In this episode, Becky chats with HTC nurse practitioner and camp supervisor, Tracey Gaslin, about getting the most from an HTC visit, Tracey’s experience as a health care provider in clinics and camps, and the impact that camp has on the hemop
Becky sits down with Dr Patrick Fogarty, a medical affairs colleague from Pfizer, to discuss advances in modern hemophilia treatment. Together, they talk about how far hemophilia treatment has come, the challenges in making advances in treatmen
In this episode, hematologist Dr Robert Sidonio visits with Becky to talk about a topic of mutual interest: women with bleeding disorders. The pair discuss defining different kinds of testing, comprehensive care for women in particular, and muc
Pat Torrey from GutMonkey chats with Becky about adventure education, the types of programs available, the lessons he has helped impart on attendees, and what the hemophilia community has taught him in this episode. Becky also contributes the c
Pediatric hematologist Dr Stacy Croteau chats with Becky about hemophilia care in early childhood, helping caregivers and their children with hemophilia transition to independence, and how pediatric care for hemophilia has evolved and continues
Becky chats with former HTC social worker Ed Kuebler about the importance of mental and emotional health. The pair talk about how hemophilia has changed over the years that Ed has been in the community, how care changes as people with hemophili
Physical therapist, Bruno Steiner, is Becky’s guest, and he shares his experience and expertise in this episode. Bruno chats about using musculoskeletal ultrasound (MSKUS) and other techniques as part of a physical therapy program for people wi
Social Worker Kathaleen Schnur visits with Becky to talk about the role she plays at her Hemophilia Treatment Center (HTC). Kathaleen describes the ways social workers can help families with hemophilia navigate many different aspects of life wi
Pfizer employee Dr. Terry Anderson stops by to talk about her research in hemophilia around pain and depression, and shares some of the findings in the recent studies to which she contributed. Becky and Dr. Anderson discuss the perception and m
Guest host Matt sits down with Jill, a caregiver, and Paul and Shelby, who have hemophilia B, to talk about events in the hemophilia community. Recorded on site at The Coalition for Hemophilia B Symposium, the group discusses how their involvem
Our usual host, Becky, passes the mic to her daughter Elizabeth, a person with severe hemophilia, to guest host this episode. Elizabeth, who is studying to be a music therapist, chats with Spencer, a musician and teacher who also has severe hem
Matt, who has appeared on the show in the past to discuss his son’s experiences with hemophilia B, steps in as guest host in this episode to chat with Elizabeth and Josh. Elizabeth is a college senior and Josh is a young adult who has completed
Guest hosts Wayne and Chad, 2 older community members, sit down with Rocky, age 36, to discuss intergenerational connection in the hemophilia B community. The men talk about how things have evolved over the years, whom in the community they adm
Guest hosts Wayne and Chad, 2 older community members, sit down with Rocky, age 36, to discuss intergenerational connection in the hemophilia B community. The men talk about how things have evolved over the years, whom in the community they adm
Rocky and Brittany have been together just over 5 years and are recently married. In this episode, Becky chats with them about navigating a relationship as it relates to Rocky’s hemophilia B. They chat about discussing hemophilia with a potenti
Elizabeth and Kirsten are both women diagnosed with hemophilia B. In this episode, they chat with host Becky about their experiences growing up in a community where females with hemophilia were the minority. They also discuss their triumphs and
The second installment of “hemophilia hacks,” in which host Becky and Matt, her guest, talk through a list of tips and tricks submitted by members of the hemophilia community that, for some, might possibly make managing hemophilia just a little
Season 2’s premiere episode is the first of a 2-part series in which host Becky and her guest, Matt, discuss “hemophilia hacks” that were submitted by members of the hemophilia community. Like “life hacks,” these tips and tricks, for some, migh
Host Becky recounts the history of the Pfizer Hemophilia B2B Advisory Board with its chair, Wayne, and Bridget, who helps to develop the programs. They discuss the resources that the B2B Advisory Board has developed, how the board evolves to ad
Host Becky talks with Wayne, who has hemophilia, about some of the emotions he experiences as a result of his condition. Wayne chats about his journey and successes he has experienced in managing his emotions. He also discusses how feeling vali
Host Becky chats with Wayne, a 56-year-old man with hemophilia, about his experiences with dating and marriage as they relate to his condition. Wayne discusses his first marriage and how he and his wife learned about his hemophilia together. Wa
Host Becky talks with Melissa, the mother of a son with hemophilia B, about how to optimize time spent during an HTC visit. Melissa details the different specialists who are often available for consultation, how her son’s visits are structured,
Host Becky talks with Matt, the father of a son with hemophilia B, about his family’s experiences with the emergency room. Matt talks about the importance of being prepared to deal with unexpected emergencies and gives insight on what has helpe
Host Becky talks with Melissa; both women have a child with hemophilia, and in this episode they share their experiences. They talk about some of their most important lessons from having raised children with hemophilia and how they learned to h
Host Becky talks with Matt and Melissa, both of whom have a son with hemophilia B who has learned to self-infuse. The trio talk about their experiences teaching self-infusion, how camp can play a part in that, and what it means to transition co