Welcome back to the Rare Matters Podcast! I'm your host, Mikey Stone, and in this episode, we embark on a journey through the intricate landscape of life as a disabled individual. Join me as I candidly share my personal experiences, insights, a

Courageously Candid: Living with Addison's Disease and Functional Neurological Disorder - Savannah's Story

May 1st, 2024 55m 14s

In the latest installment of the Rare Matters Podcast, we have the honor of sitting down with Savannah, a remarkable individual navigating life with Addison's Disease, Functional Neurological Disorder, and a cluster of yet-to-be-diagnosed condi

Exploring Medical Gaslighting and Self Advocacy

Apr 24th, 2024 46m 20s

Join us for the second episode of Rare Matters, where we delve into the crucial yet often overlooked topic of medical gaslighting. In this episode, we uncover what medical gaslighting entails, shed light on its subtle manifestations, and equip

My Story: LIving with an Undiagnosed Rare Disease and Winning The Genetic Lottery

Apr 20th, 2024 1h 28m

Introducing the inaugural episode of Rare Matters Podcast, where host Mikey Stone courageously delves into his personal odyssey living with an undiagnosed rare disease. In this groundbreaking debut, Mikey offers an intimate glimpse into his pro

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