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80. Overcoming Chronic Pain with Pilates and Mindful Movement

80. Overcoming Chronic Pain with Pilates and Mindful Movement

Released Wednesday, 24th April 2024
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80. Overcoming Chronic Pain with Pilates and Mindful Movement

80. Overcoming Chronic Pain with Pilates and Mindful Movement

80. Overcoming Chronic Pain with Pilates and Mindful Movement

80. Overcoming Chronic Pain with Pilates and Mindful Movement

Wednesday, 24th April 2024
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0:40

Hi everybody and welcome back to

0:42

the Real Food Stories podcast . Today I

0:44

am with Dana Karen Ciccone

0:47

, who is a certified Pilates

0:49

instructor who helps people

0:51

in pain , improve strength , mobility

0:54

and well-being in a weight-neutral environment

0:56

. She's also trained

0:59

in pain reprocessing therapy

1:01

through the Pain Psychology Center . Having

1:03

begun her own journey with chronic back pain

1:06

as a young teen , dk

1:08

, as she sometimes likes to be called

1:10

, has been exploring ways to

1:12

help herself and others regain joy

1:14

of movement for decades . After

1:17

20 years in the health sector , dk

1:19

left a corporate career to follow her passion

1:22

, later launching Movement Remedies

1:25

, a chronic pain focused Pilates studio

1:27

in Boston , massachusetts . Her

1:29

first book , you're Meant to Move A

1:31

Guide to Conquering Chronic Pain , increasing

1:34

Stress , resilience and Reclaiming an Active

1:36

Life , was released in December of

1:39

2023 . So

1:41

welcome to the show

1:43

and I'm so glad that you are here today , because

1:45

when I heard about what you

1:47

do , which is help people

1:49

with chronic pain and

1:51

you work also in a weight neutral

1:54

environment , I was really intrigued

1:56

, because I have my own personal story

1:58

with chronic pain and

2:06

the and I know very well that fear that you can develop around just simply moving and exercising

2:08

, because you start to get convinced that you're going to make something worse

2:11

or that you just can't move

2:13

Like other people can . Something's

2:15

really wrong with you and I know it can

2:17

create . You know , for me like a like

2:19

a lot of shame , like a

2:21

like a , just a like

2:24

, you know these like deep seated shame that I

2:26

am not like good enough and

2:28

that can just create the cycle

2:31

and it's hard to get out of the

2:33

chronic pain cycle . So

2:35

I wanted to just

2:37

why don't we start with you and

2:40

and I want to hear your story about

2:43

your childhood experience

2:45

with pain and how that turned

2:48

chronic and then

2:50

I guess , how you overcame it .

2:52

Yeah Well , first of all , thanks so much for

2:54

having me Really excited to be here and have

2:56

this conversation . Every time , you

2:59

know , we can connect with other folks with like-minded

3:02

views . I just think it's so validating in

3:04

general because so many of us are working

3:07

in these area corners of the world , um

3:09

, and it's nice to connect , um

3:12

. So I mean I've had many chapters

3:14

in my pain story , as , as you mentioned

3:16

when you were in my bio , there's the , the

3:18

initial pain story , which is the

3:21

uh , the chronic pain in my back that began

3:23

when I was an aspiring dancer in my

3:26

teen years , and

3:28

that kind of came and

3:30

went and it was not something

3:32

that made any sense to anyone . I

3:34

still , to this day , don't really know . It's

3:36

not like I had an accident or something that

3:39

would have made

3:41

for an acute pain

3:43

situation . It was really . And to have chronic

3:46

pain I mean now that I know what I know to have chronic

3:48

pain recurring at such a young

3:50

age is unusual . I mean it

3:52

certainly happens , but it's not the

3:54

typical story , although

3:56

a lot of the folks I work with have stories

3:58

like that , and so I do think that there are some

4:00

patterns which I'm sure we'll get into in terms of

4:03

, like , trauma and experiences that

4:05

lead to that . So that

4:07

was sort of the first era . Once

4:10

I moved on from dance I realized

4:12

, you know , my body was just not going to not

4:14

cut out for it because it could

4:16

not , you know , keep up with the demanding schedule

4:18

and everything . I moved on

4:20

with my life , went to school and had started

4:22

a corporate life and then somewhere

4:25

in my mid-20s started having

4:27

again really severe pain , this time

4:29

going down my leg , you know kind of classic

4:31

sciatica symptoms , and

4:33

was diagnosed with a herniated

4:35

disc in my lumbar spine . Explored

4:38

a whole range of treatments at that point

4:40

, from PT to epidural

4:43

injections to aqua therapy , to

4:45

, you know , you

4:47

name it . I was really desperate for relief

4:49

and towards the end of that experience

4:52

, you know , several months in , someone

4:55

said to me you know , I've heard Pilates is great

4:57

for backs and that was really

4:59

all I heard . That was all I knew . I knew nothing about

5:01

Pilates , which is funny because nowadays if

5:03

you're a dancer , I think you hear about Pilates

5:06

quite a lot . But at that time there

5:08

was no overlap between Pilates and dance when

5:10

I was a young person . So I

5:12

went and explored a Pilates class . I found

5:14

the movements to be very supportive

5:17

of both my need to feel

5:19

kind of safe and mobile

5:21

in my body but also just

5:23

being able to strengthen

5:26

in a way that actually supported my posture

5:28

and helped my back feel better . Um

5:30

, and so that was the

5:32

kind of beginning of my love affair with Pilates

5:35

as a participant , as a partaker

5:37

in Pilates and and that kind

5:39

of carried with me as I managed

5:42

ebbs and flows of my pain from that point

5:44

on , carried with me as I managed ebbs

5:46

and flows of my pain from that point

5:48

on . I mean , you know , herniations

5:54

heal but the brain doesn't always understand that like situation is safe . And I went

5:56

through , you know , other kinds of things like hip pain and and shoulder pain and

5:58

foot pain , and you know pain has kind of migrated

6:00

with me . It's like this , this little companion that

6:03

I've had . It's my longest , my longest

6:06

running friendship . So

6:09

you know , later on in my career

6:11

I I , like

6:13

I said , like you mentioned , I kind of reached

6:15

a point in my corporate career where I was really

6:17

not feeling well in my body or mentally

6:20

and so I decided

6:22

, you know , I want to find something I love

6:24

, that brings me joy , and

6:27

kind of rewrite

6:29

my career path based on fulfillment

6:31

instead of just kind of chasing

6:33

external validation . And

6:36

you know I said I've always loved

6:38

Pilates . You know , maybe I would like teaching it

6:40

and so that led me down that

6:42

path . It turned out I really liked it and

6:44

from the beginning for me because

6:47

Pilates was always a pain

6:49

management tool , it was not necessarily

6:51

like a fitness thing for me , it

6:53

was always how I manage my pain . I always

6:55

wanted to work with the clients who

6:58

had complex issues going on

7:00

and weren't there for the . You

7:02

know , give me the sculpted abs routine

7:05

. You know , like those were not the clients I wanted

7:07

to work with . So I've always predominantly worked

7:09

one-on-one , even when I was in a fitness studio

7:11

and folks

7:14

would come in because they hear about it , you know

7:16

, but it being a beneficial

7:18

modality for various things , and

7:20

they would come in with their aches and pains

7:22

, with joint replacement rehabilitation

7:25

, folks

7:28

with MS there's lots of research about improvements

7:30

with neurological conditions and balance with

7:32

Pilates . So

7:45

those are the folks who would come in seeking care and they would end up with

7:47

me because I was kind of coming to terms with my relationship with disordered eating

7:49

for so many decades and being inside an exercise space , a fitness aesthetic like

7:52

, even though there was a lot of good things happening

7:54

there around supporting people on their pain

7:56

journey , it was ultimately an aesthetically

7:59

oriented fitness space

8:01

, and I felt like I couldn't

8:04

reconcile

8:06

in myself my values

8:09

around all bodies being able to be healthy

8:11

bodies and all bodies being

8:13

able to be active and mobile bodies and

8:15

this kind of pressure to walk in the door

8:17

looking a certain way , and I couldn't jive that . So

8:20

I sought to create

8:22

a space that was

8:25

, you know , not only geared

8:28

towards pain as the

8:30

front of the point

8:32

of being here , you know , not just like we do exercise

8:35

, but also to make it an environment where

8:37

people understand that they are

8:46

welcome here and that their body

8:48

is deserving of movement , regardless

8:50

of the size or shape

8:52

or , you know , abilities and all

8:54

those things like getting rid of all

8:57

of the obstacles we put in front

8:59

of people who are trying to get active

9:02

and and and in other

9:04

standard spaces , and so that is

9:06

where the kind of the heart of the

9:08

movement remedies . You know , vision

9:10

and mission really came together with

9:13

my own journey and experience

9:15

. I hope that gave

9:17

you that I know it's a bit longer of an answer but that's

9:19

the background .

9:20

Yeah , no , that that was really great , great . And I

9:22

think one thing that just stood out to me too

9:24

was , um , that Pilates

9:27

. I think back , you know , maybe

9:29

years ago I think , when Pilates suddenly

9:31

became , or you had never really heard of Pilates

9:33

, and then suddenly it's like a , it became

9:35

like more of a thing , but , like

9:37

I think any of these modalities

9:41

yoga , pilates , like

9:43

there there's like a oh

9:47

, I don't know what , what you know , like it's an

9:49

aesthetic an aesthetic yes , I know

9:51

you had said that before right and aesthetic , that you

9:54

know , suddenly you have to be really

9:56

fit and in shape and at

9:58

a certain body size and it gets real . It's

10:00

really intimidating , especially

10:02

and I get this like when you want

10:05

to go and use it therapeutically

10:08

or pain management to get

10:10

yourself stronger and it just and I

10:12

so I definitely remember

10:14

that too I mean , it still goes on

10:16

. You know like , yoga studios , I know

10:18

, around me are like I would

10:20

never walk in those doors because

10:23

you either you better be like , fit and like

10:25

, really like , great looking

10:27

, and you know like you , you know you just have to fit like the

10:29

certain mold . So I love that

10:31

you are putting the , the

10:34

pain management in front of

10:36

. You know like , and then you , you still get

10:38

fit , you know , but it's that's

10:40

secondary and of course that would

10:42

happen if you were , you

10:45

know , dedicated to Pilates . But it's really

10:47

about pain management first .

10:50

Yeah , and it's so much about the language that we use too

10:52

, because I think , like you even mentioned in the beginning

10:54

, about kind of struggles

10:56

you've had with certain spaces or this

10:58

sense that like maybe you're going to show

11:00

up and you're going to feel like you can't do the class

11:02

the way that everyone else is doing it , or you're going to be this

11:04

kind of outlier , or you're going to

11:06

be given the , like remedial version of

11:09

the fitness class and that doesn't feel good

11:11

, especially as we age and we already feel like

11:13

we're being kind of sidelined by society

11:15

. That doesn't feel great in

11:17

the body and in your experience

11:19

. And so I think walking in knowing that

11:21

, like you know , having

11:24

different challenges in your body is actually the norm

11:26

and frankly it is the norm Like people

11:28

are hurting all over the place , chronic

11:31

conditions face . Like 60% of

11:33

people will face a chronic condition of some kind

11:35

, and 20% or more of

11:37

people have chronic pain , of adults have

11:39

chronic pain in this country . So it's actually

11:41

really really common , but it gets

11:43

treated in these wellness spaces as the

11:45

sort of outlier no-transcript

12:18

, but just fitness neutral .

12:20

I mean it's you , can . It

12:22

sounds like you can come in with really any

12:26

level of fitness because you're , because really

12:28

the first objective is

12:30

to figure out how

12:32

to work with your pain well

12:34

and it takes so much courage and

12:36

I feel like you know we just have to congratulate

12:39

people for even walking in the door .

12:41

You know , I mean it's hard and

12:43

so feeling comfortable in our bodies

12:45

is a privilege . I think it's hard for most

12:47

people and and so like why

12:50

not try and help people feel comfortable in their

12:52

bodies first and not make

12:54

you know the changing or the augmentation

12:56

of the body the first thing ? I mean , how many times

12:59

have we walked into new

13:01

exercise spaces and it's kind of like

13:03

, okay , here's the , the on

13:05

a purse or whatever they're called . You know

13:07

, like we're going to have you hold this thing and we're going to tell

13:09

you what your body fat percentage is . It's like you just

13:11

made eight assumptions about my goals , like

13:15

nobody said that that was part of you know the

13:17

requirements for being active and it's

13:19

infuriating .

13:20

Yeah , I , I totally

13:22

, 100% agree with you , and so I

13:24

think what you're doing is really is

13:28

really fantastic and really different

13:30

. You know than I mean , I live in Fairfield

13:33

County , you know . So there's just

13:35

, there's an aesthetic thing

13:37

happening here that maybe you

13:39

know other parts of the country or not , but that

13:42

, so that's really .

13:43

And it's also as we would argue , and I don't know if you want

13:45

to go down this path , but I mean it's also an unhealthy

13:47

aesthetic , like actually it's

13:49

actually not healthy to force yourself into

13:52

that . You know like we , we put it on a pedestal

13:54

as what health looks like , but it's it's

13:56

, it's an ideal . That isn't , doesn't line up with

13:58

the reality . And , and I want to think

14:00

, I want us to be thinking about health and wellness as like

14:02

feeling good in your body , feeling

14:05

feeling that you can , feeling that you

14:07

can live the life you want to live as

14:09

fully as possible , as possible , regardless

14:12

of of what pants are wearing when you do it

14:14

.

14:15

That's fantastic . I hope that you know I

14:17

and I'm just hoping that that becomes

14:19

like a bigger movement

14:21

, you know , and and just keeps

14:23

growing . I wanted

14:26

to just go back to your

14:28

childhood a little bit , because what do

14:30

you feel like are the traits

14:34

of chronic

14:36

pain ? How do people , you know , do

14:38

you feel like people fit into a mold of

14:40

you know who gets into

14:42

like the chronic pain

14:45

loop . You

14:47

know that it gets difficult to get out of .

14:48

Yeah , I mean , I can speak from my experience and some

14:50

of what I've researched , but certainly like not

14:53

a clinician . So quick disclaimer . But

14:55

I think that there's

14:57

a couple things there's we have to recognize

15:00

. First , that pain is

15:02

a signal from the brain . Right Pain

15:05

is the brain saying I'm

15:07

in danger or my physical body is

15:10

in danger . So that

15:12

may be a real thing , or it may not

15:14

be a real thing , but that's to the brain

15:17

, it's real and so it creates pain . So

15:20

there's the saying that

15:22

fear is the fuel of pain

15:24

. So having fear is

15:26

a big part of that , because it creates this

15:29

sort of code red

15:31

situation in the body where the nervous system is

15:33

, like particularly sensitized to what's happening

15:35

around it . Now you can end up in that state

15:37

for any number of reasons . You

15:40

know . I think in my case I had a lot of

15:42

anxiety growing up . You

15:44

may be in an environment

15:47

you feel unsafe in as a young person or

15:49

even as an older person . I

15:51

think that there's also , and there

15:53

is research around folks just having

15:55

a different level , a different threshold

15:57

of sensitivity to sensory

15:59

processing . So like for some

16:02

people , loud noises are just really intolerable

16:04

you know things like that

16:06

and for other people you know they're not , and so

16:08

I think I identify as someone

16:11

who , you know , I get kind

16:13

of overloaded in certain situations where

16:15

there's sensory , really

16:17

high level of sensory stimulation , so

16:19

like shopping malls used to give me a really big

16:21

headache , like I just couldn't deal with like the noise

16:23

and the music and the people and like I . So

16:26

I think that if your threshold for

16:28

kind of reaching a state of , you

16:30

know , danger is a little higher , you're

16:33

probably going to end up responding

16:35

with pain , and so you can . You can sort of

16:37

end up with this like baseline . That's

16:39

a little higher than , like you know , the

16:41

average bear or the person next to you

16:44

. And then if you

16:46

have , you know , multiple injuries

16:48

, you are at risk

16:50

of developing chronic pain

16:52

, depending on how your body

16:54

kind of resolves that after the fact

16:56

. So I think there's

17:00

lots of young people who play sports and

17:02

may end up having a bunch of injuries and then

17:05

they develop a sensitivity

17:07

in that area repeatedly . So every

17:09

time they injure something else , the

17:14

pain returns in that place because the brain just kind of like makes a connection

17:16

between an injury that happened

17:18

somewhere or maybe

17:20

a force on the body and

17:22

then pain elsewhere . But

17:25

there's also research and

17:27

Alan Gordon in his book the Way Out he's

17:30

the one who does the pain reprocessing

17:32

therapy talks talks a lot about

17:34

overachievers and people pleasers

17:37

and folks who are self-critical

17:39

. People

17:53

I work with who have chronic pain and who also are , like , totally convinced that it's their

17:55

responsibility to like solve everyone else's problems is like pretty much like a bullseye

17:57

, right . I mean so many

17:59

of us , for whatever reason conditioning

18:01

or you

18:03

know who knows have come up with this

18:05

personality type where we're

18:08

internalizing other people's demands

18:10

and are extremely

18:12

critical movement perfectionists and

18:14

that again can create a

18:16

sense of , I think , on safety

18:19

, lack of safety in the body , an

18:21

overstimulated nervous system and

18:24

, congruent with that , I have

18:26

a theory from my own work

18:28

that chronic dieting also

18:30

is a potential risk

18:32

factor for chronic pain , and

18:36

the reason for that is because

18:39

I believe the people

18:41

that I work with who have chronic pain

18:43

, one of the most difficult hurdles we usually

18:45

have to overcome when it comes

18:47

to moving is the fact

18:49

that they have a very difficult time

18:51

actually being in their bodies

18:54

, being present in their bodies , actually

18:56

sensing what's happening in

18:59

their bodies as they're moving . So

19:01

they're often reliant on a story they've

19:03

been telling themselves about what they can or can't

19:05

do , often a story

19:07

about I'm not strong enough for that , I

19:10

don't , my balance is no good , and

19:12

then I will construct little mini experiments

19:14

to kind of challenge those hypotheses and they're

19:16

very often wrong . Folks are usually much

19:18

more capable in their bodies than

19:20

they think they are because of the stories

19:23

and the narratives they have about

19:25

their pain being a limiter . And

19:28

those same people who are unable to actually

19:30

experience their true

19:32

physical capabilities are often

19:34

people who over many years

19:36

learn to ignore hunger cues

19:38

because no one has gone on a restrictive

19:41

diet without having to like overlook

19:43

that growl . That

19:45

is like evolution neurobiology

19:47

telling you like eat or you're going to die

19:50

. And so

19:52

I think , when we like repeatedly

19:54

ignore and ignore and ignore

19:56

and teach ourselves to

19:59

that , that whatever the body is telling

20:01

us is happening is , is not a physical

20:03

reality , it's kind of a . It's a , it's

20:05

a mirage . Then we

20:07

get into older , our older lives , and

20:10

we have lost our connection

20:12

to our physical body

20:14

and we're very detached . So getting

20:16

folks to reattach is a huge

20:18

part of healing . And I

20:20

believe diet culture and the diet

20:23

that you know yo-yo dieting and weight

20:25

cycling and all the things that many of us experience

20:27

in an attempt to reach that unhealthy

20:29

aesthetic . They just contribute to

20:32

that detachment .

20:33

Yeah , that's a really good point

20:35

. I mean , I think dieting , chronic dieting

20:38

completely disconnects you from

20:40

your body , tells

20:42

you , like you said , your

20:44

hunger is . You're ignoring

20:46

your hunger signals . You're not

20:48

eating when you're physically hungry . You're not

20:50

ignoring your hunger signals . You're not eating when

20:53

you're physically hungry , you're not . And

20:58

that's just the opposite of self-care and just and it doesn't . It just doesn't

21:00

teach you how to just stay connected to an intuitively

21:03

eat and and so I could see

21:05

then that relationship to chronic pain

21:07

. So it sounds like you have a lot of clients who

21:10

have

21:13

this association that

21:16

would be really , really interesting to

21:18

to have more research done

21:20

on that , on that connection . I would love

21:22

to to see that . But I mean , it just sounds

21:24

like from your experience you've

21:27

you've definitely have

21:29

witnessed that .

21:30

Yeah , and it's the language people use , like even

21:32

recently someone said someone who is

21:35

has shared with me that that they're in in eating

21:37

disorder recovery said

21:39

you know , we were doing something , um

21:42

, relatively challenging that

21:44

required body weight , um support , and

21:47

I could just sort of tell that they

21:49

were nervous . And so I said you know , can

21:52

you say more about what you're feeling right now

21:54

? You know , does this feel scary

21:56

to you in some way ? And the person's response

21:58

was I don't feel , I don't trust

22:00

my body to hold me , I don't trust

22:02

my body to support me . And

22:05

, and again I think that's that's

22:07

like a , it's a huge kind

22:09

of , it's sort of a form

22:11

of body dysmorphia , right when you

22:13

visualize yourself

22:15

. You see yourself as this weak , unhealthy

22:18

, like unfit kind

22:20

of thing

22:22

. That's not the reality of the physical

22:25

vessel that you're in , but you've become so

22:27

and of course , having

22:29

gone through this , we understand that you become so attached

22:32

to the kind of projection

22:34

of yourself that's in your head

22:36

that you don't even know the one

22:38

that you're in . And then I think there's also

22:41

a lot of kind

22:43

of self-loathing and resentment that happens

22:45

in that , and so , again , it just pushes

22:48

you . It pushes you towards the projection

22:50

rather than the reality , and

22:53

so I think that that definitely

22:55

creates a sense of and in this particular person's

22:57

particular case , it was really a sense of of

22:59

I'm not safe , Like I'm , I'm

23:02

going to fall , or I you know I'm not

23:04

, I'm not going to be able to hold myself Like

23:06

like you don't trust your body or you're angry

23:08

with your body . And since we talked about fear being

23:10

the fuel of pain , like surely

23:13

all those experiences are only going to

23:15

contribute to

23:17

a pain experience . And if you are someone

23:19

who maybe has , you

23:22

know , a mild condition that would lead to

23:24

pain , then it would , of course , exacerbate

23:26

it right , it would turn up the volume so much . So

23:29

sometimes we're dealing with a pain

23:31

that arises out of something that would

23:33

be minor in a body where the person

23:35

felt very safe already

23:37

, right . So we're kind of setting ourselves up for

23:39

failure with that .

23:41

You mentioned very briefly that you

23:43

experienced an eating disorder . While

23:47

I mean do you feel like ? I mean

23:49

, is this something you can relate your

23:51

pain to ?

23:53

100% . It's really interesting

23:55

because I mean and I've never been diagnosed

23:57

as having an eating disorder , but I've went through

23:59

cycles of restriction

24:01

, extreme restriction , and then , you

24:04

know , binging . You know , I think

24:06

, because I never looked small no one really

24:08

ever considered it . You know

24:10

what I mean and that's also a problem we know exists

24:12

in the medical system . But

24:15

what's really interesting is I just

24:17

reached this point maybe it was because

24:19

I was about to turn 40 , I don't know and

24:25

I was like surely this is not going to continue

24:27

to be my life , spending

24:29

my Sunday packing foods into tiny

24:31

little color-coded containers , when

24:33

I could be like reading a book or

24:35

doing something else , or like not being

24:37

able to even focus on my tasks

24:40

at work , because all I could think about

24:42

was the things that I wanted to eat or the things that

24:44

I felt guilt about eating , or the things

24:46

that I like wished I could eat . Or someone else was eating

24:48

and I was like mad that they got to

24:50

it and I couldn't eat . You know , it was just kind of like always about

24:53

food and I was like this

24:55

is not a way to live . You know , I can't deal

24:57

with this anymore . And at the time I was also

24:59

in PT physical

25:01

therapy for major

25:04

hip pain , pelvic floor pain , shortly

25:08

after I got plantar fasciitis . I mean

25:10

, there was just like a whole lot of stuff going on . So

25:12

I basically

25:14

started you know , I don't know finding

25:16

all of these influencers who had

25:18

great books , like Christy Harrison and

25:22

of course the , the Triboli , and I

25:24

always forget the names but the intuitive eating book . You

25:28

know , I just kind of went through book after book after book

25:30

after book and every one of them was saying the same thing

25:32

. And it's always that Minnesota starvation

25:34

experiment always gets me every time how they

25:36

put these men on a 1600 calorie a day

25:38

diet , which is like above what I was allowed

25:40

to eat on my diet at the time , and they were going

25:43

crazy . They were like

25:45

turning into super unstable humans

25:47

. And I said

25:49

, okay , so this makes sense , right , it just makes

25:51

sense that this is making me feel crazy . So

25:53

I started slowly dismantling

25:55

my dieting

25:57

norms , my rules , my food

25:59

rules , my food rules that I had had

26:02

that were passed down to me from generations

26:04

of food rule lovers , you know , over

26:06

over the generations of women in my family

26:09

. And it was hard it's . I mean , I'm

26:11

still , I still have struggled with that , and this is

26:13

four years now , because it was

26:15

really at the end of the quarantine . But

26:18

what I noticed is that as

26:20

I started taking this apart and

26:22

I did put on a lot of weight

26:24

I probably put on 20%

26:27

of my body weight or something more than

26:30

that , and

26:32

that was hard at first to accept

26:34

because I was certain that that meant I was going

26:36

to be unhealthy . But since

26:38

then I've been able to return

26:40

to lifting weights at a very

26:42

heavy level . I've been able to return

26:45

to jogging . I've been

26:47

able to go back to doing things in

26:49

my body that I hadn't done since I was like

26:51

20 . And it was

26:53

, you know , slow process , but like

26:55

it really just kind of reframed

26:57

for me , like wow , I wasn't I

26:59

mean , I had pain and everything

27:01

going on , but like I also had

27:03

this like incredible , like

27:05

constrictive way of living that

27:08

was just limiting my beliefs about myself

27:10

and also just tying my body

27:12

up in knots , to be honest with you . And

27:14

now I'm in my forties and

27:17

going through perimenopause , which is another fun

27:19

topic , but I feel

27:22

better in my body than I have in

27:24

a decade at least . So

27:26

like what does I mean that ? I mean again this I'm

27:28

an N of one . So for whatever that's worth

27:30

like that has been my experience

27:32

that piecing that apart and taking taking

27:35

away the stories about

27:37

my body's failure you

27:39

know to be what I needed in my body's worthlessness

27:42

because of the way that worth was defined

27:45

in my you know , in the narrow

27:47

framework I was given Once I

27:49

kind of took that apart . It brought

27:51

a ton of freedom and relief and

27:54

possibilities for me that

27:56

I think are very tied to the fact that

27:58

my pain levels are so low I

28:00

mean , like I said , lower they

28:02

have been in decades .

28:04

Yeah , I mean it sounds like you let go of

28:06

just the rigidity , right

28:08

, and the rules and the and the , probably

28:11

beating yourself up if you didn't do it perfectly

28:13

and all of that

28:15

, and , and I mean I can relate to that

28:17

too . I mean I grew up with dieters

28:19

all over the place , you know , in my family

28:22

, and I was on a diet at my

28:24

first diet at 11 and

28:26

just hating

28:28

my body for years

28:30

, you know , and , yeah , did

28:33

, did , did , did my chronic pain go

28:35

hand in hand . I mean I have to , you know , I have to

28:37

like , really like , think about that . But I mean

28:39

I know I have other other instances where

28:41

, like I mean I remember being in chronic pain and

28:43

, like my teens also neck pain

28:45

and stuff . But I and I also had some other like

28:47

traumatic experiences that I had gone

28:50

through so but the , so but

28:52

the being on the diets and like

28:54

restricted . I mean it is so punishing

28:56

and I could definitely see this

28:58

link between that

29:00

and , you know , in a pain link . I mean that doesn't

29:02

mean that everybody experiences who

29:04

has chronic pain experiences issues

29:07

with their dieting

29:10

and , you know , weight loss and eating

29:13

disorders , but it certainly

29:15

seems like that can be part of the connection

29:17

.

29:18

When it wouldn't matter so much if

29:20

it weren't for the fact that the medical system

29:23

is continuing to tell people that the answer

29:25

to chronic pain is weight loss . So

29:27

, like , not only are we ignoring

29:29

the fact that we are encouraging

29:32

people to have a really combative

29:34

, adversarial relationship with their

29:36

own physical vessels from a young age

29:38

, but we're also telling them to exacerbate

29:41

that as their

29:43

bodies change . And again , especially being a woman

29:46

in my forties , you know going through

29:48

lots of changes . I mean even still

29:50

. Like , like they're bringing back all the feelings

29:52

that I had as a younger person , because

29:55

the first thing anybody wants to talk about is my

29:57

belly fat . It's like what

29:59

? Like like

30:02

this , this can't be the most important

30:04

. It isn't . We know the research already

30:06

shows that it's not the biggest contributor to my mortality

30:08

. So , like , why are we talking

30:11

about that ? Why are we diagnosing that ? Why

30:13

, and again , why are fitness spaces and wellness

30:15

spaces all getting

30:17

so hung up on ? Even when I get , you

30:19

know , instagram ads about

30:21

you know , the menopause journey

30:23

? Like they're always oriented around which supplement

30:26

is going to suddenly shrink my you

30:28

know my body ? And it's like I feel like

30:30

I'm having deja vu . Like this is not . Like we're having

30:32

this conversation again when we

30:34

shouldn't have been having it in the first place

30:36

. And now people are in pain

30:38

and they're focused on the wrong thing

30:41

, and that's why it's like

30:43

. No , the focus is to move

30:45

. The focus is to move , to move , to move

30:47

. Everyone in a body can move

30:49

and you don't need to have a certain size

30:52

, and what I've learned is that my size

30:54

of my body actually doesn't limit

30:56

my movement Like holy cow .

31:06

I had no idea . Yeah , I know Well , you know good point about

31:08

the menopause , like ads and everything . I

31:10

mean that is out of control and and what an interesting

31:12

. You know that's an interesting connection too , because

31:14

you're first you go through

31:17

puberty , right , and you're in teenager

31:19

and like you're starting to feel really

31:21

maybe awful about your body

31:23

or like comparing , and then we go full

31:25

circle and now we're in our like forties and fifties

31:27

and and it's like second puberty , you know , because now we're losing in reverse , that we're in our

31:29

like forties and fifties and and it's like second , second puberty , you

31:31

know , because now we're losing in reverse

31:33

, that we're losing our estrogen and

31:36

I believe this is where

31:38

a lot of eating

31:40

disorders maybe they've been

31:42

dormant for a little while kind of come

31:45

, start to come back , because the pressure

31:47

to lose weight , lose

31:49

the belly fat , the

31:52

meno belly , and

31:54

it's confusing and

31:56

I think it just stirs up so much

31:58

emotion and I

32:00

think , no surprise this is , I

32:02

think , a big time for people in chronic

32:04

pain around this age 100%

32:08

. Is that from your hormones ? Is

32:10

that a connection too ? It is it

32:12

that we're just having

32:15

to refocus

32:17

in on our bodies ?

32:19

Well , Heather , if they did any medical research on women , we

32:21

would have more answers about that . But exactly

32:24

, yeah , Unfortunately we're dealing

32:26

with , like you know , research done by on

32:28

white male bodies for the past 50 years

32:30

. But but , yeah , 100% , I mean

32:32

there's definitely a big uptick in pain

32:35

in this time .

32:36

Yeah , I , I totally , I

32:39

think so . So

32:41

you mentioned Alan Gordon

32:43

. He wrote the book the Way Out I . That's

32:45

one of my all time favorite books and and

32:47

I know about the Pain Psychology Center

32:49

all-time favorite

32:52

books and and I know about the pain psychology center because I've that's sort

32:54

of how I got into doing a lot of work on for myself in

32:56

chronic pain . But you said you

32:58

have written a book as well yes

33:01

, I have let's talk about

33:03

that , because I that's . It sounds like a great

33:05

book and I love the title you're meant to move

33:07

, because I really do believe that too . I think

33:09

that people think I'm

33:12

in pain and I can't move

33:14

like others , but I

33:16

think our bodies are meant to move , right . I mean

33:18

, we are wired for that . So tell

33:21

me a little bit about your book .

33:23

Yeah . So I

33:25

wrote the book for a couple of reasons

33:27

. First of all , I mean I do love to write , but first

33:30

of all I wanted

33:32

to kind of process three decades

33:34

worth of dealing with chronic pain and

33:37

kind of help people who were

33:39

in the position I was in a while ago maybe

33:42

get to where I got a little faster If

33:45

I could share my story and then

33:47

also what I've observed with

33:49

my clients . There's a lot of anecdotes in it

33:51

of client stories

33:53

and experiences and their own words sometimes

33:55

about this

33:57

kind of trying to rewrite the narrative

34:00

that we have about our ability

34:02

to move and how pain

34:04

factors in there . And

34:06

one of the major hurdles

34:09

for me , especially after the disc herniation

34:11

it was a list of don'ts Don't

34:14

bend at the waist , don't sit for too long

34:16

, don't twist your body . And

34:19

in hindsight I think a lot of times

34:21

what happens is they give you guidance

34:24

in the acute phase and it sticks with

34:26

us , and so sometimes we keep doing the acute phase

34:28

long after it's healed with

34:32

us and so sometimes we keep doing the acute phase long after it's healed . But the reality is the research

34:34

is very , very clear now that for the most part you want to move your

34:36

joints , like immediately . I mean think about

34:38

hip replacement , folks who , they like , have climb

34:40

a stairs in like 24

34:42

hours . I mean healing

34:45

is really tied to moving . And

34:47

so that was advice

34:49

, clinical advice I was given repeatedly

34:52

that set me back years because

34:54

of the fear that it generated and

34:56

and kind of , and again , just

34:58

like with the pain or processing . You

35:00

know stuff too . It's like your

35:03

, your brain , like links . A connection

35:05

between bending over is how I hurt myself

35:07

. Therefore I should never bend over . And now

35:09

you've eliminated a really important movement from your vocabulary

35:12

. So I wanted to take

35:14

all of those , all of the bad information

35:16

I received and what I've learned since then , and package

35:18

it up for folks who they who could

35:20

then take it and really have like a step-by-step

35:22

guide . Because the second reason I wrote it is that

35:24

I am a person , a single person , in

35:27

a brick and mortar studio in Boston and I can

35:29

only see so many people . But I

35:31

feel like there's a lot of work that people can do on

35:33

their own . I mean , as magnificent as Pilates

35:35

and the equipment are , you know

35:37

, there is a lot you can do just working

35:40

by yourself . And so it's written in such a way

35:42

that it would be a 12 to 14

35:44

week process where you can go through

35:46

all the different stages with

35:48

a lesson and activities for

35:51

each week , and it comes with a journal

35:53

that comes with it and some you know recommended

35:55

movement exercise videos , and

35:57

then by the end , you should be able to design

36:00

a movement program for yourself

36:02

, the one that's catered to not

36:04

just what your body feels up for in

36:07

this season , but also like

36:09

what your goal is , and I don't mean your goal

36:11

like I need to do 10 pushups , but like I

36:14

want to be able to to climb the

36:16

steps of the Cinque Terre trails or

36:18

whatever I , you know , I want to be able

36:20

to carry my groceries across

36:23

across the parking lot like really realistic

36:25

goals that have to do with how we live and

36:28

I . That's how I think our movement programs should

36:30

be designed . They should be designed around

36:32

keeping us functional into

36:34

our older age , like that's the point

36:36

. So that's the way

36:38

you're meant to move is structured . It tackles

36:40

all the factors around

36:42

why pain persists in our bodies

36:45

. Really , we're trying to remove that

36:47

self-blame and the shame that comes

36:49

with the message of you

36:51

know . Chronic pain is therefore somehow

36:53

your problem or your fault because

36:55

of you know , maybe choices which

36:58

, I think again , the weight loss rhetoric

37:00

really does in the medical system . So

37:02

so yeah , I'm really excited

37:04

about it being out in the world and hope that

37:07

people are able to find that they

37:09

can chart a new path toward an active life

37:11

. Because , you know , not only is movement

37:13

regular movement , I believe

37:16

, the most important health promoting behavior

37:18

that we can , that we can commit ourselves

37:20

to , but it also

37:23

, you know , is really good for us , even

37:25

when we're hurting because of the chemical

37:27

. You know chemical benefits , inflammation

37:30

benefits , cardiovascular disease

37:32

prevention , I mean autoimmune

37:35

disease support , like every single

37:37

system in our body

37:39

reacts really well

37:41

to movement . So it's not just you're meant to move

37:43

, like get off the couch

37:45

, because that is kind of part of it , like we have we've

37:47

built a modern sedentary society and we need

37:49

to rewrite the rules but

37:52

it's also you're meant to move in the sense that

37:54

finding any form of movement will

37:56

benefit , like reap rewards for

37:58

, for all of your , your physical systems

38:01

, even if the movement is not , you know , what we would define

38:03

classically as exercise .

38:06

Yeah , well , that's so , that's great , cause I was going

38:08

to say I know you're in a brick and mortar business

38:10

in Boston and I wish that you

38:12

lived closer to me . I mean not that

38:14

far away , but but I would

38:17

love to have you here

38:19

with me because I would be signing up in a second

38:21

. So that's , that's so great , that you

38:24

have a book with a program in it

38:26

and that people can go and do that

38:28

on their own . I also know about

38:30

like that , that feeling , um , this this side

38:32

note I just heard you say you know that to

38:35

to get out of the feeling

38:37

like it's my fault , like the pain's my fault

38:39

, because I lived with that for years

38:42

, years . You know that , like I

38:44

, it's the , the

38:47

perfectionist people

38:49

like I mean you know all of that

38:51

, that just felt like I definitely

38:53

did something wrong , you know , and so therefore

38:57

, it's on my fault . And how

38:59

am I supposed to fix this ? And I mean it

39:01

. Just , you know , and that's a whole your

39:04

spiral too . So you're

39:06

yeah , so your book sounds really

39:09

actionable and

39:11

gives people the . You know

39:13

the steps to .

39:15

Yeah , and I think it . You know it's a start of a journey

39:18

, like I think it's . You can get through it relatively

39:20

quickly if you were to sit and read a cover to cover , but

39:22

it really shares the re , the research behind

39:24

a lot of what I do and , again

39:26

, the stories behind what I do . And if

39:28

folks are curious , even for yourself , um , and

39:31

want to dk at

39:33

movementremediesorg , I'm happy to share

39:35

a pass for my

39:38

restorative Pilates mat class

39:40

, which is available virtually three times

39:42

a week . So I just think it's

39:44

important that people find what speaks to them

39:46

in terms of being active and not

39:48

let those , the fear

39:50

, a lot of fear , the fear , the

39:53

guilt , the not , it not being enough . Don't

39:55

let all those , those obstacles

39:57

that we build up in our minds get in the way

39:59

of what is going to really benefit

40:02

you in the in the long run . And

40:04

I know it's a fight . I mean , it's a fight for me . I have a

40:06

room full of equipment and it's a fight for me to get moving

40:08

sometimes , but I'm always glad when I

40:10

do .

40:11

Yeah , that's great , so people can connect

40:13

with you online and take a class with you a math

40:15

class , Okay that's great . Good

40:18

Well

40:23

, DK , it was so nice talking with you and really I mean I

40:26

want to keep this conversation going about the connection

40:28

between dieting and

40:30

body image and disordered

40:33

eating and chronic pain

40:35

, because I think it's really important and

40:37

you're doing great work . I think it's just

40:39

, you know , fantastic . I

40:42

will put all the links for you

40:44

in the show notes so people can get in touch

40:46

with you . And thank you

40:48

again , my pleasure , Thanks for having

40:51

me .

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