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0:03
Welcome to Profound
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conversation to address the
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In an ever evolving world. New
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being are the lights at the end
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of the tunnel. Please join us as
0:36
we participate in critical and
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Profound Conversations impacting
0:40
humanity. I would like to take this
0:41
opportunity to introduce our
0:45
moderator for session two.
0:45
Again, Joia Jefferson Nuri with
0:50
in the public eye
0:50
communications. Joy has coached
0:54
more than 50 C suite executives
0:54
and scheduled written and
0:58
coached 12 TED Talks, including
0:58
her own with to march present in
1:03
fall of 2020. She has written
1:03
and coach congressional and city
1:07
council testimony for DC
1:07
government agencies and human
1:10
rights group. It was our honor
1:10
to deliver the keynote address
1:15
before 53 nations at the
1:15
Organization for Security and
1:19
Cooperation in Europe in Vienna,
1:19
Austria. Joia has also been on
1:24
the leadership teams at NBC,
1:24
CBS, c span and BT working as a
1:29
senior producer, anchor reporter
1:29
and host Welcome back, Joia.
1:35
Thanks, Alex. I appreciate being
1:35
able to do panel too. I'm
1:40
looking forward to this. organ
1:40
transplantation is a process of
1:44
surgically transferring a
1:44
donated organ to someone
1:48
diagnosed with organ failure.
1:48
Many diseases can lead to organ
1:53
failure, including heart
1:53
disease, diabetes, hepatitis and
1:57
cystic fibrosis and injury and
1:57
congenital disabilities may also
2:03
cause organ failure. Many call
2:03
organ donation the elixir of
2:09
life in mid 2007 15, the
2:09
Washington regional transplant
2:14
community, a Northern Virginia
2:14
based organ procurement
2:18
organization, reached out to
2:18
local Islamic leaders on a quest
2:23
to understand on why Muslim
2:23
families were declined to become
2:27
registered organ donors and why
2:27
so many Islamic families would
2:31
refuse to authorize the donation
2:31
of their deceased loved ones.
2:36
Oregon's when they were
2:36
approached by op opio family
2:41
team members throughout the
2:41
following year, the insurance in
2:47
soilwork commonly culminated I
2:47
can talk I can actually talk
2:50
these slowly were accommodated
2:50
in the first of its kind thick
2:54
forum hosted by the
2:54
International Institute of
2:58
Islamic thought and the fig
2:58
Council of North America. The
3:03
goal was to bring thought
3:03
leaders from both the American
3:06
Medical and Islamic community to
3:06
reach a consensus on organ
3:10
donation is their opposition to
3:10
organ transplant procedures
3:16
based on religion, culture, or
3:16
race. If so, why? joining us on
3:23
this panel our thought leaders
3:23
on the topic Amanda hurry Abdul
3:28
Malik is a founding member of
3:28
the soulful Muslims organization
3:35
in DC and the Muslim alliance in
3:35
North America. The Imam is the
3:42
first Muslim chaplain at Howard
3:42
University. Imam. Abdul Malik,
3:48
thank you for joining us. I
3:48
think the Imam hasn't joined us
3:53
yet so we're gonna Joia, Imam Johari will be
3:55
joining late.
3:58
Okay. Very good. Very good. I
3:58
see that we have caller Ross
4:02
here. column has been with ever
4:02
site, one of our co hosts today.
4:09
Since 1997. He's leading its
4:09
international efforts and
4:13
building collaborative
4:13
relationships with overseas
4:18
partners. Thank you, Colin. Is
4:18
it Colin or Colin?
4:22
It's Collin. It has 2 L's. Collin.
4:25
My mom wanted to make sure it
4:25
had two L's.
4:30
Okay, thank you. We also have
4:30
with us Monir, Moniruzzaman. I
4:37
hope I pronounced your last name
4:37
properly, is a medical
4:41
anthropologist in the Department
4:41
of Anthropology. anthropology at
4:45
Michigan State University. Yes, I'm here Joia. So you tried
4:49
very well for pronouncing my
4:53
last name, which is a long one.
4:56
Can you help me say it for me?
4:58
It's many resumes. meneer monir
4:58
is my first name and last name
5:05
is miniroos a man. Okay. Alrighty then I will call
5:07
you Monir. Yeah before you,
5:12
doctor. Because you have a PhD.
5:12
Kelly Ranum, are you with us?
5:18
I am with you. Yes. Hi. How are you today?
5:19
Kelly is the executive officer,
5:25
Louisiana Oregon procurement
5:25
agency, Kelly has been with LPA
5:31
for 23 years holding a multiple
5:31
clinical and managerial
5:35
positions. Over the last 18
5:35
years, she has led the
5:39
organization through numerous
5:39
hurricanes, mass floodings, and
5:43
winter events that are not
5:43
typical for the region. Thanks
5:47
for joining us. Thank you. Okay.
5:47
And she Abraham Kazu Ronnie.
5:55
He is currently also not in
5:55
attendance at the moment.
5:58
And I will read his bio when we
5:58
come up with this. And we also
6:02
have Leslie cup it on me. Do I
6:02
have that right Leslie?
6:09
Compagnone. Compagnone. I love it. Leslie is
6:12
the Director of Community
6:21
Affairs for the Washington
6:21
regional transplant community
6:25
has 20 years of experience and
6:25
as nonprofit in nonprofits
6:30
communications, public
6:30
relations, and community
6:32
education. Miss copan yamane has
6:32
dedicated her career to issues
6:38
of advocacy, working for a wide
6:38
range of nonprofit organization
6:43
and government entities. I want
6:43
to thank you all very much for
6:47
being here with us today. Okay,
6:47
I want to start with this
6:52
question that all of you I want
6:52
to answer is their opposition to
6:58
organ transplant procedures
6:58
based on religion, culture, and
7:02
race. Anybody can get us
7:02
started.
7:06
Oh, I'll go ahead and jump in.
7:06
And this is just to explain my
7:11
background a little bit and how
7:11
I how I come to this ever site
7:16
is an ibank organization. So we
7:16
are, we make the human
7:20
connection between the donors
7:20
and donor families of corneas
7:25
and other eye tissues. And the
7:25
patients who have their sight
7:30
restored through through those
7:30
donations. So it's a it has a
7:33
clinical component to it, but it
7:33
also has a very human component
7:38
to it. One of the important
7:38
parts of our mission at ever
7:42
sight is our international
7:42
outreach. Because corneal
7:46
blindness is not just a United
7:46
States phenomenon. It's it's a
7:51
worldwide need. In fact, there
7:51
are as many as 10 million people
7:55
in the world who suffer from
7:55
untreated corneal blindness and
7:59
can be helped through corneal
7:59
transplantation. So at our site,
8:03
we work in a variety of
8:03
countries and communities around
8:07
the world to help alleviate the
8:07
problem of corneal blindness.
8:11
And one of the ways we do this
8:11
is by helping our local partners
8:15
to build sustainable and
8:15
culturally appropriate systems
8:20
for ibanking and cornea
8:20
donation. Some of the places
8:24
where we work, many of the
8:24
places we work are majority
8:28
Muslim countries, the largest
8:28
program that we've been involved
8:32
in, is our recent program for
8:32
the last few years to build a
8:36
national system for ibanking,
8:36
and cornea donation in Pakistan,
8:41
which is 97%. Muslim country.
8:41
And so we've learned a great,
8:47
great deal, because we found
8:47
that you don't come into a
8:51
setting like that as the outside
8:51
expert and start prescribing
8:55
what needs to happen, the first
8:55
thing you have to do is you have
8:58
to learn and you have to listen.
8:58
And we've learned a great deal,
9:03
just from that process of
9:03
listening and speaking with
9:06
many, many stakeholders in the
9:06
community. And one of the
9:10
lessons that we've learned is
9:10
that while every community is
9:15
unique, there are also some real
9:15
commonalities in what we find as
9:21
far as the the challenges, the
9:21
misperceptions, the the myths,
9:25
the fears, the things that make
9:25
this a difficult topic for
9:30
people in communities are very,
9:30
very common across all
9:33
communities, although expressed
9:33
in in different ways in
9:38
different sort of frames, if you
9:38
will. So, for example, when you
9:44
ask someone in Pakistan, if you
9:44
start a conversation about
9:50
anatomical donation, whether
9:50
cornea donation, organ donation,
9:53
very often the response will be
9:53
something along the lines of I'm
9:57
not sure if my religion supports
9:57
that or my My religion doesn't
10:01
support donation, what that
10:01
usually means is they have not
10:07
been addressed culturally, this
10:07
topic has not really been
10:10
addressed culturally in that
10:10
setting, in a way that resonates
10:14
with that community. So there
10:14
may or may not be a truly a
10:19
religious component to it, but
10:19
there is very definitely a
10:23
cultural component to it. And
10:23
it's it's very, very, that part
10:27
of it, while expressed
10:27
differently and needs to be
10:30
addressed differently in
10:30
different communities also has a
10:32
strong element of universality
10:32
across many communities.
10:36
Monir are you comfortable with
10:36
addressing that in the religion?
10:43
I'm so sorry, that the sheikh
10:43
and Imam are not with us yet?
10:49
Yeah, just, you know, it would
10:49
be good idea to start with my
10:55
own work to have a context of
10:55
it. So I have been working on
10:59
human organ trafficking. So
10:59
that's my major area of research
11:03
and last 15 years or so, and
11:03
particularly looking in
11:08
Bangladesh and India and South
11:08
Asia mostly, that's the where I
11:11
am working, you know, for the
11:11
last 15 years or so, so, I have
11:16
been looking at the organ
11:16
transplantation which
11:19
established you know, 1971 and
11:19
onwards and how it has also
11:24
created a black market of human
11:24
organs as you know that there is
11:28
a serious shortage of organs the
11:28
demand and supply there is a you
11:34
know, huge gap and that propels
11:34
you know, those black market
11:38
where people can buy and sell
11:38
human body parts so that's the
11:42
research I've been doing it and
11:42
so particularly these you know,
11:47
forearm is really interest me
11:47
sparked my interest a lot
11:51
because people are what calling
11:51
he was describing that you know,
11:56
most of the people they don't
11:56
know what the implications of
12:00
donating a human organs and
12:00
saving somebody's life. Often,
12:05
you know, the all of the world
12:05
forums, the religious forums,
12:09
they came up with a you know,
12:09
statement, all the major
12:13
religion in the world, they
12:13
accept organ donation for saving
12:17
lives of somebody, I know, we
12:17
all gonna die, and even surely
12:21
know, somebody said we're born
12:21
to die in that sense. And these
12:25
organs going to be wasted in
12:25
that sense, you know, because we
12:28
either we're going to be buried
12:28
or cremated and those are going
12:32
to be wasted, why not saving
12:32
somebody is live and recycling
12:37
our body parts so that somebody
12:37
can you know, live longer and
12:40
see the lights of this world. So
12:40
there is a serious
12:45
misconceptions is going on all
12:45
the religious community, they
12:50
accepted organ donation not
12:50
buying and selling, which is
12:54
like, you know, no major
12:54
religion, they accepted it.
12:57
Because it's a God's body and
12:57
you know, people should not cash
13:01
on by selling it, you know, to
13:01
to anybody, you know, for
13:06
profiting. So the problem is in
13:06
here is the misconceptions. And
13:12
that is the biggest thing. And
13:12
many of these communities they
13:16
don't know, you know, they are
13:16
not our fate, that those
13:21
religious doctrines, they
13:21
accepted organ donation, there
13:24
are also different fatwas is
13:24
happened in Islam in other
13:28
religion, one group of Pharaoh,
13:28
Islamic, you know, fatwa, like,
13:34
you know, they follow that
13:34
doctrine that this is, okay.
13:38
Other group, you know, they
13:38
don't accept it, there is this
13:42
kind of, you know, dialectical
13:42
relationships between those two
13:46
groups, between few groups, you
13:46
know, I see. So these are some
13:51
of the problems and and that's
13:51
what there is the
13:54
misconceptions, you know, if we
13:54
work on it, and there is a big
13:59
number of people who are going
13:59
to stay forward and and even
14:03
community needs them, you know,
14:03
there is within the community,
14:07
you know, there is a need for
14:07
our guests, and there is not
14:10
enough supply. So that's what
14:10
where these problems are
14:13
happening. And, and rightfully
14:13
so what Colin described from
14:17
Pakistan, about his work. Yeah, and if I could piggyback
14:19
on that, Joe. Yeah, we're
14:24
calling a doctor morning we're
14:24
talking about is exactly
14:28
applicable to the work that I'm
14:28
doing in community education in
14:32
the DC metro area. I think we
14:32
all know now the world is
14:35
completely connected. We are no
14:35
longer singular countries. I
14:39
mean, we are all completely
14:39
connected and doing health
14:44
community education in the DC
14:44
metropolitan area. As you can
14:47
probably imagine, we have an
14:47
extraordinarily diverse
14:50
community, very transient
14:50
community. The latest US Census
14:55
data said that the DC
14:55
metropolitan area has the Lord
15:00
concentration of newly entered
15:00
Muslims in the country. So, and
15:06
they come with some of those,
15:06
those misconceptions and
15:12
preconceptions, but also their
15:12
reality they come from countries
15:16
where organ trafficking happens,
15:16
you know, so they are coming
15:20
from, from that context of an
15:20
inequity and of health risks and
15:25
of sort of that, that black
15:25
market scary feeling. So I
15:30
always tell my staff, like we
15:30
have to understand and meet
15:32
people where they're coming
15:32
from, and then have the
15:36
conversation with them about the
15:36
differences in the transplant
15:39
system here in the United
15:39
States. In that, you know, we do
15:43
not buy sell barter trade
15:43
organs. And also to the the very
15:48
first question of the religious
15:48
component, I agree with with the
15:53
panelists is a lot of people
15:53
don't understand that their
15:56
religion does support it. Also,
15:56
when you're in that moment, and
16:02
someone asks to authorize
16:02
donation on behalf of someone
16:06
you've just lost, the easy
16:06
answer to just shut that
16:09
conversation down is to say it's
16:09
against my religion. You know,
16:13
that's the easy, easy answer I
16:13
want out of this conversation. I
16:17
don't want to entertain it.
16:17
That's the easy answer. So
16:20
there's, as you can see, there's
16:20
a lot of challenges that we
16:25
face, and hence why, you know,
16:25
why cisi started asking the
16:30
question five years ago, is it a
16:30
good religion? If you're Muslim,
16:35
we just didn't know. So we
16:35
started on that on that journey.
16:38
Kelly, would you like to chime in here? Before we? Yes, I also think that, you
16:41
know, the congregation or the
16:48
people that go to the different
16:48
religions are? No, they're not
16:52
aware. But then when you get to
16:52
their faith based leaders, they
16:56
don't know the answer, either.
16:56
And so there's that kind of lack
16:59
of guidance, or I'm not sure I
16:59
haven't had to address this yet.
17:03
And so I think, you know, it
17:03
behooves us to be out there and
17:06
educating everyone in the
17:06
community. And I also think that
17:10
there's just a general mis top
17:10
mistrust of the healthcare
17:14
system, regardless of where
17:14
you're at, it's very prominent
17:18
in the southern half of this
17:18
country, that there's just a
17:21
distrust about medicine and how
17:21
we're gonna be taken care of,
17:24
and, you know, do you just want
17:24
my organs and you're not going
17:27
to save me. And so I think that
17:27
gets compounded when you start
17:32
talking about different
17:32
religions, different cultures,
17:36
and people coming here from
17:36
other countries. And, you know,
17:39
there's a lot of myths to be
17:39
dispelled.
17:43
As the African American
17:43
community, separate from the
17:48
Islamic community is very leery
17:48
of organ donation because of the
17:54
Tuskegee experiment. And for
17:54
those of you who don't know,
18:00
about four years, I think 14
18:00
years, syphilis was allowed to
18:08
run rampant in African American
18:08
men, as an experiment to see
18:14
what would happen if you don't
18:14
treat syphilis for the number of
18:18
years. That stay thing. And I'm
18:18
an organ donor. So when I talk
18:24
to others about doing it, I
18:24
don't care how old they are, or
18:27
how young they are. They say
18:27
tests or they are afraid that
18:33
your organs will be more
18:33
valuable to save a white person.
18:37
So don't take your organs before
18:37
you're dead. And so that is a
18:43
real fear. And I think we have a
18:43
mom Johanna with us now. The
18:48
mom. I see is not responding. So
18:48
we'll wait. So that is a real
18:54
fear. Greetings, I I am here.
18:58
Oh, welcome, mom. How are you?
19:01
Good, good. And in the age of
19:01
Corona, you can wind up being
19:06
anywhere on a webinar.
19:09
Yes. And I'm actually out of flight
19:10
that's delayed.
19:15
Okay, so we will be at the airport, but I'm, I'm
19:18
ready to join you. Okay, well,
19:22
let me bring you up to speed
19:22
sir. You can see the other
19:26
panelists who are here with us
19:26
and we've been awaiting you. The
19:30
question I asked at the
19:30
beginning of the program is we
19:33
set up organ donation and let
19:33
people know what it means. And
19:37
we let them know about the fic
19:37
forum that happened in 2016. But
19:42
the first question was, are
19:42
there religious blocks to
19:50
whether or not an organ donation
19:50
is right or not?
19:56
Well, you know, I'm gonna go
19:56
back to your your Comments
20:01
around the syphilis experiment
20:01
with African Americans, because
20:08
I think what's at the heart of
20:08
many of these issues is
20:13
folklore. Not not so much issues
20:13
of religious rulings. But of
20:20
course, culture, almost in many
20:20
cases has the weight of law. And
20:27
so, as you talk to Muslims, it
20:27
particularly at the difficult
20:33
times when someone is, is
20:33
experiencing a loss, it is a
20:38
time when those cultural
20:38
feelings bubble up. And because
20:44
of a lack of of knowledge about
20:44
what what the Quran says itself,
20:50
people will then lean toward
20:50
those cultural norms. And they
20:55
have their fears about the
20:55
misuse, the fundamental issue
21:01
that people raised is they say,
21:01
Okay, well, if my person is, in
21:04
fact dead, is their body being
21:04
mutilated, because there is a
21:12
narrative about the Prophet
21:12
Muhammad peace be upon him
21:15
saying that the bodies of the
21:15
dead should not be mutilated.
21:19
And this comes out of a context
21:19
of war, where people will abuse
21:24
the bodies of Muslims, who have
21:24
succumbed in battle. And so he
21:30
said, We don't do that. And so
21:30
that's where that that, that
21:34
that sense comes from, among
21:34
most Muslims knowing that that
21:39
tradition, and so they then say,
21:39
well, then you can't cut the
21:44
body of my deceased loved ones.
21:44
But when we look at the
21:50
overarching rules, the Quran
21:50
says, and the Quran is the
21:55
definitive Word of God. If you
21:55
can save the life of one person,
22:00
it would be as if you saved all
22:00
of humanity. And so we'd like to
22:04
think of this is as life giving,
22:04
not as someone damaging the
22:11
remains of someone who was
22:11
alive. And you will be surprised
22:16
once once people learn, and
22:16
place in context, these
22:21
competing folk narratives, and
22:21
that they are in a relationship
22:25
with people whom they trust, so
22:25
that they don't think they're
22:28
part of the syphilis experiment.
22:28
They actually think that these
22:33
are people who mean well, for
22:33
their loved one, they in turn,
22:36
will become individuals will
22:36
say, let me think about it. And
22:40
if you can say, I spoke to any
22:40
mom, and the mom taught us, and
22:48
if you like, I can give you that
22:48
mom's phone number. I'll put you
22:51
in contact with them. So now you
22:51
become a credible messenger. You
22:56
become someone? Can you tell us where in the
22:57
Quran we can find that if you
23:00
save the lives of one person you
23:00
save the lives of all of
23:04
humanity? Isn't a fifth chapter. Karima
23:06
have to help me out with the
23:09
verse. Okay, already? And maybe I'll
23:10
have that in the chat. And we
23:13
can tell people what that is. D then D.
23:18
How is it we there was indeed a
23:18
fic that came to an agreement
23:25
about organ donations for the
23:25
Muslim community, is that being
23:33
taught in the mosque is that
23:33
being spread throughout the
23:35
community in the United States
23:35
at least?
23:38
Well, you know, the wonderful
23:38
thing, and I apologize, I'm
23:43
literally at National Airport.
23:43
Good, good. I'm gonna I'm gonna
23:53
put my mask on. You know, over
23:53
the, over the past few years,
23:58
with the help of my dear friend,
23:58
Leslie Compagnone we were able
24:04
to present at national Islamic
24:04
conferences, which then becomes
24:10
part of the the record of Muslim
24:10
activity in America, discussing
24:17
this at the Islamic Society of
24:17
North America's conference,
24:21
which is attended by over 30,000
24:21
Muslims. So, so we've had many
24:27
opportunities outside of the
24:27
academic environment to begin to
24:32
present this information. And that is, and Kelly can
24:34
probably, yeah, yeah, I was
24:42
gonna say, you know, part of the
24:42
ongoing challenge that we're
24:46
facing is to then get that
24:46
information into the hands of
24:52
moms across the country, just as
24:52
email jamario was saying, for
24:57
them to be those credible
24:57
messengers. You know, it's it's
25:02
great to have the fatwa. But if
25:02
nobody knows about it, what good
25:07
is it? You know, so so I know
25:07
Kelly's got a staff of community
25:13
educators at her opio, just like
25:13
we do, who do that hard work of
25:17
going out in the community. And
25:17
that's not only educating the
25:21
Muslim population in that
25:21
community, but also teaching the
25:24
teachers teaching the Imams,
25:24
then how to then guide people
25:29
through that that discussion.
25:29
And so that's the ongoing work
25:31
right now. And that's really the hard work. Yeah, indeed, I mean, but it is,
25:33
it started out as a bottom up
25:41
going to conferences and, and
25:41
coming to local mosques to get a
25:45
buy in. And then moving all the
25:45
way to the top, getting a
25:53
National Board of well respected
25:53
scholars in America to join with
25:57
the opinions of scholars from
25:57
other countries. In saying that
26:01
this is something that that we
26:01
can do, and in some scholars
26:06
have even said, something that
26:06
we should do. Now, the challenge
26:11
is, as Leslie was saying, is to
26:11
get into the weeds to go out
26:14
into the local Mawson
26:14
communities. And I think really,
26:19
a lot of that work is going to
26:19
be partnering with Opie O's.
26:23
Partnering with opioids, working
26:23
with their local mosque, having
26:28
the community discussions, and
26:28
Muslim life planning is, is
26:32
really looking to be a partner
26:32
with opioids around the country
26:36
to get that work done. I have a question if you elicit
26:37
the aid of Muslim doctors.
26:46
And, in fact, the panels. Yes,
26:46
the panels that were hosted at
26:54
the national conferences were in
26:54
the in the section of the
27:00
conference organized by the
27:00
American Muslim Medical
27:03
Association of North America. So
27:03
now, the next step is now that
27:08
their national association has
27:08
endorsed us, is then for those
27:12
in local communities to be
27:12
shoulder to shoulder as Imams,
27:16
physicians, and community
27:16
leaders and op OHS all meet
27:20
together and local communities
27:20
to have this discussion. The key
27:24
is, there are there are places
27:24
where American Muslims gather to
27:30
look at end of life issues. The
27:30
fifth pillar of Islam is to
27:36
perform the pilgrimage to Mecca
27:36
once in your life if you're
27:39
able. Everyone who makes that
27:39
journey knows that they have to
27:44
fill out and make a will. And so
27:44
it's at the time of having that
27:50
discussion about the pilgrimage
27:50
to Mecca, which happens
27:54
annually. It's the largest
27:54
annual religious migration on
27:57
Earth. That, that we enter that
27:57
conversation at that time to say
28:04
while you're thinking about your
28:04
will and the pilgrimage to
28:07
Mecca, think about making an
28:07
eternal gift. A gift that the
28:13
Prophet Muhammad said that three
28:13
things remain after a person
28:17
dies. One a perpetual charity to
28:17
knowledge that benefits and
28:22
three a righteous child. And so
28:22
this is one of those things that
28:27
a person could give and would be
28:27
a perpetual donation to life
28:32
even after they have passed. Now, when when Collin was
28:34
speaking before you can one man
28:39
let him speak? real challenge
28:39
about getting donations of the
28:47
cornea for I don't lecture for
28:47
that organ donation.
28:52
Yes. The column when you talk to the
28:54
Mom, can you share with him?
28:59
I'm familiar with this discourse. Okay, okay, so we're shoulder to
29:04
shoulder. And do you know, we're
29:10
near who is also with us? Who
29:10
has the same problem with people
29:14
being fearful of harvesting?
29:14
Oregon?
29:18
Oh, weird. Oh, yeah. Well, I can
29:18
tell you now, we can't use the
29:22
word harvest or some other word.
29:32
what you were saying about your
29:32
work Yeah, come
29:36
on in. Hi. Yeah, my microphone was off. So,
29:39
you know just I was explaining
29:43
before we came in that my work
29:43
is looking at the people buying
29:48
and selling human organs. So
29:48
this is another D. humanize form
29:52
of in treating other humans are
29:52
part of we dislike in a donation
29:58
Can you know stop Those kind of
29:58
practices, so if you donated
30:03
like in our own body person
30:03
after death and, and saving
30:07
somebody's life, that's gonna
30:07
have a, you know, different kind
30:11
of impact, for example, the
30:11
black market cannot shrink, then
30:14
because it's going to be reduced
30:14
because be more and more people
30:17
are coming forward to donate
30:17
their organs. So, donation is
30:21
the key and, and is very
30:21
important, like, you know, to
30:25
save somebody's life, that's
30:25
what blood transfusion is one of
30:29
the thing you know, which first
30:29
came out, it's not written in
30:32
Quran, but you know, change over
30:32
time. And so, blood transfusion
30:38
is becoming a common thing
30:38
nowadays, cornea donation is,
30:41
you know, another aspect of it.
30:41
And so, so does the same way
30:46
that you know, our body parts,
30:46
you know, we can recycle it, we
30:49
can save other people's lives.
30:49
And that's the message, you
30:53
know, to, to conveyed to the
30:53
community. And that's what were
30:58
the discussion is very
30:58
important, you know how to do
31:00
so. Kelly, I'd like to hear your
31:01
thoughts on this, this
31:03
conversation. Well, while Kelly's trying to, I
31:06
did, I didn't want to share
31:11
something that when we when we
31:11
encounter Muslims in America,
31:16
who come from countries like the
31:16
Indian subcontinent, India,
31:21
Pakistan, Bangladesh, Gulf Gulf
31:21
countries, there is a black
31:27
market. And we have to explain
31:27
to them that in America, people
31:33
can't it's illegal to sell
31:33
organs. That it's illegal. It's
31:38
not a practice that we engage
31:38
in, in the United States. And
31:41
sometimes people are skeptical
31:41
because they know what happens
31:44
back home. So we're Kelly, I'm
31:44
gonna leave that to you.
31:48
Thank you, I. So the word
31:48
instead of harvest is to
31:52
recover. So if you're looking
31:52
for what to use, I guess they
31:57
often say harvest is for fields
31:57
and not for people. So we
32:00
recover and transplant organs. I
32:00
think that the unfortunate side
32:06
of the black market is that it
32:06
does exist outside of this
32:08
country. And it is often hard to
32:08
have the faith that the same
32:13
things don't exist over here.
32:13
And you know, yet another I
32:18
think as we start becoming more
32:18
of a one nation, right, instead
32:23
of different countries, we have
32:23
to consider those, you know,
32:29
that background and what people
32:29
are coming into the United
32:32
States with as an experience.
32:32
And we have to although we know
32:37
it's against the law here, and
32:37
it wouldn't happen. That doesn't
32:41
mean it doesn't happen in other
32:41
countries. And so I think we
32:43
have that responsibility to
32:43
educate, on things that just
32:47
fall outside of what we normally
32:47
experience. And I think that's
32:51
all part of trying to build a
32:51
trust in the system as a whole.
32:58
And you know, we are part of the
32:58
healthcare system, we aren't
33:00
always seen as part of the
33:00
healthcare system. And you know,
33:04
you often get people to say yes
33:04
to receiving an Oregon but then
33:07
they'll say, No, I don't want to
33:07
donate. And so I think we have
33:10
to bridge that gap and education
33:10
and trust through the community
33:14
through faith based leaders is,
33:14
is, for me, the only way to
33:18
really get that message out,
33:18
because it's starting with a
33:21
community that that has a belief
33:21
system and wants to help them
33:26
wants to do good things. And
33:26
then we spread from there.
33:31
This is this is absolutely
33:31
agree, this is something we've
33:36
confronted in our work in
33:36
Pakistan for an example, which
33:40
as Muneer pointed out, is one of
33:40
the one of the countries that
33:42
unfortunately, has had a problem
33:42
with illicit activity. And the
33:48
only way that you overcome that
33:48
is by building trust, which is a
33:54
painstaking process, because
33:54
it's very easy to lose trust,
33:57
and it's a very long term, you
33:57
know, process of engagement to
34:02
gain and build trust. One of the
34:02
keys that we found is the
34:07
institutions that are doing that
34:07
engagement, having the right
34:12
institutions being being engaged
34:12
with that institutions that are
34:15
already trusted on some level by
34:15
the community. Oh, we we have
34:22
found overcomes that particular
34:22
fear, actually quite well, it's
34:27
there, and you have to address
34:27
it. But we've actually found
34:31
that part of it not to be the
34:31
most intractable problem,
34:34
because when you have an
34:34
institution that's got a
34:37
relative degree of trust with
34:37
the community, and they see the
34:40
program being carried out in a
34:40
way that is well controlled,
34:46
that is respectful of the
34:46
community and its values. That
34:52
puts people much, much more at
34:52
ease. And there are many other
34:56
issues that we found that are
34:56
actually more persistent. Then
35:00
that fear of illicit activity,
35:00
although that is absolutely
35:04
something that, you know, needs
35:04
needs to be addressed this. I
35:07
think also, this topic points
35:07
out that interconnectedness that
35:10
we talked about earlier between
35:10
US and international communities
35:15
that as we start to address, you
35:15
know, put systems in place that
35:19
address the the illicit activity
35:19
problems in other countries.
35:23
Over time, the hope would be it
35:23
will be less and less the case
35:27
that people coming from those
35:27
countries to the US will have
35:31
that baseline assumption that
35:31
there's something shady about
35:34
this because they're, they'll
35:34
come from a country where there
35:38
is a functioning system in place
35:38
that's ethically sound and well
35:41
controlled. It's a long term
35:41
process might take a decade
35:45
might take two decades. But
35:45
that's you have to start
35:47
somewhere. Right? Okay, so I'm gonna wave
35:48
my magic wand. Going to allow
35:56
each of us each one of you to
35:56
set policy in this set a
36:02
message? How do we get this done
36:02
on a national level, at a global
36:09
level to one, let the community
36:09
know that they are supported by
36:14
words from the Quran. And that
36:14
organ donation is the elixir of
36:20
life. It helps save your family
36:20
member and it gives you this
36:26
save somebody else. So I'm going
36:26
to waive this one to let you all
36:31
marinate on it for just a
36:31
second. And I hope other people
36:35
who have already joined our chat
36:35
will marinate on this also
36:38
marinate. It's one of my
36:38
favorite words, to contemplate
36:42
this question. And
36:51
I'm going to let him get through
36:51
security. And then
36:56
I'm good to go right now. Okay, so I'm waiting
36:59
on my magic wand. And there's no budget. There's
37:01
no limit.
37:07
Exactly what to do. Okay. If we
37:07
could get Muhammad Ali, to go on
37:15
national television,
37:15
international television as a as
37:18
an American Muslim, to say I'm a
37:18
organ donor right here. And I
37:26
encourage everyone to join us.
37:26
And we came in at that level. We
37:30
have no problems. So we're not going to
37:35
we had a magic wand had a magic
37:35
wand. Yes.
37:39
That's right. It was a magic
37:39
wand. I can't limit magic wand.
37:43
Right. So I guess we'd have to
37:43
get to Hakeem Olajuwon or you
37:48
know, Kareem Abdul Jabbar or
37:48
somebody like that. Yeah. The
37:55
Mt. Hajj, Mohammed, the fencer.
37:55
She was in the Olympics to let
38:00
her go into the Olympics again,
38:00
and win a gold medal and come
38:05
out and say, I want everyone to
38:05
know that me to hatch with with
38:09
our sword up like that. Yes. I
38:09
encourage you to save a life by
38:15
by signing up and donate. Okay, I would go delicious
38:17
campaign. Okay,
38:21
there you go. We just we just
38:21
probably need like a million
38:23
dollars. So that's all but mad
38:23
magic wand, no budget. she would
38:34
probably do it for me for free.
38:34
As long as we had the ads paid
38:37
for. Right. We had the ads paid for
38:37
all right. There's that strategy
38:40
number one. Okay, I'm gonna go.
38:40
Okay, I'm gonna go to Kelly,
38:44
what would you? Oh, so many things. There's a
38:46
lot of carryover from the first
38:51
session. I think if I could wave
38:51
a magic wand and change the
38:57
health that exists, particularly
38:57
in the minority population would
39:01
be the first place I start
39:01
because if we could prevent them
39:04
from needing an organ
39:04
transplant, or prevent them from
39:09
dying of a brain death, because
39:09
they didn't take their
39:12
medication or because they
39:12
couldn't afford to take their
39:14
medication, then we don't have
39:14
donors so or if they could stay
39:19
healthy and something that
39:19
tragically happened, they became
39:21
a donor, they could donate their
39:21
organs and so their organs
39:24
wouldn't be unhealthy. And so I
39:24
think, for me, improving the
39:29
health of the population would
39:29
go a long ways in in showing
39:35
that faith and and giving an
39:35
opportunity to trust the
39:39
community that this is just a
39:39
regular everyday occasion. This
39:42
is kind of a rarity, but you
39:42
have an opportunity to do it.
39:45
And we've done everything as a
39:45
community around you to keep you
39:48
healthy, and keep you safe.
39:48
Things happen, unfortunately,
39:53
but that would be my magic one,
39:53
make the world a better place.
39:57
Thank you Kelly. We'll take that
39:57
Collin
40:01
Kelly's answer is better than
40:01
mine because she focused on
40:04
prevention, which as we know, is
40:04
and the health of the community
40:06
which our entire first session?
40:06
Oh, yeah, no, it's much, much
40:10
better answer. But my own
40:10
inadequate answer is that I
40:14
would actually, I would put in
40:14
place a comprehensive program of
40:19
cultural competency for all of
40:19
the eye banks and Opie O's in
40:24
the United States, because I
40:24
think these issues are common,
40:27
not just to our Muslim
40:27
communities, in all of the areas
40:31
that we serve across the US, but
40:31
in many, many minority
40:34
communities, many historically
40:34
underserved communities, as I
40:37
said, there's a universality to
40:37
these issues that's expressed in
40:41
different particular ways, but
40:41
it's that it's on that universal
40:44
basis that I think we should be
40:44
addressing it. And so I would
40:47
put in place comprehensive
40:47
programs for training and
40:49
education in cultural competency
40:49
for ibex and opms. Okay,
40:53
thank you very much. Monir?.
40:57
Yeah, so there is these are good
40:57
conversation. And I think, you
41:01
know, it's one thing not going
41:01
to feed for all in that sense,
41:05
because every community is
41:05
different and unique, you know,
41:09
so, the key thing is like, is
41:09
our harness. So that's what were
41:14
the key key word is like
41:14
informing community, that saving
41:19
life is not going against your
41:19
religion. So that's the basic
41:23
message in here. And I trust
41:23
very much that community members
41:29
will step forward, if the
41:29
message is right. And it say,
41:34
you know, we see that community
41:34
have this spirit, you know, and
41:38
that's the way even vote, this
41:38
vote happens, you know, I
41:41
encourage my students, and they
41:41
went and vote like, we can see
41:45
the eyes turn around. So these
41:45
are the situation, you know, the
41:48
weekend, if you motivate people
41:48
with clear message, and that
41:53
would be the key thing in here,
41:53
I just wanted to mention that I
41:58
was invited by Pope Francis at
41:58
the Vatican to get you know, a
42:01
group of people around the war.
42:01
So we went, we crafted a
42:05
document, and Pope Francis sign
42:05
it, and we signed it, and we
42:11
distributed all over the world,
42:11
in the religious institution. So
42:14
all over the world. So from the
42:14
Islamic community, you know, the
42:19
Imam was talking about, maybe
42:19
from Makkah, or, you know, this
42:24
kind of, you know, a force like,
42:24
where it's going to be
42:28
distributed all over the mosque.
42:28
And that could be the first
42:32
thing that, you know, those
42:32
confusions and what it is there
42:35
that can be reduced in many
42:35
ways. And then the, you know,
42:39
Emacs can spread out to the
42:39
community, with the clear
42:43
message that, you know, saving
42:43
life is not against Islam or any
42:47
other religious groups, you
42:47
know, so there is a lot of work,
42:51
but our harness is the key in
42:51
here. And if it is properly, you
42:56
know, in, people are properly
42:56
informed, I don't see any ways
43:00
that you know, people are not
43:00
going to stay forward, that's
43:03
happening, blood donation, that
43:03
that's happening in cornea
43:06
donation to some, you know,
43:06
extend and so, so this is the
43:10
key in here. And that's what
43:10
what I can think of, like, you
43:13
know, but again, there'll be
43:13
different layers of like, you
43:17
know, this our needs and
43:17
community level, like, you know,
43:20
in a bigger institutional level,
43:20
so those kind of things are very
43:23
important. And last, but certainly not
43:25
least, Leslie,
43:28
my magic wand. If I had a magic
43:28
wand, I would wave it in the
43:33
hopes that everybody in this
43:33
country can learn to see organ
43:39
donation as a societal
43:39
responsibility. You know, it is
43:45
it is, it is part of the good of
43:45
society. I don't want to make it
43:51
mandatory. We I don't opt for
43:51
it. I opt out. system, I think
43:56
you should be asked to the
43:56
question and you should opt in.
44:00
But I think it should be easy
44:00
for people to say yes, because
44:03
the wand has been waived that
44:03
they see donation and organ
44:06
donation. As part of what makes
44:06
this country great. What makes
44:12
the society great, what makes
44:12
your responsibility to your
44:15
fellow man. Great. So I would
44:15
love to see it as part of the
44:19
social contract of the country.
44:23
We have unfortunately run out of
44:23
time for this panel. I think we
44:27
could go on for another hour
44:27
because I have four questions I
44:30
did not get to. But I've enjoyed
44:30
this conversation. I hope our
44:35
audience has enjoyed our
44:35
conversation. And I love what
44:38
Leslie just said is our social
44:38
content contract with one
44:42
another around the world to keep
44:42
the next one alive. That is a
44:50
social contract we're doing with
44:50
COVID what we're doing with
44:53
social justice, and what we
44:53
should be doing what Oregon
44:56
trends plans to keep The next
44:56
one alive, healthy well and
45:03
whole. I want to thank everyone
45:03
for being here. I want to thank
45:07
the audience. And it has been a
45:07
pleasure for the things that I
45:12
have learned. And hopefully the
45:12
audience has learned as much, if
45:17
not more, and is motivated. I'm
45:17
gonna hand the program back to
45:21
Alex. And it's been a pleasure.
45:21
Thank you all.
45:26
Thank you so much, Joia. And
45:26
thank you, panelists. That was a
45:29
wonderful session. So I think
45:29
Linda will be joining us from
45:33
MLP AI, as well as Colin Ross
45:33
from Eversight.
45:38
Hi, Alex. Everyone's completed
45:38
the polls.
45:41
Yes, we'vekind of leveled out. Okay, we since we have leveled
45:43
out, I'm on. I'm Linda Howard
45:50
and I am the Chief Compliance
45:50
and impact officer for Muslim
45:54
life planning Institute. And
45:54
both sessions were wonderful
45:59
sessions. Enjoy it. for your
45:59
excellent moderation of both of
46:07
those sessions. And I would like
46:07
to ask a favor of you. I'd like
46:13
to borrow your magic wand. So
46:13
thank you very much for both
46:23
sessions. They were absolutely
46:23
magnificent. We want to MLP I
46:30
would like to just acknowledge
46:30
are a few people in in
46:35
organizations aracite Global
46:35
ibank and that work, Michigan
46:40
State University, the
46:40
Association of Oregon
46:44
procurement organizations, Henry
46:44
Ford hospital system, john
46:49
hopkins, Bloomberg School of
46:49
Public Health, access community
46:54
health and Research Center,
46:54
numerous children children's
47:00
hospital system, the Islamic
47:00
center of America, Washington
47:05
regional transplant community,
47:05
the Louisiana Oregon procurement
47:11
agency, and all of the Friends
47:11
of Muslim life planning
47:16
institute that have supported us
47:16
in our Profound Conversations,
47:22
our ideation lab, in these two
47:22
arenas, so thank thank all of
47:28
you for your participation. We
47:28
also like to acknowledge and
47:33
thank our Profound Conversations
47:33
lists, and of course, our hosts,
47:38
Julia Jefferson, Nori. And if
47:38
you missed the first session of
47:46
our arena, we had Dr. Pan Agus,
47:46
Molly Mac Mackey, Dr. bossy Dr.
47:55
Jesse, Dr. Walker and Steve
47:55
Miller, and I'm not sure if any
48:00
of them are still with us, but
48:00
we'd like to acknowledge and
48:04
thank them and for our session
48:04
to doctor and let me see if I
48:10
can get this right. Is it Monir?
48:33
Dr. Mr. tahari, as well. And
48:33
we'd also like to thank Detroit
48:41
Medical Center, the DMC
48:41
Foundation, gift of life
48:46
Michigan and gift of life
48:46
foundation. And I want to
48:50
acknowledge just a couple more
48:50
people that's that has been a
48:55
part of this and have not have
48:55
not spoken and s Jessica boo,
49:01
Maya Mart Mart, Taya Taita Alex
49:01
Tesco and Amanda, Frederick's
49:11
system. So thank you all for
49:11
your participation and for
49:16
making this possible on behalf
49:16
of Muslim life planning
49:19
Institute. And on that note, I
49:19
will turn it over to column with
49:23
two L's thank you i.
49:26
The lesson here for me is I'm
49:26
going to change my name to
49:28
something more complicated. I
49:28
would like to, I have a number
49:36
of things as well. I'd like to
49:36
start by thanking our our
49:40
sponsors, again are providers of
49:40
grant funding for this event,
49:44
the DMC foundation part of the
49:44
community foundation of
49:47
Southeast Michigan and the gift
49:47
of life, Michigan Foundation,
49:50
their support not only enabled
49:50
this program today, but all of
49:55
you know as Linda mentioned, the
49:55
ideation labs, all the
49:57
development work all the
49:57
learnings and connections that
50:00
went into this, all of which
50:00
were extremely valuable. And all
50:03
of that was made possible by DMC
50:03
foundation and gift of life
50:06
Michigan foundation. So we thank
50:06
them very, very much. I would
50:10
also like to thank Joya so much
50:10
did such a great job moderating
50:16
for us. It was great to meet you
50:16
virtually, inshallah, maybe
50:19
someday in person, but wonderful
50:19
to share this time and
50:23
experience with you. Also, both
50:23
of our sets of panelists as well
50:27
thank you so much for sharing
50:27
your wisdom with us. And being a
50:32
part of our event today. Thank
50:32
you to all of our attendees as
50:37
well, thank you for allowing us
50:37
to share this time with you. And
50:40
I hope that it was as valuable
50:40
for you as it was for us. And
50:46
like to thank my colleagues at
50:46
ever sight, Alex Teske, Amanda,
50:49
Frederick, Ramona, bonjour, and
50:49
many others that ever sight made
50:53
made this possible today. And
50:53
last, but absolutely not least,
50:56
I want to thank our partners
50:56
that Muslim life planning
50:59
Institute, Karim Ali, Linda
50:59
Howard Samuel Shareef. It's been
51:03
an absolute honor and a
51:03
privilege to share this journey
51:08
with you. And it's been quite a
51:08
journey, especially because of
51:10
COVID put us back, we should
51:10
have been doing this six months
51:13
ago and in person. And it would
51:13
have been really great. This was
51:15
really great also. So thank you
51:15
all for all of the the work and
51:20
heart and soul that you've put
51:20
into this. It's been great to
51:23
share this mission and I look
51:23
forward to our future adventures
51:26
together. So thank you,
51:26
everyone. And I believe this
51:30
concludes our program for today. Thank you for joining our
51:36
Profound Conversations. If you
51:39
found this episode helpful,
51:39
please subscribe to our podcast
51:42
and then gift this information
51:42
to a friend or family member
51:45
using the share button. You can
51:45
find our show on all social
51:49
media platforms as well as on
51:49
our website at Profound
51:53
conversations.com Profound
51:53
Conversations executive
51:57
producers are the Muslim life
51:57
planning Institute and national
52:00
community building organization
52:00
whose mission is to establish
52:04
pathways to lifelong learning
52:04
and healthy communities at the
52:07
local, national and global
52:07
level. The Profound
52:11
Conversations podcast is
52:11
produced by Erika Christie. The
52:15
music is on my way by Kevin
52:15
MacLeod from incompetech.com
52:20
Licensed under Creative Commons
52:20
Attribution 3.0 programming is
52:25
produced by the Alia network.
52:25
Thank you for your support.
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