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What's Really Going On

What's Really Going On

Released Saturday, 21st October 2023
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What's Really Going On

What's Really Going On

What's Really Going On

What's Really Going On

Saturday, 21st October 2023
Good episode? Give it some love!
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Episode Transcript

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0:00

That. And so it's been stressful and trying not

0:05

to get upset about it is also hard.

0:09

I've been laying awake at night thinking about it.

0:13

Obviously I kept it out of this episode until,

0:19

until I could barely talk about anything

0:24

else. I ran out of what else to talk about.

0:27

So I have to tell you what's really going on is that my son's

0:32

driving me wild and my daughter is watching and learning.

0:37

Of course. Yeah, it's all good.

0:42

It's all good. You are tuned into the,

0:45

what's the Matter With Me podcast.

0:50

The podcast, the dad podcast.

0:56

What I meant when I said that fans of

1:01

what's the matter with me could change the course of history

1:07

in the last episode, I think I made some claims apparently and one of them

1:14

What? We'll get to that You are too needed.

1:18

The what's the matter with me podcast. My name is John.

1:23

I'm 44 years old. Husband,

1:26

father of two small business owner radio DJ

1:30

podcaster, and I have sclerosis in trigeminal

1:37

neuralgia. I made this podcast to share what I'm going through.

1:42

Okay, yo, check me out. It's the, what's the matter with me podcast?

1:48

Check it out at what's the matter with me Talk O R G.

1:53

What I meant in the last episode,

1:56

what I meant by saying that the fans of What's the matter

2:02

because you know it was my 208th episode,

2:06

it seems right that I would go through a crisis

2:12

then and I guess I was like, I should just stop.

2:17

I should delete my podcast. My wife was like, what are you doing?

2:23

And, and then I decided not to and because I'm paid through the

2:29

year and the fans of What's the Matter

2:33

With Me podcast emailed me to be like,

2:38

you shouldn't stop making your podcast. So I what I,

2:44

what I meant, I was talking about the fans and I said

2:51

the fans of What's the matter with Me podcast could change

2:56

the course of history is that there's enough of them

3:01

to form a rock band. And that's what rock bands do, right?

3:08

But there's enough of them. They could be like a big rock band like Blood,

3:13

sweat and Tears. They could belying the Family Stone,

3:19

one of those big rock bands. That's a whole genre.

3:25

We could have a special on the radio of that.

3:28

Just music made by rock bands that are like 10

3:33

people or more. The fans of,

3:37

what's the Matter With Me podcast Could change history.

3:42

That's interesting because the interesting kind of

3:47

claim, because I used to listen to this whacked out

3:53

conspiracy theorist on K F J C when I

3:58

was in high school. He was on after the reggae guy.

4:03

And he would talk about how like, you know,

4:07

Kennedy was killed by all sorts of things that weren't

4:12

Lee Harvey, Lee Harvey Oswald, and you know,

4:16

alternate information. I don't wanna talk it down too much 'cause then people will get on my

4:24

case, the conspiracy theorist, you know,

4:28

it's stuff you don't find in the history books.

4:33

At the end of his broadcast, he would say like,

4:37

you know, the listeners, it's important to listen to this anti-fascist

4:44

conspiracy theory because even the listeners

4:50

of this broadcast could change,

4:53

could be enough to defeat fascism,

4:57

even the listeners of this very broadcast.

5:02

And so I that's true for what's the matter with we,

5:06

we could form a pretty good size rock band tour.

5:11

The world have like a string section.

5:16

What they dig that, what's the matter with me podcast?

5:20

Crazy sound like Parliament Funkadelic,

5:25

the big bands, you know, and I was wondering how many almond brothers there are

5:33

on that note. We took the coffee machine in,

5:38

it's been since last year into August.

5:41

It's this weird garage in Berkeley.

5:46

Should give them a shout out. Canaan Coffee on fourth Street in

5:53

Berkeley. So you have to like book a 15 minute window and you can check your

6:00

machine in. And so I always bring mine or I, what am I talking about? Always.

6:08

One time last year in August,

6:11

not last August, not this August, but last August,

6:17

August, 2022,

6:20

took the coffee machine in to get it cleaned and

6:25

like serviced and they kind of like do all this descaling,

6:30

the boiler back flush and all this.

6:34

And it makes the machine really,

6:37

really hum for a couple of months. And then you get,

6:41

you get used to it. But I think my machine is in pretty good shape because

6:48

of them. So we took it in for the Annie rule once over back flushing.

6:57

They make the water go in the out way and they

7:02

descale the boiler by putting like ci acid

7:07

in it. Coffee talk, come over,

7:10

have a have a coffee sometime all of my

7:15

walking sticks are bent right now. Or they're,

7:20

or something's like bent or the handle is broken.

7:24

So I called in the warrant, I have them all piled up in the corner of my house.

7:31

Like that's useful.

7:35

I have these bent walking sticks and so I,

7:40

I wrote in the warranty on one of them and so I'll get a new

7:44

one next week. What,

7:47

what to do with the pile of bent walking sticks.

7:52

It was cool. They were nice with the warranty.

7:55

I used the Lakey poles to get around.

7:59

Right now I'm using one with like a broken handle that's my backup,

8:05

which I'm not really too keen on that.

8:10

Last week we um,

8:12

DJ Bert was playing a free show at the Golden

8:17

Gate Park Band Shell. And so I was like, cool, I wanna,

8:22

I wanna always get my kids into that they're Asian people,

8:28

that they get some strength from that community being

8:33

part of it. So I wanted,

8:35

as soon as I heard DJ Bert playing in Golden Gate Park free

8:40

show, I was like, definitely we gotta go.

8:45

And it was pretty good. Like they had a wheelchair,

8:49

it's a accessible space. It,

8:52

it was easy to get parking and get in there and there.

8:57

It wasn't that crazy. I thought it was going to be crowded,

9:00

but that's just my fear. The Golden Gate Park ban Shell is nice.

9:07

The Golden Gate Park ban. Shell, I noticed this.

9:11

It had stuff written on it and the Wikipedia page calls it

9:17

Spreckels Temple of Music, Spreckels Temple,

9:21

temple of Music. Also called the Bandshell.

9:26

Constructed in 1900 is in the music concourse

9:31

at Golden Gate Park in San Francisco.

9:34

It was a gift to the city from sugar magnate

9:40

Klaus Freckles and is one of the largest band shells in North

9:45

America. It was pretty awesome.

9:48

I feel like I've been to a show there was more attended,

9:52

this was kind of a rave drumming bass scene.

9:56

We saw the opening acts, um,

10:00

we saw MF Mama and Tic-Tac and we

10:05

were there on the early side. It was like drumming bass jungle.

10:10

And I was like, man in the nineties are back one of NAMI's family

10:16

friends who we, we only really see in a classical classical music environment

10:23

was there. And it was cool to see her and her husband.

10:29

They were there and I was, I was like talking to her husband and I was like,

10:34

well there are two pieces of music and the DJ

10:40

creates a third piece of music.

10:43

And I was there like explaining turntable

10:49

DJs in a very standard way to

10:54

Brad. It was pretty great. So we're not gonna have a coffee machine for like two

11:01

weeks. I'm gonna have a walking stick on Monday and I think I'll

11:08

get rid of one of the bent walking sticks.

11:12

I'm not sure if I'll hide it in the yard or what.

11:17

So we were at the drum and base show. I went there in my wheelchair.

11:23

I was hanging out, there were aging ravers.

11:27

A guy parked in front of me wearing a dec kind vest

11:33

and he had a bike that had a Brooks B 17

11:38

black leather c and a Thompson seat

11:43

post. So it's like 200 bucks of seat posts and bike seat.

11:49

Forget the rest of the bike just to see post and bike

11:54

seat. Very expensive if you're know,

11:59

how about this, you could get cheaper ones.

12:03

I went to the drumming base show in my wheelchair. I was just hanging out.

12:08

We got fish and chips, they had those food trucks and it, it was chill.

12:15

We saw the opening acts like we were there at lunchtime.

12:20

It was pretty great just to hang out there and to see family

12:25

friends. And they were hanging out with John and Coco John got a

12:30

lobster roll and he didn't finish it.

12:35

So he ate like two thirds of a lobster roll.

12:40

Like who does that? Who's like, oh this lobster roll,

12:45

it's too much for me now I'm gonna throw it away.

12:50

That's kids for you. Lobster, lobster roll.

12:55

I couldn't believe it. It was, you know, San Francisco. It's like that.

12:59

Like I asked my wife, I'm like, I'll have a hot dog.

13:03

She comes back with fish and chips. It goes,

13:07

that's what they had. I went to the back there and I went all around this

13:14

area, the music concourse,

13:17

which is kind of a big lawn with some fountains and the

13:22

de Young Museum Hall of Science,

13:26

all that kind of stuff. But I went back to where they had the food trucks and they just had

13:34

the lobster roll truck and the fish and chips truck

13:39

and the bathrooms were super clean

13:44

and there wasn't a line. It was very mellow.

13:48

We were there from like noon to one 30.

13:52

We had to get back 'cause John John had basketball practice.

13:58

So having been writing a lot of poetry,

14:01

but I've been submitting a lot of poetry.

14:04

I got it in my mind from Joe that I would do that,

14:09

that I would submit some poetry. So I just have been kind of doing it every,

14:15

like yesterday day before,

14:18

just kind of grinding away and trying not to

14:23

think it all, just to like assemble the submission cover letter,

14:29

send it in. So I mean I have submitted my poetry to 10

14:35

publications. Of course I would say if I get my po my poetry published

14:41

somewhere else, I'll tell you, I will tell you,

14:46

are you kidding me? I might get a tattoo on my face saying I am a published

14:52

poet. Put that, I'll put that in my,

14:55

my the drawer full of um,

14:58

ideas for facial tattoo quotations. Yeah, I keep that.

15:03

I keep one around. Everyone should have one.

15:07

It's better than getting an actual face tattoo

15:12

of a, some quotation is to have a a drawer full of

15:17

scraps of paper upon which you write ideas

15:23

for things to get tattooed on your face.

15:27

Here's one I submitted poetry to 10 publications.

15:33

That's like, if it doesn't work out, you could do,

15:36

I'm a published poet or you could do,

15:40

I submitted poetry to 10 publications.

15:43

Either way it's probably not a good idea to get a

15:48

tattoo on your face. Something that is good to put on your face and put in

15:55

your face really is hopping hot sauce.

15:59

You gotta play the jingle word up jingle. Jingle for life.

16:08

Hopping hot sauce. It's the best hot sauce hopping hot sauce.

16:14

It's the best sauce in the world. The world.

16:19

I'm telling you. I had to think about what to today to say they, it was jingle for life,

16:25

putting it in your face off in a hot sauce. Always eat it.

16:31

Did you know, I learned today that the number one sandwich

16:38

in America, like the we the most of is a grilled cheese

16:44

sandwich. Number one grilled cheese.

16:49

And you know what, it has got to be the number one hot sauce to put on

16:54

grilled cheese. It's hopping hot sauce.

16:58

So check it out now about hopping hot sauce.

17:02

I'm making more of it. So right now my to-do, my to-do list is

17:11

get chili powder, find out the weight of the chili powder that I need from the

17:18

food scientist. Order new labels,

17:22

new labels for the bottles.

17:25

Like it's just like this every day.

17:28

It'll be produced in November. I got a month,

17:33

I, I didn't get the day yet. I got a month.

17:37

So I'm pretty stoked 'cause we're running out of original

17:42

flavor hopping hot sauce. We're not running out but we're coming to the end of it. But we,

17:49

we very well could run out. Remember we had that supply chain thing? No,

17:55

it's not happening this time, but it could get pretty low. We'll see.

18:02

So every day I'll be on the phone with the hot sauce people,

18:07

the pepper suppliers and the cooks and the food

18:12

scientists and everything. The label makers.

18:18

I guess I'm like, my kids right now are really being non cooperative.

18:25

I they take the pencil outta my daughter's hand and

18:30

that I, that's what I'm thinking about a lot.

18:34

'cause her mom was telling her it's time to put down the pencil and

18:39

say, right now I'm getting a phone call from the labeling guy.

18:44

Hello. I need labels. Anyway,

18:48

I've been holding off, um,

18:52

on talking about how non-cooperative the kids have

18:57

been. Like from the moment they wake up to at night,

19:01

they're really investigating, being non uncooperative.

19:06

It's pretty hard and it's hard to stay cool and stay mellow.

19:12

I'm just trying to focus on the things I have to do,

19:16

like make hots off. I mean obviously nothing on my list was about how

19:24

the kids have been doing. But they have,

19:27

my son hasn't been doing his homework and his

19:32

teachers, I think they're going to give him a like standard not met on

19:38

his quarter 'cause he's not turning in his

19:43

homework and there's like a limited amount that I can force

19:48

him to do that. And so it's been stressful.

19:54

I try not to get upset about it. It is also hard.

19:58

I've been laying awake at night thinking about it and

20:03

obviously I kept it out of this episode until I could

20:08

barely talk about anything else.

20:13

I ran out of what else to talk about. So I have to tell you what's really going on is that my

20:19

son's driving me wild and my daughter is watching

20:24

and learning. Of course. So we had the parent teacher conference last week and

20:33

they were basically, they were like one,

20:37

one of his teachers had him two years ago and said,

20:42

I don't recognize this. The student that's now in front of me from the one I had two years ago

20:50

when he was doing great, now he's just not doing his homework and there

20:57

isn't time. He's like not doing it at all on Monday, Tuesday,

21:03

Wednesday. And then crying about that it's too much to do on

21:10

Thursday and or like not doing it in the afternoon

21:14

when he has hours of time.

21:17

And then it gets to be 8:00 PM and we have to take a bath.

21:23

So every night it's like this crunch and then every

21:28

week it's the same kind of crunch.

21:30

It's like back loading all the work. So it's,

21:36

I mean man, so it's something that is obviously

21:43

really testing both of us, my wife and I.

21:47

So I try and be supportive.

21:51

Try not to get upset, but it's now or never, you know,

21:56

there's not time to do the stuff we have to do now

22:02

later. That's why we have to do it now.

22:05

So I'm not that inspiring. Right.

22:08

I'm really tired sounding the way

22:13

it is is I'm like, are you ready to do homework? And then he is just like,

22:18

ah, I mean literally I'm not exaggerating. And then I'm like,

22:25

come on dude, we gotta do homework.

22:28

It's the time we're gonna have dinner in a bit.

22:32

We wanna watch the playoffs maybe, you know,

22:36

we gotta finish our work to do that. Ah,

22:42

and I mean really that's it.

22:44

It just goes on like there's no com it's so draining.

22:50

Ah. And then he's like rendering out his eyes.

22:55

That's kind of the thing he makes, he puts his hands over his eyes and he,

23:01

it's like he's branding out his eyes while he screams and

23:06

it's so draining to be around.

23:09

Maybe I should show him my impersonation. Probably not.

23:15

Probably That won't help things. Well I hope we can get some,

23:20

I don't know how we're gonna break out of this, you know,

23:24

but I hope we can tip out of this hatred and screaming

23:30

and instead be more just doing the work, you know?

23:35

But I'm not sure what's the,

23:39

the thing that makes it like it won't work at all.

23:44

But that's where we're at. It's like he's won't work at all and it's hard to know where

23:51

to go from there. Alright,

23:53

well this is the 30th episode of What's the Matter With

23:58

Me Basically, or So I guess there's that.

24:02

Hope I can get a good night's sleep.

24:05

Gonna have to check you next time.

24:08

Thanks for tuning into What's the Matter With Me.

24:12

Gimme Me an email John j o h n at hopin world

24:17

j o h n at h opp N w l

24:21

d.com. [email protected] I'll give you a shout out, possibly the best,

24:28

most likely, the best shout out you've ever had.

24:33

Next time.

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From The Podcast

What's The Matter With Me? Podcast

On the What's The Matter With Me? Podcast, I delve into the intricacies of my journey, navigating life with multiple sclerosis (MS) and trigeminal neuralgia. This platform serves as a conduit for me to share not only the challenges but also the triumphs that come with these health conditions. It's a space where I open up about my experiences, providing insights into the daily hurdles and victories that shape my life.The podcast serves a crucial role in developing my disability consciousness. It's a medium through which I explore and reflect on the impact of these conditions on my identity, relationships, and overall perspective on life. By openly discussing my struggles, I aim to create awareness and understanding, both for myself and for those who tune in.A significant aspect of the podcast is its role in building bridges—connecting me to various facets of my life. One of the primary connections is with my caregivers. I recognize and appreciate the support they provide, and through the podcast, I express gratitude, share experiences, and foster a deeper understanding of the caregiver-patient dynamic.In addition to caregivers, the podcast acts as a channel to engage with healthcare professionals. I share insights into my medical journey, discussing treatments, challenges in managing symptoms, and the evolving nature of living with chronic conditions. This connection with the medical community contributes to a more comprehensive dialogue about the realities of these health challenges.Moreover, the podcast extends its reach to the disabled community. It becomes a platform for solidarity, a space where shared experiences can be a source of strength and inspiration. By being candid about my journey, I hope to contribute to a sense of community among those facing similar struggles.Beyond the realm of health, the podcast connects me to the broader community. It serves as a window into the world of disabled individuals, breaking down stereotypes and fostering understanding. It becomes a tool for advocacy, dispelling misconceptions and promoting inclusivity.As the owner of Hoppin Hot Sauce, the podcast takes on an additional layer of significance. It provides a unique perspective on the challenges faced by disabled entrepreneurs. I share firsthand experiences of navigating the business landscape while managing health conditions. This dual role as a business owner and someone with chronic illnesses sheds light on the resilience and creativity required to overcome obstacles in the entrepreneurial journey.The What's The Matter With Me? Podcast becomes a platform for discussions on disability in the business world. It addresses the need for inclusivity, accommodations, and a shift in societal perceptions regarding the capabilities of disabled individuals in professional spheres.In essence, the podcast is a multifaceted endeavor. It is a personal exploration, a source of connection with caregivers and the medical community, a beacon of solidarity for the disabled community, and a tool for advocating inclusivity in the business world. Through candid storytelling and open dialogue, it contributes to a more informed and compassionate understanding of life with chronic conditions, leaving a lasting impact on both individuals and society at large.

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