We know that the people who are most passionate about raising money to find treatments and a cure for Duchenne Muscular Dystrophy are those who live with it every day. That's why we at Duchenne UK want to help and support you - the friends a

10. Repurposing Drugs for DMD

Sep 2nd, 2019 12m 4s

Repurposing is an exciting approach to drug development; it involves looking at existing medicines, and testing them to see if they could be effective in treating Duchenne Muscular Dystrophy. Our host Clare Runacres speaks to Emily Crossley,

9. Growing Up With DMD - Saul Catlin

Jul 31st, 2019 14m 21s

Our host Clare Runacres speaks to Saul Catlin about growing up with DMD. Saul is an 18 year old man living with DMD. He is studying games design at university. If you have any questions or would like to get in touch please email support@duche

8. The DMD Hub - Alex Johnson, Emily Crossley, Prof Volker Straub and Emma Helsop

Jul 8th, 2019 12m 55s

Our host Clare Runacres speaks about the DMD Hub with Prof Volker Straub - Professor of Medicine and Professor of Neuromuscular Genetics at Newcastle University, Emma Heslop - DMD Hub manager and Duchenne UK's co-founders Alex Johnson and Emily

7. What Is Duchenne - Dr David Bull

Jun 24th, 2019 26m 8s

Our host Clare Runacres speaks with Duchenne UK's Director of Research, Dr David Bull, about Duchenne muscular dystrophy. If you have any questions please email [email protected].

6. SPECIAL EPISODE - Testosterone as a treatment for DMD with Prof Volker Straub

Apr 1st, 2019 12m 43s

In this podcast we speak with Prof Volker Straub about Testosterone, which is sometimes given to patients with Duchenne Muscular Dystrophy (DMD) who take steroids.Steroids are part of the recognised standard of care in treating Duchenne Musc

5. Decoding Duchenne - Clinical trials with Dr David Bull

Jan 7th, 2019 17m 8s

In this episode Dr David Bull gives a breakdown about how clinical trials work. This was recorded at our Patient Information Day in September 2018. We host free patient information days twice a year. Please join us at our next information day o

4. Decoding Duchenne - Advice From Parents

Dec 21st, 2018 25m 56s

In this weeks episode of Duchenne UK's DECODING DUCHENNE podcast series, our host Clare Runacres interviews Lisa Kuhwald and Alex Johnson, whose son's both have Duchenne, about the time of diagnosis. Alex Johnson is one of the co-founders of Du

3. Decoding Duchenne - Project Hercules

Dec 15th, 2018 24m 29s

In this weeks episode of Duchenne UK's DECODING DUCHENNE podcast series, our host Clare Runacres speaks to Emily Crossley, Fleur Chandler and Josie Godfrey about Project HERCULES.Project HERCULES is a collaborative global project set up by

2. Decoding Duchenne - An interview with Andy Farrell

Dec 8th, 2018 8m 12s

This is a special episode featuring Andy Farrell OBE, recorded at Duchenne UK's rugby dinner in September. Andy talks with our host Clare Runacres about his involvement with the charity.

1. Decoding Duchenne - An Introduction To Duchenne UK

Nov 26th, 2018 16m 23s

In the first of our podcast series, our host Clare Runacres talks to Emily Crossley and Alex Johnson about why they co-founded the charity - Duchenne UK. They discuss their sons DMD diagnosis and the work the charity is doing to find treatments

Rate