Episode Transcript
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0:03
Welcome to Season two of The Next Great
0:05
Podcast. My
0:09
Heart Radio and Tongle have once again teamed
0:11
up to bring you another round of amazing and unique
0:14
voices. We're excited to share these ten
0:16
incredible podcasts with you and need your
0:18
help crowning the winner. Check out the pilots
0:21
and be sure to vote for your favorite at Next Great
0:23
podcast dot com.
0:28
Today's entry's Life Salad by
0:30
Stevie Weiss and Marty Heart. We
0:32
all started out as a collection themselves, and
0:34
though we've since evolved into unique human beings,
0:37
we're all still held to the same arbitrary
0:39
standards about what our bodies should and shouldn't
0:41
look like. We love this concept
0:43
for the way it questions those standards and aims
0:45
to deconstruct the social and political meanings
0:47
of our bodies. Stevie
0:50
and Marty's dedication to body positivity,
0:52
diversity, and mental health awareness, among
0:54
other vastly underdiscussed topics, is
0:57
what makes this show both interesting and necessary.
1:08
Ladies and gentlemen, boys and girls,
1:10
multi sacks, undecided and robots.
1:12
You're listening to Life Salad. I'm
1:14
Marty, I'm Stevie, and you're
1:16
listening to the pilot of Life Salad,
1:19
which is part of the Next Great Podcast
1:22
competition from I Heart Radio and
1:24
Tongle Life. Salad tosses together
1:27
a variety of stories and experiences
1:29
where season one we're talking about the human
1:31
body, and obviously we couldn't call the
1:33
show human salad. So from the hair
1:35
on your head or lack thereof, to
1:38
the tips of your toes, your guts,
1:40
your skin, your tips in your nose. Now,
1:42
normally each episode will focus on just one
1:45
specific body part at a time, Like imagine
1:47
an entire hour dedicated to back hair. Maybe
1:50
not that specific, but since we
1:52
are trying to win a contest here for the pilot,
1:54
we bring you a whole bunch of body stories that
1:57
really run the gambit. Today on the show,
1:59
we're talking to it Natalie, we just
2:01
say we will not whale Jessica.
2:05
Cancer runs in my family until
2:07
it runs into me and to a mirror.
2:09
Having scars, either you
2:12
like it's done something really stupid
2:14
along the way, or you've like lived or
2:17
you've like like memorable
2:19
experiences. Now let's get
2:21
right into it. My
2:29
breast cancer story starts when I was eighteen
2:31
years old, and um, you know
2:33
that was back in two thousand three. I
2:36
came up smelling like food. Needed a shower
2:38
before my second job, and as
2:40
I was bathing, I accidentally
2:42
stumbled upon a lump
2:44
in my right breast and about the six
2:46
o'clock position, the bottom
2:49
quadrant, and I thought,
2:51
oh my god, I'm eighteen. This this must
2:53
be cancer. Um.
2:55
I have so much cancer in my family. This
2:58
is got to be what it is. I
3:00
have, you know, two aunts
3:03
on my dad's side of the family who have had cancer.
3:05
UM, paternal grandmother, five
3:08
paternal grand aunts, and my paternal
3:11
great grandmother. I am the fourth generation
3:13
in my family to have breast cancer
3:15
and there's been no known gene mutation.
3:18
So at eighteen years old, when I find this
3:20
lump, I'm thinking, oh my god,
3:22
I have cancer. I
3:25
am a twin and
3:28
my twin and I were born
3:31
ten weeks early, so we
3:34
were supposed to be born on Halloween,
3:36
but we were born in summer
3:39
instead. Um.
3:41
And the thing about Sir Poolsy
3:43
is it's not cause
3:46
um in utul sort of in the it's
3:49
caused by the fact of
3:51
being born early, usually
3:55
down to oxygen
3:57
deprivation and things like that.
3:59
Sort of. It's not like genetic
4:02
it can't be prevented.
4:06
It, so
4:09
I had my biopsy. I
4:11
was officially diagnosed at
4:13
thirty three years old with invasive ductal
4:16
carcinoma stage two
4:18
BE. My lump
4:21
was four point three centimeters
4:24
and I had two diseased
4:26
lymph nodes. I went through
4:28
sixteen rounds of chemotherapy, twenty
4:30
four rounds of radiation, a double
4:32
mestectomy, for which I lived without
4:35
breasts for two years. UM.
4:38
I had a hysterectomy prophylactically,
4:40
which means it's preventative, and
4:43
I had a two phase
4:46
breast reconstruction called deep
4:48
flap, and it's where they take
4:51
fat tissue and blood vessels from
4:53
my abdomen and they used
4:55
that to recreate breasts. I went
4:58
from being essentially UM
5:01
a double amputee, to a double transplant
5:03
recipient with my own uh
5:07
breasts, my own tissue, my own
5:09
body, so like my
5:12
My government initial
5:15
COVID strategy basically amounted
5:17
to it's okay, nobody needs
5:19
to worry because it's only old and disabled
5:22
people that are going to be affected, so
5:25
only they're gonna die, so the rest of us
5:27
are okay, which a is
5:29
not true at all, but also
5:32
quite one did feel
5:35
a bit like a throgle, sacrificial
5:37
lamb, just being
5:39
like thrown to the wall. I
5:42
was driving to meet friends
5:44
who had ended up being friends who are going to surprise
5:46
me at a beach out in the Salma
5:48
area, and an animal ran across
5:50
the street. Or we think, we don't even know what the true
5:52
story is anymore. Swerving happened.
5:55
And then in movies when you see people like flipping
5:57
in their cars and the woo woo woo woo
6:00
whoop, I experienced that as well. Full one.
6:03
Uh So, there are quite a few injuries along the way, but
6:05
one of them was a piece
6:07
of glass that chose to stay in my arm for
6:09
a very long time. Um. Multiple
6:12
attempts at surgery happened. The doctors are currently
6:14
oh for three with it. Um
6:16
So now they have decided after like a lot
6:18
of like cutting and surprise surgeries,
6:21
which I got really excited because you get to like look
6:23
inside your own arm and like see the tissues
6:25
and the muscles being ripped apart and moved and me
6:27
like egging them on. There was a lot of blood everywhere.
6:30
It was quite glorious. Uh
6:32
that the doctors have decided that at this point,
6:35
your two options are either having like a gigantic
6:37
star scar for them to cut through, um
6:40
to potentially be able to find it or accept
6:43
that this is a piece of glass. Le Wil forever
6:45
living you um So now I
6:47
live with Sharpay forever. When
6:49
someone tries to relate
6:51
to you, they will
6:54
often start, you
6:56
know, oh, I'm you know, I'm sorry
6:58
you have cancer. My aunt died of cancer
7:01
like three years ago or
7:03
something like that, and I'm just like, I'm
7:07
really sorry to hear that. And then
7:09
I'm thinking like, well, what kind of
7:11
cancer did she have, what treatments did
7:13
she have? Did I do everything for myself?
7:15
Did she still have a reoccurrence? Like why did she die?
7:18
You know, I'm thinking about those
7:20
things. Um
7:22
So again, I know that people
7:24
are trying really hard to relate to
7:26
you by saying those things,
7:28
but it does, um it's
7:30
really not the best way to empathize.
7:34
I get it like five or six times
7:37
a Dane. People think it's been
7:39
funny and it gets really
7:42
boring, which is um
7:44
some variation on oh,
7:46
very impression to anyone with that What
7:48
should top speak that
7:51
stuff? Because them I have
7:53
a wheelchair to get around, So
7:56
I get it at least like two
7:58
or three times a day. I get some kind of
8:01
variational that and I
8:03
don't mind it from like you little kids, but when
8:05
it's like adults and really
8:08
like and they always looked so pleased
8:10
with themselves, like they're the
8:12
first person ever to come up with them,
8:14
Like I've literally heard this every day of my
8:16
life for about I
8:18
don't know even what now, eighteen years
8:21
however long it was my first.
8:25
And then um, I was actually
8:28
um at a hotel uh
8:31
Bar one night. I was there
8:33
with a group of friends and
8:36
um I was at the end and a
8:38
gentleman came up next to me and sat
8:40
down, and I really I could tell
8:42
he was already inebriated, and I just it
8:45
was a little annoying. I was just kind of
8:47
like keeping him at bay and just giving
8:49
him really like just short answers to kind
8:51
of turn him off to wanting to talk to me,
8:53
just trying to be uninterested as polite
8:56
as possible. And then
8:58
he's like, so what do you do, and and instead
9:01
of telling him, you know, about my day job,
9:03
I said, well, I'm a breast cancer survivor.
9:06
That's what I do. I survive and
9:08
uh he then he's
9:11
like, looks at my chest, and
9:13
says, well, are they real or fake?
9:16
And I look at him and I'm like, I've
9:18
gone through sixteen rounds of chemo, twenty four rounds
9:20
of radiation, a double mistectomy, a hysterectomy,
9:24
and um to phase multi
9:26
flap breast reconstruction. Everything
9:29
about me is real, very
9:32
real. And I just got up and went
9:34
to the bathroom. So, um,
9:37
that's really been the only time someone's asked
9:39
something insensitive. But you
9:42
know, I think, you know, people
9:44
are most of the time, are are well intentioned
9:47
with that stuff. Well,
9:52
it started when I was really quite
9:55
young. In my family.
9:58
I was always I've got choose to stairs, and
10:00
we were always treated the exactly saying.
10:03
So it wasn't until I started school
10:07
that I kind
10:09
of realized, oh, this is weird people
10:12
pointing, whispering, saying
10:16
things. A lot
10:18
of the time people would
10:21
sort of point and whisper and then and I would
10:24
say to them stop
10:26
whispering about me. There would go, oh, we're not, even
10:29
though I could literally see it in front
10:31
of me. One story to sort
10:33
of summing out, I
10:35
would have been about ten, would have been
10:37
in what you guys would probably call
10:40
middle school, and
10:43
my friend had painted
10:45
a picture of me um
10:48
in art class. We've sort
10:50
of done each other. I
10:52
came into school the next day to find
10:55
that her portrait
10:57
had been pinned up in the hallway.
11:00
Her portrait that she drove me. Next
11:02
to it was written, it
11:05
is our school ethos to help
11:08
the needy and that was less fortunate
11:10
than us. So that was a pretty
11:13
um, pretty depressing
11:15
day. I mean I kind of
11:18
I already knew that I wasn't really
11:21
consider the them, but
11:23
to have it actually written out on a wall
11:25
for everyone to see that I was in
11:28
fact on us, that
11:30
was I was interesting. I
11:33
went to the headmaster to complain about
11:35
it, and he couldn't see what my problem was.
11:38
Yeah. So, when I was going through my second
11:40
round of chemotherapy and my body
11:42
was changing, I was losing my hair, I was losing
11:45
my nails, my I had
11:47
my upcoming double mysterchtomy
11:50
approaching, and I
11:54
didn't tell my friends and family at first
11:56
because I was really dealing with the emotions. But
11:58
as my body was changing, I thought, Okay, well,
12:01
I'm not gonna hide under a rock. You
12:03
know, throughout the rest of my cancer diagnosis,
12:06
people are gonna see me, They're gonna ask questions they're
12:08
gonna want to know. So, as I came out to my
12:10
friends on social media and told them that I had
12:13
breast cancer. UM,
12:15
my friends were like, well, how did
12:17
you even know to go get checked or even
12:19
think about it? I said, well, I
12:22
do my monthly self breast exams,
12:24
don't you? And they were like, no,
12:27
no, no, we we don't. And I'm like, wait,
12:30
wait what I've been doing this since I was
12:32
eighteen. Why aren't you doing them? And
12:34
I found out there were three primary reasons.
12:38
Either women UM didn't
12:40
know how to do a self breast exam,
12:43
they were afraid of finding something
12:45
and not sure what to do next,
12:48
Or they weren't comfortable with
12:50
their bodies. So I wanted to do
12:53
something about that UM.
12:55
I started a social media project
12:58
called Feel for Your Life on Facebook
13:00
and Instagram, and I started sharing
13:02
my story there. I started sharing information
13:05
about self breast exams and screenings and
13:07
how to advocate for yourself UM
13:10
and to stand up to medical gas lighting.
13:12
And then actually this year, well
13:15
last year, after Breast Cancer Awareness
13:18
Month, I thought, I want to do something bigger
13:20
with Feel for your Life. I want to reach
13:22
more women and I want them
13:24
to be empowered and equipped
13:27
to uh know about screenings,
13:29
know about self exams, know about their genetic
13:32
history, know about uh
13:34
DE dents breasts and what
13:36
to do about it. So I became the first
13:39
breast cancer patient to create an app to
13:41
show you how to do a self breast exam,
13:43
how to advocate for yourself, how
13:45
to um how
13:48
to set reminders, and how
13:50
to track and monitor your changes so
13:52
that you can take this information to your doctor.
13:55
And then another one is on the top of
13:57
my foot on myself, my right foot,
14:00
because this reminds me of like when I was
14:02
backpacking in Peru. I can't surf
14:04
to save my life. I pretend I'm really good at it, but
14:06
I'm not. And there was an incident
14:08
that I
14:11
someone saw a fin, but they're not
14:13
too sure that they saw a fin, so they yelled
14:16
something and I got distracted because
14:18
I wasn't too confident, and I slipped off
14:20
my surfboard who went underwater, and
14:23
as I was underwater, to surfboard hit
14:25
me in the back of the head and went
14:27
back further down and cut my foot
14:30
at the on a coral somewhere, And
14:32
then I was that pathetic human who
14:35
swam back to shore dragged
14:37
my surfboard, left a trail of blood
14:40
in the sand um and the
14:42
poor Peruvians are just like freaking
14:44
out because there's like blood coming understand
14:46
from this complete stranger who barely understands
14:49
anything they're saying. I was talking with a
14:51
friend of mine about this the other day. You don't see,
14:54
you know, people with disabilities,
14:56
physical disabilities in media,
15:00
and you don't see a lot of them full stop.
15:03
But when you do, the characters
15:05
have usually acquired the disability
15:07
somewhere. The one in my stomach is
15:09
the most embarrassing one. This would have been
15:11
at a summer camp about five
15:14
six years ago maybe, and we set
15:16
up a slip and slide for the campers and
15:18
the kids to go on. Some of the staff
15:21
got a little bit too excited, myself included,
15:23
and it turned into a very aggressive
15:25
form of slip and sliding that at
15:27
some point it turned into like a burn slash.
15:30
There could have been a rock on this tire to
15:32
that as I went down, it
15:34
cut me right above
15:37
the belly button area, like on the stomach. And
15:39
then the slip and sliding had to be canceled
15:41
because it was a mixture of water and
15:43
soap and my blood again. Another
15:45
one of my lovely Twitter friends.
15:49
She got challenged by someone once
15:51
because they didn't believe that the
15:53
same parking spaces needed to be
15:55
April after ten pm
15:58
because they didn't see why any quite
16:01
disabled would be out
16:04
after that time. Not
16:06
an amazing response that we
16:09
disabled, Daniel, We're not wear wolves.
16:12
You know. I am grateful and I'm
16:14
happy, and I always say that I
16:17
hope this is my last surgery with
16:19
cancer. You just kind of always wait
16:21
for the other shoe to drop
16:24
sometimes, um because it's
16:26
like, oh wait, there's more, you know, after the double
16:28
mistacum me, it's like, oh wait, there's more. You're gonna
16:31
have to have radiation, and then thinking
16:33
I'm gonna have surgery. Oh wait, you know, the
16:37
hospitals canceling all surgeries,
16:39
and so anytime you know, I
16:41
have blood work or I have to have a
16:43
scan, you know, and the cancer community
16:46
we call it scanxiety when
16:48
we get nervous because we think something is going to start
16:50
lighting up like a Christmas tree and it's gonna
16:52
require, you know, further testing in
16:54
a biopsy. So I'm grateful
16:57
to be what I think is
16:59
that at the end, and I hope to close
17:02
the chapter on cancer, and
17:04
at the same time, it's just kind
17:07
of I'm cautiously optimistic,
17:09
kind of tiptoeing and walking on eggshells,
17:11
just wondering if something else is
17:14
around the corner, but you know, I'm working
17:16
through it. We want
17:18
to say thanks the Natalie, Jessica and
17:20
Amana for sharing your stories with us. Sure
17:23
well, my name is Jessica and
17:26
I'm a breast cancer survivor. By
17:29
everyone, my lane is naturally
17:31
hipot. I am
17:33
an author of young
17:36
adult fiction. I also happened
17:39
to have a theme call
17:41
share. I'm a mare,
17:44
I'm thirty one, and I just
17:46
gave you a brief synalypsis of what
17:48
my scars look like and where the stories
17:51
came from. The Lifestylead podcast
17:53
covers diverse guests and stories from
17:56
over sharing grandma's to opinionated
17:58
teens and everything in between. Stories
18:00
from all walks of life, any age, gender,
18:03
race, ability, and so on. So if you've
18:05
got a story that you want to share, let us know. And
18:07
more importantly, if you liked the Life Salad
18:10
pilot episode, go vote we can
18:12
keep making more. I'm Marty,
18:14
I'm Stevie, and now over to Millie
18:16
for her take. Milly, what's your favorite body fund
18:19
um um?
18:22
What you call a home?
18:31
Hi. This is Sienna and Leanna from
18:33
Tossed Popcorn, last year's winner of the
18:36
Next Great Podcast. Thank you so much
18:38
for listening to this episode, and be sure to go vote for your
18:40
favorite at Next Great podcast dot com.
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