Hi #kNOwATAXIA Nation! Ever wonder what's impacting your ability to walk a straight line? Listen in to learn about the trouble maker most neurologists call 'the little brain'.

Exercising, What are you waiting for

Sep 6th, 2019 2m 55s

Exercise can be effective in the treatment and management of a number of chronic health conditions.iTunes: podcast/k...https://itunes.apple.com/us/SoundCloud https://soundcloud.com/user-536040137... Facebook https://www.facebook.com/ataxih

National Ataxia Foundation established in 1957

Sep 5th, 2019 2m 25s

NAF is a membership supported nonprofit organization established in 1957 to help persons with Ataxia and their families.#kNOwATAXIA #IAAD2019 National Ataxia Foundation Email your photo to [email protected]

Massachusetts General Hospital (MGH) Ataxia Unit

Sep 5th, 2019 2m 23s

The Massachusetts General Hospital (MGH) Ataxia Unit was the first and is now the most active such clinic in the US, providing comprehensive care to patients across the age spectrum who have disorders of cerebellum and related conditions.

3 Faces Of Ataxia

Sep 3rd, 2019 2m 29s

3 Faces of #Ataxia #kNOwATAXIA Are you Ataxia aware? send in your photo to [email protected]

Cameryn Cobb An inspirational young advocate for Ataxia

May 5th, 2019 8m 39s

I want to introduce you to Cameryn Cobb An inspirational young advocate for Ataxia. Listen in as Cameryn shares her story and what she is doing to make a difference. MINDlink Foundation Rhode Island Ataxia Support GroupNational Ataxia Foundati

Lauren Sormani An inspirational young advocate for Ataxia a Rare Disease

Apr 23rd, 2019 8m 17s

Hi #kNOwATAXIA Nation. On this #thoughtfultuesday I want to introduce you to Lauren Sormani. An inspirational young advocate for Ataxia. Listen in as Lauren shares her story and what she is doing to make a difference. iTunes https://itunes

Expanded analysis of their data from their first clinical trial of troriluzole in SCA patients.

Apr 14th, 2019 23m 24s

This Podcast from the annual NAF Meeting in Las Vegas, March, 2019 features Gil L’Italien, PhD, Head of GHEOR and Epidemiology and Melissa Wolfe Beiner, MD, Director of Research and Development and Ataxia Medical Lead, both from Biohaven Pharma

#26 Kyle Bryant: Shifting Into High Gear at #2019AAC

Apr 10th, 2019 24m 23s

Hi #kNOwATAXIA Nation! Happy #thoughtfultuesday. Today, I’m sharing a podcast I did with my good friend Kyle Bryant. I was able to get a few minutes with him in Las Vegas at the Annual Ataxia Conference. Listen in as we talk about Kyle’s new b

Joel Sutherland, the Development Director for the National Ataxia Foundation

Jan 23rd, 2019 10m 42s

Hi kNOwATAXIA Nation - In this podcast I introduce you to Joel Sutherland, the Development Director for the National Ataxia Foundation. Joel explains his role at the foundation and provides updates on several initiatives like the Walk N' Rol

Ataxian preps for the holidays

Jan 12th, 2019 11m

How an Ataxian preps for the holidays and finds the joy in the season.iTunes https://itunes.apple.com/us/podcast/k... SoundCloud https://soundcloud.com/user-536040137... Facebook https://www.facebook.com/ataxiadidyou... Website http://www

Joint Mission Bataan

Jan 12th, 2019 11m 53s

Bataan Memorial Death March. Ed and Mike have been battling #Ataxia and are now taking on another great challenge with the March. Right now is your opportunity to support them too! Be a part of the Joint Mission Bataan- an operation to raise aw

Dr. Schmahmann and Melissa Biener sit down with Did You Know to talk ATAXIA. Part 1

Sep 17th, 2018 14m 12s

PART 1 of 2Dr. Schmahmann and Melissa Biener sit down with Did You Know to talk ATAXIA. WE NEED YOU!! You play a pivotal role in Ataxia research! Without your input advances can not be made. Listen in as Mellisa Biener and Dr Schmahmann t

You signed up for the Sanford Cords registry yet?

Sep 14th, 2018 31m 4s

You signed up for the Sanford Cords registry yet? What are you waiting for ? Listen in to my conversation with Austin letchur from CORDs. Will answer some of the most common questions in signing up for the registry ... Take a listen Remember Na

Azorean Pride Team raises funds and awareness of SCA3( Machado-Joseph Disease)

Sep 12th, 2018 12m 32s

Thank You Nelia Aguiar and family Azorean Pride Team raises funds and awareness of SCA3( Machado-Joseph Disease) a hereditary type of Ataxia in people of Portuguese descent. Did You Know, Dana Mauro, was invited to speak at their fundraising ev

Kara Eichelraut - patient advocate for Reata Pharmaceutical

May 18th, 2018 10m 32s

Listen in as Kara Eichelraut explains to Dana Mauro about the value of Reata Pharmaceutical companies interacting with patients.iTunes https://itunes.apple.com/us/podcast/know-ataxia-ataxia/id1312495222?mtSoundCloudhttps://soundcloud.com

Cory Hannan explains the life of an Ataxian in Latin America with Dana Mauro

Apr 24th, 2018 31m 57s

Ataxia impacts people across the globe. Ever wonder what it would be like to have ataxia and live outside of the United States. Listen in as Cory Hannan explains the life of an Ataxian in Latin AmericaiTunes https://itunes.apple.com/us/podc

Up close and personal with @KyleaBryant

Apr 22nd, 2018 29m 29s

Dana Mauro Up close and personal with @KyleaBryant. Learn about what Kyle's been up to, the inspiration behind his newly released movie the Ataxian, his mission to raise awareness and his personal ataxia journey. @ataxiadidyouknowAbout the

Do you know what Schmahmann’s syndrome is?

Apr 16th, 2018 16m 57s

Do you know what Schmahmann’s syndrome is? It can affect someone with Ataxia. Listen in to learn more with Dana MauroiTunes https://itunes.apple.com/us/podcast/know-ataxia-ataxia/id1312495222?mtSoundCloudhttps://soundcloud.com/user-5360

Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia

Apr 12th, 2018 25m 3s

Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia in particular. He is known as the 'rare disease warrior' and, as a patient with a 'life-limiting' rare disease, he can convey the patient engagement message fr

Want to be involved in the Ataxian PROM?

Apr 11th, 2018 9m 26s

Want to be involved in the Ataxian PROM? Dr Schmahmann and Mary Donovan need your help and explain how to get involved.Thank you for your interest in participating in our Ataxia-Patient Reported Outcome Measure(PROM)!If you have any quest

Cindy DeMint support Group leader making a different

Apr 9th, 2018 13m 14s

#DidYouKnow Ataxia? Where to go to get reputable Ataxia information#StumbledontoAtaxia#Ataxia#IAAD2018#DYKiTunes https://itunes.apple.com/us/podcast/know-ataxia-ataxia/id1312495222?mtSoundCloudhttps://soundcloud.com/user-536040137-84

Joel Sutherland with DYK

Apr 8th, 2018 14m 23s

Joel Sutherland latest updates National Ataxia Foundation Live at #2018AAC#DidYouKnow Ataxia?Where to go to get reputable Ataxia information#StumbledontoAtaxia#Ataxia#IAAD2018#DYKiTunesitunes.apple.com/us/podcast/know-…/id1312495222

Megan Kaiser discovering latest research.

Apr 6th, 2018 10m 30s

Dana Mauro talks to Megan Kaiser about discovering latest research. Live at #2018AACPodcast Show Notes#DidYouKnow Ataxia? Where to go to get reputable Ataxia information#StumbledontoAtaxia#Ataxia#IAAD2018#DYKiTunes https://itunes.

Harry Orr about discovering the first Ataxia gene and his latest research. Live at #2018AAC

Apr 5th, 2018 8m 54s

Harry Orr about discovering the first Ataxia gene and his latest research. Live at #2018AACPodcast Show Notes#DidYouKnow Ataxia? Where to go to get reputable Ataxia information#StumbledontoAtaxia#Ataxia#IAAD2018#DYKiTunes https://