Racing the Clock against ALS, with Daniel Barvin
Racing the Clock against ALS, with Daniel Barvin
Racing the Clock against ALS, with Daniel Barvin
In this episode of Causes or Cures, Dr. Eeks chats with Daniel Barvin, Vice President of Operations and Patient Advocacy at Coya Therapeutics, a trailblazing company working on groundbreaking treatments for ALS and Alzheimer's. In the podcast, Daniel will tell us more about the debilitating and fatal disease ALS and the therapies they are testing at Coya Therapeutics which target T cells, cells that form an important part of the immune system.
Daniel's fight against ALS is personal. He has lost several family members to ALS, including his father, uncle, grandfather, and aunt. He is also a carrier of the ALS gene, and realizes it may only be a matter of time until he shows signs of the disease. As a young man now, he discusses what that feels like in the podcast.
Daniel also talks about finding a way to have kids with his wife to avoid passing on the ALS gene and finding the group End the Legacy, a not-for-profit organization that provides support and resources for the 1 million individuals with or at risk of genetic ALS and FTD.
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From The Podcast
Causes or Cures
Causes or Cures is an independent health and public health podcast hosted by Dr. Eeks. There are no corporate or academic sponsors, just a grassroots podcast rooted in curiosity and passion that tries to break down tough topics into digestible bits. Dr. Eeks works in the field of public health and health communications as a consultant & contractor. She is passionate about how science is communicated and has a penchant for using a blue-collar sense of humor as a health communications tool. On this podcast, she features experts in their field, doctors, public health experts, public figures, researchers, interesting people, "characters", and folks with compelling personal stories, with the goal of discussing hot topics in public health and wellness in a down-to-earth kinda way. Sometimes they will discuss stranger stuff too, mainly because life is short and it's fun. ;) DISCLAIMER: Some topics are more controversial than others, so keep in mind that this is information only and not any kind of health advice. Eeks doesn't endorse any of her guests' views, and despite a strict health routine, nor does she endorse any products, supplements, oils, magic socks or potions. Causes or Cures is not a "news site." It's about having conversations, and Dr. Eeks is confident that she can have a respectful conversation with anyone, even people who think far differently than she does.(At least that's been her experience at hole-in-the-wall bars.) Some people are experts, some people are interesting or intriguing to talk to, and some people are both. The point is to not take anything here as Gospel. Sometimes Dr. Eeks' dog Barnaby makes his opinion known, but the good news is that he's a smart dog. Most importantly, she hopes this podcast encourages folks to stay curious, empathic, hopeful, compassionate, honest, open-minded and engaged. Freedom of discussion is a beautiful thing, delightfully messy, and one that many take for granted. *The views on this podcast do not reflect the views of anyone she contracts with or consults for. **You can contact Dr. Eeks (or her dog) through her blog, bloomingwellness.com. (Keep in mind that there are some blogs on there that are advertisement only. She does not review them, they are usually awful, but they help fund Barnaby's treat habit.) Finally, thanks for listening, subscribing, sharing and supporting the show through the Support the Show Link! :)Join Podchaser to...
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