Its Not All About ME
Its Not All About MEEpisodes
Episodes of Its Not All About ME
Mark All
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It's not as bad as I thought it would be! We're back after a little break with a walk and talk ep. We chat the stress, guilt and frustration of trying to maintain a schedule and keep appointments when you have a chronic illness. How do you adap
Episode 29 The loneliness of the chronic illness experienceAs the world begins to explore getting back out into the world after months of isolation, we take a moment to think about those who will, once again, be left behind and missing. On a
Episode 28 – One Family, Four kids with ME feat Sean and Niamh HenneberrySome time ago, 14 year old Sean got in touch asking if he could come on the show and share his experience of having ME (Myalgic Encephalomyelitis). As we were getting o
Episode 27 – Older, Wiser, KinderWe are back from our “baby break” and ready to go. After a brief chat about life with ME and a new baby, we chat about our strong response and reaction to the recent tweet from Brianne Benness (@bennessb) that
Episode 26 and then there were threeThis week we share our experience of the first ten days of first-time parenthood and explore our hopes and fears as a parent with ME\CFS. Please do get in touch with your experience, tips and support. All w
Episode 25 – feat. J E BarnardThis week we are joined by writer and very-much all-round great person J.E. (Jayne) Barnard. Jayne shares her long term experience of ME and chats about how it affected the whole family and also how she realized
Episode 24 – feat. Ros Lemarchand The French FemmeThis week we are joined by Rosalynde Lemarchand aka The French Femme. Ros shares her experience of ME as well as several of her poems that were inspired by the illness. Find her and her crea
Episode 23 – ME\CFS You Can Get Better – a walkthroughThis week we return from a month off and share our experience of rigorously applying the guidance of Dr. David Smith’s ME\CFS You Can Get Better (http://www.me-cfs-treatment.com/wp-content
Episode 22 – Chronic Illness and weight gainThis week we explore the deeply personal subject of weight gain when suffering from an illness such as ME\CFS. We chat about the frustration of losing the ability to exercise and look at how our rel
Episode 21 – feat Antoinette and Anne, ME Support Northern IrelandThis week we share a recent chat with Antoinette Christie (Founder and mother to a son with ME) and Anne Smyth (benefit support and person with ME) from ME Support Northern Ir
Episode 20 = How Are You Doing? Part TwoThis week having had time to reflect, consider and incorporate the experiences of fellow folk with ME, we return to the complexities of answering the simple question, How you doing? On the way we discus
Episode 19 – feat. KT KingThis week we are joined by the fabulous KT King, author of Little Eden. We chat about the hard realities of chronic illness, the importance of good friends, how she represents MECFS in her writing and why everyone sh
Episode 18 – How are you doing?This week we consider the difficulties in trying to achieve any kind of consistency with MECFS then jump into an exploration of how to answer the surprisingly complex question, ”Hey, how you doing?”. MUSIC – F
Episode 17 - The definition of insanity and hope. This week we react to the realization that we have given up on trying to recover and ponder what hope of change we should expect as we once again try to tackle the illness. MUSIC – Feeling s
Episode 16 – featuring John Peters. Hi all. This week we had our long-awaited chat with John Peters. In a honest and passionate exchange, John shares his long experience with myalgic encephalomyelitis. Among many other subjects we discuss the
Episode 15 – Doctors, diets and being the expert of your own illness. This week we chat about a recent trip to the doctor and consider how it feels to be the “expert” of your own illness. Also discussed is the loss of the company of books and
Episode 14 – featuring Rosa Devine. Back once again folks. Hope you are well. After a week off due to symptoms getting a tad severe we return to chat with Rosa Devine. Rosa set the MECFS corner of the Twitterverse alight a couple of weeks ago w
Episode 13 – This week we share experience of Couch to 5K training, celebrate the upcoming Millions Missing week-long event and chat about the painful first time having to use accessible seating at a concert. Brutal honest experience as always
Episode 12 – This week we are joined by Retha from the MECFS Foundation South Africa. Retha shares her experiences of living with MECFS including raising children while ill, scheduled resting, ME in South Africa and talks about the foundation s
Episode 11 - This week we mix gratitude with a raw and recent experience of the true powerlessness that this illness can bring.Contact us on the show at:@[email protected] not all about me podcast on Facebook (
Episode 10 – This week we are joined by the wonderful Jack Croxall. Jack shares his experience of MECFS and chats about, among other things, managing adrenaline, therapeutic video gaming, striking a balance between rest and physical pursuits an
Episode 9 - This week we reflect on the UK parliamentary debate on ME, big up Yoga Nidra and explore the dilemma of opportunities offered to us when we are ill. Share and subscribe then get in touch with your experience - t : 0allaboutmee
Episode 8 - This week we are joined by Jess Goyder (reemerging.co.uk)who shares her experience of living with ME. Jess can be reached at @JessGoyder. You can also check out a recent speaking appearance she made at https://www.youtube.com/watch?
Episode 7 -Featuring a chat with Maggie talking about living with someone living with MECFS. Not to be missed! We also chat about the upcoming uk parliamentary debate on mecfs, pacing and consider the two faces of ME. t : 0allaboutmeitsreal
INAAM ep 6 - Activity tracking and acceptance. This week we chat about how the first steps into pacing are going and explore the difficulty in accepting having an illness such as this. Subscribe, share and get in touch!t : 0allaboutmefb : It'
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