Listen to our interview with these two amazing parents. Elizabeth and Jay both Fragile X parents of their son Zach whom has Fragile X. Elizabeth is the author of Fragile X Fragile Hope .Find her book here @ https://www.amazon.com/Fragile-Hope-

Interview: Kirsten Fowler New Book Release: Family, Faith & Fragile X

Jul 28th, 2022 42m 45s

Join us as I interview Kirsten Fowler mom of four children, and author of the book Family, Faith & Fragile X.Kirsten tells us all about what is like to raise three children with Fragile X Syndrome. Why she decided to write her book and share

7 Distance Learning or Homeschooling

Sep 9th, 2020 25m 1s

We decided to ditch Distance learning and go with Homeschooling our kids instead. Listen to how our decision became about.

6 Dr. Randi Hagerman Special Guest Answering Fragile X Q/A

Aug 3rd, 2020 27m 23s

Dr. Hagerman is medical director of the UC Davis MIND Institute and director of the Fragile X Research and Treatment Center. She has dedicated her life to Fragile X Research with 40 years of working in the Fragile X field. Dr. Ha

5 Communication: AAC device for our nonverbal child.

Jun 10th, 2020 29m 55s

Our Son Emmett turned 5 years old in March and he is still consider non-verbal. Emmett probably has less than 5 words in his verbal vocabulary. We have tried several different forms of communication for Emmett. We found that using a AAC device

4 Dealing with COVID19: Adapting to the New Crazy Normal.

May 26th, 2020 25m 35s

Fragile X Dad & Mom Podcast have a very special guest our Fragile X daughter. On this episode 4 we will talk about how we are dealing COVID 19 “Pandemic” and how we are dealing with all the n

3 Sharing your child’s diagnosis

May 25th, 2020 34m 22s

Welcome to Episode 3 with Fragile X Dad and Mom Podcast. Sharing your Child's diagnosis with friends and family and building your support system.After you receive your child's diagnosis you feel so alone, and lost. Sharing your child's diagn

2 Expect the Unexpected

May 20th, 2020 35m 33s

When you are expecting a child you have all these expectations before your child is even born. You can see your unborn child going to college, moving out to their own place, getting married, and even having a family one day. All those expecta

Trailer

1 Intro Welcome to our special needs journey with Fragile X Dad & Mom Podcast!

May 18th, 2020 39m 25s

Hi there! We figure it out! How to podcast? Yeay! On our Intro Episode 1 you will get to know a little about ourselves our family, and what brought us to start this podcast. You will also hear about "THE DIAGNOSIS" of both of our kids. Juan