Being Rare is an online resource hub and community conversations platform. We'll have intimate and sometimes difficult conversations about living with rare disease, disability, medical complexities, and special health needs. Popular for our 1 minute episodes, Being Rare offers insight, perspective, and positive reinforcement. Hosted by Sarita Edwards, a world's top patient expert, award winning advocate, global speaker, and CEO.
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Other ways to connect: linktr.ee/ewefoundation Support this podcast: https://podcasters.spotify.com/pod/show/beingrare/support
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