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An End of Life Doctor’s Shocking Loss

An End of Life Doctor’s Shocking Loss

Released Wednesday, 1st November 2023
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An End of Life Doctor’s Shocking Loss

An End of Life Doctor’s Shocking Loss

An End of Life Doctor’s Shocking Loss

An End of Life Doctor’s Shocking Loss

Wednesday, 1st November 2023
Good episode? Give it some love!
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Episode Transcript

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0:00

this week on

0:02

the new yorker radio our the hamas attack

0:04

israel's retaliation and the possible

0:06

consequences for the middle east in the world

0:08

the new yorker radio our for every you

0:10

listen to podcasts

0:15

hey a phantom and want to let you know that

0:17

this week's episode deals with the sudden death

0:20

of a young child please take care

0:22

while listening

0:24

i don't know what i believe about like the bigger

0:26

picture it but i

0:28

have now thought about like wow

0:32

did i land in this career because

0:35

i needed this were

0:38

my own journey my own

0:40

healing they don't know

0:43

there's something that seems true about that

0:49

this is dan sex and

0:52

money the

0:54

show from w and my field about

0:57

the things we think about a line and

1:00

need to talk about more money

1:03

and sale after

1:10

doctor bonnie chen son died

1:13

last year they change the way she

1:15

talked to her own patients about death she's

1:17

more tentative and her approach now she

1:20

wants to communicate about end of life in

1:23

ways that a patient is ready to here

1:26

so there are many visits were

1:28

i don't use the word death at all

1:31

and i find now

1:33

that i really do

1:35

feel my role is to walk

1:38

alongside someone in

1:42

their serious illness and

1:44

sometimes denial is a beautiful coping

1:47

mechanism

1:49

bonnie

1:51

is in her forties and lives in oakland

1:53

california most of her

1:55

conversations with patients revolve around

1:57

death somehow because she's a palliative

1:59

there's nationalist spot

2:02

in the help patients manage serious

2:04

arson untreatable illness when

2:07

it's more about comfort

2:08

and there's something

2:10

about being

2:13

able to be with people

2:16

when they're getting hard news or when they're

2:19

trying to figure out what's the or

2:22

i see patients

2:24

communicate with their families of them trying

2:26

to love each other they best they can

2:28

in the worst situation it

2:31

take you get the window

2:33

into people's lives that of

2:36

course you would never have otherwise

2:39

edmunds

2:40

is a different kind of satisfaction

2:43

then

2:45

being able to sit someone or cure

2:47

some one bonnie

2:50

has been a palliative care

2:51

doctor for ten years mostly

2:54

working with patients who are dealing with terminal cancer

2:57

something bunnies mom died from when

2:59

bonnie was seventeen

3:01

i think the

3:02

unspoken message i took in

3:04

as a teenager was that

3:06

mom is said keep your head down

3:10

train get your age don't

3:12

cause a fuss and in

3:15

retrospect foot

3:18

ceiling for holidays for me

3:20

to be named though my emotions from those

3:23

times

3:24

i think thirty seven subconscious

3:26

part of me that knew that

3:29

palliative care filled that void

3:32

for my teenage self

3:35

own

3:41

it was you know about your son's

3:43

yeah he died suddenly

3:46

and an accident

3:47

when he was sixteen months old and

3:51

this was about a year ago

3:54

titus wanna go slow here

3:57

i'm

3:58

when i'm on a just said that what

4:02

happened in your body today

4:10

is to feel the shudder moves

4:12

through me like

4:16

oh the plague those are fact that

4:20

in i just stayed in and

4:22

makes you

4:24

know like cannot really be

4:28

the reality of thing but

4:31

so worth a moon and

4:33

then like

4:36

i never asked him relaxing

4:41

into the and yeah

4:43

that's true

4:49

the spring after her son benji

4:51

died bonnie wrote an essay

4:53

in the san francisco chronicle

4:55

the she has reading part of it i

4:57

experienced life on the other side of the exam

5:00

table in for it slow motion

5:02

technicolor i

5:04

sat on the other end of a nine one one com

5:07

or read in the ambulance as a caregiver

5:09

not a first responder always

5:12

it outside the emergency room as i heard the

5:14

doctor call out for vital signs and

5:16

medications and most tellingly

5:18

to my ears a social worker

5:21

i

5:23

experienced the silence after the club's

5:25

a loss and the team locked warily out

5:27

of the room

5:29

this time i was the one

5:31

to well

5:34

did you go

5:37

to a hospital where

5:40

he worked neuron

5:43

season know anybody professionally the

5:46

he which and grateful for simply

5:49

why grateful i was at

5:52

comforting because

5:58

the experience is true it it and

6:05

i wouldn't

6:08

want to have to choose between

6:13

doing the work that idea where i do it

6:15

ends of so caring

6:17

for myself by not exposing myself

6:20

term trauma

6:25

now i hadn't thought about

6:27

that i was thinking it was about sort of

6:29

privacy or something and

6:32

for you it's the physical space has

6:35

so much

6:36

heaviness

6:38

yeah

6:39

i i am i

6:42

just wanna be able to sort of i'm

6:47

picture how what

6:51

happened after you were leaving the hospital

6:54

i also aware that i'm even

6:56

like asking his sake ah

7:01

it's really uncomfortable for me i'm

7:03

just like the because there's something

7:05

about that the the horror of

7:08

a sap last am so

7:12

panasonic

7:12

knowledge that i'm

7:17

more you by yourself at the hospital

7:19

with the anti know

7:23

i'm after

7:25

we had someone to watch our older

7:27

son my husband team and

7:29

then my sister and her husband and

7:32

so

7:34

they were for a bus fare

7:40

and how long to stay away from work

7:46

i went back in april

7:48

so

7:48

i was asked for nine months

7:52

when you when you think about

7:54

that does nine months you know that's

7:56

a good contained period

7:59

now that you can back on am

8:03

does it

8:04

does it feel like it unfolded in

8:06

a way where there was a car

8:09

where they were distinct seasons

8:11

does it feel like oh

8:13

but what were those nine months

8:16

like how

8:18

did you do

8:20

sometimes they say

8:22

that exact question was ah

8:27

you know and i say this

8:30

sort

8:30

of really knowledge aim that it

8:37

was real privilege to be able to

8:39

take nine months off work

8:42

and

8:45

the first month was

8:51

mostly

8:53

in a huge he

8:57

was planning a mole seems

9:04

out about such things go to gather the

9:06

other

9:08

well when you wake up at three in

9:10

the morning every day beacon

9:14

your body the not let use the heap

9:16

than than

9:19

you do a bunch of googling of things

9:21

you'd never see the solar cars and

9:24

creating google docs and

9:27

yeah but then there's still no

9:32

eighteen hours of a week time

9:35

where you have no idea how you'd

9:37

of the day was than

9:40

you know i have a type a doctor

9:43

personality and i feel like there was a

9:45

phase where i was trying to get an a in greece

9:47

says like

9:49

consuming every

9:51

greece book every child loss

9:53

podcast i could find didn't

9:56

like reading

9:59

a hearing other stories

10:01

trying to like you know find

10:03

one sentence that resonated

10:05

or could explain what i was

10:07

going through because it was so unlike

10:10

any feeling i had

10:12

ever experience

10:13

and

10:16

when you see get an a in greece

10:18

what was it like

10:20

to figure out how to deter arms around

10:22

it and get

10:24

it like understand it intellectually

10:27

like what was i think

10:28

so

10:29

and almost as if like i had

10:31

control to like about

10:33

really love devoted myself the

10:35

learning about at all

10:38

i would feel better after x amount

10:40

of can take even seen

10:42

that out of thing so ridiculous

10:45

there is a feverish snus with

10:47

which i was pursuing it that felt like

10:50

oh i think i thought

10:52

that somehow and then that

10:54

was unsure about of have no

10:57

googling and three in the morning

11:00

oh like

11:02

how do i find a very small urban

11:05

masked you

11:06

know

11:07

what songs

11:09

are appropriate for

11:14

a funeral for

11:16

a sixteen month old to

11:19

google know the answer to that we

11:23

ended up ah i

11:26

didn't find it online

11:28

but we ended up using the

11:30

song called them linger that i

11:32

think it's an old like girl scout

11:34

camp i know the size sing

11:36

it to my kids oh wow

11:39

i'm a purpose marijuana

11:42

leader know

11:44

that is no longer

11:47

yeah

11:48

oh and that's beautiful did

11:52

you consider not sending

11:54

a gallery

12:03

yes and no

12:06

really early on my grief

12:08

therapists said something like

12:10

your

12:12

first half his

12:15

to fully acknowledge that benji

12:17

is gone

12:24

and so i think there's a certain way in which

12:26

may be i knew that having

12:29

a memorial being with the

12:32

people that knew him

12:37

and

12:55

in a barney eases

12:57

and to live without injury and

12:59

interest the strange social space

13:01

of deep

13:01

greece when every encounter

13:04

and moment of small talk feals risky

13:06

and destroying it i really felt

13:09

like an alien like dragons it

13:11

from another planet and i was suddenly like

13:14

put in this world and like no one

13:18

of my language lake

13:20

understood flakes why

13:23

looks that way

13:34

there's another part as you might enjoy it's called

13:36

am i normal from the ted audio

13:38

collective it's back with a new mini

13:41

series all about the stories

13:43

behind the statistics what

13:45

does adulthood mean in a place where more than three

13:47

quarters of people between ages eighteen

13:49

and thirty five live with their parents

13:52

what defines joy when you live in one of the top

13:54

ranked countries for happiness hear

13:56

from the people that make up every interesting

13:58

data plan listen to and i normal

13:59

wherever you get your podcasts

14:03

this is death sex and money from w

14:05

n y c i'm in a sale after

14:08

her son sudden death doctor

14:11

bonnie chan felt like she'd miss

14:13

something fundamental about greece

14:15

and death despite being a doctor

14:17

specializing in end of life care of

14:20

something she wrote about in the same and cisco chronicle

14:23

the thing about grief that i know now

14:26

it is so lonely she wrote

14:29

i see you beautiful grieving

14:31

patient and i hope to sit

14:33

with you again and this time i name

14:35

myself as your companion

14:37

bonnie wrote that more than six

14:40

months after been death and

14:42

the first days and weeks after he was

14:44

gone work

14:45

is not something she thought

14:47

a lot about so

14:49

i'd say

14:51

in that period we were just

14:54

walk every day for miles

14:57

like we live right near a

14:59

bunch of redwood forests

15:01

and ethically

15:03

drop our older son off at school we would

15:05

just go into the forest than

15:09

just walk and walk and sometimes

15:11

talk but mostly just walk

15:14

in feel small and find

15:17

comfort in feeling small

15:20

and how how did the walks

15:22

in the redwoods start had a to

15:24

and your

15:25

husband comes to come

15:27

to that routine

15:30

i think

15:33

we didn't know what else to do like

15:35

we couldn't stay in

15:37

our house all day and

15:39

we couldn't bear to see people

15:42

and so it was like this where

15:45

can we go where

15:48

no one else is this to

15:51

talk to n

15:54

p r and

15:56

the over lucky their clothes there's tons

15:58

of trails

16:00

he said it made us feel small

16:03

a can you tell me more about that like

16:05

why was that comforting when

16:08

you like broken open

16:10

in that way like feeling things you've

16:12

never felt grief feel

16:14

so singular you

16:16

know and

16:16

you feel so alone

16:20

and

16:22

i think that nature part is that when

16:24

you look up at these like giant tree

16:27

and you're like oh and tiny

16:29

it somehow like puts you in your

16:31

place

16:31

a little bit ah

16:33

you tree have lived

16:36

here for a lot longer than i've been

16:38

around and will

16:41

live long after i die and

16:45

remembering that you are one

16:47

of many who have walked

16:49

this road feel

16:51

comforting

16:54

yeah

16:57

i'm this is kind of of a broad question

17:00

and and serious tell you wouldn't answer

17:02

it today i'm when

17:05

you think about

17:06

how living

17:08

in greece

17:10

changed your marriage

17:12

i'm would

17:14

have you noticed about

17:15

the way you that with greece and the way or hospice

17:21

my god we are by

17:23

far from for than we've ever been

17:26

it is the most terrible uniting

17:29

experience of my life

17:34

and you

17:36

know like it i can't

17:38

imagine

17:40

getting through this with

17:42

that

17:44

rich also walking

17:47

it to

17:49

bonnie's

17:49

husband rich took two and a

17:51

half

17:52

months off work before going back

17:54

to

17:54

his job as a lawyer part time

17:56

the first seven months on he took away

17:58

from work for covered by the queen's then

18:01

two more months were partially pay three state

18:03

disability when

18:05

bonnie felt ready to go back to seeing

18:07

patients she started slowly

18:11

either really lucky that i was able to go

18:13

back to starting a couple half days a week

18:15

so that i couldn't really like can use it as

18:17

a test

18:21

i think with a lot of people

18:22

when when they resume

18:25

working

18:26

responsibilities outside the home

18:28

after decrease i think of

18:30

it as kind of in

18:33

have been able to choose to

18:36

focus am and maybe even

18:38

invite and distractions from your own internal

18:40

monologue about grief and loss

18:43

arm and i'm struck that with your

18:45

work you are going towards

18:48

grief and loss

18:50

with your patience i'm in

18:52

a way that when you're with them and talking

18:54

about their health like you can't look away

18:56

from it i'm

18:58

it that was that comforting

19:01

or was it

19:02

overwhelming to think about having to

19:04

look

19:04

at and of life

19:06

and death and

19:13

i mean that was the balance re like it felt

19:15

like it could go either way like i

19:18

certainly was really worried that

19:21

the know having

19:22

to talk about death

19:24

that in grief would bring

19:27

stuff up for me that wouldn't be appropriate

19:30

isn't that setting where i was the doctor

19:33

and not the case in san

19:35

there was something about

19:39

being

19:39

with my patience again

19:42

other people who are grieving that

19:44

like the idea

19:47

of that felt

19:47

like so welcoming place

19:51

oh be with

19:53

people who understand

19:55

me even though they don't know they do

20:00

a man like you know the

20:02

other piece that's probably obvious is

20:04

fake

20:06

i'm working with a group of people

20:08

who are highly trained and

20:10

skilled at being with people

20:12

in greece

20:13

and so

20:17

my colleagues have just been

20:20

more than i could ask for in terms

20:22

of a safe landing spot for

20:24

how i'm doing on any given day

20:27

and ban like

20:29

we generally will have

20:31

a d brief after a family

20:33

meeting in you know one

20:35

thing i worried about would be that lake

20:38

i meet with a piece and then i'd

20:41

really be connecting with them but i wouldn't

20:43

feel like it's appropriate to disclose what

20:46

what i what

20:47

i had been through so

20:49

how would i express empathy

20:53

without

20:54

making it about me and

20:56

i found that it

20:59

was actually pretty easy for me to

21:01

say things like

21:04

you know in my experience of tragedy

21:06

or

21:08

i thought a lot about

21:10

loss for the bigger questions

21:13

and and then say whatever i want to say

21:16

at an obviously the patient won't know what i'm talking

21:18

about because it's so bleak

21:21

but my teammate was with me

21:23

or you will and then in

21:25

our db time afterwards make

21:28

their

21:28

not shy about saying like a bonnie

21:30

do you wanna talk about that moment like

21:33

what was that like for you what

21:36

did

21:36

it bring up and you

21:38

know and then i can choose to save

21:41

i want to talk about it or not and when i do

21:43

like they're just

21:46

able to the doctor

21:48

me you know

21:52

have you ever told a patient specifically what

21:54

happened and your family you

21:58

know

22:00

i've never told someone

22:02

bet

22:04

i had one piece on

22:06

that new mean that we knew each

22:08

other before i took

22:10

my leave

22:11

and

22:13

we had a follow visit

22:15

a couple months ago and

22:19

i felt like we had a pretty good

22:21

relationship and so i was an

22:25

assertive debating whether i'd say anything

22:28

because i've been gone for nine months

22:31

and on

22:35

the first thing he said when he saw me was

22:38

oh doctor ten i read

22:39

your article in the chronicle

22:42

and i had this like wave

22:44

of relief because the new you

22:46

know i didn't have to make a choice like

22:49

you know we did everything we needed to do and

22:51

then like it really lead us into

22:53

a whole

22:54

other chain of conversation

22:56

that was more

22:58

existential and nature

23:00

are talking about life and death than

23:03

meaning ah i'm

23:06

and i

23:09

was just like feeling very moved

23:11

by the freedom it gave me

23:14

on to have

23:16

that conversation and then

23:20

at the end of the visit he looked at

23:22

me and said

23:25

i love you doctor ten

23:28

oh

23:31

and i said

23:33

i love you too and

23:38

it was just this like your

23:41

are

23:42

powerful moments of

23:45

just like seeing

23:46

and being seen

23:48

that trend setting they think

23:51

lakes what we'd expect

23:53

adding a new direction like

23:55

this and

23:57

so on oh

24:00

no that's really

24:02

sat with me

24:05

has so beautiful

24:07

how old a man flush him

24:11

in his sixties

24:18

take it

24:19

to say something so

24:21

i'm

24:23

seeing

24:25

you

24:26

without

24:28

making you belabor your

24:30

loss

24:32

like a see how the beautiful

24:34

and i'm and with a risk for him to say and

24:36

in that way in a

24:38

doctor's appointments adding

24:40

he no such as

24:43

of they say could have been really awful but

24:47

i think we were completely

24:50

attuned you know it felt just

24:52

great to me and it felt just straight to

24:54

me to respond in kind

24:56

didn't

25:02

it's now been over a year since

25:04

then she's death and for bonnie sam

25:07

lean may geller routines

25:09

have started to resume

25:11

my older son back in school

25:13

like you start to feel all the gel

25:15

goal of like long

25:18

parenthood young or

25:20

like working mom was ah

25:24

and like who's doing pickup truck

25:26

bombs taekwondo you know pathetic

25:28

and hundred and like going

25:31

into the office today or not and and

25:34

there's there's a part of me that find

25:36

that very comforting rate is like a reminder

25:38

of like of rhythms of old

25:40

life when like things were kind of normal

25:43

and then

25:44

there's also a part of me that's like always like

25:47

oh wait no net

25:49

that's not your life like you

25:52

have

25:54

energy

25:57

to talk to them see

26:01

not really

26:04

i think i'm just turning a corner

26:08

where i'm

26:10

trying to figure out my relationship

26:12

to him now

26:17

like for the first many months like

26:20

seeing

26:20

his picture or watching

26:23

a video which is be so a

26:25

block it is that

26:27

i couldn't i couldn't do it

26:29

and so

26:31

i think

26:33

now that the edge

26:36

of it all is off that least a little

26:38

bowl and like just

26:41

starting to figure out what

26:43

it looks like for

26:45

me to like live

26:47

with him and his and

26:49

thin and

26:50

co yeah

26:53

we don't have that

26:56

relationship yet

27:06

not

27:06

bonnie chan is a palliative

27:08

care doctor living in oakland california

27:11

for siemenses go chronicle essay was titles

27:14

as a doctor i thought i was familiar

27:16

with death until it came to nice

27:19

as a link to

27:20

it and are shown

27:21

that sex and

27:23

money is a listener supported production

27:26

of w and my see studios in new york's

27:28

this episode was produced by zoe as

27:30

he lay and liliana maria percy release

27:33

the rest of our team is the first sir thomas

27:36

and andrew done are in turn

27:38

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