Encephalitis Survivor
Where Are My PillowsEpisodes
Episodes of Where Are My Pillows
Mark All
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It’s been a slice. Thank you to everyone who’s tuned in! For those of you in the midst of a challenging journey right now: know that you’re not alone. Keep going, don’t give up, and don’t lose hope ❤️-----This segment concludes the World Ence
For some encephalitis patients, finding good medical care is half the battle (or more) towards getting on the road to healing. Many doctors simply lack adequate knowledge or expertise to effectively diagnose and manage this condition. In today’
From cutting-edge research shared by encephalitis experts, to inspiring stories from patients and caregivers, #WEDConf2021 was a day to remember! Shoutout to the Encephalitis Society, the AE Alliance, the Anti-NMDA Receptor Encephalitis Foundat
Most likely, recovery will NOT be linear, pretty, or fast. From one encephalitis survivor to another: don't disregard your mental health, and allow yourself time and patience to recover physically AND psychologically from surviving encephalitis
If neurological or psychological issues are impairing your cognition, it’s tremendously helpful to get professional testing done to characterize your level of functioning on a granular level. Why? You can get help from speech/cognitive therapis
World Encephalitis Day: what’s it about? In today’s episode we reminisce about last year’s conference and discuss what’s going down this year for 2021.------This segment is part of the World Encephalitis Day countdown series, which culminates
Schooling, career trajectory, social life, family ties—encephalitis can radically throw all of these things upside down. Despite the disruptive impact it's had on my life, I'm also incredibly thankful to have overcome the worst of it and to hav
What does medical trauma and medical system-induced anxiety feel like? Let me tell you a story…------This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021!You can find more insight into my
Striking gold… with neurologists?!! Yup! In today's holiday podcast edition, we explore some of the wonderful healthcare providers I've encountered during my encephalitis journey.------This segment is part of the World Encephalitis Day countd
The unfortunate reality is that the majority of doctors have inadequate skill and expertise in diagnosing autoimmune encephalitis. Making things worse, few providers will readily admit to this. If there’s one thing to take away from this episo
Anyone with an invisible, chronic illness will relate with the struggle of not being able to do the same things they were once capable of. For me, I would wonder: how much of my limits were due to being lazy vs. being sick? Now that I’m in reco
Autoimmune encephalitis therapy: what does that look like? Listen in on what it's like to receive an IVIG infusion, a common ongoing medication used to treat this rare illness.------This segment is part of the World Encephalitis Day countdown
In this birthday podcast, we talk about my career, autoimmune encephalitis relapse, and gratitude for the best gift of all: healing.------This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 20
Fresh out of a hospital stay, I discuss the treatments I was given for my autoimmune encephalitis relapse and how the course of recovery is going.If you’re still searching around for the right medical care or are very early into recovery, plea
Caregivers play such a critical role for us patients. They also go through more than they should have to endure, sometimes without proper appreciation or thanks. In this episode I share some of what my mom and I went through when I recovered fr
Listen to your gut. If your doctor is using the label of "depression" or "anxiety" as a catch-all diagnosis to explain away various other symptoms, keep advocating for further investigations (or find a better doc, if the option is available to
Sometimes your mind gets stuck, but it revs back up again moments later. Other times, your entire existence becomes a trudge through a haze of utter confusion, and all you want is a piece of comfort to hold on to.------This segment is part of
As an encephalitis patient, neurologists can be your best friend or your worst enemy—it’s a mixed bag. Most, unfortunately, do not understand this illness well enough to appropriately address the needs of this unique patient population, and the
Hear me strugglebus to explain how my quality of life has been impacted by autoimmune encephalitis. Note – this episode (as well as several others) was recorded prior to my recent treatments and subsequent healing. I’m pleased to say there have
Your brain is not left the same post-encephalitis, unfortunately. Today we talk about some cognitive struggles, and how they impact the way you interact with the world while in recovery.------This segment is part of the World Encephalitis Day
Don't let this rare illness isolate you from others. Becoming part of some autoimmune encephalitis support groups has not only done wonders for my mental health—it's equipped me with the info I've needed to advocate against dismissive doctors f
Get ready for daily, bite-size podcast episodes delivered straight to you by an autoimmune encephalitis survivor. World Encephalitis Day is February 22, 2021 - let the countdown begin!You can find more insight into my story on my blog, http://
Wondering what life might look like 1 year after autoimmune encephalitis? Have a listen to the thoughts that come to my mind on the anniversary of my discharge last summer 🏥 . Please note that I made this impromptu recording—in 1 take, with
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