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Addressing Hesitancy with Caregivers and Health Care Navigators

Addressing Hesitancy with Caregivers and Health Care Navigators

Released Wednesday, 26th May 2021
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Addressing Hesitancy with Caregivers and Health Care Navigators

Addressing Hesitancy with Caregivers and Health Care Navigators

Addressing Hesitancy with Caregivers and Health Care Navigators

Addressing Hesitancy with Caregivers and Health Care Navigators

Wednesday, 26th May 2021
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Episode Transcript

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0:00

Welcome to COVID nineteen Immunity

0:03

in Our Community. Before

0:05

we kick off the show, here's the latest

0:07

COVID nineteen vaccination news

0:09

at the time of this recording on Monday

0:12

May. At the start

0:14

of this week, over two five million

0:16

vaccines have been administered in the US,

0:19

and six out of ten American adults

0:21

have received at least one COVID vaccine

0:24

dose. The FDA

0:26

recently authorized the Fiser COVID

0:28

vaccine for adolescence between twelve

0:31

to fifteen years old. The CDC

0:33

recently updated mask guidelines.

0:36

Fully vaccinated individuals can resume

0:38

activities without wearing a mask or

0:40

physically distancing you are fully

0:43

vaccinated two weeks after your

0:45

final dose. That's it

0:47

for now, enjoy the show. Hello,

0:52

Yeah you Hi. I'm Robin Roberts

0:55

of ABC's Good Morning America, and

0:57

welcome the COVID nineteen Immunity

0:59

in Our Community, brought to you by the

1:02

U S Department of Health and Human Services.

1:17

COVID nineteen Immunity in Our

1:19

Community has been created to provide

1:21

you with the groundbreaking science,

1:24

honest facts, unvarnished

1:26

truth about the deadly coronavirus

1:29

and the revolutionary vaccines that

1:31

could put this pandemic behind us. Today,

1:33

we're talking about vaccine hesitancy

1:36

and the people that bridge the gap of trust

1:38

between hesitant folks and the healthcare

1:41

providers who want to help them.

1:51

These liaisons are community healthcare

1:53

navigators. Sometimes the people

1:55

who take on this role are professional

1:57

mediators through government programs, but

2:00

other times they're simply our neighbors

2:02

or our family. Many of these

2:04

figures are women responsible for

2:06

balancing social distancing, homeschooling,

2:09

remote work, and the healthcare

2:12

decisions for their own families. But

2:14

what does it take to change minds

2:16

about the safety of COVID nineteen vaccines.

2:19

Well to find out, we sat down

2:22

with Heather Simpson, a mother who

2:24

used to be part of the anti vaccine

2:26

community. However, some compassionate

2:29

friends and thoughtful experts led

2:31

her to research the science behind

2:33

the COVID nineteen vaccines. Now

2:36

she's a community healthcare navigator

2:39

herself. Heather offers

2:41

her unique insights on how we can

2:43

best convince others to roll up

2:45

their sleeves and get vaccinated. Then

2:48

we talked to Dr Rochelle Wolinski,

2:51

director of the Centers for Disease

2:53

Control and Prevention. She

2:55

discussed the community health Workers Initiative

2:58

and effort to support healthcare worker and

3:00

navigators. She also covered how

3:03

our health care system can work to build and

3:05

repair trust in these hesitant communities,

3:08

and what each of us can do to help.

3:21

Once upon a time, Heather Simpson

3:23

was stringently anti vaccine

3:26

or anti vax. When COVID

3:28

nineteen hit and talk of a vaccine

3:30

started to circulate, she knew

3:32

she wouldn't take her daughter to be vaccinated. Nope.

3:34

Heather had long been active and

3:37

anti vax Facebook groups. One

3:39

year, you know what she did. She dresses measles

3:42

for Halloween because she says it was the least

3:44

scary thing she could imagine. That

3:47

image of Heather in her costume circulated

3:50

the Internet and earned her no shortage

3:52

of mocking online. The anti

3:55

vax hmmunity was the only place

3:57

Heather felt really understood and except

4:00

did. But when the COVID nineteen

4:02

pandemic hit the country hard, Heather

4:04

still felt it was important to wear masks

4:06

and protect the community. The

4:08

anti vax Facebook groups did

4:10

not agree, and they turned against her. After

4:13

losing her anti vax community, Heather

4:16

decided to speak to experts about

4:18

the efficacy of vaccines. Slowly,

4:21

she realized that vaccines are safe, and

4:24

now Heather has been vaccinated against COVID

4:27

nineteen. Here's Heather

4:29

Simpson now to share her story of how

4:31

she came to become anti vaccine,

4:33

how she realized that vaccines

4:36

work, and how empathy played

4:38

a key role in that journey. Then

4:40

she'll talk about her mission to spread the truth

4:43

about COVID nineteen vaccines. I

4:56

am a mother of a three

4:58

and a half year old all and her

5:01

name is Charlotte. She is a

5:03

wild child. She loves dinosaurs

5:06

and the great outdoors, and she

5:08

she quite literally never stops going.

5:11

So I grew up vaccinated.

5:15

Um I got my Heppy series when I was a

5:17

teen. I guess it was a different schedule

5:19

but then and that's

5:21

just what we did. We didn't worry about it. We

5:24

didn't like them, but we just did it. And

5:27

when I was eighteen and going off to college,

5:29

my mom gave me the choice to get my

5:31

meningitis shot. And

5:34

I hate needles, so being

5:37

eighteen, I said no. And

5:40

I guess there was a little spark of

5:42

hesitancy in me at that point, like,

5:45

well, why why do we get vaccinated?

5:47

And you know what, what would be the dangers,

5:50

but I just kind of shut that down. And a

5:52

couple of years later, I poked myself with some

5:54

old jewelry, so I ran to the local

5:56

clinic and I got a tennis shot. A

5:59

couple of years after that, I had to get a flu

6:01

shop for school. I almost passed

6:03

out, but I wasn't worried that I

6:07

would have a crazy side effect.

6:10

It wasn't until I think two thousand

6:12

fifteen, when me and my husband started

6:15

thinking about having a kid and trying

6:17

to get pregnant, that

6:21

we realized, oh, my goodness, we have

6:24

We're going to have this life that we're

6:26

in charge of. We have to make these kinds

6:28

of heavy decisions. And

6:31

that's when we were at our most vulnerable. And

6:34

that's when I

6:36

saw this ad for a documentary

6:38

series about vaccines, and

6:41

it was completely anti vaccine. It was

6:44

about nine hours long, and we

6:46

decided to watch

6:49

it all, which

6:52

the hard part about it was it was full

6:54

of doctors, um

6:57

anti vaccine doctors. But you

6:59

know, growing up having trusted doctors,

7:02

I'm listening to these doctors like, Wow,

7:05

they're correct, this

7:07

is this is crazy. How have I

7:09

not known that vaccines were so dangerous?

7:12

They blamed everything under the sun

7:15

on vaccines, and I just ate it up. I

7:17

was terrified after that. At

7:20

the same time she developed her distrust

7:22

of vaccines, Heather and her husband were

7:24

experiencing fertility issues that

7:26

no doctor could seem to solve. She

7:29

didn't feel like she was being listened to by

7:31

the medical professionals in her life. Then,

7:35

when natural methods finally helped Heather

7:37

get pregnant, she decided to go

7:39

the natural route for good. Natural

7:42

medicine seemed to help her when no

7:44

doctor could. When

7:47

COVID kind of became this big

7:51

pandemic and the vaccine was

7:54

being talked about, I in

7:56

no way wanted anything to do with

7:58

it. I definitely didn't want my daughter

8:00

to have it. I didn't want myself to have

8:03

it. I didn't want my husband to have it. I

8:05

did not trust it. I

8:08

was a bit of a conspiracy theorist. I was still

8:10

an anti vaxtor when COVID

8:12

hit um and still somewhat

8:15

vocal about my anti vaccine

8:17

beliefs online. So

8:19

as ironic as it is that a doctor

8:22

kind of made me distrust Western

8:25

medicine, another doctor kind

8:27

of turned the situation around

8:29

for me. I have in demetriosis

8:31

to last February. It was really bad,

8:34

and my kind of coologists

8:36

wanted to do surgery. I posted

8:39

online to my friends, my anti VAXX

8:41

friends, and they were telling me it's

8:43

the lazy way out. You just need

8:45

to eat healthier, and

8:48

doing the surgery is just kind of

8:50

pathetic. And then I went to my doctor

8:53

and I cried, master if this

8:55

was my fault, if I just needed to eat better,

8:58

and she told me it was not my fault, and I needed

9:00

the surgery and I felt better

9:02

after the surgery. And that was kind of when I started

9:05

to trust Western medicine

9:07

more. As

9:11

Heather started to warm up to the medical

9:13

system, the anti vax community

9:15

turned against her. Now they're

9:18

also noticed that the anti vax community

9:20

was stringently anti mask, but

9:23

wearing masks in public was something Heather

9:25

felt passionate about because

9:27

of her different opinions. The anti vax community

9:30

completely rejected her, so

9:32

she turned to her friends and vaccine experts

9:35

for the truth. So

9:40

I had a friend named Jess that

9:43

forward hours and hours of

9:45

her time into talking with me about

9:48

my fears, and that really,

9:51

to have someone care so deeply

9:53

and actually listened to me, that

9:56

was one of the biggest things that kind of turned

9:58

the tide for me. I mean, she was

10:00

just so empathetic and

10:03

in all of our previous conversations, she

10:05

never judged. She would ask

10:07

why, you know, well, why are you scared

10:09

of that? What is your thought process

10:12

behind that? Okay, well this is why I believe that's

10:14

not correct. I

10:17

started reading actual pro

10:21

vaccine books instead of

10:23

anti vaccine propaganda, and

10:25

then I started talking to online

10:28

doctors that became friends on Facebook

10:30

and online scientists that became friends on Facebook,

10:33

and they were so happy to help answer

10:35

my questions and they actually

10:38

explained the science to me. A

10:40

lot of anti vaccine people

10:43

believe that aluminum

10:45

from vaccine gets into your brain because they

10:47

read these studies that show that there's a luminium

10:49

in your brain. What actually happens

10:52

at the end of these studies, if you read the

10:54

details, it's environmental

10:57

aluminum. It's not the vaccine

10:59

aluminum. And that that blew

11:01

my mind. I was like, we've been reading

11:03

all these studies wrong. It's like we're not doctors.

11:08

I still feel this fear. I think every parent

11:11

feels a little bit of anxiety

11:14

going in to get your child's vaccines

11:16

because you don't know. I mean, one in a million can

11:18

have aniflexus, probably not your kid,

11:20

but it's just it's just a medical procedure.

11:23

You know, everybody has a little

11:25

bit of anxiety. But telling myself those

11:27

scientific facts, it

11:30

was just such a relief to know that there's

11:32

hard science out there that you can trust.

11:40

After learning the truth about vaccines

11:42

from experts and speaking to hympathetic

11:44

friends, Heather made it her mission

11:46

to use the same science and patients

11:49

to spread the facts about all vaccines.

11:52

She also booked her COVID nineteen

11:54

vaccine appointment. I

11:56

am nervous because needles. You know, I

11:58

have been known to faint um,

12:00

but you know that happens,

12:03

and I'm glad to be part of her immunity.

12:07

I have heard a lot of rumors,

12:09

you know that the COVID vaccine effects

12:11

fertility, or you know my

12:13

mom died the next day, you know, things

12:16

like that. And what I'm doing is

12:18

just posting and trying to explain to people

12:20

the science that I've read. And

12:23

I personally got to talk to Dr Paul

12:25

off It about that because that

12:27

was kind of my fear. You know, when you read about fertility

12:30

and you want another kid, you

12:32

don't want to stop that, And

12:34

he just put my fear, my

12:36

fears at ease, And that was just such

12:39

a wonderful conversation. And so I'm

12:41

confident moving forward that it

12:44

is a good vaccine with solid science

12:47

behind it. All I can do is

12:49

just share those articles with my

12:51

friends and share what I know. If

12:54

you are going to talk to a vaccine hesitant

12:56

person or an anti vaxer and try

12:58

to bridge that gap, just keep in mind that they

13:01

are terrified and

13:03

they they truly

13:05

believe what they believe. Mocking

13:07

them is not going to do anything.

13:10

Being sarcastic is only

13:13

going to build that wall.

13:15

When I got a ton of hate as

13:18

an anti factor, that just strengthened

13:20

my platform and I believed,

13:23

Oh I got hate, that means I'm doing something

13:25

right. So just be on their team.

13:28

And these hard

13:30

scientific facts that you can't get

13:32

around, have those ready,

13:35

have those written down, whatever you need

13:37

to do. But there are hard

13:39

scientific facts, even about

13:41

the COVID vaccine that you can't feel

13:44

your way out of, you can't argue with your way

13:46

out of. You can empathize

13:49

with them and say, I understand how scary

13:51

it is to read these stories you

13:54

can explain, uh,

13:56

you know, there's actually a lot of funny

13:58

correlation does not equal causation

14:01

things on the internet. That's that's

14:03

what helped me and the scientific facts.

14:06

Man, I couldn't argue my way

14:08

out of those scientific facts. Heather

14:14

Simpson stressed the importance of listening

14:16

to vaccine hesitant people without judgment,

14:19

patiently sharing the real science with

14:21

them. That's what changed her

14:23

mind about vaccines and turned her into

14:25

a community healthcare navigator. To

14:28

learn more about how the medical system can

14:30

build trust in the communities they served, we

14:33

spoke to Dr Rochelle Walnsky,

14:35

Director of the Centers for Disease Control

14:38

and Prevention. Dr Walnsky

14:40

was a professor at Harvard Medical School

14:42

for eight years and chief of the

14:44

Division of Infectious Diseases at

14:47

Massachusetts General Hospital for three years.

14:50

She also spent a year working on the front

14:52

lines of the COVID nineteen pandemic. This

14:55

gave her an up close understanding

14:57

of how this disease has impacted vone

15:00

A Bowl communities, as well as

15:02

what may cause those communities to be hesitant

15:04

about vaccines. Dr

15:06

Willinsky discussed how the CDC

15:09

is working to support and fund

15:11

community healthcare workers and navigators,

15:14

as well as what you listeners can do from

15:16

home to become small scale healthcare

15:19

navigators yourselves. I

15:25

think it's really important that we understand

15:28

where people are when they're thinking about

15:31

vaccines and whether they are confident

15:33

in the vaccines, whether they want the vaccines, and who

15:35

they get their information from, because

15:37

not everybody trusts everyone

15:39

UM and they have trusted people in their

15:41

lives and their communities and they really want

15:44

to understand vaccine safety,

15:46

vaccine efficacy and learn it

15:48

from the people who they trust. And

15:52

so it is those people UM

15:54

locally. It may be in

15:56

their faith based organizations, it may be

15:58

in their communities, that may be in their pharmacy sees

16:00

that maybe their loved ones. And it is those

16:02

people who really have to extend the confidence

16:04

and the message that vaccines are

16:07

effective, they will prevent disease, and

16:09

vaccines are safe. To meet people

16:11

where they are. We need to convey the science.

16:14

We need to communicate it. We need to bring it to

16:16

the people UM at the level that they

16:18

want to hear it, that they want to understand it. We

16:20

need to be able to you know, this is

16:22

this is going to happen. One person at a time.

16:25

UM, we need to make sure that people get

16:27

the answers to their specific questions, and

16:29

they get the answers to those questions

16:32

in the context of where they have trusted

16:35

messengers. So some people get

16:37

that information from their pharmacists, some people

16:39

don't have a trusted pharmacist. Some people

16:42

might go to their their minister and

16:44

want to get it from their faith based organization. And

16:46

so we're really trying to spread

16:49

all over local communities to

16:51

make sure that they get those trusted messages

16:54

from those trusted messengers and

16:56

in fact that it's science based

16:58

and they have all of the tool hits that they

17:00

need to convey that information

17:02

based on that science. The

17:07

CDC recognizes the importance

17:09

of trusted figures like healthcare navigators

17:12

to spread the facts about the COVID nineteen vaccines.

17:15

That's why they're devoting resources to encouraging

17:17

more people to take on the role in developing

17:20

the skills of people who already have. We

17:23

have devoted three D thirty

17:25

two million dollars to our community health

17:27

worker initiative. We know as

17:29

part of getting people excited

17:32

um and motivated to take the vaccine

17:34

that we really need to meet people where they are.

17:37

It is those community workers who understand

17:40

the people in their community, who understand

17:42

where or why they might be hesitant,

17:45

who know how to find them, who understand

17:47

what their reluctancy might be. And I think

17:49

when we talk about vaccine confidence, we really

17:52

need to understand that some people

17:54

are worried because it's not convenient.

17:56

Some people are worried that the side effects might keep

17:58

them out of work the next day. Some people are

18:00

worried about their safety or

18:02

whether they really work, or maybe some people

18:05

aren't concerned that they would get COVID

18:07

at all, and a disease. Trusted

18:09

community workers who live in the community,

18:12

who can come with informed discussions

18:15

where people can really ask the questions

18:17

of the people in their community and get the answers

18:20

to the questions that they perceive

18:22

as the reason that they don't want to get the vaccine.

18:24

And I think it's really those community workers.

18:26

The the money and resources that CDC

18:29

is putting forward towards this community

18:31

worker program, is going to help with community

18:33

worker education, is going to help

18:35

with evaluation, technical assistance

18:38

so that we can really inform these community

18:40

workers and they can bring that message out to

18:42

the members of their community. Dr

18:47

Wilinsky said that community healthcare

18:49

navigators should focus on sharing the

18:51

overwhelming scientific evidence

18:53

that vaccines are safe and effective.

18:56

I think it's really important to recognize

18:58

that now hundreds of millions of Americans

19:01

have rolled up their sleeve and gotten the vaccine,

19:04

and we are starting to see the data that demonstrates

19:06

that that vaccine is leading to decreased

19:09

hospitalizations, decreased disease

19:11

in the communities that have been vaccinated.

19:14

I think it's really important to understand

19:16

that the safety of as vaccine has

19:19

been demonstrated not only in clinical

19:21

trials of a hundred thousand people,

19:23

but now through the experience

19:26

of a hundred million people. And

19:28

I think it's really important that people understand

19:31

that that it is so critical

19:33

for people to roll up their sleeves and get vaccinated.

19:35

It will help with with curbing disease,

19:38

and it will um it is safe to do. Health

19:41

care systems and clinical providers

19:44

have been at the front lines working

19:46

with patients and are working now

19:48

to ensure consistent communication,

19:51

trusted communication, and accountability

19:54

for the work that they're doing. And UM,

19:56

I'm really enthusiastic that over this next

19:59

tenures were building up vaccine trust

20:01

that they will be there leading with science to

20:03

lead that trusted message. All

20:10

of you listening at home, and we're so glad that you

20:12

are. You can become healthcare navigators

20:14

too by talking to the hesitant

20:17

people in your lives about why it's

20:19

important to get a COVID nineteam vaccine.

20:22

The very first step is leading

20:24

by example people

20:30

who are listening at home. The first

20:32

thing you can do is roll up your own sleeve and get vaccinated.

20:35

And the next thing that you can do locally is

20:37

just look around you and be the messenger

20:39

for someone else. There are a lot

20:41

of resources on the CDC dot gov website.

20:44

There are a lot of resources on that we can

20:46

do this website and UM.

20:48

Those resources can be used as tool kits

20:50

to engage in your community to

20:53

spread the word out. When

20:55

the mailman comes, I might ask have you

20:57

been vaccinated? UM, and the people

20:59

really us want to hear about it in their

21:02

community. So so send the message

21:04

to the people around you, to your community, to

21:06

your loved ones, and really understand

21:09

what it is that is causing them to not

21:11

necessarily roll up their sleeves. If it's

21:13

the ride, you can be there to provide it for them.

21:15

If it's the appointment you can be that help

21:17

access it. We are going to do this one

21:20

person at a time. When

21:25

I say meet people where they're at, I mean

21:28

it both figuratively and literally.

21:30

So if you are if the mailman

21:32

comes, if you're in the pharmacy, if

21:34

you're having a casual discussion, UM,

21:37

talk to people about whether they've gotten the vaccine?

21:39

Where a sticker or where where a

21:42

bracelet that says you've gotten the vaccine?

21:44

And and and be the walking advertisement

21:47

and in fact when then you have this conversation,

21:50

So not only are you literally meeting them and

21:52

finding them wherever it is that they go every

21:54

day, but then you're having a conversation with

21:56

them about why if you haven't

21:58

gotten the vaccine, why not? UM?

22:01

What is it about the vaccine that either has you

22:03

concerned? Was it not convenient? Could you not

22:05

find it? Did you not have the time, did you not have

22:07

the time off? UM? Or were you

22:09

worried about its side effects? Where you worried

22:11

about its safety profile? Because if

22:13

you're empowered with all the information to

22:16

answer those questions, then

22:18

UM you will be the one to motivate

22:21

UM their decision making as they roll up

22:23

the sleeves and get the vaccine themselves. You

22:25

know, I spent a year on the front lines during

22:27

this pandemic, so I have so many stories.

22:30

What I can tell you is when

22:32

it comes to reaching communities,

22:35

there are people who might be reluctant.

22:38

There are people who don't

22:40

really understand the impact of

22:42

this disease. So often

22:44

early on we said, you need to stay home, you

22:47

need to quarantine, you need to isolate. UM.

22:49

Quarantine, as I've found in so

22:51

many of these communities, is actually a privilege

22:54

that many people don't have the opportunity to

22:56

quarantine and um.

22:58

It is those community health workers who live

23:00

in these communities who find

23:03

people who can convey to those

23:05

people that their healthcare workers out there,

23:07

who care, who want them to come in,

23:10

who want to see them, who want to see

23:12

them before they're super sick, so we can intervene

23:14

early and to really want to make

23:16

sure that they can get vaccinated so that they

23:19

are not at risk to themselves or

23:21

to their families. So

23:36

each of us can also help bridge the

23:38

gap of trust between our communities and

23:40

the health care systems that serve us. In

23:43

fact, we encourage you to join the

23:45

COVID nineteen Community Core to

23:48

receive information on how you can help build

23:50

vaccine confidence in your community.

23:53

You know it's understandable for people to ask

23:55

questions about the COVID nineteen

23:57

vaccines. Decisions about

23:59

our health are some of the most

24:01

important decisions we will ever make, and

24:04

if we're responsible for making healthcare

24:06

decisions for a child or relative, the

24:09

pressure to do things right can be overwhelming.

24:12

But each of us can listen

24:15

to those concerns with empathy and patience

24:18

and then help hesitant folks understand

24:21

the solid science behind the COVID nineteen

24:23

vaccines. Both Heather Simpson

24:26

and Dr Rochelle Rolinsky stressed

24:28

how important it is for healthcare navigators

24:31

to use a combination of empathy

24:33

and science to change minds, and

24:35

more importantly, to listen to the

24:38

questions and fears people have.

24:41

Lead by example and

24:43

book your vaccine appointment today.

24:53

To get vaccinated, go to vaccines

24:56

dot gov and click find COVID

24:58

nineteen vaccines. The site

25:00

will help you determine where you can get the vaccine

25:03

and how to make an appointment. Now

25:06

you don't have to worry about paying for your

25:08

vaccine. Your taxpayer

25:10

dollars are funding the rollout, so

25:13

there's no individual cost to you, So

25:15

if someone asked you to provide your insurance

25:18

information, that's only so your

25:20

vaccination provider can build your

25:22

insurance for the administrative costs,

25:24

but you will not be personally responsible

25:27

for any expenses. I'd

25:30

like to thank our guests, Heather Simpson and

25:32

Dr Rochelle Willinski for sharing their

25:34

thoughts and their expertise with us today.

25:37

Tune in again for episode six,

25:40

where we'll address how the COVID nineteen

25:42

pandemic has impacted the Hispanic

25:45

community.

25:54

COVID nineteen Immunity in Our Community

25:57

was developed and paid for by the U. S

25:59

Department of Health and Human Services,

26:01

part of a public education campaign to

26:04

increase public confidence in COVID

26:06

nineteen vaccines while reinforcing

26:09

basic prevention measures. We

26:11

Can Do This Presented

26:13

by I Heart Radio and ABC News,

26:16

this podcast is hosted by me

26:18

Robin Roberts. The episode

26:21

was executive produced Ethan

26:23

Fixal with production by Wonder

26:26

Media Network. It was written,

26:28

engineered, and edited by Edie

26:31

Aller to Triple Threat, with research

26:33

assistance from Alessandra Hata.

26:36

If you haven't already subscribed, rated,

26:39

or reviewed COVID nineteen Immunity

26:41

in our community. What are you waiting for? Please

26:44

do so on the I Heart radio app,

26:46

Apple podcast, or wherever you

26:49

get your podcasts. Until

26:52

next week. I am Robin Roberts

26:54

and this is COVID nineteen immunity

26:57

in our community. We could do this. Thank

26:59

you for listening. E

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