Podchaser Logo
Home
Overcoming stigma

Overcoming stigma

Released Tuesday, 13th February 2024
Good episode? Give it some love!
Overcoming stigma

Overcoming stigma

Overcoming stigma

Overcoming stigma

Tuesday, 13th February 2024
Good episode? Give it some love!
Rate Episode

Episode Transcript

Transcripts are displayed as originally observed. Some content, including advertisements may have changed.

Use Ctrl + F to search

0:00

If something has gone wrong in the world,

0:02

the chances are someone is trying to fix

0:04

it. And here on People

0:06

Fixing the World from the BBC World

0:08

Service, we find the people who are

0:10

trying to do just that. BBC

0:13

World Service podcasts are supported

0:15

by advertising. In 1969,

0:17

a plan to show support for

0:19

an anti-racism protest turned the lives

0:21

of 14 promising black

0:24

student-athletes upside down. Amazing

0:26

sports stories from the BBC World

0:28

Service tells their story. Search for

0:31

amazing sports stories wherever you get

0:33

your BBC podcasts. People

0:35

Fixing the World Welcome

0:42

to People Fixing the World from the BBC

0:44

World Service. I'm Myra Anubian.

0:46

Every week I tell you about

0:48

great ideas that are changing our

0:51

world for the better. Speaking about

0:53

change, today we're taking a step

0:55

back to find out how changing

0:57

our mindsets can make a difference.

1:00

We'll look at two very

1:02

different examples of how this

1:04

has helped with mental health

1:06

treatment and waste disposal. Now,

1:11

if there's one thing I've come to

1:13

realise on People Fixing the World, it's

1:16

that great solutions almost always start with

1:18

a change of opinion. But

1:20

that's not always easy to do,

1:22

especially with beliefs that have existed

1:24

for a long time. Take,

1:27

for example, mental health. In

1:29

many parts of the world, people's

1:31

perceptions about mental health have changed radically

1:33

over the last few years. But

1:36

there's still a lot of stigma around

1:38

it. And one of the reasons why

1:41

is lack of knowledge. In

1:43

parts of Africa, for example, I've

1:46

heard of cases of relatives being

1:48

kept in their rural homes or

1:50

people being called lazy or even

1:52

crazy for mentioning the fact that

1:54

they're struggling with their mental health.

1:57

But away from the stigma, another

1:59

big is the scarcity

2:01

of clinical help. Now,

2:03

Nigeria, for example, has the

2:05

largest population in Africa. However,

2:08

there are only about 300

2:10

registered psychiatrists for

2:13

over 200 million people, and

2:15

most of those are based in cities. Now,

2:19

this is where our first solution

2:21

today comes in. You

2:25

see, a lot of people in Nigeria prefer

2:27

to go to traditional healers, instead

2:31

of medical doctors, for help with

2:33

mental health problems. For many reasons,

2:35

actually. Maybe because of

2:37

cost, distance, and also because

2:39

they really trust them. So,

2:46

one research project used an

2:48

unorthodox approach to

2:50

get these two groups with very

2:52

opposed views, the medical

2:54

doctors and the traditional healers, to

2:56

work together to reduce the stigma

2:59

and improve the treatment

3:01

of mental health there. But

3:04

how do you get traditional healers

3:06

who often use strange and sometimes

3:08

harmful methods of treatment to

3:11

work with doctors using evidence-based

3:13

medicine? Well, our

3:15

reporter, Makochi Okafur, went

3:18

to the outskirts of Imadan, a city

3:20

in Nigeria, to find out more. It's

3:23

a bright and sunny morning, and right now

3:25

we are in a little suburb in

3:28

Imadan, Oyostit, the western part of

3:30

Nigeria, where outside the residence of

3:32

the traditional healers, I've been

3:35

told that he's been doing this for over

3:37

40 years, and lots

3:39

of people respect him. He's a chief,

3:41

and I don't know what to expect. I've

3:44

never been to a healer's home before. Nice

3:49

to meet you, sir. Healing

3:54

home. I'm

3:57

a little nervous after a contact from

3:59

the research team. introduces of

4:01

the chief mukola Yusuf. He's

4:03

a tall, intense looking man,

4:06

wearing a blue patterned long roof and

4:09

a traditional hand-woven hat. Some

4:11

people you have a pattern

4:13

of problems, some

4:15

people you have a witchcraft

4:18

problem. Chief Yusuf believes some mental

4:20

illness can have a spiritual or

4:22

supernatural cause. He uses incantations to

4:24

read a patient of what he

4:26

regards as a curse. Well led

4:28

into a small room, it's

4:41

painted blue and is fairly dingy with

4:43

just a single window. It's

4:46

where he first

4:48

meets his patients.

4:52

Scattered around me, I see dried

4:54

bones and animal skin plus bottles

4:56

of liquid and herbs which

4:58

he uses for his homemade

5:01

remedies. The traditional Gila has

5:03

explained to us how he administers

5:11

care for people who come to him. If

5:14

someone comes and their condition is

5:16

very strong or very severe, they're

5:18

sort of sinking in incantation and

5:21

they evoke the spirit and

5:23

then once you come, the nurse

5:25

or the healthcare worker can now

5:27

come and also administer sort of

5:30

a Western worker. So there's a

5:32

collaboration, exactly there's a collaboration. Good

5:35

afternoon Baba. Good afternoon Baba. I'm

5:38

fine. The

5:41

chief or Baba father as

5:43

is respectfully known had never

5:46

been involved with a clinical

5:48

evidence-based medicine but in 2012

5:51

he signed up to a

5:53

groundbreaking research project to collaborate

5:56

with medically trained healthcare workers.

6:00

The idea was to make better use

6:02

of traditional hmulas. Many

6:04

people, especially in rural areas, appear

6:06

being seen going to a mental

6:09

health clinic, afraid they'll be

6:11

called names and their family will suffer

6:13

discrimination. Instead, they

6:15

visit someone they trust and are

6:18

familiar with, their local healer. We

6:20

are collaborating together to

6:22

achieve the same goal. Can you tell me

6:24

a bit of what you learned during this

6:26

training? Ah, we learned some. Many

6:29

things. Many

6:31

things. I'm quite a bit of a poor.

6:33

He tells me proudly that he feels enlightened

6:35

by what he's learned from the medical team.

6:38

He's been taught how to spot signs of

6:41

severe mental health problems, such

6:43

as hallucinations or a loss

6:45

of contact to reality, which often

6:47

indicate psychosis. If he

6:49

finds a patient suffering delusions, he

6:52

calls one of the community healthcare workers to

6:54

come check on them. We can

6:56

do together. We can do together.

6:58

So, you normally call

7:01

when you have a patient with

7:03

harm, he or her safe. Is

7:06

there any patient? Healthcare worker Ybikunle

7:08

Ybijola describes how they work

7:11

together. All of the treatment

7:13

is administered at the healer's house, where

7:16

patients sometimes stay for weeks on end. So,

7:18

when we come, we introduce

7:21

these patients to us. When

7:23

a patient needs medication or

7:26

seems to stop, Ybikunle Ybijola

7:28

takes over. Once the

7:30

patient is come, she hands back to the

7:32

traditional healer. Boneta, Baba will take over and

7:34

they will do it. Do you

7:36

see sort of collaboration? Yeah, that is

7:39

collaboration. Traditional healer, I used to fear

7:42

them. I believe they

7:45

usually destroy people. But

7:47

during the period that I close to them,

7:49

I can see they can help the people,

7:52

especially this Baba. Your

7:56

mind has changed. I have changed my

7:58

mind. they

8:01

are good to the people in the community too. She

8:03

believes that she and other healthcare workers

8:05

have a good impact on the healers

8:07

too, encouraging them not to

8:10

resort to harmful practices like physical

8:12

restraints such as handcuffs in

8:14

order to control patients. We correct

8:17

them that it's not uncomfortable

8:20

so medication out there will make

8:22

the patients calm down. The

8:25

mood changes to normal mood.

8:28

Chief Mikola Yousuf tells me that

8:30

he doesn't physically restrain or harm

8:33

his patients but the

8:35

training he's received has shown him that

8:37

there is actually no need to do

8:39

so. Before before I don't like to

8:42

frog better people or

8:44

to sting better people.

8:47

No. That training is

8:49

more as giving more more more more. Has

8:52

the the nurse and the

8:54

healthcare provider have they been helpful? Have

8:56

they helped you better than

8:58

before when you were not working with them? Ah.

9:01

You have to you have

9:04

too much. Chief Mikola Yousuf obviously sees

9:06

the benefits but before I left the

9:08

button I also spoke to a man

9:10

whose wife has been helped. She spent

9:13

16 years hidden away

9:15

at home suffering and without

9:17

treatment. He describes how

9:19

her illness began and how

9:22

she seemed to have forgotten who he was.

9:24

If I see her I call

9:26

her. You don't

9:28

know me I'm your husband. You

9:31

can't recognize me. For a couple of years

9:33

he had tried to help but nothing had

9:35

worked. He was cautious about going

9:37

to a traditional healer but in 2017

9:40

he found one who was collaborating

9:42

with a local clinic. They

9:45

was together so that

9:47

they hid her. His wife is

9:50

still in recovery but he wants

9:52

others to learn from his experience.

9:54

Begging them not to hide their loved ones

9:57

away. Don't hide them in the

9:59

house. Take care of them

10:02

before it's bad.

10:05

Now and thank God

10:08

I'm enjoying with her and see

10:10

too enjoy with me. Makochi

10:13

Okafuro with that report. Now

10:16

this was a five-year research project funded

10:18

by the United States National Institute of

10:21

Mental Health and it ended back in

10:23

2017. During

10:25

that time more than 300 patients

10:28

were involved and the study

10:30

meant that one half received collaborative

10:32

care and the other half did

10:34

not. I was keen to

10:36

find out just how successful this had been

10:39

so I got on a call with Professor

10:41

Oye Gureje, the psychiatrist in charge of the

10:43

project. When they were

10:45

recruited into the study we would

10:48

do a baseline assessment that would

10:50

rate the severity of their psychotic

10:52

symptoms. And so we were

10:54

comparing the outcome of that at six

10:56

months between the two groups and

10:59

we found a significant improvement

11:02

in the arm receiving

11:05

collaboration and they were

11:07

more likely to have resumed work. And

11:10

the people in the intervention

11:12

arm also reported less experience

11:14

of self stigma. Stigma

11:16

they have experience from people

11:18

around them. So

11:21

Professor what you're saying is that in

11:23

many ways people would feel less

11:25

stigmatized going to traditional healers than

11:27

going to regular medical doctors

11:29

to seek help for mental health issues. Yes

11:32

and there are several reasons for

11:34

that. One is the expectation

11:36

that healers are more likely to be able

11:38

to get to the root cause of

11:40

the problem and get rid of it permanently.

11:44

While there might be the feeling

11:46

that biomedical service will only alleviate

11:48

the symptoms and the person might

11:50

still be carrying the illness. The

11:52

other reason of course is that

11:54

there is a more stigmatizing attitude

11:57

among biomedical health providers especially not

11:59

just medical health providers. non-specialists than

12:02

among healers. Healers often have

12:04

a shared meal, they live

12:07

under the same roof

12:09

with their patients and they do things

12:11

with them and in fact one of

12:13

the things that we have shown to

12:15

be effective in reducing stigma is contact.

12:18

When people make physical contact with people

12:20

with mental illness, they are less likely

12:22

to have stigmatising attitude to them. Now

12:25

in many ways, traditional healers

12:27

have also shaped the narrative

12:29

and stigma around mental health

12:32

because some of the treatments they use can

12:34

be very scary, stuff like prolonged

12:36

fasting, restraining and ritual

12:39

scarring. However, the

12:41

professor says this project helped

12:43

educate healers about better ways

12:45

to help their patients. We

12:47

enlighten them about some of these things,

12:50

about the risk of infection and because

12:52

the collaboration was going to take care

12:54

of some of their anxiety about absconding

12:56

or bowel lungs or aggression anyway, so

12:59

there will be no need for them

13:01

to use those approaches. So what's

13:03

the key here to making this

13:05

relationship work really well

13:08

between traditional healers and

13:10

other members of the medical practitioner

13:13

space? Well the

13:15

first thing is the awareness

13:17

that this is actually possible

13:20

and then of course the facilitation

13:22

of that by government. At

13:24

the moment, many of the countries struggle

13:26

because the healers don't want to be

13:28

registered but when this kind of approach

13:30

is on the table, they will probably

13:32

see the benefit of it and will

13:34

be more likely to accept being

13:37

registered. The

13:40

relationship between healers, healthcare workers

13:42

and patients is complex but

13:45

Professor Oye Gredje is hopeful

13:47

that the lessons learned in

13:49

this trial can build towards

13:51

a greater collaboration in community

13:53

healthcare, something the World

13:56

Health Organization is now pushing

13:58

for globally. You're

14:02

listening to People Fixing the World

14:04

from the BBC World Service and

14:06

today we're looking at how getting

14:08

people to change their mindsets or

14:10

perceptions can have a positive influence

14:12

in our world. We've

14:14

just heard about one project that's

14:16

helping change people's attitudes towards mental

14:19

health. However, our

14:21

next solution is looking at a completely

14:23

different problem. Each one

14:25

takes us to India to find out how

14:28

to make life better for a group of

14:30

people who are looked down upon because of

14:32

the work that they do. It's

14:39

a project that's all about removing

14:41

the disgust factor from waste pickers

14:43

in India by changing people's attitudes

14:46

towards those who deal with the

14:48

rubbish on a daily basis. So

14:55

we've just heard someone singing a

14:57

happy number. What does it mean?

15:00

Well, to find out more, I'm now

15:02

joined by Claire Booze. And Claire, start

15:04

by telling us what is it that

15:06

we've just heard. Yeah,

15:08

that happy number, let's have it

15:10

one more time, 38325, not not not not. That

15:15

is 383,250,000 kilograms. And

15:22

that refers to the huge

15:24

pile of rubbish that waste

15:26

pickers prevent from reaching landfill

15:28

each year in the Indian city

15:31

of Bengaluru. That's the city previously

15:33

known as Bangalore. So

15:36

it's this huge pile of

15:38

stuff which people have thrown away

15:40

thinking that there's no more use

15:42

for it. But in actual fact,

15:44

the waste pickers sort through it

15:46

and find the bits that can

15:48

be sold or recycled. And

15:51

that is a lot of waste. In fact,

15:53

as of last year, India has the biggest

15:55

population in the world. So there's going to

15:58

be a lot more rubbish to make. And

16:00

Claire, it's sad because many of the

16:03

people managing it, they're doing it without

16:05

any protective clothing or equipment. It's a

16:07

really hard job. Yeah,

16:10

Myra. Although there is a

16:12

formal refuse collection service across

16:14

India and those people are

16:17

equipped correctly, India

16:19

does rely on the informal sector

16:21

to deal with a much less

16:24

happy number. And that's the 62

16:26

million tonnes of solid waste which

16:28

is generated in India

16:30

every year. And this

16:33

job is mostly done by

16:35

families belonging to a particular caste

16:37

and that's people like Indira. I

16:40

am Indira and I live

16:42

in Bangalore. Indira's family are

16:44

all waste pickers and age 10

16:47

she joined them too on the streets

16:49

picking through the waste. She

16:51

says it's amazing what people in

16:54

India's technology capital throw away. I

16:58

find copper wires and old mobile

17:00

phones that are disposed as waste.

17:03

People usually don't know how to sell

17:05

their old mobile phones. But

17:07

these phones are collected and

17:09

can be sold for anywhere between 500 rupees up

17:11

to 3000 rupees. I

17:15

look at these earnings as a gift from God. But

17:19

people like Indira are not

17:21

widely valued in Indian society.

17:23

Instead, they often experience discrimination

17:26

with people regarding them as

17:28

both dirty and untrustworthy. People

17:32

looked at us and treated us very badly

17:34

in the past. They say hurtful

17:36

things about us and they don't even allow

17:38

the bags that we carry to touch them.

17:41

There have been times where people were ready

17:43

to hit me just because my back touched

17:46

them. Claire,

17:48

I can't even begin to imagine how this

17:50

would feel. But let's talk about

17:52

the solution now because there are people trying

17:54

to reduce the stigma. That's

17:56

right. There's a huge campaign going

17:59

on in the city. of Bengaluru

18:01

at the moment and that 10

18:03

different organisations are involved. They're looking

18:05

at all aspects of waste picker's

18:07

lives, but we're looking at what

18:09

one organisation, BBC Media Action, is

18:11

doing. You'll note from

18:13

the name, they are connected to

18:15

the BBC, but they're a charity

18:18

which is independently funded. And

18:21

I spoke to Radharani Mitra,

18:23

whose global creative advisor there,

18:25

and she told me the

18:27

priority for them was to

18:29

try to reframe the role

18:31

of waste pickers and to remove

18:33

the distrust and disgust factor. There's

18:36

definitely been a shift amongst the

18:38

general population of Bengaluru and

18:40

the fact that they now see that

18:42

these people are not just

18:44

waste pickers, but they are recyclers, they

18:46

are entrepreneurs. That, I think, has been

18:48

the biggest gain for the campaign. So

18:51

as well as composing the Happy Numbers

18:53

song, they also conducted a social experiment

18:55

on Facebook, and this was

18:57

to connect the general public with waste

18:59

pickers. So

19:04

they could understand what their lives

19:06

were actually like. The early starts

19:08

in all weather, working

19:10

without protective clothing, sometimes picking

19:13

through stuff which is dangerous to handle.

19:15

And ultimately, to understand

19:17

that they do all this and

19:20

it's super beneficial for the city. And

19:22

this really seems to have struck home. I had a

19:24

lump in my throat because my

19:26

heart goes out to these people who are doing things that none

19:29

of us want to do. They

19:31

also introduced the glam factor. I'm a

19:39

with a series of filmed coffee

19:41

dates with celebrities. Now here's Indra,

19:43

who we met earlier, chatting with

19:46

a famous Indian actress called Bhoomi

19:48

Shetty. And

19:54

Indra says in her everyday life

19:56

now, she's already noticed a change

19:58

in the way people treat her

20:01

on the social media. street. In

20:03

the past people used to look at us and

20:05

move away from us even

20:08

policemen and government officials. Now

20:11

the situation has changed. Today

20:13

I am invited to places and

20:16

offer the seat and some water or

20:18

tea. There is definitely a

20:20

shift in the way people see me which

20:22

makes me happy. Oh

20:28

that sounds really good. Now Claire I know

20:30

that there's a lot of investments in this

20:32

project but it's only happening in one city

20:35

in India and for a limited amount of

20:37

time. Yes although

20:39

they've just secured funding for

20:41

a further three years in

20:43

Bengaluru itself. Now when

20:45

I spoke to Radharani Mitra she said

20:48

she thinks the project would be easy

20:50

to replicate elsewhere with funding of course.

20:52

Right but so how do we measure

20:54

the impact of this? Hmm good

20:57

point. So they have a panel of 1,900 social

21:00

media users and these are aged between 18 and

21:02

45 all recruited

21:05

at random and then survey a

21:08

subset of this panel regularly to

21:10

gauge the impact of the work.

21:12

So they measure for several things

21:15

including awareness of the waste pickers

21:17

and this covers kind of an

21:19

understanding of the waste pickers lives

21:21

and their challenges and they

21:24

also measured for things like empathy

21:26

whether people were more sympathetic towards them

21:29

and they say that has risen from

21:31

33% to 46%. But Claire

21:35

that's just a panel of people

21:37

on social media and arguably

21:40

more inclined towards change but there's

21:42

a much more entrenched attitude about

21:45

the caste system there and the

21:47

idea that people of a lower

21:49

caste do these kinds of jobs

21:53

and this cannot really fix that.

21:55

Hmm yes caste is a huge

21:58

issue and obviously these projects,

22:00

these social media projects, they've introduced

22:02

a lot of glamour. These particular

22:04

waste pickers have had a lot

22:07

of attention and that's all been

22:09

very lovely. But beneath it all

22:11

is the question of caste and

22:14

that was a question I put to

22:16

Rudarani Mitra of BBC Media Action.

22:18

We are not even going there because

22:20

that's just too rooted and too big

22:23

an issue. That's not part of our

22:25

communication objectives and it would

22:27

be foolish and very presumptuous of

22:29

us to imagine that we could

22:31

make a difference. And it's also

22:34

something that India herself talked about.

22:39

Yes, caste discrimination is still

22:41

there. People still differentiate

22:43

between upper and lower caste but

22:46

aren't we people first? There should not

22:48

be a caste system and we must

22:51

all treat each other as people

22:53

first. And that's really it. At

22:56

the end of the day we

22:58

just have to treat each other

23:00

as people first. So thank you

23:02

for what we've heard today Claire.

23:04

Thanks Myra. That brings us

23:07

to the end of today's programme

23:09

but have you come across any

23:11

other ideas that are changing people's

23:13

opinions and changing our

23:15

world? Go ahead

23:17

and send us an email

23:20

about them to peoplefixingtheworld at

23:22

bbc.co.uk and join me again

23:25

next week for more great

23:27

solutions. Until then, thanks

23:30

for listening. Who

23:34

were the Black 14? 14

23:36

football players who were at University of Wyoming in

23:38

1969. 14

23:40

student athletes who paid a heavy price

23:43

for planning a show of support against

23:45

racism. It hit the campus like

23:47

wildfire. Some of it was getting death threats.

23:49

Amazing sports stories from the BBC

23:51

World Service tells their stories. Amazing

24:00

Sports Stories, wherever you get your

24:02

BBC podcasts.

Rate

Join Podchaser to...

  • Rate podcasts and episodes
  • Follow podcasts and creators
  • Create podcast and episode lists
  • & much more

Episode Tags

Do you host or manage this podcast?
Claim and edit this page to your liking.
,

Unlock more with Podchaser Pro

  • Audience Insights
  • Contact Information
  • Demographics
  • Charts
  • Sponsor History
  • and More!
Pro Features