Person-included research, co-production, tragedy, grief, health equity, and relationships in life and research. Chat with Amy Price of Stanford and BMJ

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Episode NotesPrefer to read, experience impaired hearing or deafness?Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript hereContents with Time-Stamped Headingsto listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)

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CreditsMusic by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger

Sponsored by Abridge

Thanks to these fine people who inspired me for this episode:

Brian Alper, Nakela Cook, Christine Goertz, Alexis Snyder, Kara Ayers, Sharon Levine, Jean Slutsky, Joe Selby, Connie Hwang, Tanisha Carino, James HarrisonLinksStanford University AIM Lab, Anesthesia, Informatics, and Media Lab

British Medical Journal

Clinical point of care (POC)

DynaMed

Patient-Centered Research Outcomes InstituteRelated podcasts and blogs

https://www.health-hats.com/minister-to-community-spirit/

https://www.health-hats.com/patient-family-advisors-back-2-basics/

https://www.health-hats.com/build-it-and-they-will-come/About the ShowWelcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this.

To subscribe go to https://www.health-hats.com/Creative Commons LicensingThe material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. [email protected]. The material on this site created by others is theirs and use follows their guidelines.The ShowProemResearch follows life. Life comes before research. My diagnosis of Multiple Sclerosis preceded my need for research. Let's talk about comparative effectiveness research (CER). CER is simply research that tells us that treatment A is more likely to be helpful than treatment B for a particular group of people in a particular set of circumstances. Before researchers conduct clinical effectiveness research, people have had symptoms, tried to manage those symptoms independently, got diagnosed, and then tried different therapies prescribed by their doctor. Some doctors tried treatment A, some treatment B, and even some treatment C. Researchers, clinicians or patients wanted to know if A was better than B and found funding to do comparative effectiveness research.  Even if years of research occur and get published before I get diagnosed, my life happens before research becomes relevant; relevant in the context of my life, my circumstances, my conditions, my genetics. This perspective is the cornerstone of my advocacy for person-centered research. Introducing Amy PriceI’m delighted to introduce my guest, Amy Price, a senior research scientist at Stanford University in California with the AIM Lab the Anesthesia, Informatics, and Media Lab.