My name is Dana Mauro. My husband has been living with two rare diseases for the last 15 years. In that time, we have had many doctor appointments. My intent today is to share some things that have helped us maximize the time spent with t

Dr. Jeremy Schmahmann explains Ataxia patients how important to exercise

May 5th, 2020 4m 53s

#ThoughtfulTuesday Exercise , Take a step, Stay tune to the end!Dr. Jeremy Schmahmann explains Ataxia patients how important to exercise#kNOwATAXIA MGH Neurology

Dr Jeremy Schmahmann Ataxia patients prevent infection COVID-19

Apr 10th, 2020 1h 5m

Dr Jeremy Schmahmann.. is head of the Ataxia Unit at Massachusetts General Hospital in Boston, Massachusetts MINDlink FoundationAtaxia patients: steps to take care of yourself to prevent infection COVID-19 https://youtu.be/c-ic6Wn9m0Q

Be a part of the Joint Mission Bataan

Feb 26th, 2020 18m 25s

iTunes: podcast/k...https://itunes.apple.com/us/ SoundCloud https://soundcloud.com/user-536040137... Facebook https://www.facebook.com/ataxihttp:// Websitehttps://ataxia.simplecast.com/episodes Instagram https://www.instagram.com/ataxian_/

SCAR Scale

Feb 12th, 2020 24m 15s

Feeling alone in your Ataxia diagnosis – finding the right support system is key.

Dec 18th, 2019 6m 18s

iTunes: podcast/k...https://itunes.apple.com/us/ SoundCloud https://soundcloud.com/user-536040137... Facebook https://www.facebook.com/ataxihttp://Websitehttps://ataxia.simplecast.com/episodesInstagram https://www.instagram.com/ataxian_/Twit

Making the most out of the first appointment with your neurologist.

Nov 14th, 2019 6m 21s

iTunes: podcast/k...https://itunes.apple.com/us/ SoundCloud https://soundcloud.com/user-536040137... Facebook https://www.facebook.com/ataxihttp://Websitehttps://ataxia.simplecast.com/episodesInstagram https://www.instagram.com/ataxian_/Twit

Ataxia neurologists how to prepare

Nov 5th, 2019 5m 1s

iTunes: podcast/k...https://itunes.apple.com/us/ SoundCloud https://soundcloud.com/user-536040137... Facebook https://www.facebook.com/ataxihttp://Websitehttps://ataxia.simplecast.com/episodesInstagram https://www.instagram.com/ataxian_/Twit

Spinocerebellar #Ataxia? Biohaven is sponsoring a clinical trial

Nov 3rd, 2019 10m 12s

How is Ataxia is diagnosed

Sep 25th, 2019 3m 23s

What is Friedreich Ataxia

Sep 23rd, 2019 2m 42s

iTunes: podcast/k...https://itunes.apple.com/us/ SoundCloud https://soundcloud.com/user-536040137... Facebook https://www.facebook.com/ataxihttp://Websitehttps://ataxia.simplecast.com/episodesInstagram https://www.instagram.com/ataxian_/Twit

Today’s topic is Doctor Visits

Sep 20th, 2019 2m

What is Hereditary Ataxias? #kNOwATAXIA

Sep 18th, 2019 1m 49s

iTunes: podcast/k...https://itunes.apple.com/us/ SoundCloud https://soundcloud.com/user-536040137... Facebook https://www.facebook.com/ataxihttp://Websitehttps://ataxia.simplecast.com/episodesInstagram https://www.instagram.com/ataxian_/Twit

What is a clinical trial

Sep 17th, 2019 2m 35s

iTunes: podcast/k...https://itunes.apple.com/us/ SoundCloud https://soundcloud.com/user-536040137... Facebook https://www.facebook.com/ataxihttp://Websitehttps://ataxia.simplecast.com/episodesInstagram https://www.instagram.com/ataxian_/ Twi

What is Episodic Ataxia

Sep 15th, 2019 3m

iTunes: podcast/k...https://itunes.apple.com/us/ SoundCloud https://soundcloud.com/user-536040137... Facebook https://www.facebook.com/ataxihttp://Websitehttps://ataxia.simplecast.com/episodesInstagram https://www.instagram.com/ataxian_/Twit

What are you eating?

Sep 13th, 2019 4m 48s

iTunes: podcast/k...https://itunes.apple.com/us/SoundCloud https://soundcloud.com/user-536040137...Facebook https://www.facebook.com/ataxihttp://Websitehttps://ataxia.simplecast.com/episodesInstagram https://www.instagram.com/ataxian_/Twitter

Patient Registries are essential tools for Ataxia

Sep 12th, 2019 2m 12s

iTunes: podcast/k...https://itunes.apple.com/us/SoundCloud https://soundcloud.com/user-536040137...Facebook https://www.facebook.com/ataxihttp://WebsiteInstagram https://www.instagram.com/ataxian_/Twitter https://twitter.com/AtaxiaFacts

Caregivers, Independence is something we all want

Sep 11th, 2019 5m 35s

[email protected] iTunes: podcast/k...https://itunes.apple.com/us/SoundCloud https://soundcloud.com/user-536040137...Facebook https://www.facebook.com/ataxihttp:/ Instagram https://www.instagram.com/ataxian_/Twitter https://twitter.com/Ata

What is Community fundraising

Sep 11th, 2019 2m 46s

Thousands of families, friends, co-workers, neighbors, and communities come together each year to support NAF’s fight to improve the lives of people affected by Ataxia and their families.National Ataxia Foundation

Ataxia Awareness Day Senate Resolution

Sep 9th, 2019 2m 9s

I would just like to thank everyone involved in advocating for the National Ataxia Awareness Day Senate Resolution. We can accomplish big things when we are united. #kNOwATAXIANational Ataxia Foundation #Ataxia MINDlink Foundation

The Cerebellum neurologists call 'the little brain'.

Sep 8th, 2019 1m 44s

Hi #kNOwATAXIA Nation! Ever wonder what's impacting your ability to walk a straight line? Listen in to learn about the trouble maker most neurologists call 'the little brain'.

Exercising, What are you waiting for

Sep 6th, 2019 2m 56s

Exercise can be effective in the treatment and management of a number of chronic health conditions.iTunes: podcast/k...https://itunes.apple.com/us/SoundCloud https://soundcloud.com/user-536040137...Facebook https://www.facebook.com/ataxihtt

National Ataxia Foundation established in 1957

Sep 5th, 2019 2m 26s

NAF is a membership supported nonprofit organization established in 1957 to help persons with Ataxia and their families.#kNOwATAXIA #IAAD2019 National Ataxia FoundationEmail your photo to [email protected]

Massachusetts General Hospital (MGH) Ataxia Unit

Sep 5th, 2019 2m 23s

The Massachusetts General Hospital (MGH) Ataxia Unit was the first and is now the most active such clinic in the US, providing comprehensive care to patients across the age spectrum who have disorders of cerebellum and related conditions.