My husband and I started a non profit foundation to help special need families and this is one of the ways we want to help. We want to share our experiences and let you into our world. We have a special needs daughter with Pitt Hopkins Syndrome, which is a deletion of the 18th chromosome, a rare syndrome with only about 500 documented cases in the world. We want to share with you how we handle day to day life, how we are inspired by her, and how we want to crawl in to a ball and cry some days, we are all human and need help from time to time and my husband and I are now in a position were we can & want to help as many people as possible!