#raredisease #millennial #FDA #orphandrug #advocate #EveryLifeFoundation #rarediseaseweek

CONVERSATIONS WITH CALVIN; WE THE SPECIES

DANIEL PEZZETTA: “A special introspective, riveting, interview with his living with a rare disease (as a millennial, college student, national advocate) 30 MILLION Americans live with RARE diseases (93-95% of the 7000 rare diseases have NO FDA approved therapy)”

193 Interviews. GLOBAL Reach. Earth Life. Amazing People.

PLEASE SUBSCRIBE (You can almost find any subject you want) https://www.youtube.com/c/ConversationswithCalvinWetheSpecIEs

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DANIEL PEZZETTA; Rare Diseases Legislative Advocate; EveryLife Foundation for Rare Diseases Intern; Millennial; Author; George Washington Univ

YouTube:

CONTACT: LinkedIn:

https://www.linkedin.com/in/dan-pezzetta-591707216/

EveryLife Foundation: https://everylifefoundation.org/about-us/

Book Baby Purchase Book: ‘Disposed: A Story of Chronic Illness During the COVID-19 Pandemic’:

https://store.bookbaby.com/book/disposed-a-story-of-chronic-illness-during-the-covid-19-pandemic

BIO: “Legislative advocate for those with Rare Diseases who is currently attending George Washington for Legislative Affairs. I've spoken at M.I.T, Harvard Medical School, and Rare Disease Week on Capitol Hill about policy”

EVERYLIFE FOUNDATION FOR RARE DISEASES

The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures. We do not speak for patients. We provide the training, education, resources and opportunities to make their voices heard. By activating the patient advocate, we can change public policy and save lives.

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ALSO ON AUDIO: SPOTIFY http://spoti.fi/3bMYVYW

GOOGLE PODCASTS http://bit.ly/38yH3yP

edits by Claudine Smith- Email: [email protected]

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PLEASE SUBSCRIBE (You can almost get any subject you want ) #animalrescue #climatechange #womenshealth #ONEHEALTH #water #singersongwriter #branding #mindfullness #comedy #sport

#infertility #racialequity #stuntwomen #comedy #environment #NASA