Managed Care Organizations - in some states, they're already in effect; in others, they are coming down the pipe. We'll get into some of the details about how Managed Care Organizations, or MCOs, work and what they can mean for our families. Th

Medicaid, Waivers, and Legal Action: Let’s Break it Down - Part 2

Jan 29th, 2018 41m 1s

We continue our conversation on the Waivers and begin to touch on Managed Care. Carrie Chapman, who is with Legal Council for Health Justice in Chicago, and is one of 3 attorneys litigating the Waiver-based cases, joins us and describes what’s

Medicaid, Waivers, and Legal Action: Let’s Break it Down - Part 1

Jan 23rd, 2018 44m 40s

Many families are able to utilize a Medicaid Waiver for their child/young adult; this helps make the necessary care and medical supplies available to our families. However, as many of us know, having this available versus receiving it are two e

Our *Extended* Family - A Holiday Delight

Dec 21st, 2017 34m 16s

The holiday season is a time of family, friends, and food (okay, so the last one is a personal add-in). But for our family, it can be a time of added stress, questions and comments to which you’ve responded repeatedly, and sometimes a sense of

Managing Our Lives & Household

Dec 21st, 2017 14m 38s

David introduces himself and the pod; then we dive right in. Let’s face it - life is hectic. For many of us, having medically fragile family members can make things even more hectic. From having additional, non-family, people in our home to sto

Rate