:00
my brain can't stay on the idea,
38:02
then I won't let my brain have
38:05
enough time to even go there.
38:07
Avoidant.
38:08
Like my mom, believe it or not, even
38:10
though I had this podcast that's
38:12
aired all over the world,
38:14
in times like this, I am very,
38:16
very private.
38:19
The day after my mom had a stroke, one of my brothers
38:21
posted on Facebook. I still haven't
38:23
posted anywhere, although I'm going to have
38:25
to once this podcast goes live, right?
38:28
So if my friends found out that my mom was
38:30
sick or had passed away, it was
38:32
because they saw his post. It wasn't
38:34
from me, other than a very few select
38:37
group of friends who I
38:39
talk to every day in texts
38:41
and so those women
38:43
know. Just like Lori, I
38:46
keep waiting for that literal fall apart
38:48
cry that I was certain would have happened
38:51
by now. But I don't think
38:53
it's going to happen either. I was too busy
38:55
holding myself together, so I could be
38:57
the strong one for those around me.
39:00
And once the worst part was all over,
39:02
any chance of falling apart was over too.
39:05
My mom was a lot like me, right? Certainly
39:07
a lot more like me than say,
39:09
my siblings.
39:11
Actually, my older brother, he's good in chaos
39:13
too. My mom was amazing
39:16
in crisis. And so I knew she
39:19
would be most worried about my dad
39:22
and my siblings. And so I guess my thought
39:24
was, do it for her. It's what she
39:26
would have wanted. Be the strong
39:28
one that supports them. The
39:30
downside though is when you're emotionally
39:32
so strong and you're so focused on checking in and
39:35
making sure that everyone else is okay,
39:37
people think, oh, she's a superwoman. She's
39:39
so strong. How does she do that?
39:41
And what that means is no one ever asks you
39:44
how you're doing.
39:45
It's been true. If they did,
39:47
I'd likely just change the subject anyway,
39:50
right?
39:51
And I think that's so
39:53
often how we cope, like Lori,
39:55
right? Go, go, go. What can I do?
39:58
How can I be in action? so my task
40:00
positive network is firing and then my
40:02
default mode network won't be so engaged.
40:05
What else?
40:07
We might also struggle more with procrastination
40:09
and avoidance around grief. You think
40:12
so?
40:13
So for whatever reason, I can't handle
40:15
the sympathy and I push away and go
40:17
inward, which is so weird because
40:20
I'm such an outward person.
40:22
I mean, my parents called me the Burlingame Blab
40:24
because I told all the family secrets.
40:26
But in this particular situation, I
40:28
couldn't even talk about it. I
40:30
have voicemails still in my phone from people
40:33
who left me messages about my mom and
40:35
I still haven't been able to listen to them. It's
40:37
almost like I can't listen because then it makes
40:39
it more real, which is ridiculous because
40:42
obviously it is real. But
40:44
if I don't go there, if I don't have to listen
40:46
to them and I don't talk about what happened to
40:48
my mom because I don't respond,
40:51
then it didn't happen. Sort
40:54
of. I also have some
40:56
friends who I text back and forth
40:58
with pretty much daily. I think I had already
41:00
mentioned that. And so they knew what
41:02
was going on and I felt terrible because
41:05
days would go by before I would
41:07
respond when they were checking in with
41:09
me. I was procrastinating
41:11
something fierce with these texts
41:14
and then they'd call and I'd ignore those
41:16
calls too. And they'd call because they were worried because
41:18
I wasn't responding to the text, right?
41:20
But I couldn't even respond to the calls either. So
41:23
in a weird way, it was comforting
41:25
to have people check in, but I couldn't listen
41:27
to their messages, nor could I get
41:29
back to them. For
41:31
my mom's reception, my son also pulled
41:34
together an hour-long video with all
41:36
the photos we could get together, starting
41:38
from my mom as a child. He set
41:40
the photos to her favorite songs and I
41:42
also promised my mom's brothers
41:45
photos of the actual day and videos
41:47
from those who spoke. But
41:50
I still haven't sent them. Something
41:53
that could go wrong did in my defense. And
41:55
the slideshow that played well on a giant screen
41:58
was too big for laptops. So
42:00
it all had to be rebuilt, which means I
42:02
had to find someone to do this. My son was back
42:04
in school. He didn't have time and he
42:06
just thought, you know, it's going to take me so
42:08
much longer than someone who knows what they're doing. It
42:11
also meant that I had to personally go through
42:13
all these photos and videos. And I've
42:16
always struggled with going through photos and videos.
42:19
For other people, this may make
42:21
them happy, but for me, I really hate
42:23
it. I can barely look through my kids'
42:25
old photos. There's so much
42:27
emotion tied to, for me,
42:31
tied to what happened to the time. Like
42:33
where did those babies go? And
42:36
they're alive and thriving. So
42:38
can you imagine how hard it would be to go
42:41
through my entire childhood and see
42:43
my mom who was always there
42:46
but is no longer? The
42:48
good news is I just got the slideshow
42:50
back and I've had the rest of the photos
42:53
and videos sitting in my email inbox
42:55
with all the links since August. So
42:57
by the time this airs, the photos and slideshows
43:00
will have been sent. But I'm embarrassed
43:02
about how long it's taken me and how difficult
43:05
it's been. I don't know what it is about
43:07
photos. Yes, it's the emotion, but
43:09
then it's also the whole organization around
43:11
them that I just don't understand.
43:15
And it's literally like
43:17
some of the hardest things I could possibly do,
43:20
stuff around photos and videos. So
43:23
these are just some general observations
43:26
on how those of us with ADHD might
43:29
experience grief differently. My
43:31
good friend, the psychologist and
43:33
procrastination coach, Dr. Christine
43:36
Lee,
43:37
told me something that
43:38
really resonated with me.
43:40
What she said is that
43:42
with grief, you
43:44
can't talk about it enough. Talking
43:47
about it really helps to process
43:49
it. So if you're struggling with
43:51
grief, find a good clinician.
43:54
You know, even delivering this podcast,
43:57
I was worried. I wasn't sure that I could do
43:59
it. I thought, oh my gosh, you're just going to be breaking
44:01
up throughout the whole podcast.
44:04
But it's almost the more I talk about it, the
44:07
easier it gets.
44:09
And the more actual positive emotion
44:11
comes from it rather than
44:14
that stabbing negative emotion.
44:16
I think she's ready.
44:19
So what have I learned since my mother's passing? What
44:23
I know that kept me sane and able
44:25
to regulate my nervous system like
44:27
nothing else was tapping. I
44:30
tapped in the hospital. I tapped on
44:32
the drive in to see my mom. I tapped
44:34
in on the drive out from the hospital. I
44:37
tapped at night when I went to bed and I tapped
44:39
first thing in the morning so I could get myself out
44:41
of bed. It was probably
44:43
the single most important self-regulating
44:46
tool that I have ever used in
44:49
my life. And I knew it was good,
44:51
but I didn't know it was this good.
44:54
So if you don't know what tapping is, I have a podcast
44:57
on it that I'll link in the show notes. I
44:59
think it's episode number 123. And
45:04
all the stuff we've been talking about for the
45:06
last, I don't know, four plus years, it
45:09
really works. The mindfulness
45:12
and then the somatic step, the breathing, the
45:14
hydration, and of course the tapping.
45:18
If you've never tried it,
45:20
you owe it to yourself to do
45:22
so. You
45:25
know, the beauty of losing someone really important
45:27
to you, I learned, is that
45:30
you literally become fearless.
45:32
I never thought that that would be
45:34
a byproduct. You have no
45:36
idea how much I hate hospitals,
45:38
how squeamish I am about medical stuff,
45:41
blood, you name it. But somehow
45:43
I did it.
45:44
And I was so surprised by my strength,
45:47
so proud of the way I handled all of this
45:49
for my mom. In truth, it's
45:52
the proudest I've ever been of anything
45:54
I've ever done.
45:56
And
45:56
I credit my ADHD for
45:59
showing up. in full blooming
46:01
color and leading the way. That's
46:04
why I could do it. I was
46:06
interviewing Elise Gendron
46:08
yesterday. She has a popular
46:09
Instagram account and now book called
46:12
the mini ADHD coach. Her
46:14
advice is all done in doodles.
46:17
She mentioned to me that she also lost her mom
46:19
and that once that happened, it was almost like
46:21
she forgot about herself and
46:23
how uncomfortable she was doing hard
46:26
things because now
46:28
she had literally done the hardest thing and she
46:30
couldn't believe how well she had handled it. She
46:33
too had done it for her mom. It's
46:36
almost like I have to do the hardest
46:38
things for my mom now too, because
46:41
I know that that would make her proud.
46:44
It's weird. It's almost like I have her by my
46:46
side at all times watching over me now. She's
46:49
there. I'm not alone.
46:51
Because I could do that,
46:53
I can do anything.
46:56
The worst part
46:57
is there's
46:59
no one to ask if you have a question.
47:01
That knowledge, it
47:04
went with my mom. For example,
47:06
I was looking for some piece of jewelry to wear that
47:08
was linked to my mom, and I found this little
47:10
gold ring with two very well-worn
47:13
pearls on it. I knew
47:15
it was either a ring that my mom had bought
47:17
for me when I was little, or it
47:19
was a ring that was my mom's as a child
47:21
and she had given it to me. But
47:23
I don't know which one was right. I
47:26
asked my dad and he didn't know. I asked
47:28
my sister and she didn't know. Then
47:30
I asked my uncle thinking that maybe he saw it
47:32
on my mom's hand as a teenager, but
47:35
he didn't know either.
47:36
That knowing,
47:38
it's gone with my mom. The stories,
47:41
they're gone with my mom.
47:44
I'll never know the answer. I
47:46
struggle with that. Some
47:49
other things. I used to hate the fact
47:51
that I was aging. I
47:53
would see myself in the mirror and an expression that
47:55
I would make. I
47:57
would think, you look like your mom, you're aging.
48:00
because, you know, my mom was 20 years
48:02
older than me. Now
48:04
today, though, I love
48:06
when I look like my mom. I
48:09
love when I sound like my mom.
48:11
My daughter and I, you know, when
48:13
I was in New York, we would be laughing about something,
48:16
and I'd say something, and laugh, and
48:18
I'd stop, and I'd just be so
48:20
aware that I sounded just
48:22
like my mother. She would have done exactly
48:24
what I did. She would have sounded like
48:27
I sounded. And so I see
48:29
her, and I hear her in me. Like
48:31
I never realized that we had the same mouth,
48:33
and we had the same smile, and we had the same
48:36
mannerisms, the same expressions,
48:38
and I love that.
48:40
What else did I learn? I learned
48:42
that her voice was so important
48:44
to me. It is so
48:46
important to me.
48:47
I wanted to hear her laugh, and I
48:50
didn't have anything. I didn't have any videos
48:52
that I could find that were like readily available,
48:54
but
48:55
then I found this short video that she had sent
48:57
me where she was recording my dad
48:59
playing with our dogs. We were somewhere.
49:02
Maybe we were in New York, or, you know, we were overseas,
49:05
and so my parents were taking care of her dogs and
49:08
our dogs. And
49:10
I just love that I hear her
49:13
throaty laugh
49:14
as she's recording my dad
49:16
playing with one of our dogs. I
49:20
also do this weird thing, you know, where I've always
49:23
had a voicemail of my mom,
49:25
my husband, my kids on my phone. I
49:28
cannot delete the last message
49:30
that they sent me because I'm always
49:32
worried about what if that's the last
49:34
one. So I had this one voicemail
49:37
from my mom, but it was just a check-in
49:39
for one of my nieces who forgot something, and
49:41
so I was kicking myself that I hadn't saved
49:44
more voicemails. So
49:46
my advice is save audio clips
49:49
of people you love because
49:51
you're going to want to hear their voices, and
49:54
it's really easy to do it. So
49:56
do it now. All you have to do is
49:58
just open up the voice. and
50:01
click on the, this is on
50:03
an iPhone, but I'm sure there's a way to do it on an
50:05
Android as well. You click on the little
50:07
square at the top of the message with the arrow
50:09
that points upward, and you can save
50:12
it to Dropbox or Google or
50:14
wherever you save, you know, your audio
50:16
clips, videos, whatever. And so
50:19
I was so upset, right, that I didn't have more
50:21
of those audio voicemails that I
50:23
just had that one. And what
50:26
I discovered was that if
50:28
you check in your deleted message
50:30
link, it doesn't matter how many years old it
50:32
was, I
50:33
clicked on that.
50:35
And even though they were in delete, there were dozens
50:38
and dozens of messages there from
50:40
years ago that I could then
50:42
save to Dropbox. And that
50:44
just literally made my day. One
50:48
more thing that I'd love
50:50
to recommend is that a
50:53
friend told me about
50:55
a podcast by Anderson Cooper
50:58
called All There Is. And
51:01
Anderson Cooper, you know, he, I don't know
51:03
if he's still with CNN, I think he is. He
51:05
started the podcast after he lost
51:07
his mom, Gloria Vanderbilt. And so
51:10
he talks about himself and his journey, but
51:12
he also interviews others
51:14
about their journey with grief.
51:16
And I just think it's a really
51:18
good podcast. I found quite
51:21
a bit of comfort in it. You
51:23
know, since I was in the first grade at Benjamin
51:26
Franklin Elementary School, losing
51:28
my mom has been my biggest fear.
51:31
And so it was especially cruel that we
51:34
had to drive by my old elementary
51:36
school every day on the way to the
51:38
hospital. I used to worry so
51:40
much that something would happen to my
51:42
mom. So I'd lie to the
51:44
school nurse and I tell her I had a really bad
51:47
stomach ache. So they'd call my mom
51:49
down and she'd pick me up. I
51:51
remember we'd go out for lunch and then we'd go home
51:53
and she'd make afternoon coffee and we would do
51:55
some sort of crafty thing together. And
51:58
then we would watch Perry Mason. or
52:00
the Saint reruns. I don't know if any
52:03
of you even remember the Saint. I'm totally dating
52:05
myself but it was with Roger
52:07
Moore who was a Bond guy, who was a James
52:10
Bond. You know when I realized
52:12
now I was the oldest of four kids so it
52:14
was rare that I got time to spend just
52:16
with my mom but
52:18
I really relish those times.
52:21
And you know I don't know that my mother had
52:24
ADHD. She wasn't diagnosed
52:26
and she certainly had no interest
52:28
in being diagnosed
52:31
but
52:32
we were so similar. I
52:34
was basically my mom,
52:37
a younger version of my mom.
52:39
And through all of this it's
52:42
really hit home just
52:44
how much I am like my mom.
52:47
We shared our love for crafty stuff
52:49
as I said.
52:51
We both had the same emotional dysregulation
52:54
meltdowns right before company came. You
52:56
know we plan these huge complicated purities
52:58
with recipes we'd never made before and
53:01
then of course we'd be totally stressed out
53:03
because it was so much more fun to try the
53:05
new things right than do something
53:07
that we had done many times and new week you know
53:10
could ace it. My mom was
53:12
silly and bubbly and the life of every
53:14
party. She had so much energy
53:16
and she was extremely driven. When
53:19
she wanted to learn something she learned it all
53:21
the way and she would always
53:23
be the best at it. We also
53:25
celebrated my brother's birthday on the wrong day
53:28
for the first six years of her life of his
53:30
life and she'd constantly lose
53:32
things she's tucked away for safekeeping
53:34
including many of the early Christmas
53:36
presents that she bought every year. My
53:39
mom had hypersensitivity like misophonia.
53:42
It literally made her nuts to hear people chew.
53:44
That's what misophonia is. And she was
53:46
a creature like me of specificity. She
53:49
liked things a certain way
53:50
and aesthetics were really important
53:53
to her. She really appreciated
53:54
beauty.
53:56
Originality was also so
53:58
important to her. She sewed all
54:00
her own clothes because she didn't want to wear
54:02
anything that anyone else might have. She
54:05
was one of the most creative people I know and
54:08
she was fun. Again
54:11
we were so similar except in one area.
54:14
I've always been the eternal optimist.
54:18
My mom, not so much.
54:22
I'm fearless and very external.
54:26
My mom was more internal. She was
54:28
in her head a lot. She
54:30
was born in Strasbourg when it was still part
54:32
of Germany. It's French now during
54:35
World War II. She was a
54:37
toddler when she was taken to the shelters night
54:39
after night in Berlin. I think
54:41
there were 363 air raids and bombings. One
54:45
day her mom walked by a camp full of Jewish
54:47
people and said, oh these poor people
54:50
in German. And she was whisked away
54:52
by the Nazis.
54:53
No one knew where she was for I think it
54:55
was two weeks.
54:57
My grandfather negotiated my grandmother's
54:59
release but it meant that she had to flee immediately
55:01
with her kids.
55:03
My grandfather was required to stay back.
55:06
My grandmother had never worked and she had three
55:08
kids at the time. And my mom tells a
55:10
story of somehow arriving at a farm in the
55:12
middle of a countryside and they were all starving.
55:15
And this lovely farmer took them in.
55:18
And so they were really poor and they often
55:20
struggled.
55:22
My mom's aunt was also sterilized
55:24
by Hitler due to mental health issues.
55:26
My mom and her
55:28
family were among the
55:30
fortunate. However, unlike
55:33
so many other innocent people, they
55:35
lived. There
55:37
were other things that happened during this time which I'm
55:40
not at liberty to discuss. As I said, my
55:42
mom was very private. But
55:44
suffice it to say that she endured more
55:46
trauma in the first few years of her life
55:49
than most of us will ever know in our entire
55:51
lives. And I'm astounded
55:54
at her resilience.
55:56
If you followed this podcast for any
55:58
period of time.
55:59
You know, I've been writing
56:02
a book.
56:03
As I was writing it, I realized
56:05
that I wrote it in large part for my
56:08
mom so that she could
56:10
understand herself better. I've
56:12
always felt that I was
56:15
my mom, but with all the opportunities,
56:17
the privilege, the unfair advantage. And
56:21
I was hoping against hope that
56:23
maybe I could help her just a little bit.
56:27
As I learned more and more about ADHD,
56:30
I learned
56:31
that she likely struggled to find the
56:33
optimism because of things that happened
56:36
to her in her early childhood. She
56:39
struggled to find the optimism because of trauma.
56:43
All I could see is her daughter, with
56:45
her brilliance, and all that potential.
56:48
And so when I discovered I had ADHD
56:50
and I really delved into how trauma affects
56:52
us,
56:53
I tried to share it with her,
56:55
but I didn't know how to do it by
56:58
speaking it. Instead,
57:00
I
57:00
bought books on mindfulness
57:04
and tapping in trauma, but
57:06
I don't know if she ever really read any
57:08
of them, although I will say that
57:10
the one on trauma was sitting by her
57:13
bedside.
57:14
When nothing seemed to really work,
57:17
I decided to write this book,
57:19
something she could read in totality that
57:21
would help her make sense of her experience.
57:24
It would give us a way to talk about
57:26
it, right? In other
57:28
words, it wouldn't be about what was
57:30
wrong with her. There was nothing wrong
57:32
with her.
57:34
It would be about understanding why
57:38
and how what happened to her likely
57:40
affected her responses and
57:42
how she might view the world. And
57:44
it would also be about, look, how fixable
57:47
it can be.
57:48
I mean, I'm an optimist, right?
57:51
So I finished the book on Tuesday and I
57:54
remember thinking,
57:55
I'm going to send it to my mom.
57:58
My dad was a dentist and so
57:59
So my parents are
58:01
science medical people. They're
58:03
old school, right?
58:05
And they couldn't really understand how any publisher
58:07
in their right mind would pay me, a layperson,
58:10
to write a book about a medical condition.
58:12
And so the perfectionist in me
58:14
thought, ah, it would have more credibility
58:16
when it was released as a real book, and
58:19
not just a copy-edited PDF on my
58:21
computer. So I didn't send it to
58:23
her.
58:24
It was Tuesday.
58:25
That following Thursday, my mom had
58:28
her stroke. So sadly,
58:30
I can't do anything for my
58:32
mom any longer. That
58:34
opportunity has passed. But
58:37
what I can do something about are all
58:39
the mothers and daughters,
58:41
and all the mothers and sons
58:43
that but for this book might never
58:45
have been given this information and a novely
58:48
son law. I
58:50
can give them an opportunity
58:53
to have the conversations
58:56
that I never could.
58:59
I can spread the word. I
59:01
can help them.
59:03
But I need your help
59:05
because it's a ripple effect. If
59:07
we change one mother's life
59:10
by giving her this information,
59:12
allowing her to see the brilliance of
59:14
her ADHD brain,
59:16
then we will change her daughter's life,
59:19
potentially her son's life.
59:21
We might change her friend's life,
59:23
maybe a teacher's life,
59:25
maybe even a stranger's life, right?
59:28
Depends on who she talks to.
59:30
Maybe she'll go into her doctor's office
59:32
with this book. And
59:35
then that doctor who may not know
59:37
what ADHD looks like in girls and
59:39
women can turn around and
59:41
share it with all of his patients. And
59:45
the younger they are
59:47
when this happens, that's one
59:49
less child that has to grow
59:52
up feeling broken and disordered.
59:54
They can start their life out looking
59:57
for where they're brilliant,
59:59
because we know. right? That what we focus
1:00:01
on just gets bigger. If we're looking for
1:00:03
the brilliance, we're going to find more brilliance. If we're
1:00:05
looking for the brokenness, we're going to find more brokenness.
1:00:08
But
1:00:08
this is the deal. I
1:00:10
need your help. We have so
1:00:12
many more women and girls that need us.
1:00:15
My book, ADHD for Smartass
1:00:18
Women with Harper Collins,
1:00:20
William Morrow. It's
1:00:22
now available for pre-order. Look
1:00:25
at this podcast, if our Facebook
1:00:27
group, if any of my free trainings
1:00:30
or my Your ADHD Brain is A-OK
1:00:32
program has made a difference in your life,
1:00:35
it would mean everything to me. If you
1:00:38
would please go to ADHDforsmartwomen.com
1:00:43
forward slash book
1:00:45
and pre-order it. And yes,
1:00:47
it's ADHDforsmartwomen.com
1:00:49
forward slash
1:00:51
book. Apparently if you have ass
1:00:53
in a URL,
1:00:55
you'll get what. Few
1:00:57
people tell you
1:00:59
how all-consuming writing a book is
1:01:01
and how it seeps into every part
1:01:03
of your life. I'll put
1:01:05
everything off for this book for the better part
1:01:07
of the year, convinced that I've
1:01:09
had plenty of time to catch up once the book
1:01:12
was done. The whole month before
1:01:14
my mom passed away, event after event
1:01:16
was canceled. First because I was trying
1:01:18
to get through my copy edits and then again, of
1:01:20
course, when my nephew and father contracted
1:01:22
COVID. On that Tuesday
1:01:24
that I turned my copy edits in, I rebooked
1:01:27
a reservation at a restaurant that
1:01:29
I'd promised to take my parents to. This
1:01:32
had been a reservation that I had had to cancel
1:01:34
twice before. In the evening,
1:01:36
my mom passed away. We were walking
1:01:38
out of the hospital with my family and I got
1:01:41
a text and I looked down and
1:01:43
it was a confirmation from the restaurant letting
1:01:45
me know that they were expecting us in, I
1:01:47
don't know, 10 minutes, 15 minutes. Don't
1:01:50
cancel the dinner.
1:01:52
They've heard the book.
1:01:54
Go spend time with your mom now
1:01:56
because I promise you that
1:01:58
the rest can win.
1:02:01
My goal now
1:02:02
is to make sure that these huge sacrifices
1:02:04
that I made and now frankly regret,
1:02:07
well that something good will
1:02:09
come from all of this. It's
1:02:12
certainly not the ending I wanted or expected,
1:02:14
but
1:02:15
now
1:02:16
I've got to make something good out of it, right?
1:02:19
I can't do anything about my mom's
1:02:21
life, that door is closed, so instead I have
1:02:24
to look for the open door. And
1:02:26
for me right now, that means changing
1:02:28
as many lives as I have the
1:02:31
ability to change
1:02:33
to honor my mom.
1:02:34
I know that
1:02:35
the reason I struggle much less
1:02:38
than other women with ADHD is almost entirely
1:02:41
because of my mom. She fought
1:02:43
for me and she allowed me to be exactly
1:02:46
who I am. She never
1:02:49
shamed me ever. If
1:02:51
my daughter had flocked out of the house with all the weird
1:02:53
clothes that I made, the oversized
1:02:56
floppy hats and the ridiculous hairstyles,
1:02:59
I would have most certainly said something but my mom
1:03:01
never did. My mom
1:03:03
might not always have been an optimist
1:03:06
about herself, but
1:03:08
she was always an optimist about me.
1:03:11
I had an unfair advantage,
1:03:14
a mother who loved me unconditionally and
1:03:16
thought I could do anything.
1:03:18
And you know,
1:03:19
because she thought it, it didn't much
1:03:21
matter what others thought. I trusted her
1:03:24
and so I thought it too. Let's
1:03:27
go change some lives. Please
1:03:29
pre-order the book at ADHDforSmartWomen.com
1:03:33
forward slash book. I also
1:03:35
want to say something quick about COVID. Please
1:03:38
take it seriously, it's not a joke. As
1:03:41
I mentioned, if you have high blood pressure, there is
1:03:43
up to a 25 times higher likelihood
1:03:45
of stroke if you contract COVID.
1:03:48
You know, because everyone in my family already had COVID,
1:03:50
not to mention all the misinformation about COVID,
1:03:53
we thought, oh, my mom will be fine. It's not that
1:03:55
big of a deal. So we didn't take it as seriously
1:03:58
as we should have.
1:03:59
want this to happen to another family and
1:04:02
I certainly never thought it would happen to ours.
1:04:05
Be kind,
1:04:06
follow the science, and lead politics
1:04:08
out of this.
1:04:09
And if you're a nurse, thank you so
1:04:11
much
1:04:13
for the work that you do. In
1:04:15
closing,
1:04:16
I'd like to share with you the eulogy that
1:04:18
I wrote for my mom.
1:04:21
Birds,
1:04:23
but not the drab-brown kind.
1:04:25
They need to be brightly colored and exquisitely
1:04:28
farmed with porcelain-like beaks and
1:04:30
perfect round little bodies. Hummingbirds,
1:04:34
butterflies, frogs,
1:04:36
and the color yellow.
1:04:39
Our beautiful mama, I see
1:04:41
you here, there,
1:04:43
and everywhere.
1:04:45
Memories.
1:04:47
Picking cherries in Brentwood,
1:04:50
Carol Burnett on warm Saturday evenings,
1:04:53
Nancy Drew and the Hardy Boys too,
1:04:56
Lawrence Welk. Lots
1:04:58
of chamber music, especially string instruments.
1:05:02
The German School of the Mid-Peninsula.
1:05:05
Yummy, yummy, says my Temmie,
1:05:07
when we go to my terminal stand.
1:05:10
Heinzche, boom-beinzche, boom-boom.
1:05:13
Doris Day,
1:05:15
Elky Summer,
1:05:18
The Pink Panther, Copenhagen's
1:05:21
on Berlingame Avenue,
1:05:23
Yellowstone.
1:05:25
Well, that might be a memory we
1:05:27
all should forget. Life's lesson,
1:05:29
you cannot cook gourmet meals in an RV.
1:05:33
My mother was born in Wartorn, Germany in 1941.
1:05:37
By the time she was five, she had endured more
1:05:39
hardship and trauma than any of us have
1:05:41
experienced in our entire life. By
1:05:44
comparison, my siblings and I have lived a
1:05:46
charmed life full of privilege and
1:05:48
opportunity. Despite all this,
1:05:51
my mom was resilient. There was
1:05:53
literally nothing that she couldn't do if she was interested
1:05:55
in doing it. And she wouldn't just
1:05:57
learn things, she'd immerse herself
1:05:59
in them.
1:06:01
She was mind-blowingly inventive and had a
1:06:03
brilliant aesthetic. And she
1:06:05
was busy. Always
1:06:07
creating something. Above
1:06:11
all, my mom valued excellence.
1:06:13
She loved to sew. This meant that what
1:06:15
she sewed would be finished to such a standard
1:06:18
that you could literally wear it inside out and
1:06:20
no one would be the wiser. My
1:06:23
mom loved to cook. And she taught herself
1:06:25
how by cooking her way through the gourmet French
1:06:28
cooking compendiums, taking classes
1:06:30
with chefs in their working kitchens in the evening
1:06:33
because she had four kids to tend to during
1:06:35
the day.
1:06:36
She religiously watched Julia Child
1:06:38
and Jacques Pepin
1:06:39
on PBS. She loved
1:06:41
to flambé, so we joked often
1:06:43
about the time she caught the curtains on fire.
1:06:46
Did that really happen or was
1:06:49
that family lure? Another
1:06:51
thing I meant to ask her. My
1:06:55
mom loved to knit, but her knitting looked
1:06:57
nothing like my knitting. It was so
1:06:59
intricate that it rivaled the handiwork
1:07:01
you'd find in a Connemara sweater from Ireland.
1:07:04
The other day I pulled pages
1:07:06
of paper that were stuffed into the sleeves of
1:07:08
the last sweater she had been working on. She
1:07:11
tracked the intricate patterns that she knit by
1:07:14
writing down numbers for every row she finished.
1:07:16
There was so much writing, so many
1:07:19
numbers, over so many pages that it made
1:07:21
me dizzy. I have no idea
1:07:23
how she did any of this. My
1:07:25
mom loved music. She
1:07:28
loved to sing,
1:07:29
opera,
1:07:30
Doris Day, Brenda Lee, Andy
1:07:32
Williams, Ed Ames, Johnny Mathis,
1:07:35
chamber music.
1:07:37
When we were older she started to play the violin.
1:07:40
She would sneak off to the San Francisco Symphony
1:07:42
to watch their rehearsals while we were
1:07:44
in school. When she picked us up in
1:07:46
her burgundy and wood-paneled Oldsmobile
1:07:48
station wagon, she'd regale us with
1:07:51
stories of how she'd just met Itsuk
1:07:53
Perlman, chatted with Mr. Lath
1:07:55
Rostroprovich,
1:07:57
or
1:07:58
charmed Yasha Hyfeit.
1:08:00
She was silly. When we were kids,
1:08:03
she'd pull a pair of pantyhose over her head
1:08:05
and chase us around the house pretending
1:08:07
to eat goldfish.
1:08:09
She did that with her grandchildren too.
1:08:11
My mom loved her
1:08:13
grandchildren. Hayden, Kaylee,
1:08:17
Lena, Ataya, Hannah,
1:08:20
and Marcus.
1:08:21
And she adored her brothers.
1:08:23
We'd hear stories of how she danced with Manfred,
1:08:26
cooked with Wolfgang, and the
1:08:28
easy joy of her relationship with
1:08:30
Philly. She was fiercely protective
1:08:33
and oh so loyal to her family.
1:08:36
My mom was the heartbeat of every
1:08:39
party. No one commanded
1:08:41
a room like she did. Beautiful,
1:08:43
bright, and sparkly.
1:08:46
Everyone noticed her,
1:08:47
whether it was the butcher at the
1:08:50
Trini's or my boyfriend's.
1:08:53
We were so proud that she was our
1:08:55
mother. Preter, naturally
1:08:58
elegant and eternally youthful.
1:09:01
I expected her to live forever.
1:09:05
A lot of people get more set in their ways
1:09:07
as they age. My mother was the
1:09:09
opposite. She had boatloads
1:09:11
of empathy and curiosity and a willingness
1:09:14
to consider that maybe
1:09:16
how she viewed the world wasn't the
1:09:18
only way to view the world. And
1:09:20
maybe, just maybe, we
1:09:23
are all a product of our individual
1:09:25
experiences. I think what
1:09:27
I loved most about my mother in her later years
1:09:30
was just how open-minded she became.
1:09:33
Whereas she was a very strict mother,
1:09:36
as a grandmother nothing was a big deal. She
1:09:38
said yes to high school parties, yes
1:09:41
to man buns on Marcus, and my
1:09:43
personal favorite, yes to
1:09:45
tattoos. She welcomed
1:09:48
individuality, knew what was
1:09:50
important, and when it came to her grandchildren,
1:09:53
she was completely non-judgmental.
1:09:55
She saw no reason to sweat the small
1:09:57
stuff. Nowhere, however,
1:09:59
was she.
1:09:59
was my mom happier than when she was
1:10:02
traveling with
1:10:02
her best friend, my dad. And
1:10:05
she did a lot of that. 40
1:10:08
countries at Marcus's last counting.
1:10:11
Who gets to do that?
1:10:13
Turns out less than 5% of
1:10:15
the world's population.
1:10:17
My dad was truly the love
1:10:20
of her life.
1:10:21
Some of my best memories were hearing my
1:10:23
kids talk about conversations they'd
1:10:25
had with their OMA, where
1:10:27
she told them all the reasons she had fallen
1:10:30
in love with their grandfather. After
1:10:32
a party not too long ago, a tan
1:10:34
announced that her favorite part of the whole evening
1:10:37
was when my dad, her grandfather, kept
1:10:40
asking her to look
1:10:41
at OMA
1:10:43
and followed that up with, doesn't she look
1:10:45
great tonight? Hers was
1:10:47
a life well-lived. Our
1:10:50
beautiful mama, we cannot
1:10:52
miss you and at the same time feel
1:10:54
your presence. We can't
1:10:56
worry about the past or wonder
1:10:59
about the future.
1:11:00
So instead,
1:11:01
we'll be right here in the present,
1:11:04
focused on all the gratitude we can
1:11:06
muster. It was the honor
1:11:08
of our lifetime to have
1:11:10
been your husband, children,
1:11:13
grandchildren,
1:11:15
and friend.
1:11:17
Birds,
1:11:18
but not the drab brown kind.
1:11:20
They need to be brightly colored and
1:11:22
exquisitely formed with porcelain-like
1:11:25
beaks and perfectly round little bodies.
1:11:28
Hummingbirds, butterflies, frogs,
1:11:32
and the color yellow.
1:11:34
My beautiful mama,
1:11:36
you are here, there,
1:11:38
and
1:11:39
everywhere.
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