Episode Transcript
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0:02
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artisanbooks.com, discount code unorthodox, all
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caps. We're
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doing so much fun with Belgium today. Yeah,
0:36
can't wait. That was before my time, right?
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I don't remember that conversation. I mean, it's an ongoing
0:41
conversation. It is the worst country in the world. Fair enough.
0:47
This is Unorthodox, the universe's leading Jewish
0:49
podcast. I am Stephanie Butnik,
0:51
and I'm joined by my co-host, tablet editor
0:53
at large, Leah Leibovitz. Shalom.
0:56
And pickleball phenom, Joshua
0:58
Molina. Huzzah. Today
1:01
on the show, we have two Jewish guests and
1:03
a Gentile of the week. It's actually been a
1:05
very long time since we've had a Gentile on
1:07
this show. Traditionally, we allow
1:09
one on every week, and we are
1:11
glad to welcome them back into
1:14
our corner. Our first guest is
1:16
Bernard-Henri Lévy, the philosopher, author, and filmmaker.
1:18
He's about to release his third film
1:21
about Ukraine, and it's a tribute to
1:23
everyday Ukrainian heroes, including
1:25
some Ukrainian-born Israeli soldiers who finished
1:27
their service in the IDF and
1:29
then volunteered to fight in Ukraine
1:31
against the Russians, and now are
1:33
back fighting for Israel. It's
1:35
a great conversation, and we're grateful to have BHL
1:37
back on the show. Our Gentile of the week
1:40
is Brooke Eby. At
1:42
the age of 33, she received the terminal diagnosis
1:44
of ALS, and she joins
1:46
us to talk about how she's learned to laugh in
1:48
the face of this brutal disease. I
1:50
will say we only pick the greatest Gentiles for this show.
1:53
That's true. It's a curated selection. Correct.
1:55
The ones we pick are the absolute
1:58
best. But first, my guys. What's
2:01
up? What's going on? Same old,
2:03
same old. I post one day about
2:05
my concern for a hostage,
2:08
and I'm accused of
2:10
failing to mention innocent
2:12
Gazans. The next day, I
2:15
write about three Muslim students who are
2:17
shot, and someone else is
2:19
not happy because I've moved the focus off
2:21
of Israel. What you're saying is that you
2:23
love your life just about now. It's great.
2:25
Yeah, it's fine. I have to say, I don't
2:27
know about you guys, but I did spend
2:30
much of my weekend watching videos of the
2:32
hostages returning to their families. I could not
2:34
stop watching them. There was the kids running
2:36
down the hospital, corridors hugging their dads. The
2:39
ones that got me were like the moms
2:41
reuniting with their kids. I just didn't realize
2:43
it was a genre of content I needed,
2:45
we all needed, but I really cannot stop
2:48
watching it just over and over and over
2:50
again. We got a little bit of
2:52
good news this weekend, and we're hoping that it continues, and
2:54
we're just sending our best
2:56
to everyone and hoping that more hostages
2:58
get freed soon. Amen. Here, here,
3:00
but at the same time, I got to tell
3:03
you, there's something about this conversation that kind of
3:05
feels eerie. There was a moment
3:07
that went viral the other week in which
3:09
a lovely Israeli spokesperson went on, I believe
3:11
Sky News. The host of the show
3:14
asked him, so the deal between
3:16
Israel and Hamas is such that Israel
3:18
releases 150 prisoners and Hamas releases 50
3:20
prisoners. So
3:24
does that mean that you guys value the
3:26
lives of a Jew three times as much
3:28
as you value the lives of a Palestinian?
3:31
And it's such a stupid question. Does
3:33
Israel not think that Palestinian lives
3:36
are valued as highly as Israeli
3:38
lives? That
3:40
is an astonishing accusation. If
3:43
we could release one prisoner for every one
3:45
hostage, we would obviously do that. It's worth
3:48
it just to see his facial expression immediately
3:51
after the question is posed. The
3:54
facial expression that even without any words
3:56
you could see says, what the fuck
3:58
is wrong with you? But
4:00
here's what I think, in a way I think this
4:02
is a missed opportunity and it's a missed opportunity that
4:04
keeps recurring over this debate. I think the answer ought
4:06
to have been, yeah, sure. I
4:09
value the lives of a 10-month-old innocent
4:11
baby much more than I value the
4:13
life of a terrorist who's in prison
4:15
for trying to kill people, irrespective
4:18
of these people's nationalities or religion.
4:20
It doesn't matter. Innocent
4:23
baby versus terrorist is
4:25
not an apt moral comparison. And
4:27
if you can't make this moral comparison,
4:29
I'm sorry. There's something
4:31
profoundly wrong with your
4:33
entire way of looking the world. And the
4:35
thing that kind of kills me is that
4:37
we keep on looking at this and this
4:39
keeps on getting reported as some kind of
4:41
intricate algebra of like, oh, they released X and
4:44
we got Y. I am so, so, so
4:46
grateful that these people are back home reunited
4:48
with their families. And yet it once again
4:50
underscores the absolute lack
4:52
of humanity with which we're
4:54
dealing. To me, that kind of clip
4:57
just shows what we're up against, right? There's literally
4:59
no winning in this scenario. It's like, okay, we'll
5:01
give you all these people, right? And then people
5:03
are like, hmm, you must not value their lives.
5:05
And you're like, this is really bizarro
5:08
calculus that we're seeing across the world of
5:10
how this stuff plays out. And it's just
5:12
disgusting. And I think you see like, oh,
5:15
they were supposed to free all the siblings together and they're
5:17
keeping a sibling, they're keeping a mom, they're keeping a child.
5:21
It's so fucked. The emotional manipulation
5:23
here is just like so grotesque.
5:25
You almost can't wrap your mind around it. You're
5:28
like, that has to be a mistake. No one
5:30
would just deliberately mess with a family like that
5:32
who did nothing, a family who did nothing. And
5:34
it's true. That's what they're doing. And
5:36
it's just, it's just disgusting. Speaking
5:39
of grotesque, this is just New York City.
5:41
This is just the last four days. We've had the
5:43
Macy's Day Parade disrupted by
5:46
pro-Khammas demonstrators that delivered $75,000
5:49
worth of damages to the New York Public Library. We've
5:52
had two attempts to shut down Grand Central
5:54
Terminal. We've had a violent
5:56
demonstration on Saturday that made shopkeepers at
5:59
Kallenan. the circle have to lock themselves
6:01
in their stores because pro-Khamas supporters were
6:03
marching in the streets and saying, Zionists,
6:05
we know who you are and you
6:07
know you will come to a bitter
6:10
end or something among these lines. We've
6:12
had students rioting in a Queens high school
6:15
when they found out that one of their
6:17
teachers attended a rally to
6:19
release the hostages. We've had
6:21
pro-Khamas demonstrators, some of them Jewish,
6:23
shut down the Manhattan Bridge. And
6:26
this morning I received an email
6:28
from a public relations person saying
6:30
that I should call and talk
6:33
to the person she's representing, the
6:35
CEO of the Jewish Council for Public Affairs,
6:37
which is a long
6:39
time Jewish advocacy group, about
6:42
the thing that is really the most
6:44
pressing in the world, the greatest threat
6:46
to the Jewish people, Elon
6:48
Musk interviewing Bibi
6:50
Netanyahu. The
6:52
unbelievable depravity of our so-called leadership
6:54
to see that all these organizations
6:57
and by all means it's not
6:59
all of them, there are some
7:01
of them doing good work, but
7:03
when I see the ADL, an
7:05
organization that has long beclowned itself,
7:08
go last week and claim against
7:10
all available resources and data that
7:12
there is no such thing as
7:14
pallywood. In other words, the Hamas
7:17
strategy of releasing fake
7:19
videos to blame Israel for war
7:22
crimes that never existed. The
7:24
ADL called us a conspiracy theory,
7:26
even though it was confirmed by
7:28
such hotbed Zionist publications like The
7:31
Atlantic, and they had to
7:33
take down this release because it
7:35
was obviously so blatant. To see
7:37
organizations like the JCRC stand with
7:39
people like AOC who believes that
7:41
the United States dropped chemical weapons
7:43
on Vyekas on behalf of the
7:45
Israeli government as some part of
7:47
the nefarious Zionist controlled experiment, to
7:50
see so many of these organizations
7:52
that receive our dollars and our
7:54
support and are supposed to stand
7:56
with us, continue to stupidly side
7:58
up to the The actual people who
8:01
are trying to hurt us and use their
8:03
platforms to play cheap, stupid politics, I think
8:05
every single one of us needs to look
8:07
at all the donations that they've been making.
8:10
And if there is a Jewish organization in there that
8:12
has over the last, you know, five, six,
8:15
10 years, aided and abetted
8:17
the rise of these people who
8:19
are now making this systemic surge
8:21
of anti-Jewish violence around the United
8:23
States possible, you should stop giving
8:26
them money and you should shame
8:28
these people because this so-called failed,
8:30
failed, failed leadership is a huge
8:32
part of the problem. Not
8:35
all. There are some good
8:37
people. Joshua Molina will tell us who
8:39
they are. No, no, no. I want
8:41
to back up slightly and give you
8:44
a tender pushback. Is it possible that
8:46
you are painting with too broad a
8:48
brush and describing sometimes pro-Palestinian protests as
8:50
pro-Hamas? Do you make a distinction? Was
8:53
the Macy's Day interruption? And
8:56
I condone no violent protest, but
8:58
was the Macy's Day interruption explicitly
9:00
pro-Hamas? First of all,
9:02
there is something really revolting to me
9:04
in saying like, okay, well, we are
9:07
going to march explicitly with a Palestinian
9:09
flag and call for, you know, end
9:11
or ceasefire or whatever.
9:13
When there are literal babies in prison, that's
9:15
when you shut the fuck up. You say,
9:17
guys, I support you, but you do not
9:20
hold babies hostage. If it doesn't even occur
9:22
to you to say that, that point to
9:24
me, the lines really blur massively. That's line
9:26
number one. Line number two, look, this
9:29
tendency to violently protest. There
9:32
were 300,000 of us in Washington,
9:34
D.C. There was not a
9:36
shekel worth of damage to any building.
9:39
There was no one acting violently. This
9:41
simply doesn't happen in our demonstrations, and
9:43
I think it's a great big difference.
9:45
So at this point, can you make an argument
9:48
that there is a legitimate
9:50
concern for the lives of Palestinians
9:52
that should be taken into consideration
9:54
whenever you support or not support
9:56
a certain kind of policy on
9:58
the Israeli-Palestinian side? 100%
10:01
I think you must do that. I think that any
10:03
viewpoint of the world as pro-Israeli as
10:05
it may be that says for example Callously,
10:07
hey, we should flatten Gaza and kill two
10:09
million Palestinians is completely illegitimate I think that
10:12
is part of the moral
10:14
calculus of every sane person
10:16
What really troubles me is that our
10:18
well-being does not seem to be part
10:20
of the moral calculus on the other
10:23
end at all again I read Arabic
10:25
I continue to sort of look for
10:27
any kind of meaningful Statement
10:29
of not forget support. I don't
10:31
care about that. But just saying
10:33
like these we kidnapped infants I'm
10:37
not seeing this and I think if you really
10:39
wanted to have a great pro-Palestinian demonstration I think
10:41
about so many other ways that this could have
10:43
been done including for example Even
10:46
like a very general, you know what stop
10:48
killing kids all around how about
10:50
Hamas? We calling you to release
10:52
these babies Israel We calling you
10:54
to stop the bombing because X
10:57
thousands of kids have died and that's not a price
10:59
You should be willing to pay. Okay, I
11:01
hear that but that's not the demonstrations. We're
11:03
seeing I Hear you and
11:06
I empathize with your position and I
11:08
understand your position But it also to
11:10
me slightly smacks of the whatabout ism
11:13
that I was referring to earlier just
11:15
in social media Which matters not at
11:17
all particularly my social media but to
11:19
insist that nobody protest with a Palestinian
11:22
flag unless they
11:24
have made clear their concern
11:26
about the Massacre and the
11:28
injustice of the acts of October
11:31
7th also suggests to me an
11:34
Equivalency or similarity to the people who
11:36
say well look at these people with
11:38
an Israeli flag Don't they care about
11:40
the innocent people of Gaza? Yeah, I've
11:42
seen Palestinian protests that were peaceful I
11:44
don't condone violence ever I
11:46
have seen Palestinian protests without putting myself
11:49
into their minds and hearts and saying
11:51
these are people Who cannot
11:54
speak out against Hamas? I just
11:56
think there's it makes me I'm
11:59
signing on to I understand and yet I want
12:01
to make two follow-up points of this point number one
12:03
is that when I could cite
12:05
You know five violent examples just in the
12:08
course of the last week I'm
12:10
sure there were a lot of other
12:13
kind of very respectful and solid protests
12:15
out there I think there is
12:17
a problem You've had in
12:19
Brooklyn just a couple weeks ago people with
12:21
Hamas flags Burning down
12:23
entire blocks and Bay Ridge out
12:25
of support for this insane terrorist
12:28
organization Which by the way still
12:30
holds American hostages American citizens hostage
12:33
So to me it is a matter
12:35
of a huge difference in The
12:38
quality and quantity of these things. Well, all
12:40
right. I agree with you. I sign off
12:42
on the distinction I just think were you
12:45
to observe a peaceful pro-palestinian
12:49
Protest that involves right just
12:51
Palestinian flags. You might describe
12:54
it as pro-hamas No, I
12:56
would not and and here's like a little
12:58
bit like you're straw manning me because of
13:00
course the violence is unacceptable But here's the
13:02
other this is the other point that I
13:04
wanted to make Stephanie and I moderated this
13:06
great event for the Jewish Priorities book again.
13:08
I wasn't invited. We made sure to keep
13:10
you out of there Priority
13:12
of ours that's exactly you were
13:14
not our Jewish priority Joshua Moline completely understand
13:17
join the large majority for whom I'm not
13:19
a priority Our
13:21
friend a not well the former, you know,
13:23
Israeli member of Knesset She's you know a
13:25
liberal lefty and good standing in Israel.
13:28
She made this excellent point He said, you know
13:30
a lot of times like she will talk to
13:32
her friends or left of her It's like they
13:34
will say oh, come on. You expecting Palestinians to
13:36
be Zionist and she said
13:38
that's exactly right I'm expecting
13:40
Palestinians to be Zionist and recognize and
13:42
respect my right to have a national
13:45
homeland and sovereignty Just as
13:47
I respect theirs Let me
13:49
put it this way if you asked the 300,000 people in DC How
13:53
many of you would support a
13:55
peaceful Palestinian state side by side
13:57
with a Jewish state even at
13:59
the cost? of painful territorial
14:01
concessions. I'm willing to bet
14:03
that you could get about 75 to
14:06
80 percent of people to say, OK,
14:09
sure, we'll at least give it a shot.
14:11
And the same poll taken by Israelis, what
14:13
numbers do you hazard? Well, after October 7th,
14:16
I think the numbers are very different because,
14:18
again, years and years and
14:20
years of Palestinian Authority support
14:23
for wanton violence and terrorism,
14:25
the pay for slay programs,
14:27
the absolute outbursts of
14:29
terrorism in the West Bank after October 7th,
14:31
all of these are problems. But in ideational
14:34
form, no Israeli has a problem other than
14:36
the security problems with the existence of a
14:38
Palestinian entity side by side as well. Very
14:41
few, thankfully, Israelis want to
14:43
completely erase the Palestinian population
14:46
from being. No Israeli, again,
14:48
with very few exceptions, thankfully, would say
14:50
from the river to the sea, you
14:52
know, the greater land of Israel will
14:54
be free. I hope you're right. It's
14:56
just not as catchy. No, it's not.
14:58
It's bad, bad copywriting. Yeah, it's got
15:00
meter issues. It does. Does that resonate
15:02
with you, Josh and Melina? Yes. You
15:05
know, Baruch Hashem, I hope you're right about
15:08
the numbers in the Israeli poll. But I
15:10
mean, I hear greater Israel bandied about. Well,
15:12
the Melina administration will change all that. Yeah,
15:15
I know this is like semantics and things like that.
15:17
But I think if we're talking about these distinctions, the
15:20
one that feels important to me is all these like
15:22
we talked about like the open letters that come out.
15:24
So many of them barely said anything about
15:26
October 7. You can't even
15:28
bring yourself to say that what happened, stealing
15:31
babies and grandparents and raping women. Like you
15:33
can't even say that was bad because they
15:35
were Israeli. I feel like people are so
15:38
warped in their thinking that
15:40
they've lost the ability to say like this
15:42
shit was really bad. And if it happened
15:44
anywhere else, we'd all be up in arms,
15:46
all of these organizations. And I think that
15:48
that for me is what I'm not seeing
15:50
still in so many places. And it's like
15:52
we've moved on so quickly to like condemnation
15:55
of Israel for its retaliation as though it
15:57
came out of nowhere. Right. Like
15:59
we're seeing this warped version. of events and I
16:01
think it's like making us feel crazy. That's how
16:03
I feel. You know, it's funny you mentioned Aenat
16:06
Wilf. There was a tweet of hers. She writes,
16:08
In a better world, on October 8th, the UN
16:10
Secretary General, the head of the International Red Cross
16:12
and other luminaries would have stationed themselves on the
16:14
Egyptian border with Gaza, demanding the full, immediate, and
16:17
unconditional release of all the kidnapped passages, insisting that
16:19
Israel owes absolutely nothing to Hamas for the release
16:21
of children, mothers, the elderly, and civilians, because there
16:23
is no world in which such acts are okay.
16:25
Israel is forced to negotiate with the twisted leaders
16:28
of Hamas for our children only because so many
16:30
people in official and non-official positions of power
16:32
failed to do their job and normalized the
16:34
idea that kidnapping children from their beds and
16:37
keeping them as bargaining tips is somehow a
16:39
legitimate act that leads to negotiations rather than
16:41
to stringent condemnation and global ostracism. This is
16:43
the world's longest tweet, by the way. It's the longest tweet. I don't
16:45
know how long tweets can be
16:47
these days. Let's be a subscriber. They're called X's. But we're
16:50
just seeing these like crazy double standards and
16:52
it's like just the idea of like releasing
16:54
terrorists for babies. And I think we've become
16:56
normalized to like when a soldier gets taken
16:59
hostage, right? And that's horrible, but it's part
17:01
of a calculation that we sort of understand,
17:03
right? These are things that happen in wartime
17:06
and then there are all sorts of negotiations
17:08
that follow. It's really weird to negotiate for
17:10
like a two-year-old back and to have to
17:12
give prisoners up for that. And I think
17:15
it's just like so depressing, honestly. Like that
17:17
to me is like this underlying feeling. And
17:19
I think that as I was watching these
17:21
videos riveted by them could not stop, you're
17:24
just realizing the absurdity of what you're
17:26
watching, right? Like it's this beautiful reunion. But
17:29
then you're like, these are children that were taken from
17:31
their parents for no reason. And then the fact that
17:33
there are people who are like, those are colonizer babies.
17:35
And you're like, what? Colonizer babies,
17:37
by the way, is a very good show.
17:39
They're so cute. They're really cute. But
17:42
one of the lowest selling Christmas toys
17:44
this season. A colonizer baby? Yeah, nobody
17:46
wanted it. Yeah, stick with Cabbage Patch
17:48
Kids. But it's like even like the UN women's
17:51
stuff, you're like, yeah, no one is coming out and
17:53
being like, this is this thing that happened. These like
17:55
mass rapes of women are horrible. And you're like, it's
17:57
just because they're Israeli. It's so messed up. Gaza
18:00
has just gone from our eyes and I just
18:02
feel like... But not the Gaza. The Gaza
18:05
has been removed. But Stephanie, can we
18:07
shift gears here and go from bad to
18:09
worse or from worse to worst? As we
18:11
do. We're not just going to
18:14
talk about Israel today. We promise you that you'll
18:16
get a little bit of a break because actually
18:18
there's another place that we need to focus on
18:20
today. It is the unofficial
18:22
country of unorthodox. The
18:24
unofficial most hated... Our sister country. Yes,
18:27
exactly. We are directly linked with them. News
18:32
of the Jews. Oh
18:34
yeah. N-O-T-J
18:37
News of the
18:39
Jews. Lael,
18:41
there's a lot of updates from
18:43
the nation of Belgium. So let's
18:45
jump right in. And I want to present this
18:48
as a tragedy in three
18:50
acts. I'm going to read to you three
18:52
letters that we received over the years from
18:55
the same listener. Josh Cross,
18:58
music please. So,
19:08
once upon a
19:10
time, the listener identifying herself only
19:15
as Sabrina wrote to us.
19:26
Yes. I really enjoy your
19:28
podcast and listen to it every week. But
19:30
your last section in Belgium with that letter
19:32
is frankly very misinformed. I
19:34
find your way of talking about Belgium
19:37
insulting and inaccurate. I come from Brussels
19:39
and there are definitely problems there. But
19:42
we have a vibrant community that is
19:44
largely supportive of Israel. More over Lael.
19:46
Yes, there was a pedophile scandal many
19:48
years ago in Belgium. But I certainly
19:50
think the US can compete with Belgium
19:52
from that point of view. So
19:54
please guys, check your facts before spreading
19:56
all kinds of bias. It's not helping
19:58
anybody. Then a
20:01
few years later, Sabrina writes again, What
20:03
a pity you guys don't stop
20:05
confusing Belgium with flambe, generalizing
20:08
FLEMISH anti-Semitism with Belgium anti-Semitism.
20:10
These are very good distinctions.
20:12
The stories you have been
20:14
telling, especially regarding soccer, are
20:16
also true for the UK
20:18
and Holland. You hardly ever
20:20
speak about the UK, where Jews have real
20:23
problems right now, especially in the Labour Party.
20:25
You also have been generalizing the anti-Semitism of
20:27
tiny OST, I believe it's
20:29
pronounced OST to
20:31
the whole country. This is where the parade
20:34
was with a giant Jew figureheads with a
20:36
big nose. You end up sounding
20:38
like Trump, who called Brussels a shithole. Pity.
20:41
Fact. Belgium is not the country of pedophilia. You
20:44
have tons of horrible stories in the
20:46
US every single day that would never
20:48
happen in Belgium, where they're basically one
20:50
single story 20 years ago with Mark
20:52
Dutrow. I'm a Belgian Jew, pro-Israeli, and
20:54
I am shocked by how ignorant and
20:56
relentless you are on the subject. Seriously,
20:58
stop hammering. It only shows ignorance. I
21:00
used to love your show, but this has become unbearable.
21:03
We received a third and
21:06
final letter from Sabrina
21:08
this week. I
21:10
will read it in its entirety. I
21:13
was wrong in my previous emails. Belgium
21:16
really is a nasty,
21:18
dangerous, little anti-Semitic country.
21:21
I'm Israel, hi, Sabrina.
21:25
Sabrina, we love you, and we want
21:27
to support you with a few just
21:29
from these last couple of weeks in
21:31
Belgium. Three days ago, at least 85
21:33
Jewish graves in a cemetery were
21:36
desecrated. Also,
21:39
when asked to screen the
21:41
video of the Hamas terrorist,
21:43
the president of the Belgium
21:46
parliament refused because she said
21:48
it was false propaganda that
21:50
is here to do nothing
21:53
but spread cruelty against
21:55
poor, innocent Gazans. And
21:58
finally, we've also had The
22:00
best, maybe the best story out of Belgium in
22:02
a while. This one doesn't involve Jews, but it's
22:05
too good. This is from the New York Post.
22:07
Headline. 10 sex-crazed
22:10
prison guards, staffers, held jacuzzi
22:12
orgies. One even refused to
22:14
work before intercourse. Report.
22:17
Belgium's largest prison is reeling from
22:19
a wild sex scandal that accused
22:21
guards and staffers of organizing jacuzzi
22:23
orgy parties and trading colorful bracelets
22:26
to determine their sex partners. A
22:28
local report detailed. And so,
22:31
once again, the low country
22:33
with low morals keeps on winning
22:35
the title of World's
22:37
Greatest Shithole. Keep those emails coming.
22:41
You know, Lael, it's like you commit to
22:43
things and eventually there is a payoff years
22:45
and years and years later. This joke
22:47
is eight years in the making and it
22:50
keeps on being funny. I appreciate what
22:52
you've given to this over the years
22:55
and it's just nice to see, you know, things
22:57
catching up. I would say Belgium and Spain were
22:59
also two of the countries that had Israel recall
23:02
the diplomatic representative because they
23:04
were simply, you know, completely disinterested
23:06
in the Hamas attacks and entirely
23:08
one-sided in insisting that Israel was
23:10
just the aggressor here and had
23:12
no right to demand the return
23:15
of its babies. But because
23:17
the world is a very small place and on
23:19
a serious note, I think it's
23:21
time to actually shine some light. Yes. Up
23:24
until now in this episode, you've had nothing but darkness,
23:27
shall we? Yes, we are taking things
23:29
global this week. We talked about Israel,
23:31
we got to Belgium and now we're
23:33
gonna head to Ukraine where our
23:35
friend, philosopher, author, filmmaker, Bernard Henri Lavie
23:37
has spent a lot of time in
23:39
the past few years making
23:41
films, being out there on the front lines
23:44
and showing us what's going on there. His
23:46
latest film is the third in his Ukraine
23:48
trilogy and it's called Glory to the Heroes.
23:50
We called up Bernard and asked him to
23:52
tell us a little bit about it. Damal
23:55
Reidadi, welcome to the show. Thank you,
23:57
happy to be with you. Now look,
23:59
I... I have seen this film,
24:01
I was immensely, immensely, immensely moved
24:04
by it. I personally strongly believe
24:06
that, you know, Israel's
24:08
war in Gaza and Ukraine's war with
24:10
Russia, it's part of the same global
24:12
civilization. But I want to start with
24:14
a provocative question. You know, there are
24:16
a lot of listeners listening to us right now who
24:18
maybe have gotten a little tired of
24:20
this war in Ukraine. It's been going on for a long
24:23
time who are maybe distracted by the
24:25
war in Gaza. Why should
24:27
we care right now about the heroes of
24:29
Ukraine? Distracted, they would be wrong because it
24:31
is the same and because
24:35
the two are completely
24:37
connected. Hamas would not
24:39
have dared to attack
24:41
Israel if Ukraine
24:44
had won against Putin.
24:47
This can be demonstrated. I could
24:50
prove it. Fatigue,
24:52
of course there is. Because
24:55
we live in a world where
24:57
people are real. We
25:00
all have a sort of attention deficit.
25:04
And to hold the stage
25:06
for one year and a half,
25:08
nearly two years, as
25:10
President Zelensky did, is already
25:12
a miracle. So there is,
25:14
of course, a moment
25:16
of emptiness. That
25:19
is one of the reasons why I insisted
25:21
to release this film, to
25:25
suit it first of all so quickly,
25:28
to edit it in emergency, and
25:30
to release it in emergency too.
25:34
There's one amazing segment in the film
25:36
in which we meet two incredible young
25:38
men, Sasha and Vitaly, who are former
25:40
IDF soldiers, Israelis who train with the
25:43
Ukrainian military and fight with the Ukrainian
25:45
military. Why was it important to include
25:47
this segment? What are viewers to
25:49
take away from watching? Because there
25:52
are many Israeli soldiers who
25:54
have volunteered in the Ukrainian
25:57
armed forces. speak
26:00
and they don't show their face. For
26:03
me, being a proud Jew,
26:06
me, myself, being
26:08
a Zionist, myself, it
26:10
was very important to show this
26:14
proximity, this brotherhood
26:17
between Israeli fighters
26:20
and Ukrainian fighters. And
26:22
I'm happy that the scene, that the segment
26:24
moved you because I was myself moved when
26:26
I saw these
26:29
Jewish boys and
26:31
these Ukrainian boys having
26:34
this hug on the front
26:36
line, remembering their
26:39
souvenirs of brotherhood and
26:42
ready to go to the
26:44
front line again together. I was
26:46
moved to tears, by the way.
26:48
These Israeli veterans whom I filmed
26:52
in my movie, they
26:54
are former fighters in IDF
26:56
and they are again fighters
26:59
alas in IDF
27:01
because October 7
27:04
they moved again from Ukraine
27:07
to Israel. And at the time
27:09
we are speaking, they are in
27:11
Gaza, in special
27:13
units. It tells the
27:16
story of these two gentlemen, Alex
27:19
and Vitaly, in a sense, tell
27:21
the story, the whole story of
27:23
the link, of the
27:25
big game in which
27:28
Israel and Ukraine are on the same
27:30
side on the barricade. The thing that
27:32
really grabbed me the most about it
27:34
is that just like the amazing things
27:36
that we're seeing out of Israel right
27:39
now with the Israeli public mobilizing
27:41
so fiercely to fight this war as
27:44
one, this third movie,
27:46
Glory to the Heroes, my favorite,
27:48
by the way, the Ukrainian trilogy,
27:51
really shows the incredible
27:53
resilience of ordinary everyday
27:55
Ukrainians. There's a scene
27:57
that I think again comes to life in
27:59
a very, very long time. very different way
28:01
after what we've seen post October 7th of
28:03
three very young women who were kept hostage
28:05
in a small cramped basement by
28:08
the Russians for months with hundreds of
28:10
other people who you take back to
28:12
this basement who tell you this thing.
28:14
So as you're spending time not just
28:16
in the front lines, what is
28:18
it that you saw with these ordinary Ukrainians
28:20
in the way that they mobilized to fight
28:22
as one? The resilience
28:25
of the civilians and the
28:27
heroism of the soldiers they
28:30
proved to be inhabited
28:33
by an incredible and
28:35
beautiful patriotism. There is
28:37
a Ukrainian miracle as
28:40
there was in 1948 and 1949 an Israeli miracle. For Ukraine
28:42
it's a sort of Israeli moment. What is
28:50
happening in Ukraine since two years
28:53
is not unfamiliar, not
28:55
so different from what
28:57
happened to Israel 75
28:59
years ago. And by the
29:02
way, Israel is
29:05
for so many of the Ukrainians
29:07
I met, so many of
29:09
the Ukrainians whose daily
29:12
life I shared, Israel
29:14
is a sort of pattern of
29:16
model of of reference.
29:20
On every level mobilization of
29:23
the society forget the quarrels
29:25
when the national unity is
29:27
at stake, build an army,
29:31
out of nothing. So this is
29:33
what struck me and for
29:35
my Jewish and Zionist heart and brain
29:37
it was not nothing to perceive all
29:39
of that. It made a lot of
29:41
sense. What motivates you to sort
29:43
of continue this work? I mean I know
29:45
a lot of us, it was Ukrainian flags
29:48
everywhere, people changing their Facebook photo, it was
29:50
sort of all the rage
29:52
to sort of really be supporting Ukraine
29:54
and I think as time has gone
29:56
by it's gotten harder to command the
29:58
attention of the masses. We've moved
30:00
on to other things. We're incensed by
30:02
this. We're outraged by that. How
30:04
do you stay committed to this
30:07
cause that's clearly very important to
30:09
you? I keep on because
30:11
I see that the others are
30:15
increasingly tired
30:17
of your credit. And
30:20
I don't know how to do that. For
30:22
me, it gives me a duty. In
30:24
general, when you can and when
30:27
you don't do, it
30:29
can be a real mistake when you can.
30:32
When you have access, when you
30:34
have time, when you
30:36
have money, when you have
30:38
the ability to
30:40
see things and to tell things
30:43
which others would not see and
30:45
tell, I consider
30:47
at least that it is a duty
30:49
to deliver and
30:52
to fulfill. But it's a deep moral
30:55
duty. The book of yours I
30:57
love the most, The Will to See, basically
30:59
says, look, it is your
31:01
moral duty to never ignore
31:03
the suffering of people out
31:06
there in the world. It's only to bear witness,
31:08
which is not only a core
31:11
tenet of your own career, but also
31:13
a deeply, deeply Jewish thing. I
31:17
kind of wonder though, because Stephanie's question
31:19
does speak to something larger. So many of
31:21
us, not just in Ukraine, but in
31:23
life in general, the way we go through life is
31:27
saying, you don't have the capacity for
31:29
it. We just want to care about our family.
31:31
We just want to care about a stupid TV
31:33
show that we're watching. And
31:35
you're here teaching us a different way. You're saying,
31:37
I'm sorry, but you have a higher
31:40
responsibility. I think you have this
31:42
responsibility when you are a human
31:45
being in general, when you
31:47
are a woman or a
31:49
man of goodwill, but even
31:51
more when you have public
31:54
voice, when you
31:56
have a public existence, when you
31:58
are an inter-exist. You
32:00
have this responsibility. And
32:03
you cannot take the good of it without taking
32:06
the bad of it. I mean, the
32:08
most painful. It is
32:10
not a joy of every moment to
32:12
spend your whole summer in francials,
32:15
in front lines, 100
32:19
meters from Russia and
32:21
savages. It's
32:23
not an easy going summer which
32:26
I spent. I
32:28
have so many advantages. I'm so
32:30
lucky in life. My
32:33
chance, my family, whatever
32:35
you can buy the favor of some people
32:38
in my country and the little in America
32:40
who listen to me, who buy my books
32:42
and so on and so on and so
32:45
on. The minimum I can do
32:47
is to try to give back. And
32:50
what means
32:52
again, when you are the only
32:55
one to be able
32:57
or one of the few to
32:59
be able to do some things and
33:01
when it is when it can make a
33:03
difference, you have to do it. In
33:06
Ukraine it is very simple. The
33:08
links I have with the
33:10
Ukrainians, the trust
33:13
which I built with
33:17
the political society between
33:21
me and political society, me and presidential
33:24
administration and myself and the
33:27
ground commanders, this link, this
33:29
trust creates an obligation.
33:34
When I go on the front
33:36
line, when I am stopped at
33:38
the checkpoints and when there
33:41
is a young
33:43
commander that suddenly
33:45
wonders if I am not the
33:47
French man who was on the maiden in
33:50
2014 and
33:53
he has a vague remembrance
33:56
of that, how can
33:58
I say? I really
34:00
feel obliged. I'm curious
34:02
about the exigencies of trying to
34:04
film a movie about
34:06
war during war. How do you
34:08
do that with any kind of sense
34:11
of safety or security for yourself
34:13
and your crew? I have
34:15
a huge security for myself and also
34:17
for my group, for my team. I
34:20
don't engage in such
34:23
an adventure without
34:26
taking all the possible precautions.
34:28
It's a complicated system. I
34:31
have, of course, some fixers. I have
34:33
some precursors who go in any place
34:37
one hour or two, a
34:39
few minutes, some time before me. And
34:42
all the more because I'm not a
34:44
young journalist. I'm not a
34:47
young debutante
34:49
journalist. In
34:52
front of me, the Russians, they probably
34:54
also have a vague idea of who
34:56
I am. So I
34:58
have to be careful. But I am. I
35:01
am careful. I go as
35:04
close as I can to the combat. But
35:09
I am not a burnt head, a dead
35:11
brillay, as we say in France. And
35:14
even if for myself
35:17
I feel strangely
35:20
and absolutely protected, I am
35:24
careful for those who
35:26
trust me and who follow me with
35:28
his, my team, Ukrainian and French and
35:32
American. So one
35:34
more question. And I think this one
35:36
may be the most important one of all. What
35:38
does victory look like? Does
35:41
this war end only when Russia is
35:44
defeated and thrown out of every part of Ukraine?
35:46
Or does it end when Putin
35:48
pays the price for his war crimes?
35:51
What's the end goal here? The
35:53
victory will be when
35:57
all the enemies of democracy in
35:59
China. in the Middle
36:01
East, close to Iran,
36:03
when all of them would
36:06
think twice before
36:10
engaging themselves in
36:12
such an adventure as Putin
36:14
did. Putin has to be
36:17
defeated. Putin has
36:20
to be toppled by his
36:23
own people, feeling, I hope,
36:26
humiliated by this stupid
36:29
adventure in which Putin threw
36:32
them. All that has to happen
36:34
in order that
36:37
in other parts of the world,
36:39
dictators, terrorist groups, think
36:42
twice before repeating
36:45
the same experience. That
36:47
would be victory. Ukraine is a
36:49
test which has been
36:52
implemented by Putin for all
36:55
his likes, all those who
36:57
look like him all over the world.
37:00
Thank you. The
37:03
film is Glory to the Heroes. It
37:05
is opening nationwide on December 8.
37:08
The New York premiere is December 6 at 6.30 at the UN.
37:11
If you want to see a movie at the UN, it's the coolest thing
37:13
you could do. And then there
37:15
are screenings with Q&A sessions in DC on
37:17
December 9 at 1pm in LA and December
37:20
10 at 1pm. We
37:22
are going to put a link in the
37:24
show notes to a website where you could register
37:26
for all this and I hope we do.
37:28
Bernard, thank you for everything that
37:31
you do and glory to the heroes.
37:34
Glory to the heroes and
37:36
friendship to you, my dear, Elia
37:38
Eboriz. Big friendship, big hug,
37:40
and to all of you. I
37:47
got to tell you guys, I've seen this movie.
37:49
It is absolutely incredible and
37:51
uplifting and really a testament
37:53
to Bernard's commitment to this.
37:56
Watch this movie and if you can, hear
37:58
Bernard speak, it's a privilege. J.Crew,
38:14
join us for Tablet's Hanukkah Bazaar on
38:16
Sunday, December 3rd in New York City.
38:18
Unorthodox will be there alongside more than
38:21
40 vendors selling jewelry, art, Judaica, and
38:23
more. Everything you need for
38:25
your Hanukkah gifting. To get your ticket,
38:27
head to hanukkahbazaar.com. That's
38:30
H-A-N-U-K-K-A-H. And the
38:32
very next day, December 4th, I'll be
38:34
joined by my Unorthodox co-hosts, Lea Leibovitz
38:36
and Joshua Molina in Baltimore for a
38:38
special Unorthodox live show at the 2023
38:41
Conservative Masorati
38:43
Shabbaton and Convening. You can
38:45
get your tickets at tabletm.ag slash
38:47
convening. Use code unorthodoxpod25
38:49
for a discount. Lea and I
38:52
are also doing individual sessions that day, which you
38:54
can sign up for as well. And on
38:56
December 14th and 15th, Lea and I will
38:58
be at Kol Lamee Synagogue in Tucson, Arizona
39:00
for a Shabbat filled with special events presented
39:03
by the Bill Gray Lecture Series. You
39:05
can find all of this info
39:08
and more at tabletmag.com/unorthodoxlive. And to
39:10
bring us to your community, email
39:12
Tanya Singer at tsinger at tabletmag.com.
39:24
Simplify your giving with the Jewish Communal
39:26
Fund, the nation's largest Jewish donor advised
39:28
fund. In good times or
39:31
during times of crisis, JCF enables you to
39:33
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39:35
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39:37
with as little as $5,000 and let JCF
39:39
streamline your charitable giving. Act by December 29th
39:41
to lock in the maximum charitable deduction for
39:43
2023. Get started
39:45
at jcfny.org. And
40:00
now it's time for our Gentile of the
40:02
Week. That is Brooke Eby. She was diagnosed
40:04
at 33 with ALS and she joined Stephanie
40:06
to talk about what it's been like to
40:09
be diagnosed with a terminal illness at such
40:11
a young age and to talk about the
40:13
work she's doing to raise awareness for the
40:15
disease and how she's learned to laugh in
40:17
the face of ALS. Brooke
40:26
Eby, welcome to Unworth It, X. Thank
40:28
you. So I have to own
40:30
this on the air. This is not our
40:32
first interview. We did an amazing interview. I
40:34
messed up the recording. I'm
40:36
mortified by that and so gratified that
40:39
you agreed to return to do this
40:41
again. I'm honestly glad it was a
40:43
recording issue and not like a Brooke
40:46
Eby or wildly inappropriate issue. So
40:48
I will take a recording error any day. We got
40:50
to a really interesting place at the end of our
40:53
last interview and I actually want to dive right in
40:55
because you're our Gentile of the Week but you were
40:57
telling me about sort of like your Jewish adjacencies. Yeah.
41:00
Yeah. So I grew up in Potomac, which has
41:02
a large Jewish population. Then I went to Lehigh,
41:05
which also has a large Jewish population. Then I
41:07
moved to New York City. So I feel like,
41:09
you know, I've always kind of been the Gentile
41:11
of the week or the month or the lifetime
41:13
perhaps. What were your
41:15
early Jewish memories? I'm glad you asked
41:18
because this is unlocking a memory that really
41:20
jumped to the forefront. There was like a
41:22
very cute boy when I was in either
41:24
kindergarten or first grade. He invited me over
41:27
to make Hamantaschen and I remember being like,
41:29
oh, I am in now.
41:32
And we made it and obviously like it was amazing.
41:34
It was the best date I never knew I was
41:36
on. You know, I like this. You've been
41:38
on the Today Show. I bet they did not
41:41
ask you about the time you made Hamantaschen with
41:43
like Brad Goldstein. No, I don't know that I've
41:45
ever told that story. What was his name? It
41:47
was Alex something. Because he is listening right now
41:49
or his mom is listening and she's like, I
41:51
do remember that. Yeah.
41:54
It was lovely. She invited a young Gentile
41:56
to come make Hamantaschen with red hair. This
41:58
is your moment to come forward. So
42:00
I always was curious, and we'll get to
42:02
like the work you do at some point.
42:04
Then, honestly. Like
42:07
what did your parents think of like this
42:09
Jewish world you were living in where they
42:12
were like, she's going to make these like
42:14
triangle cookies for this weird holiday? Like what
42:16
was it like for them for you to
42:18
be immersed in a Jewish world? So my
42:20
mom's dad was Jewish. My grandpa was
42:23
Jewish. He like grew up in Brooklyn, I
42:25
think like a pretty strong Jewish community. And
42:27
then I haven't told this story either. But
42:30
then he met my grandma, and
42:32
I guess his parents really didn't
42:34
want him marrying someone who
42:36
wasn't Jewish, which she wasn't. They
42:38
didn't legally disown him, but they like totally
42:40
cut off communication with him. And
42:43
so I think he kind of had a
42:45
bad taste in his mouth, not for Judaism,
42:48
but for like the culture and like how
42:50
exclusive they were being. And
42:52
so my mom grew up, I
42:54
think they celebrated Christmas, but I
42:56
don't think they wanted any sort
42:58
of religious anything in their lives.
43:01
But I don't think my parents like really care
43:03
about religion one way or another. This does bring
43:05
us to an awkward place because there are people
43:07
who would claim you as Jewish. You
43:10
have a Jewish grandparent, they would say your
43:12
mother is Jewish, because her father was Jewish,
43:14
and then therefore you are Jewish. So
43:16
yeah, it's not the mother's either. There
43:19
are denominations of Judaism that believe in
43:21
patrilineal descent as well. So basically, you
43:23
are Jewish. I'll take it. It
43:25
kind of seemed like you knew it, you felt it. I feel
43:27
it. I do. So
43:30
I would love to talk to you a
43:32
little bit about the activism work you do.
43:34
You have this, you know, heartbreaking but inspiring
43:37
story of discovering that something
43:39
wasn't right with you and your body and
43:41
the long journey of figuring out what it
43:43
was. So if you don't mind, would you
43:45
tell us your story? So in 2018, I
43:47
was 29 years old, had just moved from San
43:49
Francisco back to New York
43:53
City and was working at Salesforce like I
43:55
still am. And I was walking to a
43:58
conference and I remember my cat. I
44:00
haven't been feeling tight for a few months prior
44:02
to that, but it didn't affect my walk at
44:04
all. But as I was walking
44:06
to this conference, I could tell I
44:08
was walking slower than all of my colleagues and
44:10
I wasn't sure what it was. And a couple
44:12
of my colleagues were like, yeah, it looks like
44:14
maybe you're limping, like maybe you hurt something. And
44:16
when you're 29 and mostly healthy, you're
44:19
like, oh, I probably just like worked out
44:21
too hard. I didn't really think
44:23
much of it until I had
44:25
my sister look at it. My sister and her husband
44:27
are both doctors. And they were
44:29
like, walk forward, but only walk on your
44:31
heels. And my right heel was able to
44:33
stay up as I was walking and putting
44:35
weight on it, but my left heel, my
44:37
foot would just flat down every time. And
44:39
I guess that's something called foot drop, where
44:41
like the muscles in your foot can't hold
44:43
themselves up. One thing led to another.
44:46
It ended up being four years of doctor appointments because
44:48
every time I would go to a doctor, they
44:50
couldn't quite pinpoint what was going on.
44:53
Like they knew the nerves in my
44:55
left foot weren't working properly. But
44:57
the rest of my body seemed to be
44:59
working just fine. And so it really wasn't until
45:02
beginning of last year, beginning of 2022 that
45:04
I started having some balance issues
45:06
and my walking seemed to be getting even worse.
45:08
So I went back in, they
45:10
ran all the same tests again, and
45:12
they saw that I was now having issues in
45:15
not just the left foot, but also my right
45:17
foot. And so at that
45:19
point, they were able to say like,
45:21
okay, you are progressively having like this
45:23
motor neuron issue, most likely
45:25
ALS, we're gonna put you in touch with
45:27
an ALS clinic. And it was
45:29
shocking. I mean, four years of testing and
45:31
hearing nothing exciting. I kind of just got
45:33
used to going to the doctors and leaving
45:36
with question marks. And so I didn't even
45:38
bring anyone to that appointment where I got
45:40
diagnosed. I just showed up alone, had the
45:42
same test done. I was like making small talk with
45:44
the doctor. I didn't really think
45:46
anything of it until he wheeled up next to me
45:48
and was like, I'm really not liking what I'm seeing.
45:51
And so March, 2022, I was
45:53
finally able to
45:56
get an ALS diagnosis at the age of
45:58
33. terminal illness
46:00
at 33. I mean, how
46:02
do you, on the one hand I imagine
46:04
having an answer is incredibly satisfying. On
46:07
the other hand, it's a devastating one.
46:09
Yeah, it was a bizarre feeling.
46:12
I think my first reaction was
46:14
to Google ALS, which like I
46:16
can't recommend against enough because it's
46:18
terrifying to Google. Basically
46:21
what I learned is that ALS is
46:23
a disease that disconnects your brain from
46:25
your muscles. So there's something that connects
46:27
the two called a motor neuron. Those
46:30
motor neurons die off when you have
46:32
ALS. So basically everything that's allowing my
46:34
brain to communicate to muscle is
46:37
dying slowly but surely. For me
46:39
right now, that means just my legs.
46:41
So my legs are mostly
46:43
paralyzed at this point. I can't move
46:45
them, but eventually that means every
46:48
muscle in your body. So you think of like
46:50
your arms and legs moving, but your
46:52
muscles also control your speech, your
46:55
swallowing all the way to your
46:57
breathing. That's obviously a pretty devastating
46:59
diagnosis in the sense that it's
47:01
expected you live like two to
47:03
five years after diagnosis. I've
47:06
had symptoms for five years now.
47:08
So I'm considered a slow progressor
47:10
and I'm still gabbin' away, which
47:13
is really lucky. So I spent a
47:16
couple months really after the diagnosis just like grieving
47:19
what I thought my life was gonna be. And then
47:21
I just kind of got
47:23
over it. And I was like, if I'm still talking,
47:25
I should start talking about it more. And
47:28
that's been the last like year and a half. And you
47:30
describe on social media where you've been sharing a
47:32
lot of this. Being at a friend's wedding like
47:35
a switch flipped. Will you tell us sort of
47:37
about when you decided to embrace the unexpected circumstances
47:39
your life had taken? So yeah,
47:41
those two months after I got diagnosed, I was
47:43
just eating chocolate in bed. Like that was what
47:45
I was doing. I was like shook. And
47:48
then I had a friend's wedding, a good
47:50
college friend where I was a bridesmaid
47:53
and I was wearing like a bridesmaid's dress that was too
47:56
tight because I had only been eating chocolate for two
47:58
months. And I was using a lot. And
48:00
like, when you see your college friends, you're like,
48:02
I want them to think I'm doing great. You
48:05
know, it's like the high school reunion phenomenon where people like
48:07
lose weight and they get spray tans and
48:09
like fillers and all this stuff. Like I
48:11
was having the opposite moment where I was
48:13
like, my dress doesn't fit. I'm using a
48:15
walker. What else can go wrong
48:18
here? So I was walking into the
48:20
wedding and I turned to my friend and I was like,
48:22
please, please, let's just leave. I like,
48:24
can we just escape? Like, no, I don't notice.
48:26
No, I don't notice. Like it could be really
48:28
embarrassing, but like we could just make it really
48:30
fun. Like what if we just made it really
48:32
fun? So I kind of like faked
48:34
it for the first hour or so. It was like
48:37
a fake it till you make it situation. But a
48:39
couple hours in, I was just on the dance floor
48:41
with my walker and I was like giving people
48:43
walker rides on the dance floor. And we had
48:45
the bride limboing under my walker. And
48:47
I was like, okay, I feel
48:50
okay. Like despite using the same
48:52
walker that the bride's grandmother was
48:54
choosing, like we were comparing models.
48:57
Despite that, I'm still able to have fun
48:59
with this. And so like a
49:01
month or so after that, I downloaded TikTok and
49:03
I was like, let's just keep having fun with
49:06
it and see what happens. You have this great
49:08
attitude and you're sharing the realities of your life.
49:10
And I think people are really, really connecting to
49:12
you and your story. Yeah, I
49:14
think it's a weird juxtaposition of seeing
49:17
a somewhat young face
49:19
talking about dying soon.
49:23
I don't feel like I'm going to
49:25
go tomorrow by any means, but knowing
49:28
I have a disease where there's only
49:30
one possible outcome, I think
49:32
is interesting for people to see. When
49:34
I pictured ALS, I pictured
49:36
like old grandpas. I pictured, I mean, Stephen
49:38
Hawking and Lou Gehrig were both not super
49:41
old, but I think beyond that, the only
49:43
people I knew were like grandparents
49:45
and 80 to 90 years old. I
49:49
pictured men. Everything I knew about ALS
49:51
was wrong. I thought it was like a genetic thing. I
49:53
thought it was super rare. I thought it was only affecting
49:55
old people. And I was just every single
49:58
thing I thought was incorrect. I
50:00
want to be like a more
50:02
approachable face to this disease because
50:05
most people when they get diagnosed
50:07
really don't have time. They lose
50:09
their voice quickly, they die
50:12
quickly, it's a very quick death sentence. And
50:14
so I've been given this disease
50:17
but knock on wood like the best
50:19
possible case for this disease. So
50:21
I kind of have to speak because no one else
50:24
is able to. So you actually educate us
50:26
a little bit. Are there a lot of young people who are
50:28
getting ALS? Can you give us sort of some of the numbers?
50:31
I wish I could give numbers. It's
50:34
mostly anecdotal. ALS is
50:36
not like a legally registered disease.
50:38
So like you don't actually
50:40
have to say you have ALS
50:43
the way like you do with cancer
50:45
where like doctors record it and it
50:47
goes into some statistic number. ALS
50:50
does not have that. What
50:52
I can say is I'm in a group
50:54
of young women who are diagnosed with ALS before
50:56
the age of 35. I
50:59
think there's like 80 members right now
51:02
and it's growing at about like
51:04
two women a month. So
51:06
it's definitely not the old person's
51:08
disease we all think it is. I do think
51:10
like it's more likely that you get it I
51:13
think between ages like 50 and 70 but
51:16
like it really does not discriminate as
51:18
a disease. It can strike anyone, anytime,
51:20
any genetic background
51:23
like it does not discriminate. What
51:25
are some of the concerns of the young women
51:27
in this group who are in their 30s and
51:30
just you know living their lives with ALS? Yeah,
51:33
well when I first got diagnosed I was
51:35
put in touch with a local support group
51:37
and I joined that support group and it
51:39
was me and mostly older men. There were
51:42
a few like middle aged women but I
51:44
remember joining and being like how
51:46
did I get here? Like how is
51:48
this my cross to pair? It
51:50
just felt like I was like did
51:53
lightning strike here or is this like
51:55
not representative? And so I went in
51:57
search of a group that had younger.
52:00
faces and was put in touch with this group,
52:02
her ALS story. And we
52:04
have a group chat. I would say like
52:07
it's just been really nice to talk to people in
52:09
the same stages of life. Like
52:11
some people are single
52:14
and dating. Some women are newly
52:16
married or like they got married
52:18
and got diagnosed two weeks later.
52:20
We have a girl who came back from
52:22
her honeymoon and started flirting her speech and got
52:24
diagnosed. It's just like not what
52:26
you expect your 30s or
52:29
sometimes 20s to be. Like you think you
52:31
have this huge runway of
52:33
a future and then this comes and
52:35
just tops that future off. So
52:37
a lot of it is you know
52:40
questions about relationships. There's obviously
52:42
like the medical side where
52:44
we talk about symptoms and
52:46
management. But I think a lot of
52:48
it is just like bonding over dark
52:50
humor at this point because like what else
52:53
can you do other than laugh if you're
52:55
being told like you're in your 30s and
52:57
you're dying. Which is like a blunt way
52:59
of what the doctors say. They never say
53:01
it like that but all of us
53:03
just kind of like it's not even commiserating.
53:05
I think we're honestly finding
53:08
more joy in life knowing that
53:10
it's probably going to be shorter and
53:12
we just kind of bond over it. That's
53:15
incredibly profound. Also very
53:18
Jewish. Just saying. No wait which part?
53:20
Just the idea of dark humor and
53:22
like making light of a
53:24
terrible situation when there's nothing else you
53:26
can do right. You know at least
53:29
I'm gonna laugh about it and I'm
53:31
gonna take control over it by making
53:33
light of it in a way. Yeah
53:35
it's like what else can you do?
53:37
Like I'm sure there are people with
53:39
ALS who just grieve and they're depressed
53:41
and like that's fair too. But after
53:43
like two months of doing that I
53:45
was like okay there's you know if
53:47
I've got five years left like I
53:50
really don't want to spend it in this
53:52
bed eating more M&Ms. And so I just
53:54
kind of like started laughing about it and
53:56
haven't really stopped since. And I will say
53:59
like the comedy writes itself. Honestly, like
54:01
there's some stuff with ALS where you
54:03
just have to make it a joke
54:05
because it's unbelievable. Like I was walking
54:07
out of a restaurant with one of
54:09
my best friends. We went into the
54:11
bathroom and we came out. I was
54:13
using my walker and there was
54:15
like a trail of toilet paper attached to my
54:17
walker. And I like looked
54:19
at my friend and she was like, God really
54:21
is not giving you a break. Like he just
54:23
said like, let's double down on Brooke today. And
54:25
I was like, how is this my
54:27
life at 30? Like you would picture your like
54:29
glamorous place, you know, in the future when you're
54:31
like, Oh, in my 30s, I'm going to have
54:33
my life together. I'm gonna have a family. And
54:35
I was like, I'm trying to figure out how
54:37
to get toilet paper off of my walker. Like,
54:40
can I break? The work you do is so
54:42
inspiring. It's also taken you to some pretty amazing
54:44
places. Will you tell us a little bit about
54:47
some of the places you've been, places you've spoken,
54:49
places you've been interviewed? The first huge
54:51
one was the Today Show that they
54:53
split into my DMs. Like that's how
54:55
that all happened was the Today Show
54:57
DM'd me. But then in the last
54:59
month, it's been like ALS event
55:03
season. A few weeks ago,
55:05
I spoke at the ALS
55:07
TDI event. And they put me
55:09
like right before this really inspirational speaker.
55:12
And I was like, screw that,
55:14
like, I'm not gonna be able to compete with her. So
55:16
instead of doing any kind of inspirational
55:18
thing, I decided to do stand up
55:20
comedy, which I've never done before. And
55:23
I just like wrote down all of my jokes and
55:25
sent them to a couple of my friends who are
55:27
comedians. And I was like, Can you revise this? And
55:29
yeah, I just like did an ALS version
55:32
of stand up comedy. And then
55:34
last week, and I got to be a
55:36
square in an ALS Hollywood squares event. I
55:39
never watched a show. I'm sure you didn't either. It was before
55:41
our time, but it felt pretty cool. I
55:43
was like, I am a star now. I'm in I'm
55:45
a square. That's amazing. So can you
55:47
tell us a little bit about the limp brisket
55:49
limp brisket? We talked about how to say this
55:51
last time, the limp brisket universe. My
55:53
first symptom was a limp. I was trying
55:55
to think of like good usernames on tik tok.
55:57
And everyone on tik tok has really dumb usernames.
56:00
like it's a place where usernames usually don't
56:02
matter. Like I get comments from
56:04
like, I don't know if this is appropriate,
56:06
but like Lord Farquaad's left nut will comment
56:08
on my, and I'm like, that's
56:10
a username? Like, how is that possible? And
56:13
so usernames don't have a ton
56:15
of significance, but I was trying to think of
56:17
a really good like ALS pun or like motor
56:19
neuron type pun. And since I was limping, I
56:22
was like, oh, I'll just do like, instead of
56:24
limp-biscuit, I'll just like throw my name in the
56:26
middle of it and make it like limp-bruise-kit. And
56:29
now it's been like a year and a half
56:31
and I've like fully committed to the bit. Limp-biscuit's
56:34
like nobody's favorite band. Gen
56:36
Z doesn't even know who it is. Like, I'm
56:39
like, I don't know that this is the right
56:41
choice, but we're sticking with it. But
56:43
I like it, it's catchy, and there's merch, which
56:45
is really the most important thing. I
56:48
worked with this company Bonfire that like will
56:50
donate proceeds to an organization. I was like,
56:52
oh, that's perfect. And they helped
56:54
make me like a band style t-shirt. So
56:57
it looked like a limp-biscuit t-shirt, it
56:59
said limp-bruise-kit, and then on the back it said like keep rolling,
57:01
rolling, because it's one of their songs.
57:04
So will you tell people how they can
57:06
follow you, get your swag, your merch? I'm
57:08
limp-bruise-kit across all platforms. And the
57:10
link is in my bio, it's just
57:13
like a bonfire.com/limp-bruise-kit, if anyone is
57:15
curious. Will you spell that for
57:18
our listeners?
57:20
L-I-M-P-B-R-O-O-Z-K-I-T. If
57:22
our listeners want to learn more about ALS, where should they
57:25
go? They shouldn't Google it, but where
57:27
should they direct them to someplace? Don't Google it. Well,
57:29
I would say if you have it, don't Google it.
57:31
Or if you think you have it, don't Google it,
57:33
because you'll convince yourself you have anything if you Google
57:35
it. Whenever people ask me, I'm
57:37
like, I have two recommendations for you. One,
57:39
if you get diagnosed, find a support group.
57:41
And that's for anything, like ALS, not
57:44
ALS, like whatever it is, support
57:46
groups will make you feel so much better
57:49
and so much less alone. But the
57:51
second place, now there's a
57:53
website called Roon, R-O-O-N
57:56
as in Nancy. It's
57:58
an app that you can download to your. phone or
58:00
its website. And it's basically
58:02
like the place you should
58:05
go to navigate ALS, like they
58:07
recruited a ton of us, people
58:09
living with ALS, top
58:11
doctors, top providers, caregivers, and
58:13
they interviewed us with like 100 questions
58:15
each and just made little clips of
58:18
all of our answers. So you can go
58:20
in and do like, I was just
58:22
diagnosed, what do I need to know, type
58:24
of guide and it'll guide you through all
58:26
of our videos. So it's a lot less
58:28
overwhelming. And a lot less
58:30
scary. Like I think with Google, they just give
58:33
you statistics. Like if I had looked at Google,
58:35
I'd be like, Oh, I should have been dead
58:37
three years ago. But if you
58:39
go on to rune, it's a little gentler
58:41
and you can understand like, how
58:43
to actually navigate the disease. And
58:46
as a Gentile, I know we've decided that you're
58:48
Jewish, we've taken you. I don't know how you
58:50
feel about that. But we've we've claimed you. You
58:52
did have a Gentile of the week question for
58:54
us. I do. What
58:57
celebrity like theft embodies Jewish
58:59
culture in your mind? I
59:01
said Adam Sandler last time and I really stand by it
59:03
because he's just like a big dewy
59:05
Jew, you know, like he's like, got
59:07
that like schlubby dad thing. He's like
59:10
he owns it. He does these
59:12
Jewish movies, the Hanukkah song, like I think
59:14
he's very in your face Jewish. And I
59:17
like, I think more than ever, we need
59:19
that like, super mainstream, funny,
59:22
pop culture icon at this point,
59:24
who doesn't ever shy away from
59:26
his Jewish ness. What's your answer?
59:29
I should I should say Josh, because he's not
59:31
here. But also how do you fill out Larry
59:33
David is my answer. Like it's more of a
59:35
question post back. I think he's another great answer
59:37
here. I found like, I don't like watching Curb
59:39
Your Enthusiasm. It makes me very uncomfortable. That's how
59:41
my boyfriend feels about it. He's like, I get
59:43
a pit in my stomach when I watch. I'm
59:45
just like, Oh, yeah. I love it. But look,
59:47
I'm not surprised that you love Larry David your
59:50
whole like you've been talking this whole time about
59:52
like, looking at dark things
59:54
and finding humor looking at like, uncomfortable,
59:56
bad negative situations and just being like,
59:58
this is so absurd. I have to
1:00:00
laugh, which is like totally the Larry David thing. I
1:00:03
feel like you should be on an episode. I'm
1:00:05
down. What's something very horrible he could do
1:00:07
in terms of like the things you experience
1:00:10
from people like not understanding or not well
1:00:12
accommodating. So in my like stand
1:00:15
up, my sit down stand up,
1:00:17
I did my riskiest joke, which
1:00:19
actually got the most laughs was
1:00:22
MS has like Selma Blair and Christina
1:00:24
Applegate making it look super chic. And
1:00:26
like all these millennials are looking to them being
1:00:28
like, okay, I like I could fuck with MS.
1:00:30
Like they're like walking with the president with their
1:00:33
canes and like getting their stars in the Hollywood
1:00:35
walk of fame. It's like, like a
1:00:37
big MS is doing something. But
1:00:40
with ALS, like we really
1:00:43
don't have that. And
1:00:45
people say like, Oh, well, you guys have
1:00:47
Stephen Hawking, which sure, but like he didn't
1:00:49
make ALS cool in my mind. Like he's
1:00:51
a genius. He's a legend. But like, did
1:00:53
he make ALS cool? And so
1:00:55
then I went on to be like, I
1:00:58
would never wish ALS upon anyone. But
1:01:01
if I had to pick like, if
1:01:03
a Kardashian got ALS, like I would
1:01:05
be saved in a week, like they would,
1:01:08
Chris Jenner would take this disease down in like
1:01:10
no time. And so I feel like
1:01:12
Larry David could do something where he's like wishing ALS
1:01:14
upon someone in order to help the disease. It
1:01:17
was a bold joke. Luckily, I was in a room
1:01:19
full of people who had experience with
1:01:21
ALS. And so like, no one took it
1:01:23
in a bad way. But when I posted
1:01:25
it on TikTok, I got a couple like this is truly
1:01:28
true. No,
1:01:30
that is amazing. That is brilliant. And I feel like we
1:01:32
can make this this this bit happen for
1:01:34
enthusiasm. We're like he and you are in a room
1:01:36
trying to figure out who the celebrity should
1:01:39
be. Who's going to be like the
1:01:41
face of this? Yeah, I mean, there's not yeah, there's
1:01:43
there's not like a short list of people that like
1:01:45
I've thought about like, I wouldn't wish it. But like,
1:01:47
I just think about if they were to get it,
1:01:50
wouldn't that be really helpful for the group?
1:01:52
But we have you Brooke E. B. We
1:01:55
have you and on that you are chic.
1:01:57
You are fun. You make good videos. You
1:01:59
got the Jokes. Got jokes.
1:02:01
Yeah. Brooke Eby, thank
1:02:03
you for being on Unorthodox.
1:02:06
Our listeners can follow along
1:02:08
on Instagram and TikTok at
1:02:10
LimpBruzkitt. That's L-I-M-T-B-R-O-O-Z-K-I-T. Thank you
1:02:12
so much. Perfectly pronounced. Thank
1:02:15
you. All
1:02:23
right, time for some mazel tubs. Who wants to kick
1:02:25
us off? I've got a quick
1:02:27
mazel tub to my favorite Simpsons character,
1:02:30
Ned Flongru. It's
1:02:32
been a tough episode for him. Just a
1:02:34
little hat tip, not an anti-Semite. Boys, we're
1:02:36
Jewish now. Ohio! So
1:02:39
white! In fact, probably a
1:02:41
file a Semite. So in
1:02:44
a note of atonement, while I take back
1:02:46
nothing I've ever said about Belgium, as listeners
1:02:48
of the show know, I did make the
1:02:50
shuva. I did repent when it comes to
1:02:52
ice hockey, a sport which I
1:02:55
used to say unkind things about and
1:02:57
were taking the task and now I'm
1:02:59
a big fan of. So my mazel
1:03:01
tub this week goes to New York
1:03:04
Rangers defenseman Adam Fox, who is spreading
1:03:06
some shmear. He partnered with Brooklyn Bagel
1:03:08
and Coffee Company to create a special
1:03:11
video series called Bagels and
1:03:13
Fox. Because of course, it needs to
1:03:15
have a pun in the title. Quote,
1:03:17
as a Jewish kid from Long Island,
1:03:19
a bagel partnership is something I'm extremely
1:03:21
excited about, said Fox, thereby confirming every
1:03:24
stereotype of budgets you ever had.
1:03:26
He will now also have his
1:03:28
own bagel at their stores called
1:03:30
the Foxy. It is a Sesame
1:03:33
bagel with get this, fried eggs,
1:03:35
lox, cream cheese, and tomato. Bold
1:03:37
move there, the eggs and the lox. I love
1:03:40
it. Adam Fox, mazel tub. Well,
1:03:42
that is amazing. I have a belated
1:03:44
birthday mazel tub to my aunt, Pam
1:03:46
Harris, super listener, super supporter of this
1:03:48
show and of everything that I do.
1:03:50
And I just want to say happy
1:03:52
birthday, Pam. Unorthodox
1:03:56
is a production of Tablet Studios. The show is hosted
1:03:58
by me, Stephanie Botnik with the L.D. and
1:04:00
Joshua Molina. We're produced and edited by Josh
1:04:02
Cross, Robert Scaramuccia, Quinn Waller, and Ellie Blyer,
1:04:04
and our team includes Tanya Singer, Courtney Hazlett,
1:04:07
and Daron Ruskay, with help from Sam Hacker
1:04:09
and Jordana La Rosa. Our episode art is
1:04:11
by Esther Werdiger, our logo and swag is
1:04:13
by Jenny Rosbrook, our theme music is by
1:04:15
Gollum, and our news and mailbox themes are
1:04:17
by Steve Martin. We'd love to hear from
1:04:20
you. Send us emails at unorthodoxatabitmag.com. Years later,
1:04:22
respond to them and tell us that you
1:04:24
were wrong or actually,
1:04:26
more likely, tell us that we were wrong. Leave
1:04:28
us a message on our listener line, 914-570-4869. Until
1:04:33
next week, shalom, friends.
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