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Surgery Publication Vacation

Surgery Publication Vacation

Released Tuesday, 16th April 2024
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Surgery Publication Vacation

Surgery Publication Vacation

Surgery Publication Vacation

Surgery Publication Vacation

Tuesday, 16th April 2024
Good episode? Give it some love!
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Episode Transcript

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0:00

- A lot of things are happening. A lot of things going down. Good stuff.

0:06

Good stuff is happening. Good things going down all around.

0:13

Thank you for tuning into the, what's the matter

0:16

with me podcast. I had surgery, I went on vacation.

0:23

I'm about to become a published author.

0:28

You are tuned into the What's the Matter with me podcast.

0:33

My name is John. I'm 44 years old.

0:36

Husband, father of two, small business owner,

0:40

radio DJ, podcaster.

0:44

I have multiple sclerosis trigeminal neuralgia.

0:49

And I made this podcast to share what I'm going through.

0:53

Thank you for tuning in. It's, what's the matter with me time, y'all? Okay.

0:59

Surgery, vacation, published.

1:02

Oh, hey, first of all, subscribers,

1:05

get the selfie for as long as we all live.

1:10

It's a lifetime subscription.

1:15

It reminds me, I gotta take a selfie.

1:19

I always forget to like comb my hair

1:22

and do the obvious stuff. And I'm like, okay, let's photograph,

1:26

let me photograph myself. Think my glasses are all dirty. Oh, popping

1:33

- Hot sauce. It's the best hot sauce hopping. Hot sauce.

1:39

It's the best sauce in the world. The world.

1:44

I'm telling you, - That mission that I began a few episodes

1:49

back is happening.

1:53

Yeah, so I've been talking about publishing poetry

1:59

on the podcast since like 2021,

2:04

maybe before even. But I, I specifically in the, in the,

2:10

can You Eat Blood episode from Thanksgiving.

2:15

In that episode, I give a shout out to Joe

2:20

and he's like my load star of copying Joe

2:25

out of, out of juvenile competitiveness

2:29

and says here in, uh, the right off the top

2:33

of Can you Eat Blood? I'm talking about Joe.

2:36

I say, Joe played guitar in my high school band

2:39

and now he's a published poet.

2:42

So that, that's something I'm trying to emulate.

2:45

Anyway, it's gonna happen soon

2:50

since we were all sitting around eating blood.

2:52

That's, that's when I decided, yeah,

2:57

glasses are dirty. So, so what do you gotta say about it?

3:02

What do you think about it? What are you going to do about it?

3:05

Uh, what do you, let's give some shout outs.

3:09

I want to give a shout out to Marsh

3:13

Marans Pet Rat. This dude is a hockey, what do they call it?

3:22

A hockey s poster. Self-described.

3:26

I'm a hockey s poster, and he was diagnosed with ms

3:32

and he has to wear an eye patch.

3:34

He's having trouble with his eye.

3:37

And, uh, so me too, man, I'm having trouble

3:41

with having dry eye and so through all this health stuff.

3:48

And so I, I was like, oh man, I, I started writing him.

3:52

I was like, it's a long slog. You know?

3:56

He, he kind of started posting about having MS

4:00

and also about hockey, able to check out

4:05

a weird culture of people on Twitter who

4:10

kind of say meaningless,

4:13

provocative things about hockey, not hockey,

4:17

but really close to hockey is rocky

4:22

Shout outs to Rocky. That's boxing.

4:26

Boxing, different different sport shout outs

4:30

to cousin Eric and Tracy.

4:35

We went to Sacramento on our vacation. We'll get into it.

4:41

Wanna give a shout out to Dax Pearson?

4:45

Dax agreed to let me email him

4:49

and I'm kind of lagging on writing the questions.

4:52

I've been listening to his newest record,

4:57

which is on dark entries

5:00

and it's called Nerve Bumps,

5:04

A Queer Divine Dissatisfaction.

5:08

He's a disabled artist and musician, kind of like me.

5:12

So I was like, oh, let me interview you.

5:15

So coming and he agreed. So coming up, I'll ask, I'll ask

5:21

Dax about some of his story

5:25

and what he's doing. Find out what's up with him.

5:30

Also going to give a shout out to the Sandman.

5:34

The Sandman had a music contribution.

5:39

He sent me the band camp for James

5:45

Wavy, the San Francisco,

5:49

San Francisco dude, I guess they added it

5:53

on KFJC and Sandmans over there.

5:56

He said, Hey, we got this new one. Check it out.

5:59

It was pretty cool. I listened to it.

6:01

I want, I gave you a couple listens, but I need some more.

6:05

James Wavy, snowy Beach is the name

6:10

of the tape, and you can hear it on Band Camp.

6:14

You can buy the digital album. Pretty interesting stuff.

6:19

He's a rapper, but more like experimental,

6:24

pushing at the kind of pre

6:29

preconceived boundaries of being a rapper.

6:33

Cool and interesting. Maybe he could be a published poet.

6:38

I think maybe he could pull it off.

6:43

James Wavy, snowy Beach on Bang Camp.

6:47

I'll put that link. So I, I had surgery, um,

6:52

two weeks ago now, and I had to go off coffee

6:56

and ibuprofen. I was in a lot of pain, um, prior to the surgery.

7:04

And I doubled, I doubled the dosage.

7:10

I doubled my dosage of what I was taking.

7:14

So it was like making me a zombie. It was pretty bad.

7:19

And so then I just kind of cut out a quarter.

7:24

So I was like at 175%.

7:28

I was taking so many pills, I think

7:31

three times a day, two different medications,

7:37

just a lot of it. And I was off coffee.

7:41

I, I had to bring in the coffee,

7:43

but, so I reduced that double medication

7:46

and it returned me somewhat

7:50

to the land of the living. It was pretty tough. I was always in my wheelchair.

7:55

Even in my house. I, I, you know, when you stand up, you, um,

8:02

fire your different muscle groups,

8:07

you know, your quads, your glutes,

8:11

and your abs kind of stabilized your core.

8:17

So when I was on so much nerve,

8:22

the medication I was taking, it's like anti

8:26

epilepsy seizure medication

8:28

because I'm having nerve pain.

8:31

So it would just like suppress my nerves

8:36

and my brain, my central nervous system.

8:39

Everything suppressed. And so it was hard to make these muscle groups

8:47

contract and work together. And I have weakness on my right side and my leg and my arm.

8:54

So when I stood up, I was like so drugged out.

8:58

I had to like, pull myself up.

9:01

Like even to get up from my desk chair, I had to use my arm,

9:06

my left arm to like pull myself up onto the desk

9:11

and almost with my stomach on the desk.

9:15

And then I got my cane. So it was like my arm was doing a lot of work

9:21

that my right leg and my right glutes and quads

9:26

and abs weren't firing.

9:29

So I was falling really often.

9:33

It was hard to get up in the middle of all that.

9:38

I was accepted on a piece of writing

9:43

and I signed an an for the first time.

9:47

I had a signed agreement. And so the, that will,

9:53

that'll come about soon. But I, I did DocuSign.

9:58

I was like, I'm gonna publish this thing. It's official.

10:03

So on the day when I would usually be recording two weeks

10:08

ago, I had surgery, my third

10:12

RF Rise autotomy in advance of surgery.

10:17

I bought some tunes, some music.

10:20

I had to like, give myself a reason to live.

10:24

I bought Drunken Love by Elvin Brandy

10:29

and Lord Spike Heart. And that is a weird, uh, album.

10:34

I like it, it reminds me of a band I was in in college.

10:38

It's called Hammer and th Rock with my buddy Anthony.

10:43

And it is just like experimental, far,

10:46

far out dance music, kind

10:49

of this stuff.

10:52

You know, we don't compare to this nowadays.

10:55

This this is kid stuff, oven Brandy

10:59

and Spike Heart Oven. Brandy is from Whales Ni Nairobi,

11:06

rapper, producer, Nairobi based rapper, producer,

11:11

Lord Spike Heart. So they had some weird, pretty good music.

11:18

I, I enjoy it. And then I got the G Trilogy

11:24

by DJ Rivy, DJ Marillo

11:29

and DJ Scoffing.

11:32

So this is just some far out electronic music

11:37

from Durbin Durbin's,

11:41

highly influential Gumm sound.

11:44

Three separate artists from South Africa's fertile

11:48

musical landscape. A fresh wave of gumm innovation.

11:54

So I got some tunes, spontaneous musical invention

11:59

that came out on recital. And I'm a sucker for all the recital records

12:06

releases that have books. And like this is a double LP edition

12:12

of three 50, a 24 page booklet

12:17

of libretto scores, program notes, introduction, written

12:22

by Alvin Lucier. So got anyway, got myself some tunes

12:28

'cause I'm like, I'm gonna come back from surgery.

12:31

So I this, when I came back from surgery, I, I,

12:35

I made a note back from surgery

12:39

and my face feels different talking and eating

12:43

and I'm sure other things that I'm not noticing or affected,

12:48

but that's always true. It's a matter of deciding how I feel about the things

12:54

that are different. But first I have to accept them.

12:59

So my face felt numb and it still feels numb.

13:03

It feels different like it day.

13:06

That's kind of the scary part. 'cause I'm like, okay, when is this numbness gonna wear off

13:12

and it's gonna really hurt. That's kind of, I have to live there and be there

13:18

and you know, this is my fifth time having surgery.

13:23

So they drilled the hole in the back of my head

13:26

and then had another surgery there.

13:28

Then this one that I just had was the third time in

13:33

through the front of my face.

13:36

It's an RF rises outta me. But instead of keeping me awake

13:40

and like a electrocuting my face,

13:43

they put me under general anesthesia

13:47

and made a, a lot of numbness.

13:50

Like, it's like when I'm in the shower

13:53

and I lean my head back and look up, it's like I have half a head,

13:59

I have half a mouth, I have one eye, one nostril,

14:05

you know, it's like half a chin.

14:08

So I'm like learning how to talk and have diction and you,

14:13

and say words like graduation and diction.

14:18

They're, they're hard words to say

14:22

when you have just, I'm like kind

14:25

of permanently at the dentist's office.

14:29

But I think I hit on something in that note.

14:33

I, I made, it's a matter of deciding

14:36

how I feel about the things that are different.

14:38

And first I have to accept them

14:41

and I think I, I did, I'm doing okay with that.

14:46

You know, every time I try

14:48

and talk, this is the first time I'm trying to speak for

14:53

an extended period of time.

14:55

Thanks for tuning into what the matter with me podcast.

15:01

But I eat, you know, and,

15:03

and eating was pretty hard to figure out at first.

15:07

I was kind of chewing on my molders.

15:11

It's still kind of, I'm learning every time.

15:16

It's like, oh, I can eat like that,

15:19

but I'm having, I'm not in pain.

15:23

I'm having some very like, almost like

15:28

ants on the skin sensation.

15:32

It's hard to, but it's not painful

15:36

and it's only intermittent.

15:39

It only happens now

15:41

and again, something that I notice is,

15:46

and you know, it's not my first rodeo, so

15:51

I've noticed your body, your brain

15:55

has like a body size map in your head

15:59

and it recalculates it.

16:02

It takes time to like

16:06

if your mouth is numb, right?

16:09

When it becomes numb, it feels huge

16:13

and then it gets smaller and smaller.

16:16

Your brain redraws the size map

16:20

and if you can only feel on one half of your mouth,

16:24

well then it draws in for your whole mouth,

16:29

that one half, you know, so you're, it kind of

16:33

changes sensation.

16:36

So I had surgery and then the next day I went on vacation

16:42

and it's like I said, they go in through the face

16:46

and then you wake up with a bandaid on.

16:49

That's it. Nothing, nothing hurts. It was numb.

16:53

So I went on vacation. So let's see, I had surgery, I had surgery

17:00

four days later I had um, infusion

17:05

where they gave me my MS medication.

17:08

And the day after that, it was Tuesday

17:13

of spring break, we went on a family road trip.

17:17

It was pretty cool. So the first night

17:22

we went to the Manteca water slides at the Great Wolf Lodge in Manteca.

17:29

And it's like this child resort

17:32

and it's full of children screaming

17:36

and splashing and that there's a water area, a whole water park area

17:42

and it's all inside. It seems unhealthy but it's like there's water slide.

17:49

So the kids were in, I was like, take me to the bar.

17:53

But I was feeling a little bit better at that point,

17:57

you know, I had had surgery, I reducing medication

18:02

so that reducing both medications.

18:07

So they had a place called the watering hole

18:11

and they served some, they had a whiskey sour,

18:15

I had a whiskey sour there. The kids were went all around going nuts.

18:22

I went to the bed and slept. We go to a DA room.

18:27

So it's like rural in shower

18:30

and how far is this place, Manteca from where we live,

18:36

that was part of this vacation idea.

18:40

Things needed to be not too hard of travel,

18:45

but I wanted to go on like a road trip with the kids

18:50

and go to like a few different places.

18:52

But I wanted to have it be accessible.

18:55

So we were like, forget Airbnb and all that.

18:58

We're going to use a hotel because they'll be a DA set up

19:04

for the a DA. It's an hour and 45 minutes from here,

19:11

about 60 miles due east.

19:15

So we had breakfast here. We didn't stress too hard,

19:18

but I was telling the kids, you know, get your teeth brushed

19:22

'cause we gotta go to the waterpark. So they had waterpark, they had a, a climbing,

19:29

huge climbing structure. The kids loved that. I took pictures of them.

19:35

I rolled around the thing in my wheelchair taking pictures

19:39

of them as they got higher and higher.

19:42

My wife did it. So the family's got guts.

19:46

It was cool. They had a video arcade, they had some

19:52

restaurant with locally sourced ingredients.

19:55

I was like, no way. So a lot of it is they get you in the door and then they try

20:00

and sell you like a $45 ribeye.

20:05

And I was like, I'm not doing that.

20:08

So we went to Mexican food in Manteca and it was awesome.

20:13

It's like we were on a road trip. They have in Manteca.

20:18

The kids really loved it because it was this part

20:23

of our vacation the first night was really oriented.

20:28

And the next beginning and the next day really oriented for them.

20:33

They have, you know, it's like in a nice resort,

20:36

you think there's a store with, with fancy watches

20:41

and handbags and stuff.

20:44

But at this resort there's a candy store with a whole wall

20:49

of different jelly beans.

20:52

So that's what's going on here. It's a kid resort

20:57

and it's like a, um, the Great Wolf Lodge is the chain.

21:02

They have one in Arizona and Scottsdale.

21:06

So you know, but it from here an hour

21:10

and 45 minutes east. And then the next day we went to Sacramento.

21:18

We stayed in at Embassy Suites, Sacramento,

21:23

riverfront, front promenade, close to Old Sack.

21:28

You know, I love Old Sack. So we were there for two nights.

21:33

We went to the hotel bar. There was something wrong with the room.

21:37

One of the a DA bars wasn't anchored into the wall.

21:42

So like one of the first things I did was roll over there,

21:46

try and get up on it and pull it all out the wall

21:49

and none of the screws were anchored.

21:52

So I'm like, what's going on here? We called down at the desk

21:57

and they had engineering crew go in there and fix it.

22:01

It took a couple hours. But that's the kinda thing, like if that had happened at an

22:08

Airbnb and stuff like that has happened to me at, at

22:13

one of these kinda non-hotel type places.

22:19

It can take a long time to get the concierge

22:23

to get the um, people together.

22:26

And you have, I have kids so I can't really spend all

22:31

that time doing it. So my cousin Eric

22:34

and Tracy, they live in Sacramento.

22:39

We met my cousin Eric in Lotus, California

22:45

and we went on a wheelchair accessible hike

22:50

in the Dave Moore nature area.

22:55

The hike down to the beach was wheelchair accessible.

23:00

'cause then Eric told me, we hit it, it's pretty sketchy.

23:04

I'd like to get sketchy. This was pretty sketchy,

23:08

but we could get all the way down to the beach where the

23:13

American river waterfront was.

23:17

And and the kids enjoyed it.

23:20

They have this rock formation there, the mushroom rock,

23:25

the mushroom rock. And it's just a big old weird looking rock.

23:32

You're like, what happened? Usually a rock is pretty solid, but something happened here.

23:38

It was kind of an old trail with stone walls.

23:43

Somebody laid stone walls to get it down to the beach.

23:47

But there were big ruts and branches falling down.

23:51

So it was kind of sketchy getting down there.

23:54

Once we had figured it out, we going back up was easier

24:00

on family vacations. I always find myself on these wheelchair accessible

24:06

or these trails in my wheelchair

24:09

and the wheelchair is like sliding around in there

24:12

because it's not quite graded.

24:17

Something that was graded and overall safer

24:22

because it was inside. We went to the Crocker Art Museum

24:28

that Crocker was the general council

24:33

for the railroad and he had this immense for

24:38

and all these goods

24:42

from all over the world. Then his house was donated

24:47

as an an art mu as the Art Museum of Sacramento.

24:53

They have the house, they built a modern

24:56

wing edition. And so the old house is really ornate wood

25:03

and tile floors and these treasures.

25:08

And then the new part. So the, the house dates from 1872

25:15

and the new wing opened in 2010.

25:20

They got Japanese ceramics in their

25:24

pre-Colombian sculpture. Cool stuff. I like the museum.

25:29

I have a good time there 'cause I think it's kind of one of the more interesting,

25:36

the art museums that I've been

25:40

to in America, for sure. Painting by Hung Lou passed away.

25:46

She was, um, an instructor for my wife at Mills College.

25:51

We went through the old house. They have these wonderful

25:57

tiles on the floor in the entryway.

26:00

Super impressive tile work.

26:03

Wood, the doors, everything super

26:07

ornate in the old house. We loved it. And then in the basement,

26:12

there's a children's creativity area.

26:16

You know, my kids had fun climbing all over in different colored tape

26:22

and stuff like that. Then we went back and watched Con Air

26:29

and my, my wife enjoyed Con Air.

26:33

We watched uh, a um,

26:36

like a TV edit of Con Air.

26:39

It was on like TNT or whatever, USA or something.

26:44

And so we watched it in the hotel room 'cause we were tired

26:48

after they were the fish and chips at the Bonney there

26:52

and then the art museum. And we were just like, I don't want to go out.

26:56

Like, so we just hung out in there and watched Con Air that we liked a lot

27:03

just because it was like, oh, he's, he's in this.

27:07

Okay. The guy who wrote Conair Conair was produced

27:12

by Jerry Bruckheimer. It was written by Scott Rosenberg who also wrote

27:19

Jumanji Chy came out in 97.

27:24

Calm meanie. John

27:27

Malkovich, Ving Rams.

27:30

Dave Chappelle is in it. Steve Buscemi, Danny Trejo, John

27:37

Cusack, Nicholas Cage, bill

27:42

Ack is also in there. Alright, so it's got everybody

27:47

and their brother, including John Ack

27:51

and his brother Bill Ack.

27:53

Check out Con Air in a a TV edit.

27:57

It was actually pretty entertaining

28:00

because all the gross parts were out

28:03

and since there were so many of them,

28:07

it made the movie almost illegible.

28:10

Hard to understand. Then we went to the capitol building.

28:17

We saw some nice camelia trees.

28:21

There's plenty of them. I photographed them

28:25

because my mom didn't believe that trees could be

28:30

Chas could be trees, but in fact we got pictures with the Arnold

28:36

Schwarzenegger portrait. We went into the legislative chamber,

28:44

looked around the chandeliers, the weird green carpet.

28:49

There were a bunch of closed doors

28:52

and probably stuff was going on behind them.

28:55

And then we went to some Vietnamese food

29:00

in Sacramento. They have, uh, plenty of awesome Vietnamese there.

29:05

My wife got bunk out, which is moon cake.

29:10

It's like a mung bean crepe that you eat it

29:14

with lettuce and herbs. And I got a kind of bum me, which is a sandwich

29:21

and usually I, I thought it would be a sandwich.

29:24

It was called Bum Me, but it had, I was kind of confusing.

29:28

So I ordered it and it turns out it was a loaf of

29:33

bread like you would use for <inaudible>.

29:37

They make a baguette that has rice flour in it.

29:41

It's super light and crispy. So a whole baguette.

29:46

And then this cast iron skillet

29:51

with some eggs in it, some a

29:56

ball of like kind of liver or something, some ground meat.

30:02

Um, like the ingredient and some beef.

30:06

It was like kind of the ingredients of a sandwich

30:10

all being cooked in this cast iron skillet.

30:16

And then I went in on that

30:19

and kind of put stuff from the skillet in,

30:24

broke off bits of bread and ate it like that.

30:29

It was pretty good. They asked the guy at the end

30:31

where I'd never seen it and he said it was common street

30:35

food in Vietnam.

30:39

And in fact that I am going to go

30:42

to this guy's record store. He's a friend of mine, Steve's record store.

30:47

His wife is Vietnamese, he's been to Vietnam.

30:50

And he was like, oh yeah, that's legit. They have that.

30:54

So it was legit Vietnamese food.

30:58

The place in Sacramento was called Saigon Oi.

31:02

And that attracted me because of the punk, uh, nature.

31:09

It's Saigon. Oi, it was pretty good.

31:12

Then we went the next day we went to

31:18

Suso City. My friend Steve has a record store there.

31:23

So we went through there and checked it out, said what's up to Steve?

31:28

Turns out Steve's moving to Davis.

31:31

So maybe I, I I can stop by

31:34

and hang out with Steve next time we go on a family

31:39

road trip, spring break, road trip.

31:42

Then we stayed at the Courtyard Marriott and Larksburg,

31:48

and that's right at Larksburg Landing right across the

31:52

street from all these restaurants.

31:56

We took the kid at kids out

31:59

to this place, farm shop.

32:02

It's like an adult restaurant with a bar

32:04

and everything, you know, fancy. And we ate there.

32:09

A table was at eight, but I feel like we were there

32:13

until super late for those kids.

32:16

I'm pretty amazed that they, they made it,

32:21

they had some cheesy pasta and we had dessert

32:26

and they chose the para sobe, but they pronounced it wrong.

32:32

And so we had a little sobe, it's a French word, we had

32:36

that, but it was so cool. The kids were out until nine 30 at dinner

32:43

for an hour and a half, all adults around

32:47

and older kids. And they really maintained

32:51

and they got the pair of so bay at the end.

32:54

And it was good. There was a pool

32:59

at the courtyard in Larksburg.

33:02

The kids loved that. Everywhere we went, the hotel in Sa, Sacramento,

33:08

of course at the water slides and then at the hotel in Larksburg.

33:14

They were, the kids were in the pool. They rocked it.

33:19

Then the next day we went to Salsalito

33:23

and we had lunch at Scoma,

33:26

which is like right on the waterfront.

33:28

We went shopping for games at a game store.

33:34

Salsa Lido was cool, cool cars driving around.

33:40

It was fun. We found a parking space

33:44

right there on the Bridgeway,

33:48

so parking wasn't hard. And you know, we had a good time walking around Salsa lito.

33:54

We got the ice cream. We took our picture

34:00

and picture out on the pier

34:03

with San Francisco in the background.

34:06

It was totally awesome. And then we came home.

34:10

So that was, that was last week.

34:15

This week so far, the size map is just calculating changes

34:22

in sensation. Yesterday, yesterday, yesterday I drove

34:29

to Oakland by myself

34:31

and I went to a couple of friends' houses

34:35

and I did it all by myself.

34:37

I was gone for maybe three and a half hours.

34:41

That doesn't seem like a big deal,

34:44

but I, for me it was, it was the most, I've been out

34:48

and I haven't hardly been out by myself at all

34:52

for like 16 months, you know,

34:55

after the surgery is like shaking out.

35:00

I've been on a lot, elevated levels of medication.

35:04

Certainly in the last month, I, I doubled it,

35:08

but it, over the past 16 months, I've had

35:13

some amount of pain and I've been managing it.

35:17

So right now I'm, I'm reducing pills,

35:21

so it's getting easier to walk. I can stand on my own two feet and in my brace

35:28

and pick up my cane and I can balance for kind of a while.

35:35

And I'm gonna have physical therapy in a couple weeks.

35:39

And I had my intake appointment before I had the surgery.

35:44

She's gonna be like, what happened to you? You couldn't even stand up.

35:48

That's, you know, at the beginning, at the intake appointment, they're like,

35:52

what do you wanna work on? I'm like, I want to stand up.

35:56

I want to be able to get up after I've fallen.

36:00

I still probably wanna know how to get up after I've fallen,

36:05

but I'm doing okay at standing up.

36:08

She's going to be like, how are you? Even you, they, they were like,

36:13

she was very unsecured or unsure that I'd be able to walk myself at all anywhere.

36:21

So I went to Oakland by myself.

36:24

I walked in and out of my friend's houses.

36:27

One of my friends has big stairs, the other one has

36:32

less stairs, but no hand railing.

36:35

So it's kinda sketchy, you know.

36:39

So I, I wanted to experience that.

36:42

And I did it just yesterday.

36:45

We got the piano tune, so it was like, ding

36:49

and now it's all in tune. It's not beating anymore. I wanna play piano.

36:55

You know, I play piano with one hand.

36:58

So I kind of play the chords one way

37:01

and then I play them another way

37:04

and with only one hand.

37:06

So I can't make chords, substitutions with my right hand.

37:12

So I can't really play in a certain,

37:15

in a jazz style, but I can kind of fiddle around

37:20

and it's a good thing. So, oh yeah, I'm a, a published poet.

37:26

I was like, what am I forgetting? Writings by John Hoffman is live,

37:33

that is my author website

37:37

in advance, in advance of the publication

37:42

of this 50 words story I wrote

37:46

about Cyber Truck Dental, SDRL,

37:52

I'm starting small. I'm, I'm starting with a 50 word story.

37:59

So I made an author website, writings

38:04

by John Winfield Hopin, totally

38:08

uncensored and all the way live.

38:11

So the writing stuff is at jw.

38:16

What's the matter with me Do org.

38:19

So I just kinda made a subdomain of this website

38:25

and next week I should be a published author.

38:30

I think that will happen. But that's something I've been working on.

38:35

It's um, I kind of want to say no more on that

38:40

and say, let's hope it happens, right?

38:43

Knock on wood for that. Thank you for tuning into the, what's the matter

38:49

with me podcast. I had surgery, I went on vacation.

38:54

The writings by John Hopkins site is live.

38:59

Next time we talk, I bet I'll be a published author.

39:03

Knock on wood. Thank you for tuning in.

39:06

I'll check you next time.

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From The Podcast

What's The Matter With Me? Podcast

On the What's The Matter With Me? Podcast, I delve into the intricacies of my journey, navigating life with multiple sclerosis (MS) and trigeminal neuralgia. This platform serves as a conduit for me to share not only the challenges but also the triumphs that come with these health conditions. It's a space where I open up about my experiences, providing insights into the daily hurdles and victories that shape my life.The podcast serves a crucial role in developing my disability consciousness. It's a medium through which I explore and reflect on the impact of these conditions on my identity, relationships, and overall perspective on life. By openly discussing my struggles, I aim to create awareness and understanding, both for myself and for those who tune in.A significant aspect of the podcast is its role in building bridges—connecting me to various facets of my life. One of the primary connections is with my caregivers. I recognize and appreciate the support they provide, and through the podcast, I express gratitude, share experiences, and foster a deeper understanding of the caregiver-patient dynamic.In addition to caregivers, the podcast acts as a channel to engage with healthcare professionals. I share insights into my medical journey, discussing treatments, challenges in managing symptoms, and the evolving nature of living with chronic conditions. This connection with the medical community contributes to a more comprehensive dialogue about the realities of these health challenges.Moreover, the podcast extends its reach to the disabled community. It becomes a platform for solidarity, a space where shared experiences can be a source of strength and inspiration. By being candid about my journey, I hope to contribute to a sense of community among those facing similar struggles.Beyond the realm of health, the podcast connects me to the broader community. It serves as a window into the world of disabled individuals, breaking down stereotypes and fostering understanding. It becomes a tool for advocacy, dispelling misconceptions and promoting inclusivity.As the owner of Hoppin Hot Sauce, the podcast takes on an additional layer of significance. It provides a unique perspective on the challenges faced by disabled entrepreneurs. I share firsthand experiences of navigating the business landscape while managing health conditions. This dual role as a business owner and someone with chronic illnesses sheds light on the resilience and creativity required to overcome obstacles in the entrepreneurial journey.The What's The Matter With Me? Podcast becomes a platform for discussions on disability in the business world. It addresses the need for inclusivity, accommodations, and a shift in societal perceptions regarding the capabilities of disabled individuals in professional spheres.In essence, the podcast is a multifaceted endeavor. It is a personal exploration, a source of connection with caregivers and the medical community, a beacon of solidarity for the disabled community, and a tool for advocating inclusivity in the business world. Through candid storytelling and open dialogue, it contributes to a more informed and compassionate understanding of life with chronic conditions, leaving a lasting impact on both individuals and society at large.

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