On the sixth episode of the PMS Pathways Podcast, Jackie speaks with Tesi Kohlenberg. Tesi is a mom to a PMS kiddo, but also a physician in her day to day life. From the perspective of both a mom searching for answers and a clinician, Tesi shares with listeners a little about her journey and some tips for speaking to doctors. She provides some background on the healthcare environment and how that shapes many of the choices doctor's make. Tesi provides important insights and recommendations for how to advocate for your child at their doctor's visits, highlighting important questions you want to make sure to ask, as well as how to document a concerning behavior so you can share it with providers. Tesi also briefly discusses the PMS_NCG (the ECHO Project) and a couple of items you can share with your provider if they are interested in participating: Announcing the PMS-NCG, PMS-NCG Intake Form, PMS-NCG TeamIf you have questions or suggestions for future episodes, please reach out to Jackie Jacobs, the Family Engagement Specialist, at [email protected]. PMS Pathways Podcast is written, produced and edited by Jackie Jacobs and is a production of the Phelan McDermid Syndrome Foundation. For more information about the Foundation, our programs, and initiatives, please visit our website at www.pmsf.org.Simply click on the player below to listen. You may also select one of the subscribe options below the player to stay up to date with podcast episodes as they are posted.