Embezzlement in the nonprofit sector is more common than you think. Recently, the Down syndrome association community is abuzz with the news that another organization has been affected and legal action is taking place. The question becomes - ho

Founder's Syndrome

Sep 4th, 2018 34m 48s

We are talking Founder's Syndrome with guests Mandy Pearce and Marie Palacios of Funding For Good. Defined as "a disease in nonprofits that has it genesis in the inspiration and personality - or personalities that created the organization". It

What's In A Name?

Jun 28th, 2018 8m 26s

Ever wondered if your DSA should change its name? And if it did, what would that entail? Shanon McCormick sat down with Deanna Tharpe at DSAIA 2018 to discuss the new Down Syndrome Association of Connecticut name.

Tired of Your Tired Old Annual Report?

May 30th, 2018 14m 33s

Mazarine Treyz of Wild Woman Fundraising explains why a well-orchestrated annual report IS important for your organization, its donors, its constituents, and the community. More than just a listing of donors and a few financial numbers, it can

Patti Saylor: Ethan's Story Continues 5 Years Later

May 2nd, 2018 14m 17s

After her moving keynote address at the 2018 DSAIA Leadership Conference, Patti Saylor sits down with DSAIA to discuss what has happened in the 5 years since her son Ethan's death.

Do You Know The History of DSAIA?

Mar 9th, 2018 11m 46s

Two of the "founding" board members of DSAIA (and steering committee members) talk to Deanna Tharpe of DSAIA about the past and future of the trade association. Mac Macsovits (Executive Director of Rocky Mountain Down Syndrome Association) and

So, It's Not About Who You Know But How Well You Know Them!

Feb 20th, 2018 19m 19s

Sandy Rees, CEO of Get Fully Funded, joins DSAIA Live to talk about how relationships are the key to successful fundraising. Sandy discusses how to build your donor base, donor-focused communications, and the importance of building relationship

Grassroots Advocacy: Alive and Well and Making a Real Impact

Dec 11th, 2017 33m 39s

Heather Sachs, Policy and Advocacy Director at the National Down Syndrome Congress, joins DSAIA to discuss grassroots advocacy. The chat goes in-depth on the GOP tax bill and the effects it will have on persons with disabilities. Also in the di

Being Intentional : From Brand Strategy to Work Culture

Nov 13th, 2017 24m 51s

DSAIA visits with Jay Wilkinson, founder and CEO of Firespring, to discuss work culture, the overhead myth, and new and exciting ways to work smarter and not harder.

It Fits! How Downs Designs Has Changed to Meet the Needs of Persons with Disabilities

Oct 2nd, 2017 18m 49s

Karen Bowersox of Downs Designs Dreams and William Herron of NBZ Jeans sit down with DSAIA to talk about the changes made in the last year. Bringing a customized clothing line to the Down syndrome community, Karen is well-known and celebrated i

Event Fundraising Tips

Sep 19th, 2017 19m 27s

Katie Coughlin, Special Event Coordinator from LuMind Research Down Syndrome Foundation, gives us a few pieces of advice when working on your next fundraising event (just in time for walk season) and discusses the new exciting things at LuMind

Latest Research on Prevalence of Down Syndrome in the U.S.

Sep 5th, 2017 16m 22s

DSAIA sits down with Dr. Brian Skotko to discuss the findings of a 4-year research project on Down syndrome in the United States. The results are quite extraordinary.

Prenatal Outreach Resources (2017)

Aug 14th, 2017 8m 36s

Stephanie Meredith (National Center for Prenatal and Postnatal Diagnosis at the University of Kentucky) and Heather Bradley (Down Syndrome Diagnosis Network) talk about prenatal outreach resources available to our community. Courtney Dunevant t

All About Accreditation

Jun 5th, 2017 27m 9s

Lisa French of Down Syndrome of Louisville and Lisa Wells of Down Syndrome Indiana sit down with Deanna Tharpe to discuss why they chose to pursue accreditation through DSAIA and the benefits of success.

Walk Season Will Be Here Before You Know It: DSAIA Live with ds-connex

May 22nd, 2017 9m 13s

Dana Wells with ds-connex sits down with Courtney Dunevant at DSAIA in Cincinnati. They talk about how it's never too early to start planning your walk and how online promotion can spur on fundraising as early as 4 months prior to your walk.

DSAIA Live with 4th Wall Backstage

May 8th, 2017 23m 45s

What do you get when you combine special education with theater? Just the right mix to create something incredible for the disability community that spreads across Michigan. And now, DSAIA is bringing it to you! It all started with the Down S

DSAIA Live! with the 2018 Conference Chair

Apr 18th, 2017 6m 28s

Another interesting interview from the 2017 DSAIA Conference in Cincinnati features the new Conference Chair, Ray Jancso before he took on the new position. Ray discusses his history attending/volunteering at the conference over the years as we

We're Discussing Social Media: Trends and Success Stories!

Apr 11th, 2017 42m 14s

Join Shon Christy and Paige Purtz of Focal Point Social Media as they talk about the company's background, trends in social media and how they helped DSAIA increase its reach for its annual conference.

Teaching Reading with Natalie Hale

Apr 5th, 2017 26m 27s

DSAIA Live sat down with Natalie Hale, founder of Special Reads for Special Needs and award-winning author, to talk about her passion for teaching reading to individuals with Down syndrome. Plus, we also get information on a new partnership wit

Ryan Niemiec Discusses Character Relating to Leadership

Mar 28th, 2017 11m 16s

DSAIA Director of Membership & Marketing, Courtney Dunevant, sat down with Ryan Niemiec of the VIA Institute on Character during the DSAIA 2017 Conference. You'll find this topic interesting as it relates to DSA leaders.Ryan M. Niemiec, Psy.D

David DeSanctis Sits Down with Rob Snow to "Talk Shop"

Mar 21st, 2017 15m 26s

Celebrate World Down Syndrome Day with DSAIA as we interview actor David DeSanctis. Recorded at the recent DSAIA 2017 Conference in Cincinnati where David wowed the Opening Session crowd with his upbeat presentation, Rob Snow sits down with Dav

Rob Snow Talks Project Spotlight at DSAIA 2017

Mar 16th, 2017 7m 33s

Rob Snow of Stand Up for Downs joins Deanna Tharpe of DSAIA for an early morning chat about SUDS' new endeavor, Project Spotlight. Project Spotlight is all about giving teens/adults with Down syndrome the appropriate tools and guidance to excel

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