Episode 26 – From diagnosis to network director—living with XLH
Released Thursday, 25th June 2020
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Episode 26 – From diagnosis to network director—living with XLH
Episode 26 – From diagnosis to network director—living with XLH
Thursday, 25th June 2020
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Diagnosed with X-linked hypophosphatemia (XLH), Susan has faced the challenges of living with this rare disease to become an advocate of the community and an influential force behind the XLH Network. The global community recently celebrated the second annual XLH Awareness Day on June 23, 2020.
This episode is brought to you by Ultragenyx.
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Rare in Common: the podcast
Rare in Common is a podcast about the unique stories of people affected by rare disease. Host Andra Stratton, a rare disease advocate, speaks with different members of the rare disease community, including patients, caregivers, healthcare professionals, and researchers. Join us as we tackle topics such as FDA approvals, national awareness campaigns, finding hope and support within the rare community, and the extraordinary challenges of living with a rare disease. Click. Listen. Feel.Join Podchaser to...
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