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E.62 Unmasking the Overlooked Aspects of Caregiving in the Corporate World with Sue Ryan

E.62 Unmasking the Overlooked Aspects of Caregiving in the Corporate World with Sue Ryan

Released Saturday, 1st July 2023
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E.62 Unmasking the Overlooked Aspects of Caregiving in the Corporate World with Sue Ryan

E.62 Unmasking the Overlooked Aspects of Caregiving in the Corporate World with Sue Ryan

E.62 Unmasking the Overlooked Aspects of Caregiving in the Corporate World with Sue Ryan

E.62 Unmasking the Overlooked Aspects of Caregiving in the Corporate World with Sue Ryan

Saturday, 1st July 2023
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0:00

Hi there , welcome to Conversations , where we

0:02

seek to advance your leader in team excellence

0:04

by discussing relevant topics that

0:07

impact today's organizations

0:09

. Welcome to the show , Welcome

0:12

to Conversations , where today we

0:14

have Ms Sue Ryan . Sue's

0:16

mission is to empower and embolden

0:18

individuals to maximize the opportunities

0:21

and potential change will

0:23

bring . As a speaker , change

0:25

strategist , author , executive

0:27

coach , caregiving coach and mentor

0:29

, she lives this through two passions

0:32

of her purpose she guides

0:34

and inspires leaders and emerging

0:36

leaders committed to business growth and

0:38

next level leadership to be great leaders

0:40

of themselves and others . Sue guides

0:42

non-professional caregivers to become

0:45

confident , balanced and supported

0:47

in all phases of their caregiving

0:49

journey . Sue delivers these through

0:51

her signature offerings intentionally

0:54

navigating transitions , leadership

0:57

through the dimensions of change , the

0:59

prodigies , own leadership , cares

1:01

and the caregivers journey . And

1:04

for all you strengths , enthusiasts , Sue leads

1:06

with woo , self-assurance achiever

1:09

, positivity and maximizer

1:11

. So welcome to the show . How

1:14

are you today ?

1:16

Kelly , I am great and grateful

1:18

grateful to be here and have an opportunity

1:20

to share with your listeners things

1:23

that I'm called to share with the world

1:25

.

1:26

And I'm really excited about this . We connected

1:29

on LinkedIn and that's how we met . And

1:32

the more that I learned we sat and had coffee

1:34

that one day and the more I learned about

1:37

this journey that you're on

1:39

it . Just it sparked

1:41

in me . It's like , oh my

1:43

goodness , I need to see if she wants to come on conversations

1:46

, because this information a lot

1:48

of times people don't think about in

1:51

leadership and organizations when

1:53

it has to do with caregiving . So I

1:55

would love to just roll right into

1:58

. How did this passion

2:00

just come about for you ?

2:03

It came about for me that

2:05

for the past 40 years

2:07

, roles of non-professional

2:10

or family caregiving support have been being brought

2:12

into my life and

2:14

I've been navigating them in parallel with

2:17

the other roles of my life , which , for

2:19

more than 30 years , included

2:21

my professional career

2:23

in enterprise application software sales

2:26

, and what

2:28

I recognized is the

2:30

issues that

2:33

family caregivers face

2:35

when navigating professional

2:37

roles , especially because , through

2:39

the majority of my career , it

2:41

wasn't appropriate for me to share that I was also

2:43

a family caregiver because

2:46

of stigmas and other kinds

2:48

of things that now many

2:50

of which have gone away . However , it

2:52

created an extra burden , and

2:55

the other side of that is there

2:58

is a tsunami coming . The

3:00

number of caregivers

3:02

is increasing exponentially , or the

3:04

number of caregivers is

3:07

increasing exponentially and the number

3:09

of caregivers is being reduced

3:11

exponentially many because

3:14

those baby boomers who used

3:16

to be the family caregivers are now becoming

3:18

caregivers , and

3:21

people , especially after the pandemic , who

3:23

would have gone into professional roles

3:25

as caregiving

3:27

support . They're

3:30

like I'm out of here , I'm not doing this

3:32

.

3:35

So what are the statistics saying ? What

3:37

are you finding in your research around

3:39

caregiving ? And

3:41

you just tell me I know that there's

3:44

probably a lot of statistics out there what kind

3:46

of jumped out to you or continues

3:48

for you to kind of scratch your head out

3:50

?

3:52

I'll read off these statistics and

3:55

we can apply context

3:57

to them later . But worldwide

4:00

and these are conservative numbers , because

4:02

it's not like I've gone to the doctor's office

4:04

or someplace else and they have a box that says

4:06

are you a family caregiver

4:08

? So whatever numbers we're using

4:11

are on

4:13

the lower side of what actually is

4:15

really the true number . So

4:18

these are still staggering . Just

4:20

with 18 countries worldwide

4:23

they've identified , there are

4:25

more than 25 billion

4:27

family caregivers . In

4:31

the United States alone

4:33

, family

4:36

caregivers are providing more than

4:38

$600 billion

4:41

in unpaid payer

4:43

, and

4:45

there are more than 53 million family

4:47

caregivers in the United States alone . So

4:50

the amount of unpaid care

4:52

that they're providing is significant , and

4:55

there are way more statistics on all of that . But

4:58

about 25% of the family caregivers

5:01

are caring for more than one person . There

5:05

are about the 53 million

5:07

that are over 18 years old . However

5:09

, there are nearly 4 million

5:12

family caregivers who are

5:14

18 years or

5:16

under , and so we're

5:18

not talking about just having

5:20

people who you would have traditionally thought

5:22

of as more senior or whatever . More

5:26

than 60% and they've got the numbers between

5:28

60 and 70% of family caregivers

5:30

are either working full or

5:33

part-time , and

5:36

by 2034 , this is one of the statistics

5:39

I think is staggering , which is why I

5:41

really want people in business

5:43

who may not be thinking of this as significant

5:46

. One statistic to me is one

5:48

by 2034

5:51

, adults 65

5:54

and older will

5:56

outnumber children

5:58

under the age

6:00

of 18 .

6:02

That's amazing .

6:03

Yeah , so you know they're , you

6:08

know and the

6:10

people who are care receivers a

6:12

couple statistics on that and we'll move them forward but

6:16

more than 8 million disabled children

6:18

under the age of 21 . And so when

6:20

we're talking about care receivers

6:23

, we're not talking about an age demographic

6:25

, a diagnosis demographic . We're talking about

6:27

a variety of disabilities

6:30

and ages . That the spectrum is significant

6:32

and this is a sad

6:34

one , and this is really why one of the reasons

6:36

that I find it so important to be raising this

6:39

in the business community More

6:41

than 40% of

6:44

family caregivers are

6:46

leaving the workforce

6:48

because they

6:50

can't navigate both , and

6:54

they're losing over

6:56

$3 trillion in wages , pensions

6:59

and benefits . Now , if

7:01

you look at that statistic on the other side of it

7:03

, think of yourself as a business and

7:06

you've got these valuable , valuable , valuable

7:08

employees . And when we have more

7:10

baby boomers , which means that they're retiring

7:13

, we want to keep every valuable

7:15

asset in our organization that we can , who

7:17

can be bringing up and guiding

7:19

and leading

7:22

the next wave of leaders . So we

7:24

don't want people to have to leave . It's

7:26

also expensive and time consuming

7:28

to try to replace them . The

7:31

more that we can do to

7:33

help family caregivers be able

7:35

to stay in their roles and stay

7:37

valuable , because it also

7:39

helps them , gives them sense of purpose

7:41

and connects them and money and all these other things , the

7:44

better off it's going to be . So there are a whole wide

7:46

range of statistics that help you get an

7:48

idea of how significant this

7:50

issue really is .

7:53

And that's amazing because organizations

7:55

are identifying , like the Family

7:57

Leave Act , so maternity leave

7:59

and different things like

8:01

that , disabilities within the workplace and

8:04

whatnot . But it seems a

8:06

rarity that I've heard

8:08

anyway about caregiving

8:11

support within

8:13

organizations and you just rattled off

8:15

a whole bunch of information about the

8:17

benefits that an organization can

8:20

have by keeping their people

8:22

good , solid people who

8:24

have that knowledge and experience

8:26

that they've come to know . And so

8:28

what are these conversations maybe

8:30

look like for organizations who

8:32

are listening to this and kind

8:35

of the light bulbs going off for

8:37

them .

8:38

Sure , the things that

8:40

are valuable to know . So , ground

8:43

level , what

8:45

we're talking about , companies

8:47

have already addressed things like

8:50

this in the past when they came up . So

8:52

, while this is something that they're facing that

8:54

is newer to them , it's

8:57

not like they're starting something

8:59

that's a brand new dynamic they've never done before

9:01

. They don't have processes . For example , they

9:04

started , like you were saying , maternity

9:06

and Family Leave Act . Many

9:09

organizations now have childcare

9:11

centers for children . The

9:13

dynamic of family caregiving

9:15

is just another type

9:17

of a focus on a special

9:20

group of people who are as valuable to you

9:22

as anyone else and you want to

9:24

keep them . Part of the conversation

9:26

comes into when you look organizationally

9:29

, many organizations

9:32

will say and I've had these conversations , they're

9:34

interesting conversations

9:37

because , all of a sudden , when this door

9:39

opens for them , they're like , wow

9:41

, and here's what happens in the conversation

9:43

. They're like , well , we don't have people coming

9:45

to us saying that they need family caregiving

9:47

support , that

9:49

they don't need benefits packages . They're

9:52

not coming to us with that . Yes

9:54

, I understand . And how

9:56

many of them do

9:59

you have you've recognized in the company ? Oh

10:01

, not very many . We really we don't have

10:03

very many . One

10:05

of the things that happens is that

10:07

family caregivers do

10:10

not self-identify in the work

10:12

environment as a family caregiver for

10:15

several reasons . Some of them may not be legitimate

10:17

in the company they're there for , but they don't want to testing

10:20

the waters unless the company comes

10:22

out and says we embrace you . One reason

10:24

is companies have not identified

10:27

that they embrace family caregivers and

10:29

family caregivers . One of the issues they're going to

10:31

have is they're going to have to be

10:33

taking some time off . They may have some unplanned

10:35

time off . They may have to have days

10:37

where they're only working a few hours

10:40

. So their schedules may be , especially

10:42

during their caregiving journey . Their schedules may

10:44

be impacted somewhat . If

10:46

they say to the leadership

10:48

team I'm a family

10:50

caregiver , what their perception

10:53

is in many , many conversations

10:55

with family caregivers who are also working

10:57

well , they're not going to give me projects

10:59

to do , they're not going to promote me

11:01

, they're not going to give me a bonus

11:04

because I have to take time off , and

11:06

so they don't want . And they say when

11:08

they're , if they have to cut back , they're going to cut me back

11:10

. So they're concerned

11:12

and afraid of allowing the organization to know

11:14

they're actually a family caregiver , for fear

11:17

of whether obviously

11:19

known or just assumed . They're

11:22

not being recognized and honored

11:24

and respected , and that's one of the things . And

11:26

so when you have an organization

11:28

and they're unaware

11:30

of it and you raise this to their level of awareness

11:32

, they're like wow , let's

11:34

start by finding out , making

11:37

family caregivers feel welcome

11:39

to share with us they actually are

11:42

so that we

11:44

can then create support , resources

11:46

and mechanisms , create team structures

11:49

, do all kinds of things that continue

11:51

to allow us as a business to thrive , which

11:54

is what you really want the business to be able to do , while

11:56

allowing teams to be able to be successful

11:59

working with family caregivers and

12:01

yet give family caregivers the ability

12:03

to stay valuable

12:05

resources in the organization .

12:09

For sure . I feel as though

12:11

if an organization creates

12:13

that environment that is

12:15

inviting for somebody to step out

12:17

and say , yes , I am , and this is

12:19

what I need and this is how you can help

12:21

, I think that more people would probably

12:23

step into that . But it

12:26

kind of leads me to the question about

12:28

how do you self-identify

12:30

as a caregiver ? What does that look like

12:32

? Because I'm sure that there are a lot of people

12:34

who are giving care who

12:36

are not saying I'm a caregiver .

12:39

Yes , that's such a great question

12:41

and it actually works on both sides

12:43

self-identifying as a caregiver , self-identifying

12:46

as a care receiver . In

12:49

the concept of self-identifying as

12:51

a caregiver there

12:53

are probably more than

12:55

three , but I've come up with three different categories

12:57

. One is I know I'm

12:59

a family caregiver . I have stepped into

13:02

it . I understand what it is . I

13:04

am providing support

13:06

for someone and I'm

13:09

not a professional . This is not my job . I

13:11

haven't been hired to do this . I

13:13

may be getting paid money for it . For example

13:15

, if there are several siblings and

13:17

somebody lives close to mom and dad and

13:20

one of them is caring for them , other family

13:22

members may be paying them . So it doesn't mean

13:24

that the family caregiver is unpaid

13:26

. That's something . That's a term some people use , but

13:29

they're not a professional . This

13:31

is not their job . They've stepped into this to help

13:33

out , either because there's nobody else to do

13:35

it , they can't afford any other resource , or

13:38

they choose to do it . So there are reasons why

13:40

they would . So one is very easily I

13:42

am a family caregiver . Another

13:44

one is I

13:46

get the sense I'm going to be a family caregiver

13:49

and boy , I just want to push that down the road

13:51

as long as I can . I really don't want

13:53

to have to step into

13:55

that yet . I want to try to find every other

13:57

option available before I

13:59

have to step into that . So they're resisting

14:01

being identified as a

14:04

family caregiver and will be very specific

14:06

about oh no , I'm not caregiving . So

14:08

they're resisting that . And the third

14:10

one is they're afraid

14:13

to allow people to know

14:15

that they are a caregiver

14:17

. They know they are , but especially

14:19

, like at work , they don't want

14:22

people to know . Or they also

14:24

don't want social circles to know , because

14:26

they feel , either culturally , familially

14:29

or socially , that they might

14:31

be judged or that people will

14:33

treat them differently and they don't want that

14:35

. So there are some . All of

14:37

these are fear-based reasons . They

14:40

don't self-identify .

14:42

How do we help somebody step

14:45

into that role ? Because

14:48

that is , it can be very scary .

14:51

It can be very scary , Based

14:54

on the conversation we're having today . What

14:56

I'll do is I'll talk about it from the business

14:58

perspective of it . The

15:00

program that I created called Leadership

15:02

Cares , and Cares is an acronym for Caregiving

15:05

, Awareness , Resources , Empowerment

15:07

and Solutions

15:09

. A business

15:11

would first , from a leadership

15:14

perspective , come out

15:16

proactively and say we

15:18

support family caregivers

15:21

, we support people who are providing

15:23

care for a family member

15:25

or loved one , and they

15:27

define what that sounds like and looks

15:29

like . And we

15:31

support you . We want you to feel

15:33

comfortable having conversations

15:36

with us so that we can

15:38

create programs that

15:40

support you being able to stay

15:42

working with us and

15:44

we can continue to be supporting

15:46

our customers and providing the level

15:49

of service and product

15:51

that we're committed to . So

15:53

it's from a leadership perspective

15:55

, giving people permission to step into that

15:57

. One of the things that I've done is I've created

16:00

a resource that asks

16:02

a number of questions for

16:05

helping people self-identify

16:07

if they are a caregiver . Some of those might be our

16:11

well , and let me take that back . One

16:13

statement we may not

16:15

know . We've become a caregiver because

16:18

we started out just

16:21

, you know , helping out our neighbor , picking

16:23

up the newspaper for them and

16:25

then taking out the trash for them

16:27

. And then we're like well , we're going to go to the grocery store

16:29

, Can I pick anything up for you ? And

16:31

then they call us and say I've got to run

16:33

to the doctor , Could you take me to the doctor ? Gradually

16:36

, over time , we've been adding additional responsibility

16:39

after responsibility . There wasn't

16:41

a thing that says , if you're doing this

16:43

, you've all of a sudden crossed

16:45

the line to being a family caregiver and

16:48

so , under the construct of

16:50

that , it's asking

16:52

yourself questions to raise to your level of awareness

16:54

. How many things am I actually doing ? Am

16:57

I checking on the medications of someone ? Am

17:00

I taking them to appointments ? Am

17:02

I driving for them so they don't have to

17:04

? Am I calling them on a regular basis

17:07

because I'm concerned about their health

17:09

or safety ? Am

17:11

I investing more of my time focusing

17:14

on what their needs are ? Are

17:16

we doing outsourcing more things ? So I have a variety

17:19

of different things that help people raise

17:22

to their level of awareness that , oh

17:24

, maybe I am a family caregiver .

17:27

And where can somebody get that ? Is

17:29

that available ?

17:31

It is available . It's

17:34

available . I've created an

17:36

online course called the Caregivers' Journey , where

17:38

I walk people through the journey , and that is one

17:40

of the attached

17:43

worksheets for that . However , what

17:45

I'll do is I will give you the

17:48

document and you can

17:50

put it on your site if you'd like to , and

17:52

then for your listeners , they can go ahead

17:54

and get that , and that just

17:57

helps to check , to self-identify

17:59

if maybe they are a

18:02

family caregiver , and

18:06

that's actually where the term that's where sometimes

18:08

people will separate the term non-professional

18:10

from a family caregiver . They're basically

18:12

very similar , but I have been

18:14

a non-professional caregiver . I've

18:16

been a caregiver for people

18:18

who I'm not related to , but

18:22

not in a professional capacity . So

18:24

some people get hung up on the term family

18:27

because they think it's only members of your family

18:29

.

18:32

So we've talked about the organization

18:34

. If we were talking , let's go

18:37

to a team dynamic , let's go

18:39

down even further from the organization

18:41

and you have a team member

18:43

one maybe

18:45

even more than one on a team who has said

18:47

you know , I have self

18:50

identified as a caregiver

18:52

, I may have some

18:54

additional needs . How could maybe

18:56

a team rally around that person

18:59

?

19:00

That is a great question . Several

19:02

of the things that can be done from a team

19:04

dynamic is when team

19:07

members are comfortable self

19:09

identifying as a caregiver , the

19:11

entire team understands what

19:13

they are . Then the team members who

19:15

don't know anything about family caregiving

19:18

there's information that can help them understand

19:20

what some of the impacts can be and

19:22

the person who is the family caregiver can talk

19:24

a little bit , to wherever they're comfortable with

19:27

, about their caregiving journey . Then

19:29

what the team does is lays out here

19:31

the things that we're working on and identifies

19:34

where the family caregiver is involved with

19:36

them and the responsibilities they have . I've

19:38

seen a variety of different things be done

19:41

that , depending on the

19:43

season the family caregiver is in

19:45

with their care receiver , they

19:47

might shift some of the responsibilities

19:49

they're performing with the team to

19:51

someone else , or they

19:54

may have a backup so that if , for

19:56

any reason , they are not

19:58

able to be there for an important meeting , someone

20:01

else has access to their information

20:03

. Someone else understands that they would be

20:05

tasked with taking

20:07

notes or things like that . So they create

20:09

a process that understands the fact

20:11

that periodically this person may not

20:14

be available and when everybody's a

20:16

part of it , because everybody wants to help . People

20:18

want to help . When they're able

20:20

to come together creatively and say what are

20:22

we going to do , it helps

20:24

everybody . Now one of the really

20:27

exciting parts of this that I've seen in

20:29

businesses when they have done this is

20:31

that other people

20:34

have recognized when they

20:36

have something going on in their family

20:38

they're using the same team

20:40

dynamic , not just

20:42

because of caregiving but , for example

20:45

, one of the ones is that

20:47

somebody was having their knee

20:49

replaced and they

20:51

said let's use this exercise because

20:54

I'm going to be having my knee replaced . So proactively

20:56

they say they got whiteboards and they put things out and

20:59

they just shifted things for

21:01

people to have . So it can expand

21:03

to a variety of different areas . But

21:05

it allows the team dynamic to be creative

21:07

and to be supportive and have backup

21:10

plans so that the team can be

21:12

productive and everybody

21:14

feels good . They're not feeling resentful because somebody

21:16

keeps calling out and they don't know why .

21:20

And that's a great way to

21:22

display empathy .

21:27

Grace , empathy and compassion are so huge

21:29

.

21:29

Yes , Wow , what else

21:32

? What else haven't

21:34

we talked about ? That's important

21:36

to get out here today

21:39

.

21:41

One of the things that we

21:43

had talked about is some of the things that

21:45

might be helpful for people if they

21:47

currently are in a role

21:49

of caregiving . Support and

21:53

while that's a very broad topic

21:55

, because you could be caregiving

21:57

for any kind of diagnosis at any kind of age

21:59

all of these different things Two

22:02

things that have been impactful for my

22:04

life that began in my role

22:07

as a caregiver and have now expanded to

22:09

all parts of my life , and

22:11

people who I've worked with have embraced

22:13

it in all areas of their life is massive

22:16

acceptance and radical

22:18

presence . It

22:21

came to me when I was evaluating

22:24

a caregiving experience with my dad

22:26

, when I felt like I had really let

22:28

him down caring

22:30

for him , and it was because , while

22:32

I had been caregiving for

22:34

many other people and

22:37

I knew he had a diagnosis and I had

22:39

accepted that , I was

22:41

still trying to get him to do something based on

22:43

the way I had lived my

22:45

life and things he had taught me my whole life , and

22:48

while I was present to what he was struggling with

22:50

, I wasn't fully

22:52

present because I was trying to get him to

22:54

do something that he had taught me

22:56

about being safe and I

22:58

didn't realize he didn't have access to that anymore , because

23:00

I'm trying to do what my dad taught me all my life

23:03

. And so what I recognized is that there's a

23:05

difference between accepting something and

23:07

being present to massively

23:09

accepting , which is we

23:12

accept exactly what

23:15

is . We

23:17

accept it 100% . We

23:20

don't have to like it , we

23:22

don't have to agree with it and in the moment

23:24

we don't even have to understand it . That may come

23:26

days , weeks , months , years later . We

23:28

just have to accept it . And , most importantly

23:30

, we have to accept it without judgment

23:33

, not judgment of ourselves or others , of the

23:35

situation . So we massively

23:37

accept this . And when we

23:39

do , from a presence

23:41

perspective , we practice radical

23:44

presence , which is saying , fully focused

23:46

in the moment , which is all we really have

23:48

. We're not doing what I

23:50

was doing . I was wanting

23:53

it to be the way it had been before

23:55

, remembering the way my dad had taught me , the way

23:57

he'd been doing things all his life . And

23:59

then I was also projecting , fortune telling

24:01

, projecting in the future , based on what

24:04

could potentially happen , as

24:06

opposed to really looking at what the

24:08

potential impossibilities in the moment were

24:10

. And when we practice massive

24:12

acceptance and radical presence , we

24:14

are able to see the potential impossibilities

24:17

in the moment , which means we're

24:20

able to make the wisest decisions

24:23

because we're not judging it

24:25

, we're not clouding it with anything . It's like what

24:27

is here and now , what do we make the decision

24:29

? The gift

24:31

in that is that we're able

24:34

to make a more challenging decision

24:36

and feel confident

24:38

with it so we can move forward and take the next steps

24:40

and we can get support if that's the right thing to do . But

24:43

the other part of it is

24:45

that we can see beauty and even the tiniest

24:48

little thing , because we're right there

24:50

, fully present , and we're just observing it for

24:52

exactly what it is . So I would

24:54

say that one of the greatest things

24:56

caregiver , in any area of

24:58

their caregiving , experience

25:00

and journey , is massive

25:03

acceptance and radical

25:05

presence .

25:09

Wow , and

25:12

you know that

25:15

can go through and , like you said , it could be in every area

25:17

of your life that you can be

25:19

utilizing those , because it's really important

25:22

if we're going to be present in the moment and

25:24

really embrace what's in front of us .

25:27

When you practice it in other areas of your life , it just

25:30

keeps getting better and better and better

25:32

. Yeah , like it's easier , like

25:35

it's easier , and it's not

25:37

devoid of challenges , it's just devoid

25:39

of how , because I

25:41

also feel like everything in our lives

25:43

is happening for us . There's

25:46

a lesson for us in everything , whether it's a challenging moment

25:48

or a positive moment . It allows us

25:50

to be able to see that , so we can grow

25:52

from those things . So

25:55

it is great in all areas of our lives .

25:59

We talked about something briefly when we

26:01

met for coffee that day and it was about

26:03

self care , and I'd love for you

26:05

to maybe just touch on self

26:08

care for caregivers .

26:11

So thank you for asking that Such a great question

26:14

. Self care and I say self

26:16

care isn't selfish , it's self love

26:18

. Self

26:21

care can be very challenging because

26:23

we want to provide

26:25

the best level of care possible for

26:27

our care receiver and it's easy

26:30

for us to just shave off a little here

26:32

or a little there . I

26:34

don't need much sleep , I can stay up an extra hour

26:36

after they've gone to bed and do the finances , or

26:39

I can get up an extra hour early and do the laundry

26:41

, and so we , instead of going

26:43

to the gym , will do the laundry or do something else

26:45

because we want to make sure we're fully

26:47

present for our care receiver . So

26:50

we begin to shave off . Or we

26:53

haven't defined what self

26:55

care looks like for us . We haven't said

26:58

to ourselves self care is so

27:00

important , and so

27:02

self care is the combination

27:04

of what does it look like for

27:07

you ? What

27:10

does it look like if you don't practice it ? Because

27:12

many of us have stepped into overwhelm

27:15

and we've seen , when we're not practicing self-care

27:17

, what happens . And

27:20

so what does it look like for you ? And then , how

27:22

do you apply it ? Let's say you've only got a

27:24

minute or two . What would be

27:26

something you could do in a minute , what

27:29

would you do if you had five minutes , if you had

27:31

an hour , if you had two hours ? And

27:34

then you look intentionally . So self-care

27:36

is something that's intentional in our

27:38

lives . How do you

27:40

intentionally incorporate it into

27:42

your life so

27:45

that you remember you

27:47

need to take care of you and you

27:49

honor that ? And

27:53

as your caregiving journey goes through different

27:55

seasons , you have different ways

27:57

of being able to practice it . You also

28:00

recognize that if you get to a place in

28:02

your life where you don't

28:04

have capacity or you feel like you have

28:06

to shave off self-care , that's

28:09

a place where you go . I

28:11

need support . It's time for me to reach

28:13

out to somebody else because I'm not giving up self-care

28:16

, because if you're not there for your care receiver

28:18

, that's

28:21

a bigger problem .

28:24

Yeah , and that kind of has

28:26

my mind circling back to the organizational

28:28

element and how , if you are

28:31

being supported at

28:33

an organization , how can that organization

28:35

make sure that self-care is part of the

28:38

process ? That sounds

28:40

like it's something that would be important , because

28:43

we want our people showing up well

28:45

to work .

28:47

You want them showing up well and then you want them to have

28:49

, and I have noticed organizations have done

28:52

things They'll have . Some of them have like

28:54

a Zen garden where some of them will have

28:56

a space where people can go and just be quiet

28:58

. Some organizations , while

29:00

they don't necessarily call it self-care

29:03

, they support the concept of that or

29:05

they've created programs where somebody could go out

29:07

and take a course or they could do something

29:09

. But I like what you're saying

29:11

is to make it in an intentional part

29:13

of what people are doing , and

29:17

truly self-care doesn't have

29:19

to be something that you have to do

29:21

an hour in the morning and then 15

29:23

minutes in the afternoon or whatever . It can be a variety

29:26

of different things . It's you figuring

29:29

out what it is for you and being intentional

29:31

about doing it .

29:34

You know , I know you are a woman of faith , so I

29:36

would love to hear a little bit about how

29:39

all of this combined

29:41

the work that you do kind

29:44

of you know attaches

29:46

to your faith , what that means

29:48

to you .

29:50

From a faith perspective . I

29:53

have conversations with God all the time and

29:56

my conversations are if

29:59

there's something I can be doing to

30:01

provide a better level of support for

30:03

my loved one , until you're ready for them

30:05

, please let me know . I'm

30:08

doing what I feel

30:10

that I can do and it's

30:12

very important to me , and yet please

30:14

keep guiding me if I could be doing something

30:16

better for their care . And

30:19

I also recognize

30:21

I can only control me and

30:24

, from a faith-based perspective , I

30:26

thank God . All the time I

30:28

say I don't know why . This is

30:30

our journey . I accept this is

30:32

our journey . Maybe someday I will understand

30:35

. I don't need to understand

30:37

. I accept it and

30:40

whatever lessons you have for

30:42

me I don't want to miss

30:44

. So please allow

30:47

me to learn the lessons and

30:49

if I'm not paying attention , thump me . And

30:51

also , for my care receiver , help

30:54

me make sure that if there's something you

30:56

want for them , if there's a lesson they still

30:59

need to learn before you're ready

31:01

for them , that I put them in the

31:03

best position for that lesson to

31:05

be a part of their journey .

31:07

That is beautiful . Thank you for sharing

31:09

that .

31:10

Thank you . I really feel like God

31:14

brought me here for a reason . He brought it all of us

31:16

for a reason . He's got reasons for the things

31:18

he does that we don't necessarily understand . This

31:20

is our journey . I don't fight it . I'm

31:23

not angry with God about anything . I'm not

31:25

angry with anybody about anything . I

31:27

embrace it as what is there here for us to learn

31:29

. Would I have chosen it ? I

31:32

wouldn't have chosen it if you had given me a list

31:34

. However , there

31:36

are all kinds of things we wouldn't choose in our lives

31:39

if we had a list to choose them . And

31:41

yet , when we reflect back , we've

31:44

developed resilience , we're stronger , we've

31:46

learned things from it . It's the same thing

31:48

with grief . We wouldn't have the emotion of grief if

31:50

it didn't have a purpose in our lives

31:52

, and so , while most people wish

31:55

they didn't have to navigate grief , there's

31:58

a reason for it .

32:00

There sure is , Wow

32:02

, A lot of good information

32:05

here . Ms Sue Ryan

32:07

, how can people get ahold of you

32:09

Because I'm sure there's gonna be listeners who

32:11

you really pique their interest , whether

32:13

it's at an organizational level , leadership

32:16

level or individual level who maybe

32:19

just heard something today

32:21

and is like I need to just

32:23

reach out to Sue . How can they get more

32:25

information ? And I will put what

32:27

you sent me into the show

32:29

notes there , but how can people get

32:31

ahold of you ? Maybe find out a little bit more about

32:33

what you do .

32:35

Thank you . My email address is

32:38

Sue at su-ryansolutions

32:41

. My website

32:43

is su-ryansolutions

32:45

and

32:48

people can reach out through that . I'm on

32:50

. I'll look

32:53

on LinkedIn . I don't remember if I'm Susan Ryan

32:55

. My given name is Susan . I

32:57

don't remember if I'm Susan Ryan or Sue Ryan

32:59

on LinkedIn .

33:01

All right , and look for the red hair .

33:04

Yeah , you can tell from my profile picture

33:07

. If you've found there , Let me pull it up real quick . I'll tell

33:09

you who I am on LinkedIn and

33:12

those are , and I really

33:14

want people to know they

33:17

never have to be alone on

33:19

their journey . So

33:22

, yeah , on LinkedIn I'm Sue Ryan or Sue Armstrong Ryan . Yeah , so I'm

33:24

Sue Ryan , At any rate

33:26

, wherever

33:28

they are . I

33:31

hope that this gives them the opportunity

33:33

to consider , if

33:36

they're on a journey or if they are leading others who

33:40

are on the journey , ways for them

33:42

to be able to provide

33:45

an extra level of support . And

33:47

one other point diagnoses

33:49

don't discriminate . You

33:52

can be the CEO of an organization and

33:55

your spouse or your parents they have something and

33:57

they need a caregiver and

34:01

you instantly become a caregiver . It

34:03

doesn't matter where you are in an organization . You can become a family caregiver

34:05

.

34:09

One last question that I have about it early on about

34:13

when organizations assess what

34:16

is a good way for them to be assessing . What does that

34:18

look like , and is there implications with HR and legal

34:21

issues ? How

34:24

does that work ? Do

34:27

you happen to have an answer to that ? They

34:31

are very important .

34:34

They have it all reviewed and I'm not

34:36

an attorney and I'm not an HR

34:38

specialist . I've had conversations . Different

34:41

organizations have navigated this differently

34:43

. The

34:46

recommendation I will say is , whatever you do

34:48

, run it through legal and through HR , because

34:50

there are implications . However , from

34:52

a leadership perspective , when

34:56

the organizational leadership communicates

34:58

to the organization

35:01

, we understand

35:04

and we want to learn more

35:06

about the family caregivers in our organization

35:08

so that we can provide

35:11

support resources for

35:13

them and for our team

35:15

, so that we can all work together

35:17

, because it's not just the family caregiver

35:19

, it's the other people who are impacted . When

35:21

the organization makes it known

35:24

that caregivers have permission

35:26

to

35:29

then self-identify , then

35:32

whatever way the organization chooses

35:34

to do that In the beginning , one

35:37

of the things some of them have done is

35:39

a completely anonymous

35:42

survey . They've

35:45

said we don't want to know who you are . All

35:49

we want to know is how

35:51

many family caregivers we have , how many non-professional

35:53

caregivers we have , so that we can be

35:55

considering how to support you

35:57

. It's

36:00

having the caregivers have

36:03

permission to self-identify , knowing

36:05

that it's okay that they can do that .

36:10

Then start taking questions . Reach out to

36:12

Sue Ryan . She will help you navigate

36:14

the process for this

36:16

because it is important . Like

36:19

I said earlier , it's probably

36:22

something that organizations

36:24

are not really thinking about unless

36:27

it has somehow . Their

36:29

top leadership has been

36:32

a caregiver or had to look

36:35

into caregiving A lot of

36:37

times . Things at the top they will

36:40

trickle down if there's been experience

36:42

up here where they need to know

36:44

and need to expand that .

36:47

It's been challenging as I go into organizations

36:49

. It's challenging because there are so many

36:52

things going on in organizations

36:54

right now . It would be great

36:57

to be able to push it farther down the road . The

36:59

challenge is this is not

37:01

something that's linear , being pushed down

37:04

the road . It's increasing exponentially

37:06

, and so the longer

37:09

that an organization goes without

37:11

addressing it , the exponential

37:13

increase in the impact it's going to have

37:15

.

37:18

Well , thank you , sue , for coming on conversations

37:21

and really unpacking the good work

37:23

that you're doing , the insight that

37:25

you have and just

37:28

your strength and your courage

37:30

and your collaboration with

37:32

organizations and leaders and individuals

37:34

who are meeting

37:36

with you and having those good conversations

37:39

about what their next steps are . So thank

37:41

you so much . I appreciate you and the work

37:43

that you're doing .

37:45

I appreciate you and the work you're doing and

37:47

helping leaders and everything that you're bringing

37:49

with the messages that you are , and

37:51

I'm really grateful for the opportunity to

37:54

raise this to people's level

37:56

of awareness so that they can consider

37:59

it as they move forward . Thank

38:01

you .

38:01

You're welcome . I keep saying it is important

38:03

work and it's

38:06

different . And

38:08

I love the conversation because it's different

38:11

than just the

38:13

regular things you think about within leadership

38:16

and teams and organizations

38:18

. It's just different , but

38:20

it's a need to . We

38:22

need to be having these conversations , we

38:25

need to be figuring out

38:27

how to honor our people and

38:29

doing it with what their

38:32

needs are , because , like you said , it could

38:34

look different depending on the person . Thank

38:36

you .

38:37

I appreciate you . I do Thank you , thank

38:40

you , thank

39:14

you , thank

39:44

you , thank

40:14

you , thank

40:41

you , thank

41:13

you , thank

41:44

you , thank

42:11

you , thank

42:43

you , thank

43:11

you , thank

43:43

you , thank

44:11

you , thank

44:43

you , you

45:01

, you

45:31

, you

46:01

, you

46:31

, you

51:17

, music

51:36

, music

51:46

, music

51:55

, music

52:02

, music

52:15

, music

52:24

, music

52:30

, music

52:43

, music

53:20

, music

53:38

, music

53:46

, music .

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