Episode Transcript
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0:40
Hi everybody and welcome back to
0:42
the Real Food Stories podcast . Today I
0:44
am with Dana Karen Ciccone
0:47
, who is a certified Pilates
0:49
instructor who helps people
0:51
in pain , improve strength , mobility
0:54
and well-being in a weight-neutral environment
0:56
. She's also trained
0:59
in pain reprocessing therapy
1:01
through the Pain Psychology Center . Having
1:03
begun her own journey with chronic back pain
1:06
as a young teen , dk
1:08
, as she sometimes likes to be called
1:10
, has been exploring ways to
1:12
help herself and others regain joy
1:14
of movement for decades . After
1:17
20 years in the health sector , dk
1:19
left a corporate career to follow her passion
1:22
, later launching Movement Remedies
1:25
, a chronic pain focused Pilates studio
1:27
in Boston , massachusetts . Her
1:29
first book , you're Meant to Move A
1:31
Guide to Conquering Chronic Pain , increasing
1:34
Stress , resilience and Reclaiming an Active
1:36
Life , was released in December of
1:39
2023 . So
1:41
welcome to the show
1:43
and I'm so glad that you are here today , because
1:45
when I heard about what you
1:47
do , which is help people
1:49
with chronic pain and
1:51
you work also in a weight neutral
1:54
environment , I was really intrigued
1:56
, because I have my own personal story
1:58
with chronic pain and
2:06
the and I know very well that fear that you can develop around just simply moving and exercising
2:08
, because you start to get convinced that you're going to make something worse
2:11
or that you just can't move
2:13
Like other people can . Something's
2:15
really wrong with you and I know it can
2:17
create . You know , for me like a like
2:19
a lot of shame , like a
2:21
like a , just a like
2:24
, you know these like deep seated shame that I
2:26
am not like good enough and
2:28
that can just create the cycle
2:31
and it's hard to get out of the
2:33
chronic pain cycle . So
2:35
I wanted to just
2:37
why don't we start with you and
2:40
and I want to hear your story about
2:43
your childhood experience
2:45
with pain and how that turned
2:48
chronic and then
2:50
I guess , how you overcame it .
2:52
Yeah Well , first of all , thanks so much for
2:54
having me Really excited to be here and have
2:56
this conversation . Every time , you
2:59
know , we can connect with other folks with like-minded
3:02
views . I just think it's so validating in
3:04
general because so many of us are working
3:07
in these area corners of the world , um
3:09
, and it's nice to connect , um
3:12
. So I mean I've had many chapters
3:14
in my pain story , as , as you mentioned
3:16
when you were in my bio , there's the , the
3:18
initial pain story , which is the
3:21
uh , the chronic pain in my back that began
3:23
when I was an aspiring dancer in my
3:26
teen years , and
3:28
that kind of came and
3:30
went and it was not something
3:32
that made any sense to anyone . I
3:34
still , to this day , don't really know . It's
3:36
not like I had an accident or something that
3:39
would have made
3:41
for an acute pain
3:43
situation . It was really . And to have chronic
3:46
pain I mean now that I know what I know to have chronic
3:48
pain recurring at such a young
3:50
age is unusual . I mean it
3:52
certainly happens , but it's not the
3:54
typical story , although
3:56
a lot of the folks I work with have stories
3:58
like that , and so I do think that there are some
4:00
patterns which I'm sure we'll get into in terms of
4:03
, like , trauma and experiences that
4:05
lead to that . So that
4:07
was sort of the first era . Once
4:10
I moved on from dance I realized
4:12
, you know , my body was just not going to not
4:14
cut out for it because it could
4:16
not , you know , keep up with the demanding schedule
4:18
and everything . I moved on
4:20
with my life , went to school and had started
4:22
a corporate life and then somewhere
4:25
in my mid-20s started having
4:27
again really severe pain , this time
4:29
going down my leg , you know kind of classic
4:31
sciatica symptoms , and
4:33
was diagnosed with a herniated
4:35
disc in my lumbar spine . Explored
4:38
a whole range of treatments at that point
4:40
, from PT to epidural
4:43
injections to aqua therapy , to
4:45
, you know , you
4:47
name it . I was really desperate for relief
4:49
and towards the end of that experience
4:52
, you know , several months in , someone
4:55
said to me you know , I've heard Pilates is great
4:57
for backs and that was really
4:59
all I heard . That was all I knew . I knew nothing about
5:01
Pilates , which is funny because nowadays if
5:03
you're a dancer , I think you hear about Pilates
5:06
quite a lot . But at that time there
5:08
was no overlap between Pilates and dance when
5:10
I was a young person . So I
5:12
went and explored a Pilates class . I found
5:14
the movements to be very supportive
5:17
of both my need to feel
5:19
kind of safe and mobile
5:21
in my body but also just
5:23
being able to strengthen
5:26
in a way that actually supported my posture
5:28
and helped my back feel better . Um
5:30
, and so that was the
5:32
kind of beginning of my love affair with Pilates
5:35
as a participant , as a partaker
5:37
in Pilates and and that kind
5:39
of carried with me as I managed
5:42
ebbs and flows of my pain from that point
5:44
on , carried with me as I managed ebbs
5:46
and flows of my pain from that point
5:48
on . I mean , you know , herniations
5:54
heal but the brain doesn't always understand that like situation is safe . And I went
5:56
through , you know , other kinds of things like hip pain and and shoulder pain and
5:58
foot pain , and you know pain has kind of migrated
6:00
with me . It's like this , this little companion that
6:03
I've had . It's my longest , my longest
6:06
running friendship . So
6:09
you know , later on in my career
6:11
I I , like
6:13
I said , like you mentioned , I kind of reached
6:15
a point in my corporate career where I was really
6:17
not feeling well in my body or mentally
6:20
and so I decided
6:22
, you know , I want to find something I love
6:24
, that brings me joy , and
6:27
kind of rewrite
6:29
my career path based on fulfillment
6:31
instead of just kind of chasing
6:33
external validation . And
6:36
you know I said I've always loved
6:38
Pilates . You know , maybe I would like teaching it
6:40
and so that led me down that
6:42
path . It turned out I really liked it and
6:44
from the beginning for me because
6:47
Pilates was always a pain
6:49
management tool , it was not necessarily
6:51
like a fitness thing for me , it
6:53
was always how I manage my pain . I always
6:55
wanted to work with the clients who
6:58
had complex issues going on
7:00
and weren't there for the . You
7:02
know , give me the sculpted abs routine
7:05
. You know , like those were not the clients I wanted
7:07
to work with . So I've always predominantly worked
7:09
one-on-one , even when I was in a fitness studio
7:11
and folks
7:14
would come in because they hear about it , you know
7:16
, but it being a beneficial
7:18
modality for various things , and
7:20
they would come in with their aches and pains
7:22
, with joint replacement rehabilitation
7:25
, folks
7:28
with MS there's lots of research about improvements
7:30
with neurological conditions and balance with
7:32
Pilates . So
7:45
those are the folks who would come in seeking care and they would end up with
7:47
me because I was kind of coming to terms with my relationship with disordered eating
7:49
for so many decades and being inside an exercise space , a fitness aesthetic like
7:52
, even though there was a lot of good things happening
7:54
there around supporting people on their pain
7:56
journey , it was ultimately an aesthetically
7:59
oriented fitness space
8:01
, and I felt like I couldn't
8:04
reconcile
8:06
in myself my values
8:09
around all bodies being able to be healthy
8:11
bodies and all bodies being
8:13
able to be active and mobile bodies and
8:15
this kind of pressure to walk in the door
8:17
looking a certain way , and I couldn't jive that . So
8:20
I sought to create
8:22
a space that was
8:25
, you know , not only geared
8:28
towards pain as the
8:30
front of the point
8:32
of being here , you know , not just like we do exercise
8:35
, but also to make it an environment where
8:37
people understand that they are
8:46
welcome here and that their body
8:48
is deserving of movement , regardless
8:50
of the size or shape
8:52
or , you know , abilities and all
8:54
those things like getting rid of all
8:57
of the obstacles we put in front
8:59
of people who are trying to get active
9:02
and and and in other
9:04
standard spaces , and so that is
9:06
where the kind of the heart of the
9:08
movement remedies . You know , vision
9:10
and mission really came together with
9:13
my own journey and experience
9:15
. I hope that gave
9:17
you that I know it's a bit longer of an answer but that's
9:19
the background .
9:20
Yeah , no , that that was really great , great . And I
9:22
think one thing that just stood out to me too
9:24
was , um , that Pilates
9:27
. I think back , you know , maybe
9:29
years ago I think , when Pilates suddenly
9:31
became , or you had never really heard of Pilates
9:33
, and then suddenly it's like a , it became
9:35
like more of a thing , but , like
9:37
I think any of these modalities
9:41
yoga , pilates , like
9:43
there there's like a oh
9:47
, I don't know what , what you know , like it's an
9:49
aesthetic an aesthetic yes , I know
9:51
you had said that before right and aesthetic , that you
9:54
know , suddenly you have to be really
9:56
fit and in shape and at
9:58
a certain body size and it gets real . It's
10:00
really intimidating , especially
10:02
and I get this like when you want
10:05
to go and use it therapeutically
10:08
or pain management to get
10:10
yourself stronger and it just and I
10:12
so I definitely remember
10:14
that too I mean , it still goes on
10:16
. You know like , yoga studios , I know
10:18
, around me are like I would
10:20
never walk in those doors because
10:23
you either you better be like , fit and like
10:25
, really like , great looking
10:27
, and you know like you , you know you just have to fit like the
10:29
certain mold . So I love that
10:31
you are putting the , the
10:34
pain management in front of
10:36
. You know like , and then you , you still get
10:38
fit , you know , but it's that's
10:40
secondary and of course that would
10:42
happen if you were , you
10:45
know , dedicated to Pilates . But it's really
10:47
about pain management first .
10:50
Yeah , and it's so much about the language that we use too
10:52
, because I think , like you even mentioned in the beginning
10:54
, about kind of struggles
10:56
you've had with certain spaces or this
10:58
sense that like maybe you're going to show
11:00
up and you're going to feel like you can't do the class
11:02
the way that everyone else is doing it , or you're going to be this
11:04
kind of outlier , or you're going to
11:06
be given the , like remedial version of
11:09
the fitness class and that doesn't feel good
11:11
, especially as we age and we already feel like
11:13
we're being kind of sidelined by society
11:15
. That doesn't feel great in
11:17
the body and in your experience
11:19
. And so I think walking in knowing that
11:21
, like you know , having
11:24
different challenges in your body is actually the norm
11:26
and frankly it is the norm Like people
11:28
are hurting all over the place , chronic
11:31
conditions face . Like 60% of
11:33
people will face a chronic condition of some kind
11:35
, and 20% or more of
11:37
people have chronic pain , of adults have
11:39
chronic pain in this country . So it's actually
11:41
really really common , but it gets
11:43
treated in these wellness spaces as the
11:45
sort of outlier no-transcript
12:18
, but just fitness neutral .
12:20
I mean it's you , can . It
12:22
sounds like you can come in with really any
12:26
level of fitness because you're , because really
12:28
the first objective is
12:30
to figure out how
12:32
to work with your pain well
12:34
and it takes so much courage and
12:36
I feel like you know we just have to congratulate
12:39
people for even walking in the door .
12:41
You know , I mean it's hard and
12:43
so feeling comfortable in our bodies
12:45
is a privilege . I think it's hard for most
12:47
people and and so like why
12:50
not try and help people feel comfortable in their
12:52
bodies first and not make
12:54
you know the changing or the augmentation
12:56
of the body the first thing ? I mean , how many times
12:59
have we walked into new
13:01
exercise spaces and it's kind of like
13:03
, okay , here's the , the on
13:05
a purse or whatever they're called . You know
13:07
, like we're going to have you hold this thing and we're going to tell
13:09
you what your body fat percentage is . It's like you just
13:11
made eight assumptions about my goals , like
13:15
nobody said that that was part of you know the
13:17
requirements for being active and it's
13:19
infuriating .
13:20
Yeah , I , I totally
13:22
, 100% agree with you , and so I
13:24
think what you're doing is really is
13:28
really fantastic and really different
13:30
. You know than I mean , I live in Fairfield
13:33
County , you know . So there's just
13:35
, there's an aesthetic thing
13:37
happening here that maybe you
13:39
know other parts of the country or not , but that
13:42
, so that's really .
13:43
And it's also as we would argue , and I don't know if you want
13:45
to go down this path , but I mean it's also an unhealthy
13:47
aesthetic , like actually it's
13:49
actually not healthy to force yourself into
13:52
that . You know like we , we put it on a pedestal
13:54
as what health looks like , but it's it's
13:56
, it's an ideal . That isn't , doesn't line up with
13:58
the reality . And , and I want to think
14:00
, I want us to be thinking about health and wellness as like
14:02
feeling good in your body , feeling
14:05
feeling that you can , feeling that you
14:07
can live the life you want to live as
14:09
fully as possible , as possible , regardless
14:12
of of what pants are wearing when you do it
14:14
.
14:15
That's fantastic . I hope that you know I
14:17
and I'm just hoping that that becomes
14:19
like a bigger movement
14:21
, you know , and and just keeps
14:23
growing . I wanted
14:26
to just go back to your
14:28
childhood a little bit , because what do
14:30
you feel like are the traits
14:34
of chronic
14:36
pain ? How do people , you know , do
14:38
you feel like people fit into a mold of
14:40
you know who gets into
14:42
like the chronic pain
14:45
loop . You
14:47
know that it gets difficult to get out of .
14:48
Yeah , I mean , I can speak from my experience and some
14:50
of what I've researched , but certainly like not
14:53
a clinician . So quick disclaimer . But
14:55
I think that there's
14:57
a couple things there's we have to recognize
15:00
. First , that pain is
15:02
a signal from the brain . Right Pain
15:05
is the brain saying I'm
15:07
in danger or my physical body is
15:10
in danger . So that
15:12
may be a real thing , or it may not
15:14
be a real thing , but that's to the brain
15:17
, it's real and so it creates pain . So
15:20
there's the saying that
15:22
fear is the fuel of pain
15:24
. So having fear is
15:26
a big part of that , because it creates this
15:29
sort of code red
15:31
situation in the body where the nervous system is
15:33
, like particularly sensitized to what's happening
15:35
around it . Now you can end up in that state
15:37
for any number of reasons . You
15:40
know . I think in my case I had a lot of
15:42
anxiety growing up . You
15:44
may be in an environment
15:47
you feel unsafe in as a young person or
15:49
even as an older person . I
15:51
think that there's also , and there
15:53
is research around folks just having
15:55
a different level , a different threshold
15:57
of sensitivity to sensory
15:59
processing . So like for some
16:02
people , loud noises are just really intolerable
16:04
you know things like that
16:06
and for other people you know they're not , and so
16:08
I think I identify as someone
16:11
who , you know , I get kind
16:13
of overloaded in certain situations where
16:15
there's sensory , really
16:17
high level of sensory stimulation , so
16:19
like shopping malls used to give me a really big
16:21
headache , like I just couldn't deal with like the noise
16:23
and the music and the people and like I . So
16:26
I think that if your threshold for
16:28
kind of reaching a state of , you
16:30
know , danger is a little higher , you're
16:33
probably going to end up responding
16:35
with pain , and so you can . You can sort of
16:37
end up with this like baseline . That's
16:39
a little higher than , like you know , the
16:41
average bear or the person next to you
16:44
. And then if you
16:46
have , you know , multiple injuries
16:48
, you are at risk
16:50
of developing chronic pain
16:52
, depending on how your body
16:54
kind of resolves that after the fact
16:56
. So I think there's
17:00
lots of young people who play sports and
17:02
may end up having a bunch of injuries and then
17:05
they develop a sensitivity
17:07
in that area repeatedly . So every
17:09
time they injure something else , the
17:14
pain returns in that place because the brain just kind of like makes a connection
17:16
between an injury that happened
17:18
somewhere or maybe
17:20
a force on the body and
17:22
then pain elsewhere . But
17:25
there's also research and
17:27
Alan Gordon in his book the Way Out he's
17:30
the one who does the pain reprocessing
17:32
therapy talks talks a lot about
17:34
overachievers and people pleasers
17:37
and folks who are self-critical
17:39
. People
17:53
I work with who have chronic pain and who also are , like , totally convinced that it's their
17:55
responsibility to like solve everyone else's problems is like pretty much like a bullseye
17:57
, right . I mean so many
17:59
of us , for whatever reason conditioning
18:01
or you
18:03
know who knows have come up with this
18:05
personality type where we're
18:08
internalizing other people's demands
18:10
and are extremely
18:12
critical movement perfectionists and
18:14
that again can create a
18:16
sense of , I think , on safety
18:19
, lack of safety in the body , an
18:21
overstimulated nervous system and
18:24
, congruent with that , I have
18:26
a theory from my own work
18:28
that chronic dieting also
18:30
is a potential risk
18:32
factor for chronic pain , and
18:36
the reason for that is because
18:39
I believe the people
18:41
that I work with who have chronic pain
18:43
, one of the most difficult hurdles we usually
18:45
have to overcome when it comes
18:47
to moving is the fact
18:49
that they have a very difficult time
18:51
actually being in their bodies
18:54
, being present in their bodies , actually
18:56
sensing what's happening in
18:59
their bodies as they're moving . So
19:01
they're often reliant on a story they've
19:03
been telling themselves about what they can or can't
19:05
do , often a story
19:07
about I'm not strong enough for that , I
19:10
don't , my balance is no good , and
19:12
then I will construct little mini experiments
19:14
to kind of challenge those hypotheses and they're
19:16
very often wrong . Folks are usually much
19:18
more capable in their bodies than
19:20
they think they are because of the stories
19:23
and the narratives they have about
19:25
their pain being a limiter . And
19:28
those same people who are unable to actually
19:30
experience their true
19:32
physical capabilities are often
19:34
people who over many years
19:36
learn to ignore hunger cues
19:38
because no one has gone on a restrictive
19:41
diet without having to like overlook
19:43
that growl . That
19:45
is like evolution neurobiology
19:47
telling you like eat or you're going to die
19:50
. And so
19:52
I think , when we like repeatedly
19:54
ignore and ignore and ignore
19:56
and teach ourselves to
19:59
that , that whatever the body is telling
20:01
us is happening is , is not a physical
20:03
reality , it's kind of a . It's a , it's
20:05
a mirage . Then we
20:07
get into older , our older lives , and
20:10
we have lost our connection
20:12
to our physical body
20:14
and we're very detached . So getting
20:16
folks to reattach is a huge
20:18
part of healing . And I
20:20
believe diet culture and the diet
20:23
that you know yo-yo dieting and weight
20:25
cycling and all the things that many of us experience
20:27
in an attempt to reach that unhealthy
20:29
aesthetic . They just contribute to
20:32
that detachment .
20:33
Yeah , that's a really good point
20:35
. I mean , I think dieting , chronic dieting
20:38
completely disconnects you from
20:40
your body , tells
20:42
you , like you said , your
20:44
hunger is . You're ignoring
20:46
your hunger signals . You're not
20:48
eating when you're physically hungry . You're not
20:50
ignoring your hunger signals . You're not eating when
20:53
you're physically hungry , you're not . And
20:58
that's just the opposite of self-care and just and it doesn't . It just doesn't
21:00
teach you how to just stay connected to an intuitively
21:03
eat and and so I could see
21:05
then that relationship to chronic pain
21:07
. So it sounds like you have a lot of clients who
21:10
have
21:13
this association that
21:16
would be really , really interesting to
21:18
to have more research done
21:20
on that , on that connection . I would love
21:22
to to see that . But I mean , it just sounds
21:24
like from your experience you've
21:27
you've definitely have
21:29
witnessed that .
21:30
Yeah , and it's the language people use , like even
21:32
recently someone said someone who is
21:35
has shared with me that that they're in in eating
21:37
disorder recovery said
21:39
you know , we were doing something , um
21:42
, relatively challenging that
21:44
required body weight , um support , and
21:47
I could just sort of tell that they
21:49
were nervous . And so I said you know , can
21:52
you say more about what you're feeling right now
21:54
? You know , does this feel scary
21:56
to you in some way ? And the person's response
21:58
was I don't feel , I don't trust
22:00
my body to hold me , I don't trust
22:02
my body to support me . And
22:05
, and again I think that's that's
22:07
like a , it's a huge kind
22:09
of , it's sort of a form
22:11
of body dysmorphia , right when you
22:13
visualize yourself
22:15
. You see yourself as this weak , unhealthy
22:18
, like unfit kind
22:20
of thing
22:22
. That's not the reality of the physical
22:25
vessel that you're in , but you've become so
22:27
and of course , having
22:29
gone through this , we understand that you become so attached
22:32
to the kind of projection
22:34
of yourself that's in your head
22:36
that you don't even know the one
22:38
that you're in . And then I think there's also
22:41
a lot of kind
22:43
of self-loathing and resentment that happens
22:45
in that , and so , again , it just pushes
22:48
you . It pushes you towards the projection
22:50
rather than the reality , and
22:53
so I think that that definitely
22:55
creates a sense of and in this particular person's
22:57
particular case , it was really a sense of of
22:59
I'm not safe , Like I'm , I'm
23:02
going to fall , or I you know I'm not
23:04
, I'm not going to be able to hold myself Like
23:06
like you don't trust your body or you're angry
23:08
with your body . And since we talked about fear being
23:10
the fuel of pain , like surely
23:13
all those experiences are only going to
23:15
contribute to
23:17
a pain experience . And if you are someone
23:19
who maybe has , you
23:22
know , a mild condition that would lead to
23:24
pain , then it would , of course , exacerbate
23:26
it right , it would turn up the volume so much . So
23:29
sometimes we're dealing with a pain
23:31
that arises out of something that would
23:33
be minor in a body where the person
23:35
felt very safe already
23:37
, right . So we're kind of setting ourselves up for
23:39
failure with that .
23:41
You mentioned very briefly that you
23:43
experienced an eating disorder . While
23:47
I mean do you feel like ? I mean
23:49
, is this something you can relate your
23:51
pain to ?
23:53
100% . It's really interesting
23:55
because I mean and I've never been diagnosed
23:57
as having an eating disorder , but I've went through
23:59
cycles of restriction
24:01
, extreme restriction , and then , you
24:04
know , binging . You know , I think
24:06
, because I never looked small no one really
24:08
ever considered it . You know
24:10
what I mean and that's also a problem we know exists
24:12
in the medical system . But
24:15
what's really interesting is I just
24:17
reached this point maybe it was because
24:19
I was about to turn 40 , I don't know and
24:25
I was like surely this is not going to continue
24:27
to be my life , spending
24:29
my Sunday packing foods into tiny
24:31
little color-coded containers , when
24:33
I could be like reading a book or
24:35
doing something else , or like not being
24:37
able to even focus on my tasks
24:40
at work , because all I could think about
24:42
was the things that I wanted to eat or the things that
24:44
I felt guilt about eating , or the things
24:46
that I like wished I could eat . Or someone else was eating
24:48
and I was like mad that they got to
24:50
it and I couldn't eat . You know , it was just kind of like always about
24:53
food and I was like this
24:55
is not a way to live . You know , I can't deal
24:57
with this anymore . And at the time I was also
24:59
in PT physical
25:01
therapy for major
25:04
hip pain , pelvic floor pain , shortly
25:08
after I got plantar fasciitis . I mean
25:10
, there was just like a whole lot of stuff going on . So
25:12
I basically
25:14
started you know , I don't know finding
25:16
all of these influencers who had
25:18
great books , like Christy Harrison and
25:22
of course the , the Triboli , and I
25:24
always forget the names but the intuitive eating book . You
25:28
know , I just kind of went through book after book after book
25:30
after book and every one of them was saying the same thing
25:32
. And it's always that Minnesota starvation
25:34
experiment always gets me every time how they
25:36
put these men on a 1600 calorie a day
25:38
diet , which is like above what I was allowed
25:40
to eat on my diet at the time , and they were going
25:43
crazy . They were like
25:45
turning into super unstable humans
25:47
. And I said
25:49
, okay , so this makes sense , right , it just makes
25:51
sense that this is making me feel crazy . So
25:53
I started slowly dismantling
25:55
my dieting
25:57
norms , my rules , my food
25:59
rules , my food rules that I had had
26:02
that were passed down to me from generations
26:04
of food rule lovers , you know , over
26:06
over the generations of women in my family
26:09
. And it was hard it's . I mean , I'm
26:11
still , I still have struggled with that , and this is
26:13
four years now , because it was
26:15
really at the end of the quarantine . But
26:18
what I noticed is that as
26:20
I started taking this apart and
26:22
I did put on a lot of weight
26:24
I probably put on 20%
26:27
of my body weight or something more than
26:30
that , and
26:32
that was hard at first to accept
26:34
because I was certain that that meant I was going
26:36
to be unhealthy . But since
26:38
then I've been able to return
26:40
to lifting weights at a very
26:42
heavy level . I've been able to return
26:45
to jogging . I've been
26:47
able to go back to doing things in
26:49
my body that I hadn't done since I was like
26:51
20 . And it was
26:53
, you know , slow process , but like
26:55
it really just kind of reframed
26:57
for me , like wow , I wasn't I
26:59
mean , I had pain and everything
27:01
going on , but like I also had
27:03
this like incredible , like
27:05
constrictive way of living that
27:08
was just limiting my beliefs about myself
27:10
and also just tying my body
27:12
up in knots , to be honest with you . And
27:14
now I'm in my forties and
27:17
going through perimenopause , which is another fun
27:19
topic , but I feel
27:22
better in my body than I have in
27:24
a decade at least . So
27:26
like what does I mean that ? I mean again this I'm
27:28
an N of one . So for whatever that's worth
27:30
like that has been my experience
27:32
that piecing that apart and taking taking
27:35
away the stories about
27:37
my body's failure you
27:39
know to be what I needed in my body's worthlessness
27:42
because of the way that worth was defined
27:45
in my you know , in the narrow
27:47
framework I was given Once I
27:49
kind of took that apart . It brought
27:51
a ton of freedom and relief and
27:54
possibilities for me that
27:56
I think are very tied to the fact that
27:58
my pain levels are so low I
28:00
mean , like I said , lower they
28:02
have been in decades .
28:04
Yeah , I mean it sounds like you let go of
28:06
just the rigidity , right
28:08
, and the rules and the and the , probably
28:11
beating yourself up if you didn't do it perfectly
28:13
and all of that
28:15
, and , and I mean I can relate to that
28:17
too . I mean I grew up with dieters
28:19
all over the place , you know , in my family
28:22
, and I was on a diet at my
28:24
first diet at 11 and
28:26
just hating
28:28
my body for years
28:30
, you know , and , yeah , did
28:33
, did , did , did my chronic pain go
28:35
hand in hand . I mean I have to , you know , I have to
28:37
like , really like , think about that . But I mean
28:39
I know I have other other instances where
28:41
, like I mean I remember being in chronic pain and
28:43
, like my teens also neck pain
28:45
and stuff . But I and I also had some other like
28:47
traumatic experiences that I had gone
28:50
through so but the , so but
28:52
the being on the diets and like
28:54
restricted . I mean it is so punishing
28:56
and I could definitely see this
28:58
link between that
29:00
and , you know , in a pain link . I mean that doesn't
29:02
mean that everybody experiences who
29:04
has chronic pain experiences issues
29:07
with their dieting
29:10
and , you know , weight loss and eating
29:13
disorders , but it certainly
29:15
seems like that can be part of the connection
29:17
.
29:18
When it wouldn't matter so much if
29:20
it weren't for the fact that the medical system
29:23
is continuing to tell people that the answer
29:25
to chronic pain is weight loss . So
29:27
, like , not only are we ignoring
29:29
the fact that we are encouraging
29:32
people to have a really combative
29:34
, adversarial relationship with their
29:36
own physical vessels from a young age
29:38
, but we're also telling them to exacerbate
29:41
that as their
29:43
bodies change . And again , especially being a woman
29:46
in my forties , you know going through
29:48
lots of changes . I mean even still
29:50
. Like , like they're bringing back all the feelings
29:52
that I had as a younger person , because
29:55
the first thing anybody wants to talk about is my
29:57
belly fat . It's like what
29:59
? Like like
30:02
this , this can't be the most important
30:04
. It isn't . We know the research already
30:06
shows that it's not the biggest contributor to my mortality
30:08
. So , like , why are we talking
30:11
about that ? Why are we diagnosing that ? Why
30:13
, and again , why are fitness spaces and wellness
30:15
spaces all getting
30:17
so hung up on ? Even when I get , you
30:19
know , instagram ads about
30:21
you know , the menopause journey
30:23
? Like they're always oriented around which supplement
30:26
is going to suddenly shrink my you
30:28
know my body ? And it's like I feel like
30:30
I'm having deja vu . Like this is not . Like we're having
30:32
this conversation again when we
30:34
shouldn't have been having it in the first place
30:36
. And now people are in pain
30:38
and they're focused on the wrong thing
30:41
, and that's why it's like
30:43
. No , the focus is to move
30:45
. The focus is to move , to move , to move
30:47
. Everyone in a body can move
30:49
and you don't need to have a certain size
30:52
, and what I've learned is that my size
30:54
of my body actually doesn't limit
30:56
my movement Like holy cow .
31:06
I had no idea . Yeah , I know Well , you know good point about
31:08
the menopause , like ads and everything . I
31:10
mean that is out of control and and what an interesting
31:12
. You know that's an interesting connection too , because
31:14
you're first you go through
31:17
puberty , right , and you're in teenager
31:19
and like you're starting to feel really
31:21
maybe awful about your body
31:23
or like comparing , and then we go full
31:25
circle and now we're in our like forties and fifties
31:27
and and it's like second puberty , you know , because now we're losing in reverse , that we're in our
31:29
like forties and fifties and and it's like second , second puberty , you
31:31
know , because now we're losing in reverse
31:33
, that we're losing our estrogen and
31:36
I believe this is where
31:38
a lot of eating
31:40
disorders maybe they've been
31:42
dormant for a little while kind of come
31:45
, start to come back , because the pressure
31:47
to lose weight , lose
31:49
the belly fat , the
31:52
meno belly , and
31:54
it's confusing and
31:56
I think it just stirs up so much
31:58
emotion and I
32:00
think , no surprise this is , I
32:02
think , a big time for people in chronic
32:04
pain around this age 100%
32:08
. Is that from your hormones ? Is
32:10
that a connection too ? It is it
32:12
that we're just having
32:15
to refocus
32:17
in on our bodies ?
32:19
Well , Heather , if they did any medical research on women , we
32:21
would have more answers about that . But exactly
32:24
, yeah , Unfortunately we're dealing
32:26
with , like you know , research done by on
32:28
white male bodies for the past 50 years
32:30
. But but , yeah , 100% , I mean
32:32
there's definitely a big uptick in pain
32:35
in this time .
32:36
Yeah , I , I totally , I
32:39
think so . So
32:41
you mentioned Alan Gordon
32:43
. He wrote the book the Way Out I . That's
32:45
one of my all time favorite books and and
32:47
I know about the Pain Psychology Center
32:49
all-time favorite
32:52
books and and I know about the pain psychology center because I've that's sort
32:54
of how I got into doing a lot of work on for myself in
32:56
chronic pain . But you said you
32:58
have written a book as well yes
33:01
, I have let's talk about
33:03
that , because I that's . It sounds like a great
33:05
book and I love the title you're meant to move
33:07
, because I really do believe that too . I think
33:09
that people think I'm
33:12
in pain and I can't move
33:14
like others , but I
33:16
think our bodies are meant to move , right . I mean
33:18
, we are wired for that . So tell
33:21
me a little bit about your book .
33:23
Yeah . So I
33:25
wrote the book for a couple of reasons
33:27
. First of all , I mean I do love to write , but first
33:30
of all I wanted
33:32
to kind of process three decades
33:34
worth of dealing with chronic pain and
33:37
kind of help people who were
33:39
in the position I was in a while ago maybe
33:42
get to where I got a little faster If
33:45
I could share my story and then
33:47
also what I've observed with
33:49
my clients . There's a lot of anecdotes in it
33:51
of client stories
33:53
and experiences and their own words sometimes
33:55
about this
33:57
kind of trying to rewrite the narrative
34:00
that we have about our ability
34:02
to move and how pain
34:04
factors in there . And
34:06
one of the major hurdles
34:09
for me , especially after the disc herniation
34:11
it was a list of don'ts Don't
34:14
bend at the waist , don't sit for too long
34:16
, don't twist your body . And
34:19
in hindsight I think a lot of times
34:21
what happens is they give you guidance
34:24
in the acute phase and it sticks with
34:26
us , and so sometimes we keep doing the acute phase
34:28
long after it's healed with
34:32
us and so sometimes we keep doing the acute phase long after it's healed . But the reality is the research
34:34
is very , very clear now that for the most part you want to move your
34:36
joints , like immediately . I mean think about
34:38
hip replacement , folks who , they like , have climb
34:40
a stairs in like 24
34:42
hours . I mean healing
34:45
is really tied to moving . And
34:47
so that was advice
34:49
, clinical advice I was given repeatedly
34:52
that set me back years because
34:54
of the fear that it generated and
34:56
and kind of , and again , just
34:58
like with the pain or processing . You
35:00
know stuff too . It's like your
35:03
, your brain , like links . A connection
35:05
between bending over is how I hurt myself
35:07
. Therefore I should never bend over . And now
35:09
you've eliminated a really important movement from your vocabulary
35:12
. So I wanted to take
35:14
all of those , all of the bad information
35:16
I received and what I've learned since then , and package
35:18
it up for folks who they who could
35:20
then take it and really have like a step-by-step
35:22
guide . Because the second reason I wrote it is that
35:24
I am a person , a single person , in
35:27
a brick and mortar studio in Boston and I can
35:29
only see so many people . But I
35:31
feel like there's a lot of work that people can do on
35:33
their own . I mean , as magnificent as Pilates
35:35
and the equipment are , you know
35:37
, there is a lot you can do just working
35:40
by yourself . And so it's written in such a way
35:42
that it would be a 12 to 14
35:44
week process where you can go through
35:46
all the different stages with
35:48
a lesson and activities for
35:51
each week , and it comes with a journal
35:53
that comes with it and some you know recommended
35:55
movement exercise videos , and
35:57
then by the end , you should be able to design
36:00
a movement program for yourself
36:02
, the one that's catered to not
36:04
just what your body feels up for in
36:07
this season , but also like
36:09
what your goal is , and I don't mean your goal
36:11
like I need to do 10 pushups , but like I
36:14
want to be able to to climb the
36:16
steps of the Cinque Terre trails or
36:18
whatever I , you know , I want to be able
36:20
to carry my groceries across
36:23
across the parking lot like really realistic
36:25
goals that have to do with how we live and
36:28
I . That's how I think our movement programs should
36:30
be designed . They should be designed around
36:32
keeping us functional into
36:34
our older age , like that's the point
36:36
. So that's the way
36:38
you're meant to move is structured . It tackles
36:40
all the factors around
36:42
why pain persists in our bodies
36:45
. Really , we're trying to remove that
36:47
self-blame and the shame that comes
36:49
with the message of you
36:51
know . Chronic pain is therefore somehow
36:53
your problem or your fault because
36:55
of you know , maybe choices which
36:58
, I think again , the weight loss rhetoric
37:00
really does in the medical system . So
37:02
so yeah , I'm really excited
37:04
about it being out in the world and hope that
37:07
people are able to find that they
37:09
can chart a new path toward an active life
37:11
. Because , you know , not only is movement
37:13
regular movement , I believe
37:16
, the most important health promoting behavior
37:18
that we can , that we can commit ourselves
37:20
to , but it also
37:23
, you know , is really good for us , even
37:25
when we're hurting because of the chemical
37:27
. You know chemical benefits , inflammation
37:30
benefits , cardiovascular disease
37:32
prevention , I mean autoimmune
37:35
disease support , like every single
37:37
system in our body
37:39
reacts really well
37:41
to movement . So it's not just you're meant to move
37:43
, like get off the couch
37:45
, because that is kind of part of it , like we have we've
37:47
built a modern sedentary society and we need
37:49
to rewrite the rules but
37:52
it's also you're meant to move in the sense that
37:54
finding any form of movement will
37:56
benefit , like reap rewards for
37:58
, for all of your , your physical systems
38:01
, even if the movement is not , you know , what we would define
38:03
classically as exercise .
38:06
Yeah , well , that's so , that's great , cause I was going
38:08
to say I know you're in a brick and mortar business
38:10
in Boston and I wish that you
38:12
lived closer to me . I mean not that
38:14
far away , but but I would
38:17
love to have you here
38:19
with me because I would be signing up in a second
38:21
. So that's , that's so great , that you
38:24
have a book with a program in it
38:26
and that people can go and do that
38:28
on their own . I also know about
38:30
like that , that feeling , um , this this side
38:32
note I just heard you say you know that to
38:35
to get out of the feeling
38:37
like it's my fault , like the pain's my fault
38:39
, because I lived with that for years
38:42
, years . You know that , like I
38:44
, it's the , the
38:47
perfectionist people
38:49
like I mean you know all of that
38:51
, that just felt like I definitely
38:53
did something wrong , you know , and so therefore
38:57
, it's on my fault . And how
38:59
am I supposed to fix this ? And I mean it
39:01
. Just , you know , and that's a whole your
39:04
spiral too . So you're
39:06
yeah , so your book sounds really
39:09
actionable and
39:11
gives people the . You know
39:13
the steps to .
39:15
Yeah , and I think it . You know it's a start of a journey
39:18
, like I think it's . You can get through it relatively
39:20
quickly if you were to sit and read a cover to cover , but
39:22
it really shares the re , the research behind
39:24
a lot of what I do and , again
39:26
, the stories behind what I do . And if
39:28
folks are curious , even for yourself , um , and
39:31
want to dk at
39:33
movementremediesorg , I'm happy to share
39:35
a pass for my
39:38
restorative Pilates mat class
39:40
, which is available virtually three times
39:42
a week . So I just think it's
39:44
important that people find what speaks to them
39:46
in terms of being active and not
39:48
let those , the fear
39:50
, a lot of fear , the fear , the
39:53
guilt , the not , it not being enough . Don't
39:55
let all those , those obstacles
39:57
that we build up in our minds get in the way
39:59
of what is going to really benefit
40:02
you in the in the long run . And
40:04
I know it's a fight . I mean , it's a fight for me . I have a
40:06
room full of equipment and it's a fight for me to get moving
40:08
sometimes , but I'm always glad when I
40:10
do .
40:11
Yeah , that's great , so people can connect
40:13
with you online and take a class with you a math
40:15
class , Okay that's great . Good
40:18
Well
40:23
, DK , it was so nice talking with you and really I mean I
40:26
want to keep this conversation going about the connection
40:28
between dieting and
40:30
body image and disordered
40:33
eating and chronic pain
40:35
, because I think it's really important and
40:37
you're doing great work . I think it's just
40:39
, you know , fantastic . I
40:42
will put all the links for you
40:44
in the show notes so people can get in touch
40:46
with you . And thank you
40:48
again , my pleasure , Thanks for having
40:51
me .
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