For the Parents - Smooth Transition of Care
For the Parents - Smooth Transition of Care
For the Parents - Smooth Transition of Care
This week's episode is targeted at our audience of rare disease parents. Taylor and Liz discuss ways to help parents enable their kids with a rare disease to take ownership of their care and treatment plans. Managing care and treatment is overwhelming for all of us, and finding ways to help with this at a young age can make for a smoother transition.
Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us at [email protected]. We love to hear from all of you!
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Also, feel free to message us at [email protected]. We love to hear from all of you!
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From The Podcast
Not So Rare Podcast
It is estimated that over 300 million people are affected globally by rare diseases. Although each rare disease only affects a small group of individuals, we believe that by sharing our experiences living with a rare disease, we can help the broader rare disease community with their rare disease journeys. Join us, Taylor and Liz, as we further explore the impact of rare diseases on our lives. Together we are 'Not so Rare!' Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram by following @NotSoRarePodcast as well as on Facebook by searching for Not So Rare Podcast. Also, feel free to message us at [email protected]. We love to hear from all of you!Join Podchaser to...
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