Kristyn Newbern shares her final thoughts, thanks, and hopes for her season's impact on others.Kristyn delivers an epic mic-drop in this final episode of Season Two. As you might expect, Kristyn departs this season with absolutely stunning gra

Heart Dad - Love for Our Family is What Carries Us Through

Jul 26th, 2022 1h 2m

Kevin Newbern details his experience as a rare disease & heart dad — an intimate look into life, love, and disability parenting.Kristyn is joined by her loving husband and proud father of Luke and Ozzie, Mr. Kevin Newbern. It is incredibly rar

Storytelling - The Power of Sharing and Listening to the Stories of Others

Jul 12th, 2022 26m 6s

Kristyn Newbern shares her perspective on the adventure of being a season-long podcast guest-host on Atypical Truth.Transcription and Merch can be found at www.atypicaltruth.orgInto and Outro Music by AmiinaEpisode Cover Art by Eric McJilton

Grandparents: Infinite Love for Our Children and Endless Support to Us Parents

Jun 21st, 2022 46m 38s

Rare Disease Grandparent, Dr. Donna Cartwright, details what it is like to watch your child enter the world of disability parenting.This episode focuses on the support and perspective of grandparents. Dr. Donna Carthwright shares the love and

Lasting Impact: Honoring Those Who Have Made a Profound Difference In Our Lives

Jun 7th, 2022 24m 34s

Kristyn Newbern provides a storied dedication to those special people who exist beyond the microphone.Transcription and Merch can be found at www.atypicaltruth.orgInto and Outro Music by AmiinaEpisode Cover Art by Eric McJilton--- Suppor

The Best of Friends, Growing Together Through Thick and Thin

May 24th, 2022 49m 32s

Inclusive parenting, insightful advice for friends of parents facing a different parenting journey, and a heartfelt thanks to the friends who never stop showing up.Kristyn Newbern is joined by two close friends, Alice and Lauren, who share wha

Physical Therapy

May 10th, 2022 54m 8s

Kristyn Newbern and Jen Schuerman, physical therapist, discuss the importance of PT for children with disabilities.Pediatric therapists become lifelines in the lives of parents and caregivers, teaching them how to empower their children with d

Bonus

Little Slice of Heaven

Apr 26th, 2022 11m 37s

Today’s episode is dedicated to honoring the beautiful life of our little friend, Josie Fernandez. Josie’s life was filled with so much love. Love for her family, her friends, and so much love for her four-legged friends. To honor all the love

Conversations We Avoid Having

Apr 12th, 2022 1h 10m

Medical moms Kristyn Newbern and Nichole Rosenberger discuss hard but necessary conversations we should all be having but often avoid for fear that people would not understand.Once again, Nichole Rosenberger has joined Kristyn and Erica to dis

Building a Family Through IVF and PGT with Genetic Counselor, Marisa Andrews

Mar 29th, 2022 1h 18m

Genetics, reproduction, fertility, and the role of IVF with preimplantation genetic testing (PGT) as a reproductive option with Kristyn Newbern and genetics counselor Marisa Andrews.Genetics counselor Marisa Andrews joins Kristyn to discuss IV

Rare Friends

Mar 15th, 2022 54m 1s

Kristyn Newbern and Nichole Rosenberger are two moms of children with rare diseases finding comfort in the permission to get uncomfortable.This is the story of a very rare friendship. A friendship that has traveled familiar scary paths, faced m

Rare Friends

Mar 15th, 2022 54m 1s

Surgery Day

Mar 1st, 2022 46m 14s

Two versions of the same story, a story about surgery day. Told from the perspectives of a mother, Kristyn Newber, and a child, Erica Stearns (an adult who had many surgeries throughout her childhood).Unlike the conversations that usually take

Pediatric Cardiology

Feb 15th, 2022 58m 45s

Life within and beyond the hospital walls with Pediatric Cardiologist Dr. Chetana Reddy at Cardinal Glennon Children's Hospital.Dr. Reddy takes us through a day in her heels as she travels throughout Cardinal Glennon Children's Hospital helpin

Take Care of Yourself - A Public Service Announcement

Feb 8th, 2022 3m 56s

A bit of self-disclosure and a reminder for the busybodies in the world.Transcription and Merch can be found at www.atypicaltruth.orgInto and Outro Music by AmiinaEpisode Cover Art by Eric McJilton--- Support this podcast: https://podcas

Reflection

Feb 1st, 2022 36m 21s

Reflecting on last week's episode with Katie Palmer, in this Afterthoughts Episode, Kristyn and Erica spent an evening discussing the power of connecting through hearing a person's story, the lack of disability representation in our society, an

Family Advocate

Jan 25th, 2022 49m 16s

Katie is an international family and child advocate for those impacted by Noonan Syndrome. Katie touches on her experience of growing up with a rare disease and how that has inspired her to help families navigate a rare diagnosis. Katie answers

Luke & Ozzie

Jan 18th, 2022 46m 30s

Once a medical mom, always a medical mom. Kristyn Newbern shares her experience raising two brothers with different abilities and personalities.Growing a family does not look the same for everyone. Kristyn shares about the difficult decisions,

Raising Luke

Jan 11th, 2022 41m 26s

Kristyn Newbern shares the rarely talked about responsibilities of raising a child with a rare diagnosis and disabilities: trust in strangers, vulnerability with others, learning to let go of control, and helping them to write their own stories

Kristyn & Luke

Jan 4th, 2022 47m 9s

Kristyn Newbern explains Luke’s complicated diagnosis and details her transformation into life as a complex medical mom.Today we learn more about Luke's complex medical journey as Kristyn shares her experience navigating his rare diagnosis. No

The Newbern Family

Dec 28th, 2021 30m 26s

Meet Kristyn and Luke - lovers of space, music, and a very special dog named Charlotte. We will be spending an entire season traveling through the story of Kristyn and Luke’s life, but I first felt that we deserved an episode dedicated to getti

Season Two Preview

Dec 21st, 2021 36m 57s

Preview what will come in Season Two with the special guest co-host, Kristyn Newbern. Kristyn is a fellow medical mom to her son Luke, who was born with a congenital heart defect and later diagnosed with a rare genetic disorder called Noonan S

Bonus

Part 5 - Telling the Atypical Truth: Disability Community-Building Through Podcasting

Dec 14th, 2021 37m 23s

Wrapping up the research bonus episodes, I steer away from what outside research has to offer and present the information I obtained in my own examination of utilizing a podcast for disability community-building. In this episode, I share about

Bonus

Part 4 - Telling the Atypical Truth: Disability Community-Building Through Podcasting

Dec 7th, 2021 34m 28s

Part Four of Telling the Atypical Truth: Disability Community-Building Through Podcasting. Reading from sections “Free of Judgment,” “Layered Lives,” and “Humans First, Labels Later.” Erica shares validating data, confirming that she was not a

Bonus

Part 3 - Telling the Atypical Truth: Disability Community-Building Through Podcasting

Nov 30th, 2021 24m 8s

Part Three of Telling the Atypical Truth: Disability Community-Building Through Podcasting. Reading from sections “Need for Connection” and “Our Stories Matter” - Erica shares validating data, confirming that she was not alone with her feelings