Speaking in Spoons Season 3 Spoonie Sunday 1:

Host Christina Brookman shares her journey with diagnosis of rare biliary condition (Primary Sclerosing Cholangitis), only to have it taking away... for now, due to a MRI test that was not able to be read due to her inability to stay still and breathe as needed. Also, she dives in the the new habit of medical professionals copy/pasting reports leaving a plethora of inaccurate information and in this case some flat out lies. How do the medical community and patients work together to keep this from happening in a system that overloads doctors and nurses with paperwork and no time....and chronically ill/disabled patients that don't have the energy to advocate and correct every doctors visit.

#chronicillness #rarediseases #disability #invisibledisability #selfadvocacy #autoimuneschlerosingcholongitis

#medicalpaperwork

#medicalerror