Modern day parenting can be so isolating. It's an unfortunate reality many of us are struggling with. If you have a child or children with neurodiversity, medically complexities, or disabilities, it can feel downright lonely. But you are NEV

Is Food Impacting Our Children More Than We Realize?

Mar 28th, 2024 1h 18m

You are what you eat. That adage has been around forever for a reason. The foods we consume have changed drastically over the last few decades. Packaged, highly processed foods have flooded groceries, gas stations, schools, sporting events, an

Abuse Prevention and Cultivating Healthy Relationships

Feb 29th, 2024 1h 6m

People with intellectual disabilities are sexually assaulted at a rate SEVEN TIMES HIGHER than people without disabilities. And that figure is likely a substantial underestimate, as it doesn't take into account repeated abuse or people living i

Self-Care for Caregivers

Jan 30th, 2024 50m 35s

Self-care is something we all need to do. But for many of us, it's an elusive practice. Caregivers are working harder than ever. Which makes self-care more important than ever. Knowing how real this struggle is, I reached out to my friend and c

Best of 2023

Dec 20th, 2023 54m 50s

This odyssey of parenting, caregiving, and disability can be so many things: isolating, overwhelming, joyous, lonely, full, exhausting, exhilerating. The extreme ups and downs; the highs and lows. You can't fully understand it unless you live i

Why We Must Stop Labeling People High-Functioning/Low-Functioning

Nov 22nd, 2023 46m 55s

It's natural for parents to want their children to reach their full potential. But who decides what that is? And at what cost? In part two of my interview with Heather Trammell, we explore how dangerous societal expectations can be; and how ina

Everything You Need to Know About IFSP and Applying for Funds

Oct 24th, 2023 52m 39s

When you have a child with a disability, you become more than just a parent. You become a caregiver. And many of us “parent-caregiver hybrids” have a lot to learn about supporting a child with a lifelong disability. Medicaid waivers can be o

What to Expect When the Unexpected Happens

Sep 26th, 2023 1h 14m

The wishes, hopes, and dreams of expectant parents are many. Their baby having a lifelong disability usually is not one of them. When that happens, it can be devastating for families. The staff and volunteers at the Center for Family Invol

Back to School Special

Aug 12th, 2023 1h 25m

The back to school grind is tough for everyone, but it’s over in a flash and parents get a breather during school hours. Except when they don’t. The parents and caregivers of students with disabilities live in back to school mode all year long

Does the ADA Need a Makeover?

Jul 25th, 2023 1h 9m

An estimated 1 in 4 Americans has a disability significant enough that it impacts their daily life. When the Americans with Disabilities Act was signed into law on July 26th, 1990 it was celebrated as groundbreaking legislation that would gran

Why We Need More Than Inclusion

Jun 9th, 2023 1h 11m

Reaching full potential. Becoming independent. We want these things for our children. For kids with disabilities, providing the assistance they need while trying to achieve these goals is like walking a tightrope. Help from even the most well-i

How to Survive and Thrive in Motherhood

May 12th, 2023 1h 19m

There is no crystal ball to give us insight into what parenting a child with a disability is like. But conversations with Lisa Richard sure come close. Lisa is a mother to seven children ranging from ages 18 to 30. Two of her kids have Down

Siblings Day Special!!

Apr 8th, 2023 53m 27s

Every April 10th our social media feeds are flooded with throwback photos in honor of Siblings Day. It may seem like a stunt to keep us scrolling, but it's much more than that. In fact, there is an ongoing effort to get the United Nations to of

Why Are Summer Camps Inaccessible for So Many Children?

Mar 28th, 2023 1h 4m

Summer camp sign ups are well underway across the country. Parents and caregivers are scrambling to secure spots so they can work while their children make new friends, learn new skills, and have fun. It's not so simple for the estimated 17%

How Having a Child with a Disability Transforms You with Jamie Bruen

Feb 28th, 2023 1h 25m

The moment you become a parent, your life is transformed forever. For parents of children with disabilities this transformation is on a whole other level. For some of us, it's a defining moment where our life is split in two: before and afte

Rare Diagnoses with Sarah Lepore, MSN, NNP-BC, Mother

Jan 31st, 2023 49m 47s

One of the hardest things families go through is when something seems wrong with their baby or child. When we envision becoming parents, the hopes and dreams we have usually do not include a disability. Socital norms focus so much on "healthy"

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