Patient advocates from the Healthe Voices 2022 conference describe how they recognize success in their advocacy.. Snapshots of diverse lived experiences.

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Episode NotesPrefer to read, experience impaired hearing or deafness?Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript hereContents with Time-Stamped Headingsto listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)ProemPodcast intro 01:51Estella Mata 02:26Jason Jepson 02:43Sharnae Smith 03:08Jim Sneeden 03:31Christine Von Raesfeld 04:32Jason Crum 05:02Brooke Abbott 05:27Bethany Yeiser 05:41Ken Taylor 06:11Cindy Chmielewski 07:17A word from our sponsor, Abridge 08:51Jesus Guillen 09:34Christopher Quimbar 10:22Stephanie Chuang 10:57Michele Nadeem-Baker 11:55Jenna Green 13:02Jasmin Pierre 14:18Sam Seavey 14:39Rachel Star Withers  15:25Reflection 16:19Podcast Outro 17:35

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CreditsIntro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger

Web and Social Media Coach Kayla Nelson @lifeoflesion

The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee.

Sponsored by AbridgeInspired by and grateful to Estela Mata, Sharnae 'Nae" Smith, Jim Snedden, Christine Von Raesfeld, Hetlena Johnson, Jason Crum, Jason Jepson, Brooke Abbott, Phyllisa DeRoze, Bethany Yaiser, Ken Taylor, Cindy Chmielewski, Jesus Guillen, Christopher Quibar, Stephanie Chuang, Michelle, Nadine Baker, Jenna Greene, Kara Beck, Jasmin Pierre, Sue Rericha, Alexis Newman, Ryan Williams, Sam Seavey, Andrew Shorr, Howard Chang, Rachel Star Withers

LinksRaw, unedited transcript of all responses to question #2

Healthe Voices website

Facebook

Phyllisa DeRoze website re: Diabetes Diagnosed Not Defeated

Bethany Yeiser CURESZ (Comprehensive Understanding via Research and Education in Schizophrenia). Mind Estranged: My Journey from Schizophrenia and Homelessness to Recovery Paperback – July 10, 2014

Ken and Barby's International Pain Foundation

Stephanie Chiang The Patient's Story

@thejennagreen Instagram

Kara Beck @karabear_rny Instagram

Books on Alzheimer's by Ryan Williams

Sam Seavy's The Blind Life YouTube Channel

Andrew Schorr Patient Power

YouTube Video of this episode

Related podcastshttps://health-hats.com/pod180/

https://health-hats.com/but-you-can-total-self-care-at-13/About the ShowWelcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this.

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