In this episode, we meet Ashley Fish, a first grade teacher, wife, and mother of two. Ashley's road to motherhood took some unexpected turns as her first, Barrett, came early and, after just a few days at home, the family was transported to Missoula to the pediatric ICU to monitor and address respitory challenges. He recovered well but Ashley was left with intense anxiety. During her second pregnancy, Ashley's learned, at her 20 week ultrasound of concerns regarding abnormal brain development in her daughter, Ainsley. Eventually, Ainsley was diagnosed with an extremely rare genetic disorder called Pyruvate Dehydrogenase Complex Deficiency (PDCD). Ashley shares what it's been like for her to surrender control, accept help from those around her in order to keep her and her family well - self-care matters here- and embrace and cherish every moment they have together. 

Show Notes:

These are the resources that have been helpful to the Fish family and Ashley highly recommends reaching out to them if you have a little one who needs special care.

The Jadyn Fred Foundation

Montana Hope Project

Angel Flight

Children's Flight of Hope

Ronald McDonald House

For statewide resources please visit the Linking Infants and Families to Supports at
https://hmhb-lifts.org/