Stephanie Lucas
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Stephanie shares about the transition from ending the clinical trial, starting a pandemic and getting a new progressive hearing loss diagnosis. She shares about the transition from feeling that "maybe" things will turn out fine, to knowing you'
The first in a new mini-series where Stephanie interviews each of the different parent guides on the Hands and Voices of Oregon team! This series will explore hearing loss from each of the different angles of our families, and explore the commo
Stephanie shares about her own emotions during the clinical trial they completed as a part of CMV research. She discusses how her needle phobia impacted the frequent blood draws, and what she learned about herself and the medical community. Ba
In this episode we talk to Hailey Adkisson about her daughter Juniper who has infantile spasms, a rare and catastrophic form of epilepsy. We discuss the process of making medical decisions, holding onto and losing hope, and carving out a differ
In this episode Stephanie discusses the process of deciding to enroll Riley in a drug trial for CMV. She explores the emotions related to the cost and the systemic pressures it puts on a family when decisions that could forever alter their chil
In this episode Stephanie interviews her husband, Grant, about his experience with their daughter's hearing loss diagnosis. They explore together his take on the impact it had on him and their marriage. We discuss the topics of paternal post pa
Stephanie talks about her experience with a cascade of stressors when Riley was 6 months old. Returning to work, severe sleep deprivation, weaning, enrollment in an intensive research study, receiving Riley's first hearing aid, postpartum depre
Stephanie interviews author Krystal Wallick about her experience with her son staying in the NICU with high risk lung complications. She also interviews her husband Andrew Wallick about his experience separately. Both interviews touch on findin
In this minisode Stephanie recaps the different topics and interviews she's covered in the first half of season one, as well as sharing some updates from our guests. Take a listen to make sure you're catching up with the whole team and get exci
Valli Gideons is a writer, military wife and mom to two teens with hearing loss. She shares about her story raising two young kids with hearing loss, the hard work and high expectations it took to see them thriving now as teens, and finding her
In this minisode Stephanie explores discovering Deaf culture and realizing her identity had shifted. She discusses coming across differing opinions and how it feels to try and work out what's best for your child. She offers encouragement to par
Becca Cordes shares her intimate story of baby loss and trisomy 18. Listeners are encouraged to take care of themselves around this sensitive subject. Theirs is a powerful story of emotion, hope and Valor. Becca shares about carrying her son af
In this episode Stephanie shares about her discovery of a clinical trial for CMV babies and the decision to enroll. She reflects on how medical days at specialty hospitals can be full of twists and turns, and how the speed of progress in the wo
In this episode Stephanie shares about her discovery of a clinical trial for CMV babies and the decision to enroll. She reflects on how medical days at specialty hospitals can be full of twists and turns, and how the speed of progress in the wo
Janna Cowper shares her story as a mom who is hard of hearing, raising two hard of hearing girls. She shares about her journey growing up hard of hearing and how this differs from learning to parent hard of hearing children. We discuss the valu
In this minisode Stephanie explores finding out about CMV (Cytomegalovirus) and their family's experience with education, treatment and potential outcomes. She discusses the emotions that can come with being at 'fault' for your child's disabili
Katie Park is a work at home mom of 3, small business owner and #cleftstrong mama. She shares with us about her experiences receiving the diagnosis, going through surgery and what it was like to have a baby born with cleft lip. We hear about ho
In this episode Stephanie explores some of the key factors that have impacted both her personal mistrust and broader patterns of mistrust in the medical community. She shares a piece of Riley's story, getting her first hearing aid, and discusse
Krista Haller is a therapist and parent coach who is the mom to two young daughters. She talks with us today about her experience with identifying each of her children’s sensory needs, speech development and anxieties. She shares about struggli
In this minisode Stephanie shares the age-old story "Welcome To Holland" and discuss the process of grief, doubt and self-judgments that can happen upon learning that your child has a disability. Transcript: https://wordpress.com/post/stephani
Duane and Becky talk about their experience as a family with Treacher Collins Syndrome. TCS is a rare genetic disorder that affects facial structure and hearing. Duane was born with TCS as was their youngest daughter. They share their experienc
Stephanie shares about her experience finding out that her daughter had hearing loss. She discusses her own and her husband’s emotional process, and normalizes that there is no ‘right way’ to learn hard news.Transcript: https://wordpress.com/p
Fiona West lives in the Pacific Northwest, and is a mom to two elementary aged kids, each with their own unique challenges. She talks with us today about how she identified her son’s neurodiversity initially, learned to value her own needs alon
In this introduction to the podcast, you'll hear from the host Stephanie Lucas regarding her work as a marriage and family therapist, her family's journey of becoming a hearing loss family, and the goals of the podcast to build a community of s
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