Episode Transcript
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2:01
We want the kind of truth from people
2:03
who have the eyes to see, you know,
2:05
like they get it, they get the
2:07
joy, they get the absurdity, and
2:10
they get the kind of tenderness underneath
2:12
about what makes us all human. So
2:16
this episode is really special to
2:18
me because I've been really hoping
2:20
to meet this guy. Rob
2:23
Delaney is one of my very
2:25
favorite funny people. He's
2:27
a comedian and he's an actor
2:29
and writer. So he co-created, co-starred
2:32
this critically acclaimed Emmy
2:35
nominated BAFTA winning comedy
2:37
called Catastrophe. And
2:39
it's just basically perfect in every way. And if
2:42
you haven't seen it, you must and I apologize
2:44
that it's very spicy. But Rob
2:46
is also a gorgeous writer. He's the
2:48
kind of person that obviously
2:52
writes to think clearly. And
2:55
so his memoir, it's
2:57
called A Heart That Works. And
3:01
it's an unsparing account of the death
3:03
of his beautiful son, Henry. He
3:06
lives in London with his family.
3:08
And that's where I sat down with him. He
3:11
rode his bike there. He's very
3:14
tall. And if you want
3:16
to see video of me just losing
3:18
my mind, either laughing or crying, we've
3:20
got video clips of this
3:23
whole interview. If you
3:25
subscribe to my newsletter,
3:27
that's katebowler.com/newsletter. He's
3:30
the kind of person who doesn't pull punches. He
3:33
also doesn't say kind of the typical kosher
3:36
thing. His response
3:38
to pain is very guttural and
3:41
honest and frankly, incredibly funny.
3:45
And so you're going to hear that
3:47
in our surprisingly
3:49
intimate chat today. It's
3:52
a lot of dark humor. So prepare to
3:54
feel mildly
3:56
offended, but just know you're
3:59
my people. And the great
4:01
tragic comedy is one
4:03
we all understand. All
4:05
right, Rob Delaney, everyone.
4:08
Rob, I loved,
4:11
loved, loved your book. And I
4:13
think the thing that is so striking
4:16
about it right away is it
4:18
doesn't spare you anything. It's
4:21
intense and funny and wry
4:23
and throat punchy. And
4:27
it seems like you're already
4:30
practiced in unvarnished
4:32
truth telling. So I
4:34
wondered if before all of this happened, were
4:37
you like that? To
4:39
a degree, my boy
4:42
Henry died right before he
4:44
turned three. So
4:47
we knew him, you know, he wasn't a tiny little baby.
4:49
He was a person with thoughts,
4:51
feelings, opinions, tastes, you
4:54
know, idiosyncrasies. And
4:56
so when we knew he was
4:58
gonna die, and then when he did
5:00
die, we were just destroyed. And
5:07
I thought the best thing that I could do for people who
5:09
haven't experienced this is
5:12
not try to protect them from it, which
5:15
is a very powerful impulse. You wanna like
5:17
protect people from your crazy story sometimes or
5:19
like ease them into it. And
5:21
I thought I just had developed I
5:23
guess, enough of like storytelling instincts
5:26
from the other stuff that I've done. I was
5:28
like, you know what, maybe I shouldn't. And
5:31
maybe I shouldn't worry about anybody
5:34
else when I write this. But
5:37
I was conscious at the same time that if I
5:39
don't do that, it'll probably be the better book. And
5:42
so I just wanted it to
5:44
be a disaster. And
5:46
I wanted it to hurt. Because
5:48
if you read this book before something incredibly
5:51
terrible happened to you, you might be in
5:53
better shape than if you read something that
5:55
was like, Here are three
5:57
mantras that you can do. Just.
6:00
even in the dinner carb for your buck,
6:03
your seat belt or any of that stuff
6:05
because if he gave people for real the
6:07
make it like a hang how are you
6:09
know and then for people who had been
6:11
through it I for you to would be
6:13
like getting into it. You know the
6:15
A G M C B? You know at
6:18
sunset? So that was the goal
6:20
to give them something they recognize as as. yup,
6:22
that's it. This as. And then for
6:24
people who had been through it to be
6:26
like why did you do that to me
6:28
with your buck you monster and have me
6:30
say yes correct. Other
6:33
than that so refreshing because I am
6:35
something someone said to me recently I
6:37
was listening really debilitating pain and I
6:39
didn't want send is that part of
6:42
the story and then they just the
6:44
had. Because I can keep my voice
6:46
up here and my local greeted as when I keep
6:48
my voice of yeah yeah and she said oh you
6:50
clean up quick. Yeah,
6:53
node I think that is why it's been.
6:55
It's practice now for me to season to
6:57
let let people feel the weight of the
6:59
thing. I want to tell them because it
7:02
is it. It's hard to say like right
7:04
now I need down to hurt me or
7:06
when I tell you I wanted. To.
7:08
Land. And the weird part is is
7:11
that if they. Take.
7:13
It and here at. An.
7:17
Event might not even of saying is that was
7:19
they sit there and a t by contact with
7:21
you. And they don't hold their
7:23
breath. And let it in. The.
7:25
New can move through it and then you can
7:27
talk about like what to order for dinner. Or
7:30
whatever. But if they don't and they close
7:32
off and they don't hear it, then. Then.
7:35
There's gonna be like. Discomfort
7:37
Their that's gone sour the rest
7:39
of your interactions because it's almost
7:41
like. Somebody. Threw a handful
7:43
of paint at the wall, Your
7:46
story with cancer or Das
7:48
for. And.
7:51
Then they are like Adam we shan't
7:53
look at you know on as a
7:55
big crazy orange star pattern he's ripping,
7:57
coagulate the on the why, let's acknowledge
7:59
him and then we can do our
8:01
thing. but if you don't knowledge of
8:03
them then you go crazy. Yes. That's
8:06
exactly right. I'll. You. Can
8:08
stay in. you can tell when someone scare
8:10
have you even tell in someone's like I'm
8:12
in a keep a really tight scripts right
8:15
now or we might fall off the edge
8:17
and talk about something room. And then there's
8:19
times I think I just don't know how
8:21
to manage the like on children's birthday parties.
8:24
I feel a part of the something growing
8:26
inside of me where I. Want
8:28
so much to answer everyone's questions they didn't
8:31
ask them. Why do I need to do
8:33
this year? Yeah. I do. he asked
8:35
All the sudden I have almost a
8:37
hobby because imagine children's birthday parties.
8:39
I love it when a child
8:41
will hear that Henry died and
8:43
then ask me about it. And.
8:45
This has happened more than a couple
8:48
times where their parents radar will go
8:50
up. But. Unfortunately, they're about fifteen
8:52
feet away, and in the time
8:54
it'll take some to cover that
8:56
distance to prevent their child from
8:58
hearing about death. I've already
9:00
told the story to their little child
9:02
and they know that my child died
9:04
and then they have that knowledge and
9:06
their shitty parent can do nothing about
9:08
it. And I've given them a
9:10
gift because that child can handle it.
9:13
They can handle it like nobody's business.
9:15
Is that forgiven for at all A
9:17
doll to thought. oh I can control
9:19
what typos you know. Truce reached my
9:21
child. Well, you didn't count on me,
9:23
calendar or to did you. Will
9:33
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11:15
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11:18
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11:20
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11:22
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11:43
are moments that feel intolerable, I think,
11:45
once you know things. Like your description
11:47
of needing to
11:49
not pretend anymore that
11:52
an old person passing away is
11:54
the same thing. Like playing the game, everything's
11:56
the same because everyone wants a moment to
11:58
relate. have this deep
12:00
desire to say me too
12:03
and yet things are not the same
12:05
and being able to parse those differences is
12:09
sanity. Yeah. Yeah,
12:11
it was interesting like Tina Turner died and I
12:14
think she was 83 if I recall and when
12:17
I heard that I was like wow
12:20
she made it to 83 how
12:22
amazing and now I'm reminded to
12:24
listen to Tina Turner. Yeah! You
12:27
know? Yeah. I
12:29
mean when I heard people being like
12:31
oh my god Tina Turner has passed
12:33
away and I was like yeah at
12:35
83 after climbing the musical equivalent of
12:37
a variety of Everests like if you're
12:39
why are you not dancing you know
12:42
and so that's always strange to me.
12:44
I mean I get it you know
12:46
but for me it's a whole different
12:48
bag or that my dad
12:51
died three
12:53
days after A Heart That Works came
12:55
out and that's
12:58
my dad. He was 74. I'd
13:01
like to live longer than 74 but
13:04
I'd rather live to 74 than not
13:07
quite three like Henry did right and
13:11
also I didn't want to be like the
13:13
guy who if I love you you die
13:15
you know what I mean? So
13:17
I kind of been like I think
13:19
I did on Morning Joe they
13:21
were like and your dad how's your dad
13:23
on live Morning TV and I was like
13:25
oh I hate to tell you
13:27
this on live TV but he did
13:31
he did sort of die. He's
13:38
mostly deceased and
13:41
I can look I wish he wasn't dead
13:44
I love him so much and he took
13:46
such good care of Henry oh my god
13:49
and also the one-two punch of
13:51
having the book come out and
13:54
then my sweet dad die my
13:56
dad Bob after whom I'm named
13:58
and who I look like. Beautiful
18:00
to me. I miss it so much. I
18:03
don't want to do it all. When I
18:05
think about him, I don't think about him
18:07
like pre-surgery, pre-disability. Like I want
18:09
him back with
18:11
his horrible tracheostomy
18:15
which allowed him to breathe. So I also loved
18:17
it. I wish I was
18:20
sleep deprived because I was sleeping on the floor
18:22
of his room listening to his breathing and his
18:24
machines and stuff. And I wish I was changing
18:27
his tubes and you
18:30
know, dealing with the weird like there's like
18:32
permanent infections you can get. Like if you
18:34
have stoma like holes that aren't natural in
18:36
your body, there are bacterias and stuff
18:39
that can come and live there and you kind of
18:41
can't get rid of them. So you
18:43
have to you know, I
18:46
want to be doing all that because you learn
18:48
all that stuff and now I can't do it.
18:50
Now I'm like whenever I hear like a car
18:52
crash, I'm not like oh scary. I'm like oh,
18:54
I hope I can help someone. I hope you
18:56
know, I was on a plane not too long
18:58
ago and they were like is there a doctor
19:00
on board and I went up to the flight
19:02
attendant and was like I'm not a doctor but
19:04
like if there's blood, I don't care. Look how
19:06
big I am. I can lift your biggest passenger
19:08
like use me and they were like alright weirdo.
19:10
You know? I mean that was like
19:13
in the first year after Henry's death but I'm
19:15
constantly like if I weren't
19:17
exactly as busy I am with a
19:19
career that I'm really lucky to love,
19:21
I would absolutely be like a part-time
19:24
overqualified paramedic. You
19:27
describe a feeling that I had not ever
19:29
heard anyone say about
19:32
suffering, the aftermath of
19:34
suffering was you were like I
19:37
don't know how to describe it.
19:39
It's this like
19:41
you know how to dig
19:43
in really fast. Like there's something
19:45
about like a long-term relationship with fear
19:47
and then having and being like I
19:50
love you, I am rising to
19:52
this. You're like I have a higher pain threshold
19:54
because I have this feeling like I could kill
19:57
a man. Yeah. Yeah.
20:00
now have a really, really deep threshold.
20:02
Even though there's so much Little House on the
20:05
Prairie content here, I have like
20:07
a murderous ability
20:10
to manage impossible situations and
20:12
get it done. I
20:15
would happily volunteer to perform
20:18
field medicine. Oh yeah,
20:20
yeah, yeah. And then when I
20:22
hear like, well, what if you died in the
20:24
emergency scenario describing like, well, then I would be
20:26
dead. That doesn't even phase me. I'm
20:29
like, well, yeah, you get to do, yeah,
20:31
you might die. I'm not saying you're not
20:33
gonna die. Or like when I hear about
20:35
a problem out in the world, I'm like,
20:37
well, okay, yeah, sure. So totally people died,
20:39
but also things will, you know, life will
20:41
continue. So it's so weird what happens to
20:43
your kind of... Yes, frame of reference. Emotional
20:45
triage and everything, you're like, well, okay,
20:47
how do we get through this? I
20:50
do feel that way when I meet people that
20:53
you see it in behind their eyes
20:55
and you're like, oh, you and you
20:57
and you. And we
21:00
are, we have been handed a
21:02
passport and I like
21:05
being around those people. I
21:07
seek it out and
21:09
I sometimes that's the only thing
21:11
that makes me relax. Yeah. Yeah. I
21:14
love hanging out with my shallow bereaved parents so much. Yeah,
21:18
but I'm always calling, texting, hanging
21:21
out with my bereaved parent friends because
21:24
we can just chill around each other
21:26
and get it. It's just easier. We'll
21:34
be right back. In
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2022, the US Supreme Court
21:43
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21:45
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21:48
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then clicking the subscribe button. In
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2022, the US Supreme Court overturned
22:12
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22:14
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22:17
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22:20
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22:22
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you get your podcasts. In
22:57
the before times of you,
22:59
it seems like you were kind
23:01
of on a big upswing. There's a feeling I
23:03
get sometimes where things are busy and things are
23:07
wonderful and they kind of have competing
23:09
loves and they take up a lot of space
23:12
that I can almost overwork
23:14
or overdo something. I think, I'll just pay
23:16
it back later. Life is so full. Was
23:19
that the season you were in? When
23:21
we moved here to London from Los
23:23
Angeles nine years ago, I started
23:25
doing the sitcom Catastrophe. We
23:29
did the first two seasons back to back
23:32
and it didn't occur to me because I was going
23:34
through kind of what you're talking about that I could
23:37
say like, what
23:40
if we took six weeks off
23:42
between the two seasons of television
23:46
that we both write, executive
23:49
produce, and thawing? What if
23:51
we just took ... We just
23:53
drove right in and that was a
23:55
very bad idea. My
23:58
wife said ... Towards
24:00
the end when we were
24:02
editing season two She said
24:04
so do you have a second?
24:06
Yeah, she said this last year
24:09
and a half has been a waking nightmare You
24:12
have not been Present you
24:14
moved me here with a three-year-old
24:17
and a one-year-old and I was
24:19
pregnant and I am Incredibly
24:24
unhappy and I'm gonna divorce you unless
24:26
you change the way that you work
24:29
immediately and I thought
24:31
about it for a second and I said, okay
24:33
and Began
24:36
to set about to do that
24:38
and then days After
24:41
that, you know, not even a month Henry
24:44
became sick and then we found his tumor
24:47
and then of course, you know Another
24:50
thing we haven't mentioned yet is that my
24:52
beautiful young brother-in-law died
24:54
by suicide One
24:57
year before Henry died, right? so Henry's
24:59
getting chemo in the hospital at Great
25:01
Ormond Street Hospital and I'm
25:04
on the double-decker bus with my older
25:07
boys And when I say older I
25:09
do mean three and five and they like my lieutenants,
25:11
you know So I'm heading home from the hospital My
25:13
wife has tapped me out and is at the hospital
25:15
and I'm on the top of the bus with my
25:18
boys And my sister calls
25:20
and tells me that her husband my
25:22
beautiful brother-in-law has jumped off a bridge
25:24
in Boston and is dead and
25:28
so all these
25:30
things happening were You
25:34
know just staggering and
25:36
my sister and I are are The
25:38
only two and our family and I'm five
25:40
years older and she's a girl. I'm a
25:42
boy So like we never really there
25:45
was never rivalry or really fighting. We're just
25:47
always like super pals, you know, and
25:49
so it was so weird
25:52
to to in the space
25:54
of 15
25:56
months have those things happen. You
25:58
both have unspeakable problems to people who
26:01
don't know how to speak about it. And
26:03
then you're both these cast
26:06
out into outer darkness together. Like
26:08
you wish you'd wish just one of those
26:10
things that happened, you know. If you
26:12
got to pick like, do you want both to happen or just
26:14
one? You would pick one but
26:17
that isn't what happened, they both happened. And
26:20
so now she and I have a means
26:23
of communication that is, you
26:25
know, insane.
26:29
And then our poor mom, it
26:31
took me a minute to extend
26:34
for the, I don't know, shock
26:37
waves or mushroom cloud of
26:40
sympathy to reach and include my mom
26:42
because she's like one step to roof
26:44
but because it's both her kids that
26:46
happened, that's so incredibly
26:48
awful, you know. So
26:51
that she's still trucking and it's
26:53
been so amazing for both of
26:55
us, I would really like to
26:57
salute her resilience and beauty of
27:00
spirit. When we think about
27:02
the shape that our families and our friends and our lives
27:04
become, I mean, there's
27:07
not a lot of Mother's Day cards that are
27:09
like, as the years go on together, we will
27:11
find a, trying to think of a lot of
27:13
rhymes for together, just on the line. Leather.
27:17
That is a letter. Yep. Tether.
27:21
Tears will something. Tether me with your leather. Okay,
27:23
no. That's a different kind of thing. I
27:28
mean, I'm just thinking of the
27:30
kind of ways we all have to change, learn
27:32
to change roles over the
27:34
course of each other's lives and loves to be
27:36
like, I know how to be you. I
27:38
know how to be your mom. I know how to take care
27:40
of these functional primary needs. And it's like, oh, I need to
27:43
learn to be your friends so I can let you go to
27:45
college. Oh, wait, I need to learn to let you have a
27:47
career that is, oh, wait, now I need to learn
27:50
how to be around catastrophic
27:52
grief I cannot possibly solve in
27:55
a way that is not annoying. My mom
27:57
told me about someone that she knew
27:59
not to. terribly well. It was sort of a
28:01
there was like a dinner party where there were
28:03
people who weren't like best friends
28:05
or whatever, but you know, whatever. Yeah dinner
28:08
party and One
28:11
woman was asked Hey, yeah,
28:13
how are you doing because she kind of seemed down and
28:15
her answer was Well, my
28:18
daughter is in the fucking ground
28:21
so I'm not really doing that
28:23
well and my mom being like
28:27
And this was before like my mom wasn't
28:29
in the blast zone So she didn't have
28:31
to immediately she wasn't but she overheard that
28:34
and she knew that that woman's daughter had
28:36
died and was just like I'm
28:38
really glad that why he wasn't the one
28:40
who had to respond to that because who
28:42
would be right? I
28:45
mean me I'd be like, yeah, what the
28:47
fuck, you know I'd
28:49
be like why don't we go out? Let's just get you know
28:51
instead of like Oh Shooting
28:54
BB guns at beer bottle. Let's go through other
28:56
beer bottles at beer bottle. Let's just throw beer
28:58
bottles at cars yes, that will make us feel
29:00
better and and So
29:03
then but then my mom recently told me she
29:05
was like, yeah I remember that you know and
29:07
then and then everything that happened to our family
29:10
did and I was like, oh, yeah She's yeah
29:12
fantastic. Yeah, yeah, I was in the ground not
29:14
doing but not doing too good. How are you?
29:16
Yeah Going do
29:18
you like the rice pilaf? I
29:23
That tignotaro opening in her
29:27
Like I have cancer. How are you?
29:29
How's everyone doing? I can't sir. I
29:31
thought that cheerfulness of that just spectacular
29:34
Sleepy when I think
29:36
about it. Yeah, she's so wonderful take up
29:38
over and thinking about all
29:40
the Responses to terrible
29:43
things that I did not love. Yeah, I
29:46
Wonder if we get things to say things not to
29:48
say for a bit. Okay
29:50
things to say I really
29:52
like it when someone says Some
29:56
version of like I'm so sorry
29:58
that happened to you. Yeah, likely to
30:01
You Kind of gets me very emotional
30:03
because it's not like I'm some generic
30:05
pursue in the world and you really
30:07
like when someone sorry. For.
30:09
This specific right now. Yeah.
30:13
I mean and questions I love
30:15
if my son died at age
30:17
of two years, nine months and
30:19
you learn math. You.
30:21
Are I promise? wondering.
30:24
Why wondering how. wondering.
30:26
The circumstances. Old. Name.
30:29
You. Know. I'm.
30:31
So happy to answer those questions you
30:33
know and and to people who are
30:36
like why didn't want to bring it
30:38
up number into using a mouse thinking
30:40
about my son. Who died.
30:42
Who. Said body I held. The.
30:46
My you know go month think is is my Harrison
30:48
are you think has his dad. I have
30:50
four sons. One. Of them
30:52
dead, but he still receiving. A
30:55
quarter cache of my parenting energy.
30:58
I mean, I'm sure the percentages
31:00
change between kids. Every
31:02
day. It's a lovely him and he's my
31:04
son. Yeah, I'm his dad. Vital.
31:07
Never change. Whereas he, i
31:09
don't know. That
31:11
that? I don't know. Which.
31:14
Is good I wouldn't wanna know. You know
31:16
I want wonder for when we die You
31:18
know the idea like oh yeah I know
31:20
it's I know to happen to Mom I'm
31:22
an answer factory. If you ever wondered how
31:25
Alzheimer's with him, the secrets of. I
31:27
guess you probably like bossy people just
31:30
don't ask random crap and show up
31:32
with lovely things. I hear that when
31:34
people said ah is are they can
31:36
do. Oh yeah yeah I mean
31:38
you could come up with something to
31:40
do and so an invalid or you
31:42
could not give me a job they
31:44
are sent me. That question has sent
31:46
you into my my exactly how disappeared.
31:48
Why are you just bring a mediocre/she's
31:51
not even good casserole and you put
31:53
it my friends unanimous. ah
31:55
you come over you say you're
31:57
going to be here with my
32:00
children for a couple hours, will you go
32:02
for a run or
32:04
go walk in the park or whatever, go find
32:06
a weird corner in the park and lie down,
32:08
face down and cry into the soil and have
32:11
snails, drink your tears, you know.
32:14
That's much better. Also, kids again, a
32:17
nice parent with their kid, a good friend of
32:19
mine was sitting there and their
32:21
daughter asked about my, you know, about my son
32:24
Henry and who's Henry and I said, he's my son and
32:26
he died and she just went, what?
32:30
He died? And I
32:32
was like, yeah. And she said, and
32:35
he's, he died and he's
32:37
dead? And I was
32:40
like, yeah. How? Why? You
32:42
know, and being like, he got a, he had
32:44
a brain tumor, which is like cancer in
32:47
your brain. And like, that's so much
32:49
better because every adult is
32:51
that curious, you know, and
32:54
so fucking ask. Um,
32:57
you know, or people
33:00
who were like, are you, are like
33:02
Jesus Christ, I can't even fucking imagine,
33:04
you know what I mean? Profanity. That's
33:06
the best. I feel a deep calm.
33:08
I had this weird response to,
33:13
I was just starting, I was starting cancer and I
33:15
was starting lint and that was my like 40
33:18
days of 40 days of F-bomb.
33:21
I work in a very religious context and I was
33:23
like, this is the new me. Yeah. But the new
33:25
me, the new me felt very, it
33:27
was, I mean, they have those studies of like, if you
33:29
put your hand in cold, freezing cold water and you're
33:32
allowed a million expletives, the
33:34
people who are swearing the whole
33:36
time can keep their hands subvert for longer.
33:38
And I thought that feels right. And
33:41
the worst things that people say, um, just
33:44
like the question was how we're
33:46
saying things are
33:48
very bad. We've recently learned that
33:51
Henry's cancer has come back. Um, and
33:53
he's going to die. Oh
33:56
yeah. My grandfather had a brain tumor.
33:58
Um, he, he got better but...
34:02
They always do so well in the end. Yeah.
34:05
Yeah. And so that's bad. I
34:07
hate that for you so much.
34:10
Another one, somebody said, how are
34:13
you doing? Not great, you know,
34:16
first Christmas without Henry's coming up and
34:19
I would prefer to just go into
34:21
a medically induced coma just for six
34:23
weeks and skip it. But
34:26
then our new son had been born because my
34:29
wife, I mean, this is not
34:31
even one podcast, this is a series. My
34:33
wife was pregnant when Henry died, right? I mean,
34:36
if you can even imagine that. And
34:39
so we had a new son who arrived
34:41
before Christmas and this person
34:43
said, yeah, but you know, first Christmas
34:45
was the new guy, like as
34:47
if like deflecting the fact. And
34:50
for me, the thing is, it's so weird because like
34:52
the arrival of our new son in
34:55
no way addressed Henry's
34:58
absence. By
35:00
the same token, Henry's death
35:02
did not lessen our joy at
35:04
this beautiful new fella who'd entered
35:07
the scene. So, it was almost
35:09
like when you see like
35:11
an estuary where like freshwater and saltwater
35:13
and like one is blurry and one
35:16
is clear, you're like, they're not... They
35:18
aren't intermingling, you know what I mean?
35:20
Like they're right next to each other
35:22
and you might feel them at the
35:24
same time but they don't like the
35:27
arrival of number four did not lessen
35:30
the nightmare horror of
35:32
losing Henry. Nor did Henry
35:35
dying make this little
35:37
nugget any less delicious and
35:39
you know, and I was very worried. I thought, well,
35:42
I don't love anymore
35:44
because it's all my
35:47
heart is destroyed. So
35:49
I'll go through the emotions with him,
35:51
like I'll tell him I love him,
35:53
I'll dress him and feed him but
35:56
his experience is gonna suck, you know? And
36:00
the second he came out, I was like, give me a
36:02
penis. You know,
36:04
I just wanted like rubbing him all over
36:06
my face and head and licking and biting
36:09
his ears. I still bite. The amount of
36:11
time that my kid's ears spend in my
36:13
mouth is... I know. It's insane. We
36:16
had to make rules. Like we signed contracts, my
36:18
son and I, about like, we had to make...
36:20
Yeah, there's so many biting rules. It's
36:22
the only sort of like constitution
36:25
of that relationship is
36:27
like, number one, under these
36:29
conditions. I will eat you
36:32
up. Yeah. When
36:35
you think about what... Because Henry's
36:38
pain, I imagine, was always on your mind. But
36:41
then his absurd, gorgeous
36:44
joy and personality, it feels
36:47
like you've got a lot of strong
36:49
feelings about joy and puppies and what
36:51
makes life really beautiful and good in the
36:54
middle of suffering. Yeah,
36:56
well, they... It's... They
36:59
all... You can happen and coexist and stuff, you
37:01
know. So we were having a
37:03
lot of fun often when Henry was
37:05
in the hospital, you know. There
37:08
were a lot of terrible... There are many
37:10
terrible things. Too many to list when
37:13
you have a tumor next
37:15
to your brainstem, the cranial nerves. It
37:17
messes up a lot of stuff. But
37:20
like frontal lobe, totally undisturbed.
37:23
So like just,
37:26
you know, minutia and finer
37:28
things and tastes, you
37:30
know, and foibles and stuff were
37:32
razor sharp in him. So he
37:35
was very fun. He was very funny. He was
37:37
very curious. He was very mischievous. He was like
37:39
stealing things all the time? Oh, yeah. Yeah.
37:42
I mean, nurses would be like, where is it? And Henry would be hiding under
37:44
his pillow, you know. You
37:48
know, he would come out and climb
37:50
up and sit on the desk of
37:52
like the ward nurse head and help
37:54
them answer calls and stuff, you know.
37:56
I mean, he was ridiculous. And
37:58
also, he was sort of... of a combination
38:00
of like third boy in a very short
38:03
space of time. I mean, his
38:05
oldest brother was four when he was born and then there
38:07
was one more in the middle. So, we've got three boys
38:09
under the age of five. So, since
38:11
he showed up third, he, you know,
38:14
kind of wisely was like, okay, I'll
38:16
be very magnetic and sweet and smiley
38:18
and lovely, you know, not like screaming
38:20
for attention but just like being such
38:23
that you couldn't ignore him, you know.
38:25
He'd like a little cutie pie can
38:27
either do you towards him and
38:30
then after his, they
38:33
found the tumor and he had a surgery, then he
38:35
had to be like, you know,
38:37
the Evander Holyfield of just
38:40
ferocious
38:44
aspiration and drive to
38:46
learn and relearn things.
38:49
So, he was just like, I mean,
38:51
he was like in the minds
38:53
of unbelievable hard work, you know,
38:56
learning to use his body under
38:58
these new circumstances. So, he
39:00
was this like, he was like the sweetest and
39:03
most driven. He really made
39:05
a lot of other kids look like shit. Yeah,
39:13
those garbage kids. You got to just
39:15
feel sorry for them. Yeah, not my other
39:17
kids though because they were so amazing
39:19
with them. I mean, the things that
39:22
they learned are other little
39:24
gentlemen, you know. I mean, they could
39:26
set up a feed, you know, like
39:28
through the stomach tube and
39:31
they could do,
39:33
you know, basic
39:35
tracheostomy, maintenance and
39:37
care and always
39:40
in his hospital beds and playing
39:42
and like the number of pictures
39:44
we have of our three kids
39:46
in one hospital bed, having a
39:49
very good time is
39:51
just so, yeah, they
39:54
were amazing and are amazing.
39:57
Because I often wonder, I mean, the things
39:59
you can't ever do. know but like as a parent you
40:01
always want like who's this gonna make
40:03
you? Yeah, my 10-year-old is
40:06
I sometimes
40:08
call our 10-year-old and he's the second
40:10
one the mayor of the family because
40:13
he's just he's just a smiley go-getter
40:15
you know and like to be in
40:17
charge and and is loud and
40:20
it makes friends easily and all that and
40:23
it sometimes can be really annoying and awful and
40:26
you know physically attack both his older and younger
40:28
brother and things like that you know he's a
40:30
human being right and anyway so not
40:33
too long ago he was playing football that's
40:36
what they call baseball here and
40:38
the grandmother of another kid that he
40:40
was playing
40:47
football with came up to me and said I just
40:49
want to let you know he's being so kind to
40:51
my grandson Timothy when he plays football
40:54
and not all the other kids are and
40:56
you know he just moved to town what
40:58
your son Diego is doing and
41:00
by the way I love that name Diego which
41:02
is real it's really encouraging
41:06
to him you know and he's so appreciate that he's
41:08
come home and told me that and I'm like okay
41:10
so I immediately start crying to this woman I don't
41:12
know and I'm
41:15
like you
41:18
know and and then I'm like
41:20
infuriously texting my friend like you're never gonna believe what I
41:23
deserve freaking
41:31
out and then Diego came over
41:33
and he I didn't know
41:36
he'd come up like behind me and saw me sending the text I
41:38
was like you weren't supposed to know that like I was gonna use
41:40
that later as a musician when
41:42
you'd make me upset it was a look
41:44
at it and you know just how weird
41:46
intra-family dynamics you know I was like but
41:48
now you know I'm so proud of you
41:52
the craziest thing
41:55
we're all just
41:58
looking for signs you know what I mean like
42:00
he was doing a type of kindness that
42:02
like you don't have to do as a
42:04
10-year-old boy, you know? And I was just
42:06
so happy to hear that. And
42:09
so, yeah, so I don't know. You know, what
42:11
he did when he had done that, otherwise, who knows?
42:13
But I do know that he when he
42:15
was four, you know, knew
42:18
how to feed his brother with a machine,
42:20
you know, through a tube in his stomach
42:22
and set up all the weird controls for
42:25
it. So, it parcels it out properly through
42:27
the night and stuff. Yeah.
42:30
Yeah. It's
42:33
always the hope, right? It's not just for change. We're
42:36
all going to change regardless, but for
42:38
some kind of... And
42:40
this is like the... This is one of my
42:42
favorite theological terms, which I actually find
42:45
useful, which is just like there's
42:48
nothing redemptive about suffering, but
42:50
there is, I think, a hope,
42:53
a hope, a hope of like sanctification.
42:56
It's like when you love and
42:58
it's... And you love and you love and
43:00
then you do all the hard work of loving that
43:03
just the act of loving makes
43:06
you into a person. Yeah. If the
43:08
things happen that are hard and
43:12
you like metabolize
43:14
them and turn out to hate them,
43:17
then... And
43:19
you acknowledge, yeah, that really happened. You
43:22
know, it hurt terribly. It hurts right
43:24
now thinking about it, but
43:26
it did happen. Yeah,
43:29
I did acquire some hard
43:32
one skills that I would give
43:34
away in a second. Immediately. But I can't. So,
43:37
I might as well use them. You're
43:39
immediately. But I can't. So,
43:41
I might as well use them. That
43:44
is in religious words, we would be like, that
43:46
is a testimony. And I'm so grateful to have
43:49
met you. I enjoyed that so
43:51
much. Thank you. I
44:00
used to imagine that life was a series of
44:02
choices, you know, by my
44:04
sheer grit and charisma and
44:08
advanced degrees that I'd be
44:10
able to get through life unscathed,
44:13
you know, and then, and
44:16
then, and then, and then. And
44:19
I wrote about that feeling in
44:21
No Cure for Being Human, and it's,
44:26
it's always such a gift then
44:29
when I get to meet other
44:31
people who have the same feeling,
44:34
like they were suddenly exiled from a
44:36
world that they loved, and
44:38
they wonder, well then, how do you live?
44:40
I think
44:43
that's one of my very favorite parts about this
44:45
listening community, is that you all get
44:48
it. You are
44:50
people who understand that things
44:52
happen, that just unmake
44:54
this, unmake
44:56
all of our well-laid plans and
44:58
all of our best intentions and
45:00
our greatest hopes, and
45:03
no matter how hard we try, we
45:05
can't put life together the way
45:07
it once was, but we
45:09
have to find a way to live now, forever
45:13
changed, maybe
45:15
with love and courage
45:17
and joy and hope, because what
45:19
other choice do we have, except
45:23
to move forward with a life we didn't
45:25
choose? And
45:27
Rob gets that. He has
45:30
been unmade by
45:33
the death of his precious, precious Henry,
45:36
and I feel so lucky that he shared a
45:38
bit of him and his grief and
45:40
his razor-sharp wit
45:43
with us today. So
45:45
before we go, you
45:48
know, my friends, that I love to
45:50
bless the crap out of you. So
45:53
here's a blessing for those spaces of deep
45:55
hope and unchangeable reality
45:57
and the... Who
46:00
am I now? So, here's a
46:02
blessing for when you've lost someone far
46:04
too soon. And
46:06
hey, that includes grandparents. You're allowed
46:09
to be very sad about grandparents. But
46:11
I do like it when people
46:13
are funny about
46:15
everything. All right, love. Here
46:18
we go. God,
46:21
this. This is
46:23
impossible. This grief
46:25
is too much to bear. If
46:28
there was a tight order to the world that you made,
46:31
it's come unspooled, and
46:33
no one will wind it up again. God,
46:37
I feel it coming. That
46:39
ache for the stories that will never be told,
46:42
and an anger rising when I remember
46:45
what never should have been. Worst
46:48
of all, God could
46:51
anything be worse. It
46:53
is so beautiful. The
46:55
way this grief is a language of love. I
46:59
am love sick with this much sorrow.
47:03
Teach me to speak this new mother tongue. Show
47:07
me how to memorize so I
47:09
can never forget what they
47:11
gave and what is gone, and what
47:13
we were owed by a world robbed
47:16
of their presence. And
47:19
hold me by the edges, for I am
47:21
coming apart. And
47:23
nothing but love will find
47:25
me. Love
47:28
you, my dears. Have
47:30
a lovely week. Hey,
47:44
so this is the part where I get to thank everyone, which
47:46
is my favorite, because I have a lot of people to thank.
47:49
I have really generous partners. I
47:52
have the folks at the Lilly Endowment
47:54
and the Duke Endowment who love supporting
47:56
storytelling about faith and life. And
47:59
I have an incredible. incredible academic home at Duke
48:01
Divinity School and a new
48:04
podcast network called Lemonata. Their
48:06
slogan is, when life gives you lemons,
48:08
listen to Lemonata. So yeah, big
48:11
fan. And I
48:13
have the most incredible team. And
48:15
it includes the Everly,
48:18
Everly is now my new favorite
48:20
word, wonderful, Jessica Ritchie, Harriet
48:22
Bloomman, Keith Weston, Glenn
48:24
Higginbotham, Brenda Thompson, Hope
48:26
Anderson, Kristen Bowser, Deb
48:29
Burt, and Katherine Smith. We
48:32
planned some really fun things for this fall,
48:34
and I really don't want you to miss it.
48:37
If you go to katebowler.com/newsletter, you can get
48:39
my free weekly newsletter and it's got all
48:41
kinds of stuff, insider information,
48:44
video clips from these episodes.
48:46
And these are fun because
48:48
this is like me and them in
48:50
person crying into
48:52
every possible sleeve. It's got
48:54
discussion questions, must read books, printables, all
48:57
kinds of bonus footage like this
48:59
one with videos of me and Rob. Also,
49:02
if you could take a minute,
49:04
it helps the podcast so much if
49:06
you don't mind leaving us a review
49:08
on Apple Podcasts or
49:10
Spotify. It just takes a couple
49:13
minutes, but it makes a huge difference to the success
49:15
of the podcast. And if you're
49:17
there, if you click on the subscribe button,
49:19
I'm making a mashy,
49:21
the button finger gesture right now, you
49:25
can subscribe to the podcast and then it
49:27
automatically gives you all new episodes when they
49:29
air every Tuesday. We
49:32
really love hearing your voice too. So if you want to
49:34
leave us a voicemail, we might even be able to use
49:36
it on the air. So give us a call
49:38
at 919-322-8731. Okay,
49:41
lovelies. Next
49:45
week, I'm going to be talking with the
49:47
wise and gentle parenting expert, Lisa
49:49
DeMoore. Seriously, you're going to want to take
49:51
notes on this one. She's got it going on.
49:55
In the meantime, come see me online
49:57
at Cate C. Bowler. Everything
50:00
happens with me. You need
50:02
me here. This
50:22
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50:49
feel like we're failing at it? I'm Jane Black. And
50:52
I'm Liz Dunn. We're moms. And
50:55
we're food journalists. And in Pressure
50:57
Cooker, we tackle some of the thorniest issues
50:59
around how we feed our kids. How
51:02
important is family dinner? And
51:04
why do kids refuse to eat
51:06
their vegetables? To find out,
51:08
we're talking to experts and hearing from parents
51:10
locked in the daily struggle to feed little
51:12
people with big personalities. Listen
51:14
to Pressure Cooker wherever you get your podcasts.
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